Guest guest Posted August 2, 2000 Report Share Posted August 2, 2000 << In a nutritional book entitled: Prescription for Nutritional Healing, a recommendation under the topic of " Chelation Therapy " is to: " Add a high-protein drink to your diet, or take the essential amino acids in supplement form. " >> This book is more appropriately referred to as " prescription for nutritional killing, " and if you do what they say for chelation to copper or mercury poisoned mice and rats in the lab the critters do indeed die even when they would get well on their own if you left them alone. The book is just an MD cashing in on his credentials without having put the effort in to know what he is talking about. Some of what it says is good, some is bad, it is up to you to figure it out for yourself. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2000 Report Share Posted August 2, 2000 << " Add a high-protein drink to your diet, or take the essential amino acids in supplement form. " Some of us have been advised, because of chelation, to DROP the amino acids that were specially formulated for our children >> Well, a clear disagreement. Apparently at least some of those MD's who are so convincingly telling you what to do don't actually know. It is up to you to get educated and decide who to believe. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 where do you go to get the tailored amino acids?? crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 << I try to get plasma amino acids (fasting) on my autistic children, if possible. The only thing that usually prevents this is cost. I have found that many autistic kids feel and act a lot better when they are given a tailored formula based on their fasting plasma amino acid results. >> Adults reproducibly report that the tailored mixes make them feel MUCH better for the first month or two, then their body seems to adapt and go back to where it was. These same adults get continuing relief with " orthomolecular " treatment where you give them a LOT of the ones they are low in that have some rational relationship to problems they are having, or exclude high ones that are related to problems. This may last for several years. The tailored mixes are generated by the labs and are easy to get. The orthomolecular supplementation takes some careful thought studying the test and the patient, so it is a lot less commonly done. The few times I have heard of people repeating the test periodically, the mixes come up real different (and each new mix helps for a month or two) but the orthomolecular indications are usually constant. The Great Smokies test is extremely preferred simply due to the format of the report - it is almost impossible to interpret the other ones for the orthomolecular approach without spending a day replotting them to look like a great smokies report. It is really unfortunate that this test is $350+ since it is one of the ones that seems guaranteed to provide immediate relief from the tailored supplement. The relief is quite welcome even if temporary. Buying time to get on with the curative stuff is extremely useful. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 << Metabolic Maintenance Products makes good tailored formulas and they are cheaper than compounding pharmacies. >> Could you provide a phone number, web site, or some such? Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 Amy (or anyone else who would like to answer) what do you think of gelatin as an inexpensive protein/amino acid supplement? I have heard of it working wonders in adults who had various conditions where they needed more protein synthesis to occur. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 In a message dated 8/2/00 10:56:50 PM Central Daylight Time, aholmesmd@... writes: << I try to get plasma amino acids (fasting) on my autistic children, if possible. The only thing that usually prevents this is cost. I have found that many autistic kids feel and act a lot better when they are given a tailored formula based on their fasting plasma amino acid results. >> We used to do both urine and plasma at the same time but a few times ago, the lab refused to draw blood for the test (weird insurance problem) so when I called Doctor's Data to determine how much time we had to draw the blood so that they could compare the two to make thier supplement reccomendation, they told me that they don't really use the plasma all that often any more because they've found urine to be more helpful in knowing what to supplement since it shows breakdowns in processing as well as what's in the blood stream. Have you found the opposite? This has been really helpful for Curtis and we try to do it around every 6 months. Our insurance is paying for the tests and the supplements. As he's detoxed, the disregulation of his amino acids have greatly declined so he's needed less supplementation. Though it has consistently shown a break-down in processing methionine. Anyone else see this in their tests? We always continue Amino and vitamin supplements during a chelation treatment and have never been told not to. We do discontinue minerals 48 hours before and after then remineralize for a week after. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 > Amy (or anyone else who would like to answer) > > what do you think of gelatin as an inexpensive protein/amino acid supplement? > I have heard of it working wonders in adults who had various conditions > where they needed more protein synthesis to occur. > > Andy From the autism conference in May - Dr. Shaw reported on a finding that autistic children have a DPP IV deficiency and that an inhibitor to the production of DPP IV is gelatin. At least this is what I got out the notes from the conference. Perhaps the details are on the Great Plains web site. see also post #1044 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 What is the name of the test that will determine what they need for supplements? Does the doctor do it? On Thu, 3 Aug 2000 15:26:11 EDT Nomoremetals@... wrote: > In a message dated 8/2/00 10:56:50 PM Central Daylight Time, > aholmesmd@... writes: > > << I try to get plasma amino acids (fasting) on my autistic children, > if possible. The only thing that usually prevents this is cost. > I have found that many autistic kids feel and act a lot better when > they are given a tailored formula based on their fasting plasma > amino acid results. >> > > We used to do both urine and plasma at the same time but a few times ago, the > lab refused to draw blood for the test (weird insurance problem) so when I > called Doctor's Data to determine how much time we had to draw the blood so > that they could compare the two to make thier supplement reccomendation, they > told me that they don't really use the plasma all that often any more because > they've found urine to be more helpful in knowing what to supplement since it > shows breakdowns in processing as well as what's in the blood stream. Have > you found the opposite? > > This has been really helpful for Curtis and we try to do it around every 6 > months. Our insurance is paying for the tests and the supplements. As he's > detoxed, the disregulation of his amino acids have greatly declined so he's > needed less