Re: Experience with LDM-100

[Guest guest]

,

My son did not ART test well for the Valtrex and there were concerns

so we never did Valtrex. My son tried the high dose Vit A which he

responded negatively to (extremely agressive...definately not my son).

He did OLE (tincture with Ginko), BioPure Stephania, Transfer Factor,

Monolaurin, and Ambrotose (his body Loves this) before starting the

LDM-100. He has very successfully been on/off rotation of approx 60

days on/30 days off the LDM-100 for a about 16 months now. We are

currently on Monolaurin and LDM-100.

I wanted to recommend you read the TACA presentation Dr. Amy Derksen

did last weekend for us up here in WA that's in the files. She lays

out many things including what she has found in regards to anti-

virals. She lists Valtrex as last resort. She lists clinical signs of

Viruses, 2 pages of treating Viruses, and 3 pages of info on LDM-100.

Rita

>

> Hi again. My son is currenty taking Valtrex and I have been reading

a

> lot about LDM-100. For those who have tried both, which product was

> the better intervention for your child?

>

> I am very intersted in the LDM-100 because of its multiple treatment

> possibilities and might be more beneficial since we are now looking

at

> lyme. My son has been a great responder to valtrex but the LDM-100

> might be a better choice. I also worry about the thought of long-

term

> usage and its effects on the liver.

>

>

>

[Guest guest]

Rita- You will have to forgive me if I get any medical terminology

wrong but I am not familiar with this route. Is the anti-viral

protocol you mentioned by an herbalist, naturopath, or a homeopath. It

all sounds very interesting. If I could find a natural route that

would be as effective for him as Valtrex, and kick bacteria's tail too,

I would be very happy!

[Guest guest]

Rita- BTW, I have reveiewed the Files section and I did go through Dr

Derkson's presentation. It was very good. I am excited about learning

all of this. I have discovered a whole new avenue of treatment but it

will take me a little while to learn the ropes! When you think

Kirkmans, think me! :-)

[Guest guest]

Hi ,

My son tried Valtrex first for 6 months then LDM100 for his anti-viral

protocol.

He was not a responder to Valtrex. Furthermore Valtrex + nizoral were

hard on his liver by assesssing few of his liver test results. That is

why I need to look for alternative.

Then I started to look into LDM100 after reading several Rita's posts

in CK2 + MB12 Vlatrex discussion groups. My son stopped valtrex +

nizoral in July & start to use LDM100 in early Aug this year. He had

been on LDM100 for two months then he is now taking a break, will

continue his LDM100 journey in Nov again. With LDM100, he does not

need to take any prescribed anti-fugal drugs such as Nizoral or

Diflucan simply just rotating natural herbs such as Garlic,Caprylic

acid etc.

He responses to LDM100 nicely as comments from ABA tutors & school

teachers are all very postitive.

HTH.

Anita

>

> Hi again. My son is currenty taking Valtrex and I have been reading

a

> lot about LDM-100. For those who have tried both, which product was

> the better intervention for your child?

>

> I am very intersted in the LDM-100 because of its multiple treatment

> possibilities and might be more beneficial since we are now looking

at

> lyme. My son has been a great responder to valtrex but the LDM-100

> might be a better choice. I also worry about the thought of long-

term

> usage and its effects on the liver.

>

>

>

[Guest guest]

,

This is interesting...all 3 (herbalist, naturopath, and homeopathic).

The one that introduced us to the LDM-100 was a herbalist (MSTR degree

in herbology). A group of us in WA state see a naturopath (Dr Amy that

trained directly with Dr Klinghardt). They do A LOT of herbs and

homeopathy in addition to the regular ASD/DAN! stuff. Several of us

started seeing the herbalist in addition to Dr Amy. He is very

international and here for a short time getting his PhD (he has since

left the area). I had hit a viral wall with all the other stuff, so I

asked him if he had anything to push me through this tuff viral layer

I was dealing with. He mentioned the LDM-100 and said he would connect

with Dr. Amy on it (they respected each other and were working

together for our children). They collaborated treatment and he started

my son (one of the first of many in WA to sucessfully use the LDM-100

for anti-viral treatment. This is why Dr. Amy worked with it early on,

has talked with the herbalist and the manufacter, Barlow Herbal. She's

been working with it 1 1/2 years now). We pretty much kept it to WA as

a control group until the beginning of this year when we posted about

it on some of the bigger groups (MB12Valtrex..Lorina showed Stan a

picture of Zander at the DAN! and he was actually asking for more info

before we posted...that's when Lorina & I co-ordinated efforts to help

each other, chelatingkids2 and abmd all had posts put up about it

early this year. You can advance search those groups using LDM-100 and

LDM100 to find out more.) We know these are very new treatments on ASD

children, that children that are not ready for the treatments can have

bad die-off reactions, and that few doctors are trained or accepting

of things this new and therefore many are hesitant to use it. We still

felt it important to put the word out about it. Personally, as new as

it was I had enough good experience with both doctors to trust them,

and am very greatful for them and these treatments, they have helped

my son a lot!

