Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 SOrry for all the questions, this is all new to me...lyme protocols...not biomed in general...been doing that for 5 years... ANyway, what enzyme does Cowden et all recommend. I thought I read somewhere where he said to give Bromlein.... I have TriEnza from Houston but it doens't have any Bromeline in it...ANy advise would be great... From: ambitionn01 <Ambitionn01@ aol.com>Subject: [borreliaMultipleIn fectionsAndAutis m] Re: LIA conf-need to reach Heidi NTo: BorreliaMultipleInf ectionsAndAutism @yahoogroups. comDate: Saturday, July 5, 2008, 12:45 AM Ellen:Sure, I will post my recovery summary. Since I am a stay-at-home mother currently, I have time to do tons of research. You might look at my protocol and think there is no way, there's nothing very strong in there. But, know that lots of gentle things working together somehow works. Feel free to ask questions. The forums are full of doctors and other practitioners because obviously this isn't being taught in medical school. I hope you recover and help many patients with the knowledge you gain in doing so. Love and prayers,Heidi NSummary of Recovery KnowledgeDue to the many requests for information I have been getting, I put this together. Know that your requests actually make me happy. I am happy to know that you care and are seeking to help these children who are totally dependent upon us to help them. When I tell people I recovered my children, and they don't make requests, I must admit, it bothers me because I feel so passionate about recovery I guess, and wish everyone else did as well. But we each have the right to make our own choices, and I understand that there are other reasons. Love and success to all of you! My children are recovered, but currently still dependent upon supplements. It took a year for them to be able to do regular school with no modifications. I have 5 (one was adopted). They all had different symptoms/diagnoses. Some were the same. I did it by researching my butt off. This is my current view on autism causes and treatment. Know that these are my beliefs, I am not stating them as fact because I don't want to be sued, and I may change my mind in the future because this is a learn-as-you- go thing. I believe that Autism is caused by a starving brain from a damaged GI tract from a damaged immune system from pathogens and toxins. Getting nutrition into my children was foremost in relieving symptoms, and ridding the pathgens and toxins is where I am concentrating as well. There are so many different ways, products, practitioners, and choices. I believe its best to get them nutrition right away (digestive enzymes, cod liver oil, vitamins, colloidal minerals, organic foods, remove MSG, remove preservatives, remove artificial junk, remove dairy and wheat or casein and gluten, remove sugar substitutes, remove GMO foods, give probiotics to absorb the nutrients, etc.). I then worked on getting the GI tract in working order with mild detoxers, anti-inflammatories (can be gentle herbs like Turmeric), bile-stimulating supplements, probiotics, yeast and bad bacteria inhibitors (can be from mild herbs or various supplements, or alkalizing supplements) , and now I am in the process of going after toxins and pathogens. I believe in treating for ALL pathogens (yeast, worms, protozoa, viruses, bad bacteria), in that order. I believe that most people are lyme carriers. I don't know the exacts on how its transmitted, but have read that it may be transmitted from any biting insect or animal, including mosquitos. I also read that it can be transmitted via sex and in pregnancy. I have surmised from what I read that Lyme damages the immune system, allowing pathogens and toxins to stock-pile. I further surmise from what I have read that vaccines, electrosmog, toxins, and other things further this damage, allowing the lyme to flourish. I have read that Lyme is very difficult to test positive for because it lives inside of cells and destroys your body's ability to make antibodies to it. I further read that these same antibodies are also not killing the other pathogens the person is coming into contact with. I believe from what I read that mercury, vaccines, and other things add to this same damage in the same area of the immune system. This could explain why parents are reporting that they believe the vaccines bring out the autism. I have also read that bad bacteria and viruses may be able to live inside of the worms and protozoa, that's why I read its recommended to treat the worms and protozoa first. I used the DAN methods. www.autismresearchi nstitute. com and www.lymeinducedauti sm.com are my favorite websites for knowledge and references. Go to "you tube" as well, and type in subjects like lyme, autism, etc. Please don't ask me what diagnoses, how severe my kids were, how old they were, etc. because I believe that all things are possible -- in that all kids can benefit no matter what. All my children have different symptoms. They all responded to all treatments I implemented. Sometimes the same symptoms would go away with the same treatment, and sometimes different symptoms would go away with the same treatments. One of my children was 14 when I startred treatment. I did not use ABA. I did use a DAN for one child for a brief moment in time. I feel he was helpful, but not necessary to recover my children. I know many talk about using a certain supplement to rid a certain symptom, and many just want to do one thing at a time. I like looking at the whole picture. I found that the gluten-free/ casein-free diet did not work if they drank a soda or were exposed to gmo and/or processed food. Thus, I feel too many do it incorrectly. Also note that sometimes it takes months to see an improvement for a treatment. I feel digestive enzymes are the most basic key to getting nutrients in. Know that also, all these supplements and diet making my children live as normals do not work if they are around environmental toxins. My kids return to symptoms around carpetting, magic-marker smells used at school (when the whole class uses them at the same time), fluorescent lighting, etc. Thus, I also have no carpetting, and use organic/natural hygiene/cleaners in my home. There are so many variables. I think people fail when they don't understand that die-off reactions come often when something is going to work, and that something like eating chocolate can sabotage gf-cf diet improvements. Thus, know its not just a matter of doing something, its a matter of doing it correctly. I believe you can only do it correctly if you research it, and understand how it works. I