RE:new to this process and seeking some answers

[Guest guest]

My Dad is but 60 yrs of age, has just been diagnosed with Lewy Body

Dementia, only I know something wasn't right for about 6 years now.

I talked my mother into taking him to ER one night after he called

me when he was having one of his " hallucinations " . That was when

this rollercoaster ride started. We are so naive , I just don't know

what to expect. He seems to be such a different person. Used to be

strict, yelling and screaming, not much of a father really. Now he

calls for the simplest things. I seem to be the only one that can

calm him down.He depends on me to be there for his doctor appts.and

I go. after all no matter what our relationship in the past was

like ,he is still my father. I'm having all this emotion overcome me

when I am by myself. I realize he is going thru this but it still

feels so surreal. Mom is doing the best she can , but I see the

difficulty of this situation for her. Her life is changing

drastically.I should say that I am and only child and that I am the

only support mom and dad have , albeit I have a small family of my

own to deal with as well.He has become almost childlike at times.If

there is anyone that can provide me with some kind of guidance and

help me to help them thru this it would be sooooooooooooo much

appreciated.I feel like I am to take them thru this journey and make

sure that they feel comforted and not alone.So far his meds are

Aricept, low-dose aspirin, high blood pressure and high cholesterol

meds. He is eating better now and hallucinations have cut down.He is

left at home while my mom is at work. we both call him to make sure

he is okay. I feel like I could go on so I'll stop here for now and

let someone respond. I am overwhelmed. sorry

[Guest guest]

Hi Judy and Carolyn,

Welcome to the LBD caregivers group. I am sorry for

the reason you are here, but you have found the right

spot for updated information and help. I can feel your

stress over this and hope we can help you along the

way. It is a long progression of symptoms that you

will encounter. The hallucinations are a symptom of

LBD. Does your dad have any Parkinsonian behaviors?

Also, a symptom of LBD.

Most of our Loved Ones (LOs) are on Seroquel for

hallucinations. It helps to cut down on them. You may

have heard by now that Ativan and Haldol are on the

" DO NOT TAKE " List. They are used mostly by doctors in

hospitals and nursing homes to calm the combative

Loved One, but have adverse reactions to our LOs and

can cause them to be comatose and have many bad

reactions after. My husband was given Haldol in the

hospital about 3 years ago and has had seizure like

behaviors ever since. I requested no Haldol, but the

doctor on the next shift did not read the chart. You

really have to make sure that your word is heard. I

have since bought a MedicAlert Bracelet with No Ativan

or Haldol stated on it. My husband never takes the

bracelet off. You can order MedicAlert Bracelets

online. I have also stated that he is alergic to these

medications in his charts. Don't be afraid to speak up

and bring all the information from the links and files

on the LBD site to the doctor, so they can file it in

your dad's chart. It is so important that they know

how to treat LBD symptoms, since our LOs are so

sensitive to medications.

Your mom is lucky to have you and so is your dad. Your

mom will need your support and you will need hers,

because of the roller coaster you will be on of

emotions and frustrations. Please, ask questions

anytime and feel free to vent, cry or laugh. There is

always someone you will identify with that is in the

same place that you are and we all understand, because

we have either been there or are there with you in

your journey through the progression of this disease.

Jan Colello, California, San Francisco Bay Area

--- judyandcarolyn wrote:

> My Dad is but 60 yrs of age, has just been diagnosed

> with Lewy Body

> Dementia, only I know something wasn't right for

> about 6 years now.

> I talked my mother into taking him to ER one night

> after he called

> me when he was having one of his " hallucinations " .

