Hives again!!

[Guest guest]

Hello everyone,

Well darn it, we went to have IVIg again yesterday and even though we started

out at 5mls per hour then after 30 minutes we went up to 10ml/hr and after

another hour went up to 15ml/hr then after 2 hours went up to 20 ml/hr...

still broke out. This time it started when he had 6 mls to go rather than 3

mls. We even cut his rate back by more than half. It used to take about 1 1/2

hours for the whole infusion and yesterday we took 5 hours to complete it!! And

we gave him Benidryl before starting and agian when we noticed him breaking out

in hives. And I again had to give it to him later because he still had hives

when he went to bed last night.

So this is where we are...6 weeks ago, he got hives with 3 mls to go and he got

better within just about 30-45 minutes using Benidryl. But he did get a

headache the next day as well. Then 3 weeks ago, he hived out really really bad

(his whole body was a hive..even his ears) and it went away after Benidryl and

about 5 -6 hours or so and no headache. But the hives that time were extreemly

painful for him and he hated to be touched!! Then yesterday, we take the

percautions and he breaks out but the hives are still there today, not raised

though just the redness in a blotchy manner.

So here is my 'therory'...

Since seems to always break out sometime in the last 10 mls no matter how

much time it took to get to them, I would almost say that his body is reacting

because he maybe can't handle that much in his system. That maybe we need to

back off from 6 grams to 5 grams? We are going in this next time in 4 weeks

instead of 3 to see what happens. But IF, he has another break out next time, I

think I will just have to convince them to only give him 5grams IVIg and see

what occures.

Any thoughts???