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Hi to all,

I'm Steve 50, male from UK. I have been suffering from peroneal muscular atrophy

for 25yrs now. i was told i would be in wheelchair within 5yrs time, and sorry

there is nothing we can do for you so go away. that is the way the doctor came

across to me, no physio or drugs!

luckily i'm still walking, all be it tripping more and have trouble with stairs,

my arms are also very weak now. lately my legs have been feeling numb from my

hips down, is this normal and is there anything i can do to improve my condition

a little, hope to chat to someone soon,

take care all.

Steve

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