Re: Doctors aren't sure. Does this sound right?

January 13, 2002

Steve wrote:

>Well, You guys were probably right. I abstained form milk all week.

>Then had pizza, fried mozzarella, & a glass of milk. I feel awful!

>Should it be noticeable that quickly?

>

>Yesterday also began some mild dizziness & a spacey sort of visual

>impairment. Most noticeable when I first woke up & when bending over.

>I suppose this is what you had been talking about?

>

>Steve

>

Dear Steve;

I know for myself when I cheat on my diet, especially with wheat and fried

oils, that I notice an increase in symptoms within 48 hours. Not just

feeling lousy cause your body is not used to the food, but actual increase

in numbness, pins and needles and floaters infront of my eyes.

Regards;

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January 13, 2002

M. wrote:

>The worst thing you can do is to over do! Which is what it sounds like you

>are doing!

>I always would have that dreaded " hollow feeling " when I would over do my

>work out! Overdoing will set you back! This includes not only exercise,

>but

>every activity you do! The point of overdoing can vary every day! Try and

>pay attention to your body for some sign that you are nearing the point

>where you should stop. Find that point and play with it! Either stopping

>before or try and push it a little, and see what happens. But don't over

>do.

Dear M.;

Thanks for responding to my e-mail. I actually own a gym, and was a

competative athlete for many years, and made my living from personal

training, teaching classes and coaching. I think you hit the nail on the

head though, cause I am used to training very hare, Even though I think I

have found the right level for me to exercise at, I am sure that I have been

overdoing it. I need to look at all of my physical activity over the course

of the week, and make sure that I am soing SLOWLY. Very hard concept for me.

I definatly think that overdoing it on Wednesday at the gym led to me having

a hell of a time with my left side of my body, especially my left leg this

week.

Thanks for the suggestion.

I also think as others in the group have suggested, that I need a more

gradual approach spread over three work-outs a week, and not just once a

week. I am definately going to stick with it, until I see some improvement

in my strength.

Regards;

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January 14, 2002

Dear ,

Probably you need to increase the amount of exercise that you do.

My mother has trouble walking , when she has had 'FLU, HER REMEDY IS TO

WALK FOR AS FAR AS SHE CAN, COMFORTABLY, TWICE A DAY, EACH TIME WALKING A

LITTLE FURTHER, UNTIL SHE IS FULLY MOBILE

BEST WISHES

eLAINE

>

>Reply-To: mscured

>To: mscured

>Subject: Re: Re: Doctors aren't sure. Does this sound right?

>Date: Thu, 10 Jan 2002 16:13:23 +0000

>

>Ed wrote:

> > I don't view having MS as being a change in my path, just a

> >different event on it. Journey well, be happy, and stay inspired as

> >this will inspire others.

> >Peace,

> >Ed

>

>Good Morning Ed;

>

>Couldn't sleep for the second night in a row, and was delighted to get your

>e-mail for my morning read.

>

>I am also divorced from the father of my three kids. My ex-husband is a

>very

>powerful man in town, and he fought me for custody of my kids six years ago

>when we divorced ( and I was healthy).

>Historically, he has been very bitter and unrelenting in his bid for

>custody, including having me followed by undercover goons and intimidating

>me.

>I have to say, that my present illness has changed our dynamics quite

>dramatically. I think he has wished me ill health for so many years, that

>he

>on some level, feels as if he is partly responsible for my M.S., and as

>stress goes, perhaps he is. He has been much easier to deal with and more

>understanding since I got sick.

>

>At the same time, I have this huge fear that I will deteriorate to the

>point

>where I will be unable to provide the same level of care for my kids, and

>he

>will use this as the ultimate blow to get custody. I have been noticing a

>dramatic decrease in my upper body strength the last month or so, and I

>have

>noticed that it is definately affecting my ability to drive. My left arm is

>too weak to turn the wheel of my van when I need to make a sharp turn. I'm

>going to look into what my options are for a very easy to turn power

>steering vehicle. Any suggestions? Anyways, to get to the point, I fear I

>will get to a point where it is not practical for me to deal with the daily

>needs of my kids in terms of driving, laundry, cooking, and other physical

>activities and that they would on a very basic level be better off living

>with their dad. This is a very hard one for me to even verbalize.

>I am remarried, and my present husband has been incredibly supportive,

>growing our wheatgrass and sprouts, doing all of the laundry, shopping,

>cooking and childcare. I just don't know how much more I can possible

>expect

>him to do!

>

>My attempts at physical training and strengthening my muscles seems futile.

>I find that I spend 45 minutes: 10 minutes walking on a treadmill holding

>onto the bar, 20 minutes of weight bearing activity for my upper body with

>very light weights, and 15 minutes in the pool, doing knee up-walking

>exercises. Afterwards, I sleep for about two hours to recouperate. I do

>this

>once a week, but find no imrovement. My body just does not retain the

>information. Sometimes I actually think it is making me worse. Any comments

>on people out there involved in physical training or physio? Do you see

>improvement?

>

>Very frustrated at the moment....

>Regards;

>

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January 15, 2002

In a message dated 1/15/02 4:20:16 PM Eastern Standard Time, Elaine writes:

Probably you need to increase the amount of exercise that you do.

Depends on YOU, and your MS and your condition and your body. Because this is easily THE MOST DAMAGING THING I could do, short of a trip to the hot tub.

Rani

January 15, 2002

I'm telling this story cause I kind of had a religious epiphany this

week-end, that I thought was neat, and wanted to relate the story.

Hi ,

I am a rather simple person that believes devoutly in God. I am

Christian, a " Reformed Tradition " up bringing as it were. If I had

to at this point in my life; I would use the word fundamental in my

beliefs.

There is no doubt that God will direct me through this part of

my journey. I also understand that not all people believe as I. I

truly believe that ones standing with God is not measured by a word

or ritual, but rather by one's truth and compassion.

Your epiphany was obviously well seen by you, pursue it, Spirit

is just one of mind, body, and soul.

Peace,

Ed

January 27, 2002

dear Rani,

Maybe I didn't explain what I meant properly,the message should have

read , 'little and often is better than one big burst'