Many times in the LDM-100 treatments we have had to use other herbs or

homeopaths in addition to the LDM-100 treatments, so I would not say

it is a cure all for everything, but for us it sure started the ball

rolling in the right direction and has helped us maintain the

progressive movement forward.

I highly recommend you also review the LDM-100 recap in the files

section and the rash photos on the group before you make any

decisions. It is not a 1st line anti-viral treatment, but it sounds

like you've been on other anti-virals so you should be fine. If your

metals are high, expect to have a metal binders on board (metals will

dump as you kill the virus which will kick up both yeast and

behaviors). Your binders and anti-fungal protocols are important.

Several on this group have research and used it, you'll have good

support on this group. This group is very Beyond BioMedical and we

post/support most on this group because of it's established nature,

progressiveness and well educated participants. If you need anything

just let us know and we'll help the best we can.

All the best!

Rita

>

> Rita- You will have to forgive me if I get any medical terminology

> wrong but I am not familiar with this route. Is the anti-viral

> protocol you mentioned by an herbalist, naturopath, or a homeopath.

It

> all sounds very interesting. If I could find a natural route that

> would be as effective for him as Valtrex, and kick bacteria's tail

too,

> I would be very happy!

>

>

>

[Guest guest]

I am being opened up to a whole new world! This is so cool! My

friend sees a homeopath that she absolutely loves so I have contacted

her (the homeopath)to find out her experience with lyme and what her

treatment protocol is for lyme. Our local HFS has an herbalist that

comes in for consults so I am going to set something up with her as

well. I also sent an email to his DAN to find out where he stands on

this. I am so glad I followed Heidi here or else I would have stayed

in DAN mode forever! Not that it is bad, it brought us a long, long

way and for that I am very grateful.

I was going to ask our DAN to write a lab slip for lyme testing.

Question: No matter where the testing gets done is it recommended to

do the rizol treatment? Will that help testing that would be done

through a lab like labcorp. I want to try to get insurance to cover

the testing. If we get a negative but repsond to treatment I will go

through another lab. Is that an okay plan or am I spinning my wheels?

Our biggest obstacle is definitely die-off. I try to do charcoal

when symptoms are bad but it is hard because he is in school all day

and when he is home I have a hard time finding a 2 hour window where

charcoal can be given. Any recommendations?

Also, for anti-fungal support we do THerbiotic Complete from Klaire

Labs, Diflucan, and Sacc B. We are having die off. If it is yeast I

think it is very slight (I am seeing fuzzy stools) but I really think

the big problem is bacterial (the poops are green).

YOu mentioned metal binders. Would metal binders be low dose DMSA or

Detoxamin? What are some of the groups recommendations?

Thanks for the help. I apologize for my lengthy messages. I have

sure been keeping you all busy!

> >

> > Rita- You will have to forgive me if I get any medical

terminology

> > wrong but I am not familiar with this route. Is the anti-viral

> > protocol you mentioned by an herbalist, naturopath, or a

homeopath.

> It

> > all sounds very interesting. If I could find a natural route

that

> > would be as effective for him as Valtrex, and kick bacteria's

tail

> too,

> > I would be very happy!

> >

> >

> >

>

[Guest guest]

,

#1) I have not personally gone through the lab testing for this

('s was energy and symptom diagnosed). I have read enough from

the list and heard enough in conferences to advise you not to spin

your wheels(unless you have plenty of $'s and time) doing standard

testing without a challenge anti-biotic or specific herbal treatment

first. The best thing I can recommend is check the LIA Foundation

web site for the different protocols:

http://liafoundation.org/

Tami's done a GREAT job of laying this all out.

#2): is also in school. We layed out the best time for

binders to be Right after school....which is 2 hours before dinner

and evening supplements (for the Activated Charcoal). As you saw,

Dr. Amy also recommends other binders, sometimes during heavy detox

we were doing the other binders like Pectosol with the 30 min window

in addition to the Pectosol and Activated Charcoal after school.

Like Dr Amy says...Do as best you can and don't beat yourself up.

#3) Like the Recap in the files mentions, during LDM-100 our

herbalist only recommends EDTA and the milder forms of

chelation...just as a metals binder. Let the body focus on the virus

and bacteria. The body only has so much energy....don't stress it by

trying to pull to much.

I'm glad you had the chance to review both the TACA presentation and

the Recap. Both were put up to help.

Rita

> > >

> > > Rita- You will have to forgive me if I get any medical

> terminology

> > > wrong but I am not familiar with this route. Is the anti-

viral

> > > protocol you mentioned by an herbalist, naturopath, or a

> homeopath.

> > It

> > > all sounds very interesting. If I could find a natural route

> that

> > > would be as effective for him as Valtrex, and kick bacteria's

> tail

> > too,

> > > I would be very happy!

> > >

> > >

> > >

> >

>