> That was when

> this rollercoaster ride started. We are so naive , I

> just don't know

> what to expect. He seems to be such a different

> person. Used to be

> strict, yelling and screaming, not much of a father

> really. Now he

> calls for the simplest things. I seem to be the

> only one that can

> calm him down.He depends on me to be there for his

> doctor appts.and

> I go. after all no matter what our relationship in

> the past was

> like ,he is still my father. I'm having all this

> emotion overcome me

> when I am by myself. I realize he is going thru this

> but it still

> feels so surreal. Mom is doing the best she can ,

> but I see the

> difficulty of this situation for her. Her life is

> changing

> drastically.I should say that I am and only child

> and that I am the

> only support mom and dad have , albeit I have a

> small family of my

> own to deal with as well.He has become almost

> childlike at times.If

> there is anyone that can provide me with some kind

> of guidance and

> help me to help them thru this it would be

> sooooooooooooo much

> appreciated.I feel like I am to take them thru this

> journey and make

> sure that they feel comforted and not alone.So far

> his meds are

> Aricept, low-dose aspirin, high blood pressure and

> high cholesterol

> meds. He is eating better now and hallucinations

> have cut down.He is

> left at home while my mom is at work. we both call

> him to make sure

> he is okay. I feel like I could go on so I'll stop

> here for now and

> let someone respond. I am overwhelmed. sorry

>

>

>

>

__________________________________________________

[Guest guest]

Dear Judy and/or Carolyn:

Welcome to our group. Your father is young to have been diagnosed with LBD but

at least he has the diagnosis. I noted the " @rogers.com " address on your

e-mail and assume you are somewhere in Ontario, Canada. Where are you located?

We held our first ever meeting of Ontario LBD caregivers just recently and are

hoping to have another in the near future. Perhaps you would like to meet with

us.

You will find this board a great source of information and the people here full

of advice, sympathy and encouragement.

No idea what your financial circumstances are... you may want to consider hiring

someone to come into the home to check on your Dad and get to know him and maybe

take him for a walk or something during the day when he is at home alone. My

Mum can usually remember how to answer the phone (but only if she is beside it)

but it is only 1 day in 10 that she can remember how to make a phone call out.

Eventually this may become a concern with your Dad.

Again Welcome

form Cresswell, Ontario

(long-distance CG to Margaret in Toronto, born 1930, diag LBD 01/05)

judyandcarolyn wrote: My Dad is but 60 yrs of age,

has just been diagnosed with Lewy Body

Dementia, only I know something wasn't right for about 6 years now.

I talked my mother into taking him to ER one night after he called

me when he was having one of his " hallucinations " . That was when

this rollercoaster ride started. We are so naive , I just don't know

what to expect. He seems to be such a different person. Used to be

strict, yelling and screaming, not much of a father really. Now he

calls for the simplest things. I seem to be the only one that can

calm him down.He depends on me to be there for his doctor appts.and

I go. after all no matter what our relationship in the past was

like ,he is still my father. I'm having all this emotion overcome me

when I am by myself. I realize he is going thru this but it still

feels so surreal. Mom is doing the best she can , but I see the

difficulty of this situation for her. Her life is changing

drastically.I should say that I am and only child and that I am the

only support mom and dad have , albeit I have a small family of my

own to deal with as well.He has become almost childlike at times.If

there is anyone that can provide me with some kind of guidance and

help me to help them thru this it would be sooooooooooooo much

appreciated.I feel like I am to take them thru this journey and make

sure that they feel comforted and not alone.So far his meds are

Aricept, low-dose aspirin, high blood pressure and high cholesterol

meds. He is eating better now and hallucinations have cut down.He is

left at home while my mom is at work. we both call him to make sure

he is okay. I feel like I could go on so I'll stop here for now and

let someone respond. I am overwhelmed. sorry

Welcome to LBDcaregivers.

[Guest guest]

Dear ,

Thank-you so much for your kind words and support. Yes we are in Ontario,

Canada. I would love to know when there is another meeting here and will try my

best to attend hopefully with my mom. I have cried so much after reading some

of the writings people have put in this group. I hadnt really realised just how

horrible this disease is. My father was such a bright , intelligent human

being. Electronical Engineer worked with the city for many many years. Took

early retirement some years back when started to have trouble with memory and

physical ailments. He has a sciatic nerve problem, broken bones. Oh and yes to

the parkinsons disease symptoms. He is much calmer now than he has been in

years. used to walk on egg shells at home as a kid and left to live with my now

husband when i was just 19. Perhaps there were signs even back then that we

just didnt see. My mom feels very guilty about not finding out what was wrong

with him earlier and she had not pursued his meds for

over a year. So we are struggling with the profound changes in our lives.I

bought mom a cell phone so contact with dad throughout her work day would be

better as sometimes he wont answer the phone if he doesnt recognise the number.

