Guest guest Posted November 19, 1999 Report Share Posted November 19, 1999 Gayle, Every time I read your posts, I feel like I am listening to myself. There are so many parallels it is almost scary. I think that you may just be my 'soul sister.' I sit at this computer twice a day when I can and read all of the posts. It has helped to get my brain to start working again. I felt like I was in a fog for so long and could not find my way out. This computer has been a life saver for me. Hope that you are feeling good today. Bless you, Ginger AIH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 1999 Report Share Posted November 19, 1999 Geri, I am behind on my mail because of doctor and other appointments. I just want to say that your letter to Mike surely sums up a lot about this disease. Your knowledge and experience is vast and I learn something from you almost daily. Thank you for your 'sharing.' Ginger AIH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 1999 Report Share Posted November 19, 1999 In a message dated 11/19/1999 8:33:57 PM Eastern Standard Time, majuli@... writes: << I am pretty much convinced to heed the wisdom found herein and not quit altogether until I am either back in town or can have a cortisone insufficiency test. I'm sure you can identify with this Geri: I don't want to celebrate the normal labs by feeling sick! Oh, this two-edged sword we all share. >> Kay, I think that is what I would do. What difference is a week more on pred gonna make? You deserve a really nice vacation away from work and the aloneness, and I'm afraid that if you went completely off Pred that you would spend the week worrying if you were gonna get sick. You aren't allowed to take any stress with you on your vacation! Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 1999 Report Share Posted November 19, 1999 Barbara, thanks for your post. I feel so much better now. It was silly of me to worry, but when my hepatologist brought up the possibility....I overreacted. Thanks, I am climbing above the depression; it is a fight. I started prednisone in June 1995, so it's been almost 4-1/2 years. I have been on 5mg for maybe a year, I'm not sure. I reduced it to 2.5mg on Wednesday and am supposed to stop altogether next Wednesday. Based on what you say, it appears I should have no problems at all because my adrenal glands are producing enough to make up for it and I have been below 10mg long enough for them to kick in. (Ooo, but what if my body needs 15 mg not to feel bad - adrenals 10 and pills 5! -but there I go again!) On the other hand! Geri, your post about possible atrophy of the adrenal glands certainly stopped me short in my tracks. (I wish someone would define " long-term " steroid use in years.) I like the suggestion for prevention: " avoid long-term steroid use " ! OK, will do! Well, I don't have time for a cortisone insufficiency test before I am supposed to discontinue altogether and leave town. I am pretty much convinced to heed the wisdom found herein and not quit altogether until I am either back in town or can have a cortisone insufficiency test. I'm sure you can identify with this Geri: I don't want to celebrate the normal labs by feeling sick! Oh, this two-edged sword we all share. Thanks everyone for sharing your experience and knowledge and just plain heartfelt opinions. You are the experts. Take care all, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 1999 Report Share Posted November 19, 1999 Sue, thanks for telling me that! Maybe I WILL take a chance! Kay AIH/PBC Austin > When I was taken off the prednisone last year, I took the last one the first > day I was in Las Vegas and didn't get sick until a month later. > Sue AIH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 1999 Report Share Posted November 24, 1999 Mike wrote: Is there anywhere to get injectable hydroxy w/o a script?Mike Martha answer's: The latest issue of the CFIDS Chronicle has a several page article on the use on injectable B-12. Also, Carol has posted Cheney's protocol on B-12. Look it up at www.virtualhometown.com/dfwcfids. Take this info to your doctor, ask him for the prescription. Have it sent to/ or your doc call it in: Pharmacy on the Park in Charlotte, NC: 1-800-654-3115. This is a pharmacy Cheney uses. Martha __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2000 Report Share Posted February 25, 2000 In defense of our moderator(s) who are doing such an admirable job of producing this list, the suggestion was to tone down the number of " personals " , not eliminate them altogether. If you have saved old posts go back and look at the past month or so, it did get out of hand and the moderators were doing their job by suggesting that these personal posts be limited somewhat. I did not remember any specific writers mentioned as being at fault and if any of you feel that one (or a few) writers are being singled out, is it possible that they were, in fact, getting out of hand with their posts? By all means a joke here, a personal anecdote there is necessary and welcome but things are not black and white. We need a viable mix of information and personal items to meet everyone's needs. I would like to hear from the moderators as I do not believe their intent was to make this a sterile web site. Barry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2000 Report Share Posted February 25, 2000 I also miss Gillian! I believe that humor is good therapy and I think we all need that as much as we need our meds. My husband said that the only time he has heard me have a good laugh in the last year was when reading Gillian's posts. By the way Gillian if you are still on here....he has a nice hairy chest! