Guest guest Posted August 11, 1999 Report Share Posted August 11, 1999 << Mahrya was checked two times. One time by the geneticist and the othr through a research program that we were involved in on mosaic ds. They came up with the same % at both places. Hope this makes sence. >> Hiya Luanne, Thank you so much for taking the time to explain the percentage thing to me! I understand it a bit more (seems pretty complex), but will probably need to read it over a few more times, to get the real gist of it! heehee You mentioned you were involved in an MDS research program! Sounds very interesting. Did you get lots of helpful information or not? There is so little information out there on MDS, that I'm beginning to wonder whether it really exists! I found the name and addy of a woman doctor down in a university in Virginia (I think), who had compiled a study on MDS! I wrote to her, requesting this study, but the mail was returned to me (user unknown). I'm still looking for resources, but have had no luck so far! I think that's so neat that you're enrolling Mahrya in this program, for children who have delays! I think it will benefit her very much, as well as you and your family. I'm still not sure whether I would say anything to these people, because her delay in speech could be the ONLY set-back she ever has.....know what I mean? I guess I'll have to wait and see if I am ever put in this type of situation, to see how I would really handle it! Bree New mommy to , born July 17th, 1999 Mommy also to , age 11, , age 9, and , 9-year-old step-daughter Quote Link to comment Share on other sites More sharing options...
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