Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 Rhonda - The event where your dad couldn't move his legs for a minute is called " freezing. " It is a classic symptom of all of these atypical Parkinsonian diseases, like LBD. Such freezing often happens at thresholds (doorways), when the walking surface has changed, or when the person is just starting to walk. (The " freezing " occurs because of the deterioration of the corticobasal ganglia.) Does your dad use a walker or does he have few balance issues? Robin >________________________________________________________________________ >________________________________________________________________________ > >Message: 7 Digest Number 2818 > Date: Wed, 25 Jan 2006 01:42:27 -0000 > >Subject: Question > >Hi! >I don't post very often, but I always read the messages and learn so much >about this awful >disease. My 69 year old father has LBD. He was diagnosed in 2004 after >having >hallucinations and confusion that came on rather suddenly. He had quad. >bypass surgery >1 1/2 years prior to his diagnosis. He takes 1/2 tablet (25 mg) of >Seroquel at bedtime, >Namenda and Exelon and has stayed on this dosage the entire time. He has >done so well, >but it seems like the medicine is not as effective as it has been. He is >experiencing more >confusion, hallucinations are returning (not as much as they were in the >beginning), more >agitation. Does the medication just stop working after awhile? And then >what? Do we take >him off it completely? Also...on Thanksgiving he had an episode where he >couldn't move >his legs for a minute and was disoriented, then snapped out of it and he >was o.k. He had >another of these episodes the other night. I remember reading about LO >that couldn't >step and they would just stand frozen, but I couldn't find any of those >past messages in >the archives. Is this part of the LBD or perhaps TIA'a? >Any information you can give me would be greatly appreciated! >Thanks >Rhonda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Robin, My FIL has terrible freezing episodes all the time and they last much longer than a minute. Does this also go hand in hand with pure PD? He was told that he has PD, as well as " some " LBD...whatever that means! The other night, he had such a bad freezing episode that he couldn't even get his fork to his mouth to eat. Apparently, he has developed some sort of resistance to the Sinemet, causing reduced effectiveness. His MDS didn't change his meds, at all, other than increase his sleeping medication. He saw his doctor on Monday of this week. How common is this? Do you know? Thanks so much! April GA. > > Rhonda - > > The event where your dad couldn't move his legs for a minute is called > " freezing. " It is a classic symptom of all of these atypical Parkinsonian > diseases, like LBD. Such freezing often happens at thresholds (doorways), > when the walking surface has changed, or when the person is just starting > to walk. (The " freezing " occurs because of the deterioration of the > corticobasal ganglia.) Does your dad use a walker or does he have few > balance issues? > > Robin > > > >____________________________________________________________________ ____ > >____________________________________________________________________ ____ > > > >Message: 7 Digest Number 2818 > > Date: Wed, 25 Jan 2006 01:42:27 -0000 > > From: " etirhonda " <EtiRhonda@m...> > >Subject: Question > > > >Hi! > >I don't post very often, but I always read the messages and learn so much > >about this awful > >disease. My 69 year old father has LBD. He was diagnosed in 2004 after > >having > >hallucinations and confusion that came on rather suddenly. He had quad. > >bypass surgery > >1 1/2 years prior to his diagnosis. He takes 1/2 tablet (25 mg) of > >Seroquel at bedtime, > >Namenda and Exelon and has stayed on this dosage the entire time. He has > >done so well, > >but it seems like the medicine is not as effective as it has been. He is > >experiencing more > >confusion, hallucinations are returning (not as much as they were in the > >beginning), more > >agitation. Does the medication just stop working after awhile? And then > >what? Do we take > >him off it completely? Also...on Thanksgiving he had an episode where he > >couldn't move > >his legs for a minute and was disoriented, then snapped out of it and he > >was o.k. He had > >another of these episodes the other night. I remember reading about LO > >that couldn't > >step and they would just stand frozen, but I couldn't find any of those > >past messages in > >the archives. Is this part of the LBD or perhaps TIA'a? > >Any information you can give me would be greatly appreciated! > >Thanks > >Rhonda > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 Hi Robin and Sandie, Thank you for your reply. My dad doesn't have any of the Parkinson type symtoms. He still walks his dog everyday for a half hour or more. He has only had these " episodes " twice, both times when I wasn't there, but his girlfriend was. She thought maybe it was a TIA. I told her I had remembered reading messages about freezing legs. I'm going to talk to his doctor about increasing his Seroquel....I don't know how Dr. will feel about it since he has been trying to talk my sister and I out of giving it to him at all. We did stop for about 3 days, but he was back to increased agitation and confusion. So we put him back on it (1/2 tab (25 mg) at night). Thanks again...It's nice to come here and get answers! Rhonda > > Rhonda - > > The event where your dad couldn't move his legs for a minute is called > " freezing. " It is a classic symptom of all of these atypical Parkinsonian > diseases, like LBD. Such freezing often happens at thresholds (doorways), > when the walking surface has changed, or when the person is just starting > to walk. (The " freezing " occurs because of the deterioration of the > corticobasal ganglia.) Does your dad use a walker or does he have few > balance issues? > > Robin > > > >________________________________________________________________________ > >________________________________________________________________________ > > > >Message: 7 Digest Number 2818 > > Date: Wed, 25 Jan 2006 01:42:27 -0000 > > From: " etirhonda " <EtiRhonda@m...> > >Subject: Question > > > >Hi! > >I don't post very often, but I always read the messages and learn so much > >about this awful > >disease. My 69 year old father has LBD. He was diagnosed in 2004 after > >having > >hallucinations and confusion that came on rather suddenly. He had quad. > >bypass surgery > >1 1/2 years prior to his diagnosis. He takes 1/2 tablet (25 mg) of > >Seroquel at bedtime, > >Namenda and Exelon and has stayed on this dosage the entire time. He has > >done so well, > >but it seems like the medicine is not as effective as it has been. He is > >experiencing more > >confusion, hallucinations are returning (not as much as they were in the > >beginning), more > >agitation. Does the medication just stop working after awhile? And then > >what? Do we take > >him off it completely? Also...on Thanksgiving he had an episode where he > >couldn't move > >his legs for a minute and was disoriented, then snapped out of it and he > >was o.k. He had > >another of these episodes the other night. I remember reading about LO > >that couldn't > >step and they would just stand frozen, but I couldn't find any of those > >past messages in > >the archives. Is this part of the LBD or perhaps TIA'a? > >Any information you can give me would be greatly appreciated! > >Thanks > >Rhonda > > > Quote Link to comment Share on other sites More sharing options...
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