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 My Grandaughter in law is brand new pregnant. She ask me to make her a salve to avoid stretch marks. I really need help. Thanks, Jacque Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2001 Report Share Posted February 18, 2001 Hello, Mark raised several points, many of which are good. I just waned to clarify what an EO is, and its role in the ABCs of contingent relationships. EO stands for " establishing operations " , which many then translate loosely as " motivation " . Sometimes, it the term EO is confounded with reinforcement. I think this can be somewhat misleading. An EO *precedes* the target behavior. For example, you and your child are headed to the playground. When you're almost there, you get to a gate. The gate for you is an EO to open the gate. However, for your child at that same time, *his inability to open the gate* is an EO for him/her to request " help " (or " open " or even just eye contact). At this moment, you must be very clear in your head what " target behavior " you want to increase, so that you can prompt for it. Once your child has said " help " (or " open " or just plain ol' eye contact), you then open the gate. Opening the gate has become the reinforcer for the target behavior of " open " (etc). When dealing with this subject, I often hear that " it's all in the reinforcer, baby " : ) I often ask myself, isn't it all in the EO? After all, that's what " motivates " the child to generate a behavior (whether it's on target or not). How we reinforce the behavior that occurs will determine if the tendency toward that behavior will increase or decrease (depending on whether or not that behavior has been reinforced or " punished " ). If someone else wants to chime in here, it would be nice to have a discussion on this topic. Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2001 Report Share Posted February 18, 2001 wrote: > >An EO *precedes* the target behavior. For example, you and your child are >headed to the playground. When you're almost there, you get to a gate. The >gate for you is an EO to open the gate. However, for your child at that >same time, *his inability to open the gate* is an EO for him/her to request > " help " (or " open " or even just eye contact). At this moment, you must be >very clear in your head what " target behavior " you want to increase, so that >you can prompt for it. This is where people get lost sometimes I think, and why I wrote in a post to Mark, where people have a hard time sometimes because you need to be fast on your feet, recognizing the EO for what is is, responding and knowing it can be lost rather quickly, if the response required is too hard for a child. Sometimes that eye contact, or a point might be what you should require unless you know darn well, the kid can say " open " or " gate " or " help. " Because, it is easier to keep a kid responsive and interested in reciprocal responses, if some are very simple and do not demand too much. That's when you kill your reinforcer as we say... ;-) >Once your child has said " help " (or " open " or just plain ol' eye contact), >you then open the gate. Opening the gate has become the reinforcer for the >target behavior of " open " (etc). >When dealing with this subject, I often hear that " it's all in the >reinforcer, baby " : ) Ahh, this is why I sometimes say, probably to other people's annoyance it's not entirely about reinforcers and some times, it is indeed about the task or the environment or the EO. The fact is sometimes, nothing we have works for some tasks, because the task itself is " punishing " and this might be for any number of reasons, past associations with failure, not enough easy interspersed with the hard, people pushing good work and not knowing when to quit, inconsistency and all kinds of stuff might make the best french fry in the world become loathsome. It's really not the fry, but the motivation itself is null and void, generally because of history, not the present situation. It's hard to convince somebody who has been stung, the bee is safe. >I often ask myself, isn't it all in the EO? After all, that's what > " motivates " the child to generate a behavior (whether it's on target or >not). How we reinforce the behavior that occurs will determine if the >tendency toward that behavior will increase or decrease (depending on >whether or not that behavior has been reinforced or " punished " ). > >If someone else wants to chime in here, it would be nice to have a >discussion on this topic. >Best, > > Well, I am just interested in general. We spend a lot of time creating and invividualizing material. Due to Ize's age and needs, but also interests, we