tests,more tests

[Guest guest]

Hi everyone,my son had a sleep/wake eeg friday and a mri. Now the

neuro has ordered more tests. My son will have another mri and a 48hr

eeg. The neuro now thinks his regression/brain damage is not from his

preemie brain bleed. They are looking for something else or event,

cause. Pandas has not been ruled out. A virus or Hep A shot are also

being considered as pulling the regressive trigger,so is a brain

injury event. His labs were not conclusive and they believe an other

mri may give them an appropriate diagnoses or cause for his

regression and a better timeline with prognoses. He is doing much

better with less aggression, although he cries and tantrums now

instead of using words-like a very young child would. I put a old

type writer on the counter and have him type me notes or words. Its

been a wonderful tool! He is forgetting how to spell but I can still

sound out what he types. He was an A student in spelling before his

regression. Its kind of strange but he will seem clueless about

things, then all of the sudden he will think of something from the

past and want it like he just put it down. Even though he has not

seen the toy or item in a very long time he will obsess about it and

throw a huge fit because he does not have it. He has very random kind

of thoughts out of the blue,like a short circuit. None of his random

thoughts involve the here and now or the future. He also broke away

from his longtime sleep pattern this last couple of weeks. Changing

his diet to eliminate corn sweet/by products has really helped stop

his aggression. His ocd,binge eating and repetive word use is

basically gone too! My older kids are still having a hard time with

the locals who have just said " What did your mom do to the kid,that

made him get autistic, retarded " . The locals do not understand

regression and this has been difficult. Some of my teens peers said

" Your mom must be a psycho to make your brother turn out autistic " . A

lady we know at the store just asked me about my son. I started to

explain regression in autism and she cut me off. People that knew him

before have the worst time understanding the changes they notice in

him and always bring up parenting. Oh well,I only shop once a week

now so I am only upset and dealing with negative comments once a week

too! LOL..its so much better then driving with boxing gloves on.

Anyones child have a 48hr eeg? I guess for seizure activity it could

be a good test. I am tired of tests,questions not providing enough

answers.

Best wishes,

Tishanne