supplementation. Though it has consistently shown a break-down > in processing methionine. Anyone else see this in their tests? > > We always continue Amino and vitamin supplements during a chelation > treatment and have never been told not to. We do discontinue minerals 48 > hours before and after then remineralize for a week after. > Gaylen > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2001 Report Share Posted July 28, 2001 Donna, Could you list the amino acids that he needs? I am using the All-One from the health food store and it is in a very easily digestible form and includes the following amino acids: Alanine, Arganine, Aspartic Acid, Cystine/Cysteine, Glutamic Acid, Glycine, Histidine, Isoleucine, Lysine, Leucine, Methionine, Phenylalanine, Proline, Serine, Threonine, Tryptophan, Tyrosine, Valine. It includes all the other things as well. They have a GFCF version if you need that. I have read that people with comprised guts or malabsorption may be deficient even though they take supplements because everything isn't being absorbed or maybe it is not in the best form. What lab did you use for this? Also, does he eat meat regularly? . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2001 Report Share Posted July 28, 2001 > He has been GFCF for over a year, Feingold for 5 months. He is allergic to corn, soy, pork, egg, peanuts, orange, basil, all wheat and barley, all dairy, all fish, and he reacts highly to phenols. Â He takes a Zyme Prime with each meal (15 minutes prior with the capsule loosened, like Devin suggested). Â They (He and his twin sister) also have 1 pep with whatever is the biggest meal of the day. Â We're having some really good days, some really yucky ones too though. Â But the enzymes are helping. Â I am glad to here you are seeing improvement! I actually tested to see if loosening the capsules before swallowing would help them dissolve faster. I tried it about 6-7 times. The liquid did get in a little quicker, but the tendency of the veggie capsules was to always fold back on themselves and re-seal the opening. So liquid would get in, the capsule folded, and then the liquid and enzymes were still caught inside together with the actual dissolve time being the same. Try giving the capsule 30 minutes earlier if possible, or try a few days opening the capsule at the beginning of the meal to see if this will give you more consistent results. Inconsistent results have usually been resolved positively by looking at the dissolving/timing issue. My observations would say 15 minutes isn't enough time. I will be very interested to see if this improves results for you. > More info than you wanted probably! - here's some suggestions the lab had... get him to each small meals of high proteins, and chew his food more. It's pureed already and mostly all protein. UUGGHH! Chewing your food starts the enzyme reaction in your mouth/saliva particularly with amylase. Also the smaller particles are digested faster. But pureed is about as " chewed " as you are going to get, LOL. Just make sure the Peptizyde is given with the protein, I guess. All-one is made by Nutritech. They have a formulation for Seniors which has more ingedients designed to support brain function (I am thinking of trying that one next). One is the regular formula non- GFCF, one regular GFCF version, and one for Green Phytonutrients which I am not sure about. I paid $23 on sale from $29. It lasts 1 kid about 2 months. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 I saw a big improvement with glutathione. Some amino acids are sulfur based, so if your child has a problem with sulfur, you won't want to give too much. Logan's doing real good on 500mg glutathione. Kaye > My older son also tested very deficient in amino acids. Have you seen > any improvement in your son when taking the amino acid supplements that > you mentioned? I haven't had my younger son tested so I don't know what > his status is. Are there any negatives about this stuff? > > Thanks. > > ( & Malachi's mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2002 Report Share Posted February 15, 2002 Lierre, I attended Dr. Ross' lecture at the WAP seminar last year. It was enlightening to say the least. It was great drama, caustic commentary and hopeful treatment of tough illness states (alcoholism, obesity, food addictions) all in one. She gave out a two-sided sheet on pink paper, thus now referred to by me as the pink sheet, that made the key points from the book. I tried the book but the sheet was easier to use! Anyway, I matched my symptoms to the sheet and played with the aminos a bit (yes, Dr. M - I do the broths, too!) and never found my niche. The pink sheet gives the warnings such as don't take GABA if you have low Blood Pressure which I do and that explained a 5 year mystery why that gave me problems. I got a headache from playing with the DLPA and gave up quickly with that one. 5-HTP didn't match many of my symptoms, but I tried it anyway and noticed no effect on sleep at 300mg a day (not the max dose by the way). I do think it may have clipped my carbo cravings though. I have to revisit it. I am not now doing any of the 5 aminos she discusses right now. However, I can tell you both my husband and my best friend are benefitting (toni) from them. Husband's sleep problems (several months of waking up at all hours, unrefreshing sleep, trying many approaches) have improved at 400mg 5-Htp at bedtime. He doesn't have much interest in making drastic food changes or exercise, so this is a band-aid. We accept that. Toni's life is remarkably better on 5-HTP. She is a member of WAP already, too. the very first day she took the amino 5-htp she fell asleep before midnight for the first time in years. She slowly increased the dose and found that 400-500mg is best and has reduced her cravings dramatically. She would buy a bag of gingered candy and it would be gone in the parking lot of the store. Now it lasts a few days. A miracle. She sleeps at night now and is becoming a more functional person. Like me, she has had orthostatic intolerance since childhood and it got worse and worse until fully disabled. M aybe it doesn't really get worse, you just keep depleting more electrolytes and other stuff with each episode so it feels worse. She tried the DLPA and it kept her awake and anxious. I think she also takes the glutamine. One of her other symptoms besides insomnia and cravings was violent rages. Those have subsided too. So 's work has meant a lot to us. I think Toni's capacity to be helped by the amino supplementation, is the 7 years she missed out on good protein when she was a vegetarian. It took me more than a year, but I convinced her just to go to fuddruckers for a big fat juicy burger and see how she felt. She 's not a vegetarian anymore. Tom and I never stopped eating meats, and I always made bone broth - just not often enough and not the right way with the vinegar and not with the higher quality bones until recently. Does anyone want to ask Dr. Ross if we can put her pink sheet in the files section like put his food pyramid. Sally do you have her email? Elly B Quote Link to comment Share on other sites More sharing options...
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