have a rather oddly balanced program I suppose. It's hard to work on certain self help skills and other similar areas, because Isaac finds it utterly uncomprehensible anyone should care about folded items or anything like that, to the point he has been known to say, NO to ice cream and any number of things when we try to get him to learn some of these skills. The problem is out of context it is incredibly boring and in context it is incredibly boring. LOL No wonder I am not really into house cleaning. We've gotten some matching and putting away silverware, because he already knows the concept, though he sighs deeply, so does my no label kid when she has to empty the dishwasher or put away silverware. Some of these things he is attending to and enjoying learning now, trying to use the electric can opener has become motivating. One very, very shortly gets some soup! And he likes to press the buttons we ask him to press on the microwave, but why not, you get your food warmed up. I think as far as EO, reinforcers and certain tasks go, I would be better off finding a maid! Jennie, in the market for an ABA maid. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 In a message dated 03/10/2001 3:11:52 AM Central Standard Time, writes: > Re: Emu Oil Blues Finally!! A response I can live with!! Actually, Simon, that is what I did, except I filtered it a couple of times during heating it up. Thanks! Tina Philipians 4:13 I can do all things through Christ who strengtheneth me. <A HREF= " http://delphaussoaps.safeshopper.com/ " >http://delphaussoaps.safeshopper.co\ m/</A> If it isn't natural, what is it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2002 Report Share Posted January 25, 2002 My husband Arun too had herpes zoster(shingles) on his hand during our honeymoon and soon after he developed symptoms of Achalasia! Can anyone throw some light on the subject please? What is the connection?? thank you Anusha --- achalasia wrote: > There are 11 messages in this issue. > > Topics in this digest: > > 1. Shingles > From: " Noelene Snook " > <noelenesnook@...> > 2. Re: NEW MEMBER > From: " ozpete59 " <ozpete59@...> > 3. Re: Shingles > From: lindwood@... > 4. Re: Re: NEW MEMBER > From: lindwood@... > 5. Re: Shingles > From: " Diane Reynolds " <d1dn@...> > 6. Re: Digest Number 455 > From: gina vallery <gvallery@...> > 7. Re: Re: NEW MEMBER > From: jptoyz3@... > 8. Thoracotomy > From: " conniepitt3 " > <conniepitt3@...> > 9. Re: Thoracotomy > From: " judyb63146 " <judyb63146@...> > 10. Re: Thoracotomy > From: lindwood@... > 11. Reminder - Chat > From: achalasia > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Thu, 24 Jan 2002 16:56:57 +0800 > From: " Noelene Snook " <noelenesnook@...> > Subject: Shingles > > Hi, Noelene from West Australia here. Went with my > daughter who has A to see > the surgeon this week.The meeting was okay, but > and you others explain > and describe symptoms and procedures SO much > better.I had to keep my mouth > firmly closed incase I said " but said " . When > pressed on his theory of > the cause of A, he did mention that a few of his > patients had had a bout of > Chicken Pox before they developed A symptoms. Louise > my daughter had > shingles before she developed hers.Kindest regards > to you all, Noelene. > > _________________________________________________________________ > Send and receive Hotmail on your mobile device: > http://mobile.msn.com > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 2 > Date: Thu, 24 Jan 2002 10:56:47 -0000 > From: " ozpete59 " <ozpete59@...> > Subject: Re: NEW MEMBER > > G'day Joann > I am just writing to say how blown away I am from > reading your story > and shocked a how you were treated due to such a > lack of your doctors > knowledge of this disease. It helps me realise that > although I have > my problems there is always someone worse off than > me. > > Very best regards from . > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 3 > Date: Thu, 24 Jan 2002 06:36:32 -0600 (CST) > From: lindwood@... > Subject: Re: Shingles > > Noelene, > What is the doctor going to do for your > daughter? It's interesting > about shingles/chickenpox. We should do a poll and > see how many of us > say that. My doctors have never asked me about > shingles, I forgot to > tell them, and it wasn't on the HUGE questionnaire > that I had to fill > out prior to diagnosis. > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 4 > Date: Thu, 24 Jan 2002 06:44:16 -0600 (CST) > From: lindwood@... > Subject: Re: Re: NEW MEMBER > > Joann, > Your story made me cry. I read it right before > I went to sleep > last night. I am SO SORRY that you have had to > endure the gross > negligence and insensitivites from your doctors that > you have > encountered. You must have the brightest halo in > the achalasian angel > army by now. Injustice is a word that creeps up in > my mind as I read > your beautifully written account of your life with > " A " . Your husband > sounds like your best friend. Thank God you have > had him to walk with > you throughout your experiences. You deserve the > very best that life > has to offer. Your story touched my heart so > deeply. God bless you, > welcome to the group, and THANK YOU for posting your > story. We do care. > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 5 > Date: Thu, 24 Jan 2002 07:51:39 -0500 > From: " Diane Reynolds " <d1dn@...