Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 Thank all of you for your prayers and kind thoughts and words. The warmth of your thoughts was felt here and with my family in Denver. It had been such a long, hard fought battle, but Dad is at peace and the suffering is at an end. And, I am no longer the red headed step child. I am safely at Carol's; and a safe haven at this juncture of my life is so terribly important. My thanks to all of you. Gail in Denver, but still in Florida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Thank you , I could not remember for the life of me what it was called. I got the first two letters right anyway. Hopefully, you have helped someone here today that was not aware of NPH. I would love if just even one person here could discover their LO(Loved One) has NPH and not LBD. Jan Colello, California, San Francisco Bay Area --- wrote: > It is called NPH. Here is a link about it. A man > at my church was recently diagnosed with it. The > treatment has seemed to help relieve the symptoms. > > http://www.lifenph.com/ > > > Re: Just Needing to Vent > A Little/April > > > > > > > > Jan, > > > > > > My FIL was diagnosed with PD almost two years > ago at > > > the age of 67. > > > We've all talked that before that time, he, of > > > course, had some > > > slight tremors in his hand, but he was just > " off " , > > > for lack of a > > > better description. Something just wasn't > quite > > > right about him. > > > We started noticing signs of cognitive > difficulties > > > probably 6-8 > > > mos. prior to his diagnosis. I would say that > 6 > > > months or so after > > > his diagnosis, he started to take a turn for > the > > > worse. He began > > > losing his mobility and had to use a cane. > His > > > memory started to > > > get foggy. He would sometimes say things that > made > > > no sense. He, > > > once, walked into the room rattling off about > > > someone and what they > > > had done recently. It didn't dawn on my MIL > at > > > first, but then she > > > concluded that he was talking about someone > they > > > vaguely knew a long > > > time ago in another state and hadn't kept in > contact > > > with. It was > > > just so random, but he was convinced the event > had > > > happened a day or > > > so ago. During this time, he was evaluated by > a > > > neurologist and > > > couldn't properly identify the hands on the > clock > > > when asked to show > > > a certain time. His handwriting also became > > > dramatically worse and > > > he grew very short-tempered. As a few more > months > > > went by, he began > > > having falls. His gait become slower and he > > > developed the blank > > > stare on his face. He was still able to drive, > at > > > that point, but > > > was having some difficulty. He lost his > ability to > > > do simple math > > > problems and calculate tips. It was probably > close > > > to this time > > > that he was told he might have some LBD. As > time > > > has marched on, > > > particularly in the last 4-6 months, he has > really > > > gotten a lot > > > worse. He lost his ability to drive about 5 > months > > > ago because he > > > ran into a neighbors mailbox. He'd also > hopped into > > > the car alone > > > and drove off behind a church. It took my MIL > an > > > hour or two to > > > find him. When she did, he was wandering > aimlessly > > > around in the > > > church parking lot. Now, he can no longer > bathe > > > himself or shampoo > > > his hair. He has to have help going to the > > > bathroom, getting > > > dressed, getting into and out of cars, chairs, > and > > > bed. He's having > > > some swallowing difficulties and urinary > > > incontinence. He has to > > > have help walking. He is delusional and > obsessive > > > (particularly > > > about guns). The Sinemet he's on doesn't seem > to > > > help, at all, > > > other than controlling his tremors somewhat. > He has > > > terrible > > > freezing episodes and gets so rigid he can > barely > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Bob, May your mother rest in Peace. Sounds like many people clebrated your Mom's life with you and your support system is a wonderful thing to have in place. Come back and visit with us once in a while and let us know how you are doing. Donna R Do you want to read more about Lewy Body? You can also read the Thistle, the LBD Newsletter. Just click on: http://www.lewybodydementia.org Thank you Quote Link to comment Share on other sites More sharing options...
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