We are very naive about what we need to do for him. Mom assures me she is

watching his meds closely and she practically takes him everywhere with her

now. He hates going to church with her but understands he has to do what we

tell him for his own good. He talks about dying alot and doesnt want to live

this way. He at the moment doesnt know his diagnosis. He will hear it from

neurologist on mon march 6th , when we go.Mom found out when she snooped at

family doctors reports of tests. That is only how we have found out just

recently.Apparently we are to be hooked up with a gerinutritionist. I have no

idea what that is. I am scared of the life expectancey. Is it really an average

of 5-7 years upon diagnosis? I have two small boys who dont quite

understand what s going on with their grandad and I am worried for them if

they lose him soo early in life.I dont mean to ramble on so much but there is

soooo much going on in my head about this i feel like i just need to get it all

out.

Judy Lo diag, 01/06

Skrabek wrote: Dear Judy and/or Carolyn:

Welcome to our group. Your father is young to have been diagnosed with LBD

but at least he has the diagnosis. I noted the " @rogers.com " address on your

e-mail and assume you are somewhere in Ontario, Canada. Where are you located?

We held our first ever meeting of Ontario LBD caregivers just recently and are

hoping to have another in the near future. Perhaps you would like to meet with

us.

You will find this board a great source of information and the people here

full of advice, sympathy and encouragement.

No idea what your financial circumstances are... you may want to consider

hiring someone to come into the home to check on your Dad and get to know him

and maybe take him for a walk or something during the day when he is at home

alone. My Mum can usually remember how to answer the phone (but only if she is

beside it) but it is only 1 day in 10 that she can remember how to make a phone

call out. Eventually this may become a concern with your Dad.

Again Welcome

form Cresswell, Ontario

(long-distance CG to Margaret in Toronto, born 1930, diag LBD 01/05)

judyandcarolyn wrote: My Dad is but 60 yrs of

age, has just been diagnosed with Lewy Body

Dementia, only I know something wasn't right for about 6 years now.

I talked my mother into taking him to ER one night after he called

me when he was having one of his " hallucinations " . That was when

this rollercoaster ride started. We are so naive , I just don't know

what to expect. He seems to be such a different person. Used to be

strict, yelling and screaming, not much of a father really. Now he

calls for the simplest things. I seem to be the only one that can

calm him down.He depends on me to be there for his doctor appts.and

I go. after all no matter what our relationship in the past was

like ,he is still my father. I'm having all this emotion overcome me

when I am by myself. I realize he is going thru this but it still

feels so surreal. Mom is doing the best she can , but I see the

difficulty of this situation for her. Her life is changing

drastically.I should say that I am and only child and that I am the

only support mom and dad have , albeit I have a small family of my

own to deal with as well.He has become almost childlike at times.If

there is anyone that can provide me with some kind of guidance and

help me to help them thru this it would be sooooooooooooo much

appreciated.I feel like I am to take them thru this journey and make

sure that they feel comforted and not alone.So far his meds are

Aricept, low-dose aspirin, high blood pressure and high cholesterol

meds. He is eating better now and hallucinations have cut down.He is

left at home while my mom is at work. we both call him to make sure

he is okay. I feel like I could go on so I'll stop here for now and

let someone respond. I am overwhelmed. sorry

Welcome to LBDcaregivers.

[Guest guest]

Hello Janet,

Thank-you for your response, Yes dad does have parkinson like symptoms and is

on Aricept alone with high blood pressureand cholesterol meds and 1 low dose

aspirin dailly. I will sure not forget about ativan and haldol. Thank you for

that. I am unsure of how far this disease has progressed but we have official

appt with neurologist on mon march 6, so I can tell you more than , I only have

diagnosis results as my mother god bless her heart snooped at family physicians

report . we have begun this funny take charge of dads health kick, we used to

not really know what was goin on with him but after initial er nite we make

sure we keep in touch and up on everything going on with his doctors. I know he

is not a well man and wonder just how long he really has. The medic alert

bracelet is an excellent idea i will pass that info on to mom. I am soo

grateful for this group, because I just had no idea what do from now on. I feel

so empathetic towards all the people Ive read on.

It is sooo overwhelming. God bless you all !!!