> > Subject: Re: Shingles > > th > it is so funny you are talking about shingles, 2 yrs > ago I was rushed in the > ambulance for wicked pain in the left arm up to > shoulder and chest and could > not breath, the er said i had shingels, I did not > have no rash or anything > it just came on sudden,I was in the shower and > before i knew it I was in > agony and could not breath > Diane > > From: lindwood@... > Reply-achalasia > achalasia > Subject: Re: Shingles > Date: Thu, 24 Jan 2002 06:36:32 -0600 (CST) > MIME-Version: 1.0 > Received: from [216.115.96.73] by hotmail.com (3.2) > with ESMTP id > MHotMailBE19494B00294004319BD8736049976B420; Thu, 24 > Jan 2002 04:38:04 -0800 > Received: from [216.115.97.166] by > n23. with NNFMP; 24 Jan > 2002 12:36:37 -0000 > Received: (EGP: mail-8_0_1_3); 24 Jan 2002 12:36:36 > -0000 > Received: (qmail 12716 invoked from network); 24 Jan > 2002 12:36:32 -0000 > Received: from unknown (216.115.97.167) by > m12.grp.snv. with QMQP; > 24 Jan 2002 12:36:32 -0000 > Received: from unknown (HELO > mailsorter-105-1.iap.bryant.webtv.net) > (209.240.198.119) by mta1.grp.snv. with > SMTP; 24 Jan 2002 12:36:32 > -0000 > Received: from > storefull-2118.public.lawson.webtv.net > (storefull-2118.public.lawson.webtv.net > [209.240.212.158])by > mailsorter-105-1.iap.bryant.webtv.net > (WebTV_Postfix) with ESMTP id > D48DF1642for <achalasia >; Thu, 24 > Jan 2002 04:36:32 -0800 > (PST) > Received: (from production@localhost) by > storefull-2118.public.lawson.webtv.net > (8.8.8-wtv-f/mt.gso.26Feb98) id > EAA08307; Thu, 24 Jan 2002 04:36:32 -0800 (PST) > From sentto-1073445-2851-1011875796-d1dn Thu, 24 Jan > 2002 04:39:32 -0800 > X-eGroups-Return: > sentto-1073445-2851-1011875796-d1dn=hotmail.com@... > X-Sender: lindwood@... > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Thank goodness, indeed! That's why I share so much. I'd love to be able to save someone some of the trouble we went through. For the first surgery, my daughter had had a misdiagnosed ruptured appendix for a month. For the second surgery, she again had had a misdiagnosed ruptured ileum for a week and had been in shock, and had widespread peritonitis both times. So both surgeries were necessary, moments before death emergencies - but the misdiagnoses? That's one reason it's so important to find out the reason for an iron deficiency. But I don't want to frighten people about IBD; for most people who have IBD it isn't nearly so extreme. > Date: Wed, 20 Feb 2002 12:52:51 -0800 > From: bianca3@... > Subject: Re: iron/caraggeenan/oils > > I cringe at the paces some of you folks have been put through. Iron > supplemnts? Surgery for IBD? Ugghh!!! Thank goodness there is a list like > this that we can learn from each others experiences. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 I will be doing a talk for the Surgical Weight Loss Support Group in November (it will be here quicker than we think!). I will be talking about coping with the holidays. Any creative ideas or suggestions for this presentation? Bridget Klawitter PhD, RD, CD, FADA Director, Clinical Nutrition and Diabetes Services All Saints Healthcare Racine WI (262)687-2411 bklawitter@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2004 Report Share Posted August 2, 2004 Please post to the list. J. Sams MS RD/LD >From: " Kurt & Bridget Klawitter " <macalpin@...> >Reply- >< > >Subject: Re: Digest Number 456 >Date: Sat, 31 Jul 2004 14:04:14 -0500 > >I will be doing a talk for the Surgical Weight Loss Support Group in >November (it will be here quicker than we think!). I will be talking about >coping with the holidays. Any creative ideas or suggestions for this >presentation? >Bridget Klawitter PhD, RD, CD, FADA >Director, Clinical Nutrition and Diabetes Services >All Saints Healthcare >Racine WI >(262)687-2411 >bklawitter@... > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 Suzi, Thanks for the clarification on castor oil cloth storage. Right now I am up to 3 super W (wormwood), 3 clove capsules 3 X day and 2 tsp. of walnut tincture 1 X week. I did a Schultz cleanse prior to doing this. I can't do just juicing because it goes right through me. I don't have a problem with constipation. I made vegetable juice yesterday afternoon with cucumber, beets and carrots and it took about an hour to pass. I tried MSM before without results so didn't continue, but it wasn't for swollen tendons. I will check into using it again. I am also starting my days with 1/2 lemon and cayenne in a quart of warm water, taking lemon egg and panther pass daily. I drink Kombucha as well and tying to eat sprouts on a daily bais. Little steps, but important ones I think. check Message 8809 as it gives info on reusing With the parasite deal... tell us how many and how often you are taking and if you are doing any cleansing with it. Are you trying any MSM for the achilles? Suzi Quote Link to comment Share on other sites More sharing options...
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