Re: Happy Holidays

[Guest guest]

Dear Helen: I hope Matt does well with his surgery and he likes the

homehealth way of doing the infusions. It has been alot better for Alissa.

We will keep him in our prayers as his surgery is near.

all our prayers,

annette and alissa

>From: HBDOEM@...

>Reply-To: PedPIDegroups

>To: PedPIDegroups

>Subject: Happy Holidays

>Date: Mon, 25 Dec 2000 16:01:27 EST

>

>Helen mom to Matt(CVID)

>

>Happy Holidays to everyone. I know that these days can be ever so much more

>taxing on us with the added stress and not to mention 'germs'. I hope that

>each of us has found a moment of peace to recognize the magic in the eyes

>and

>smiles of our children.

>

>We had a lovely trip to Stratton Mountain. Matt held up very well. I

>believe

>that is due to the two doses of IVIG he has had so far. His nose is looking

>less swollen and more broken and off to one side. He says the pain is

>gone.The ENT says that Jan 5 is fine for setting it and felt that it is

>broken in at least two places - maybe 3.

>

>Matt is showing increasing anxiety about this PICC line and upcoming

>ethmoidostomy. For that matter so am I. Currently he is on Supprax and

>Flagyl. His sinuses SEEM clear and he is scrooking only minimally. So - I

>sometimes wonder if we really need to do the IV antibiotics. And then I

>remember that he has been on 4 different abx since October with some

>improvement but no complete irradication. Once off and stepped down to

>prophylaxisis he has full blown infection within 5 days. In the

>intellectual

>world I know that this surgery with cultures and biopsies and IV abx is

>necessary to get to the bottom of this. I am anxious that's all. I think

>thats all.

>

>On the other news front Matt has been approved for HomeCare fot IVIG

>infussions and that will start on the 28th. I have spoken with the nurse so

>far. This too is causing us some anxiety. Particularily because his

>infussions take 7 hours. What am I suppose to do for the nurse who will be

>here for more that likely 9 hours when all is said and done?

>

>Wishing that all the pumpkins are doing well and enjoyed their holidays.

>And

>as a reminder to all of us, take a minute to breath and then embrace the

>magic in their eyes.

>

>Helen

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