would even research foods and how they correlate with children with autism. Such as eggs are heralded as very beneficial, whereas dioxin used on NON-organic apples, is heralded as very toxic to children with autism. There is much to learn. I know everyone wants the easy, fast way, and that it is very time-consuming and expensive. I never did any expensive things other than some blood and stool tests. I do admit that giving 5 children supplements everyday is expensive. I also take every thing that my children take. Everything. And I do it for a few days or weeks before I give it to my children, and then I keep taking it as long as my children are. My health also went from very bad to very good. I know some are looking for the one thing to do or matching symptoms to products, but its not about that to me, its about getting the body working well, and ridding pathogens and toxins. Here is what I am doing: diet (as I previously mentioned)digestive enzymes, Multi-enzyme by www.kirkmanlabs. comcod liver oil by Nordic NaturalsVitamin B1 Thiaminemethyl B12 powder by kirkman'sniacin (flush-type only)buffered C by Thorne ResearchTurmeric by RexallGinger Root (only some of my children) by Rexallmilk thistle by Source Naturalsmultivitamin, Everyday by Kirkman'schewable folic acid by Kirkman'slithium orotate by Ortho Molecularmagnesium malatecolloidal mineralsMellatonin, sublingual (chewable) by KirkmanPectasol Chelation complex by EcoNugenicsprobiotics by Mindlinx or Culturelle (sometimes)Resveratrol by Paradise HerbsBurbur by NutramedixCat's Claw Raintree or Samento by NurtramedixI have used other supplements here and there. Know that a couple of these aforementioned products are sold only to practioners on some websites, yet on other websites, the same products are sold to anyone. So don't give up if you get a website that sells only to practioners. I am now in the process of starting to use herbs to kill lyme. Know that many of the treatments that are being given to children with autism, also kill lyme. We did have lyme testing. We tested positive for lyme coinfections and have low CD-57 white blood cell count, which is reportedly indicative of lyme disease. Know that I only believed in the lyme theory after several docs started reporting that nearly all of their children with autism were testing positive for it. For further information, see www.lymeinducedauti sm.com and the Yahoo Group "BorreliaMultipleIn fectionsAndAutis m". I fully believe that when toxins and pathogens are rid and the GI tract is restored that my children will then be able to live as normals without special diets, and having to avoid toxins, or be dependent upon supplements. I have read many stories on this, and this is why I believe. So far, this faith has done very well for me. Know that I also pray for guidance from Jesus. Its important to study everything you give your child. Such as I read often that buffered C should not be given at the same time as many other supplements. Know also that brand can make a big difference. Thus, study the brand, make sure they don't use gmo products. Know also that things like Mellatonin can be made from very different sources, some better than others. Also, know that getting the right dose can make all the difference. Thus, take the time to study to know all about everything you do, and of course, ask on forums as well. I recently added all this up, and it came to about $120.00 per person, including the adults. Thus, that's not bad. But, for my house of 8, that's not good, but were managing.Know that also I have heard reports that many can just use Samento and get good results. Heidi N >> Heidi N, great notes. You mentioned you cured your children so that > they no longer need school modifications. We are in a battle with > the school district for my son's life. He is brilliant but is not > getting the proper education to overcome the learning disabilities > left after treatment with antibiotics for the lyme. I am a doctor > and have become disabled and was finally so sick that I got > diagnosed, that led to my kids getting diagnosed. My daughter > regained her muscle tone so that the kid who would sit on my lap > during the baby ballet classes (I thought it was separation anxiety, > but it never went away) just tried out for the School of American > Ballet! But my son, although vastly better socially and > academically, especially in the concrete areas, cannot learn more > abstract thinking and thus cannot read novels or write appropriate > reports. He also cannot use books to learn and retrieve information > from. If he is not taught appropriate compensatory techniques, a > child with a brilliant future will be left behind. The world will > lose a potential great scientist and a child will lose his future. > In addition, I am getting much worse and am frequently bedridden, and > cannot enjoy activities as a family, let alone even care for them. I > would love to know the protocol, amoungst many, that you used with > your children. I understand it is ongoing, but that is little > sacrifice for a normal life, for all of us! Did you have lyme? My > kids obviously got it from me when I was still functioning and > relatively healthy. It was actually while trying to get pregnant > again (I'm an OB and I adore babies, being pregnant, nursing, etc. > and have always dreamed of a big family) that I got worse, possibly > from the hormones used when natural methods were unsuccessful. I did > conceive my two and a third that I lost naturally, but I realized > that I was on Prednisone for my symptoms that I never would have > associated with lyme, each time I conceived. Now I've lost the > chance in all the years spent trying to regain my health, made much > by misdiagnoses and subsequent permanent damage. I will definitely > get the DVD's, but the material is so vast that no one method would > be possible to attempt without the support of the practioner. That's > why I would truly love to know how you sorted through all the info > out there to put together a regimen that helped your beautiful > family. Mine are now out watching the Macy's Fourth of July > fireeworks, I was too dizzy to get out of bed! So much for a > family! That's why I need your help. If your could take a little > time out of your obviously busy days to shoot me a reply I'd be > eternally grateful.> > Thank you,> Ellen MD> Gas prices getting you down? Search AOL Autos for fuel-efficient used cars. Gas prices getting you down? Search AOL Autos for fuel-efficient used cars. Quote Link to comment Share on other sites More sharing options...
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