Judy From Ontario, Canada. Lo Daddy, diag 01/06lbd

Janet Colello wrote: Hi Judy and Carolyn,

Welcome to the LBD caregivers group. I am sorry for

the reason you are here, but you have found the right

spot for updated information and help. I can feel your

stress over this and hope we can help you along the

way. It is a long progression of symptoms that you

will encounter. The hallucinations are a symptom of

LBD. Does your dad have any Parkinsonian behaviors?

Also, a symptom of LBD.

Most of our Loved Ones (LOs) are on Seroquel for

hallucinations. It helps to cut down on them. You may

have heard by now that Ativan and Haldol are on the

" DO NOT TAKE " List. They are used mostly by doctors in

hospitals and nursing homes to calm the combative

Loved One, but have adverse reactions to our LOs and

can cause them to be comatose and have many bad

reactions after. My husband was given Haldol in the

hospital about 3 years ago and has had seizure like

behaviors ever since. I requested no Haldol, but the

doctor on the next shift did not read the chart. You

really have to make sure that your word is heard. I

have since bought a MedicAlert Bracelet with No Ativan

or Haldol stated on it. My husband never takes the

bracelet off. You can order MedicAlert Bracelets

online. I have also stated that he is alergic to these

medications in his charts. Don't be afraid to speak up

and bring all the information from the links and files

on the LBD site to the doctor, so they can file it in

your dad's chart. It is so important that they know

how to treat LBD symptoms, since our LOs are so

sensitive to medications.

Your mom is lucky to have you and so is your dad. Your

mom will need your support and you will need hers,

because of the roller coaster you will be on of

emotions and frustrations. Please, ask questions

anytime and feel free to vent, cry or laugh. There is

always someone you will identify with that is in the

same place that you are and we all understand, because

we have either been there or are there with you in

your journey through the progression of this disease.

Jan Colello, California, San Francisco Bay Area

--- judyandcarolyn wrote:

> My Dad is but 60 yrs of age, has just been diagnosed

> with Lewy Body

> Dementia, only I know something wasn't right for

> about 6 years now.

> I talked my mother into taking him to ER one night

> after he called

> me when he was having one of his " hallucinations " .

> That was when

> this rollercoaster ride started. We are so naive , I

> just don't know

> what to expect. He seems to be such a different

> person. Used to be

> strict, yelling and screaming, not much of a father

> really. Now he

> calls for the simplest things. I seem to be the

> only one that can

> calm him down.He depends on me to be there for his

> doctor appts.and

> I go. after all no matter what our relationship in

> the past was

> like ,he is still my father. I'm having all this

> emotion overcome me

> when I am by myself. I realize he is going thru this

> but it still

> feels so surreal. Mom is doing the best she can ,

> but I see the

> difficulty of this situation for her. Her life is

> changing

> drastically.I should say that I am and only child

> and that I am the

> only support mom and dad have , albeit I have a

> small family of my

> own to deal with as well.He has become almost

> childlike at times.If

> there is anyone that can provide me with some kind

> of guidance and

> help me to help them thru this it would be

> sooooooooooooo much

> appreciated.I feel like I am to take them thru this

> journey and make

> sure that they feel comforted and not alone.So far

> his meds are

> Aricept, low-dose aspirin, high blood pressure and

> high cholesterol

> meds. He is eating better now and hallucinations

> have cut down.He is

> left at home while my mom is at work. we both call

> him to make sure

> he is okay. I feel like I could go on so I'll stop

> here for now and

> let someone respond. I am overwhelmed. sorry

>

>

>

>

__________________________________________________

[Guest guest]

judy and carolyn

welcome to our family although it saddens me that you had to search us out.

here you are family, we are all going thru or have been thru lbd experiences

i too am an only child and had to put the past behind me inorder to take

care of my father. my mom and dad divorced in 1988 so he had noone but me.

the hallucinations usullay arent scary but friendly, however, my dads

halluciantions were bad, he thought the kgb and cia were after him and would

use me to get to him. he also went thru very hateful stages. where i was

the enemy not the family that was there helping him, that hurt alot, but i

learned to overlook the words and actions and realize it was ' the little

man in my head' as dad called lbd. dad too had high blood pressure at the

onset of this dreadful disase. but it changed dramaticallyh to orthostatic

(fluctutating bp) which was what eventually took his life. feel free to ask

any questions, vent, scream, cry, yell, stomp your feet, share funny sad

happy stories. we are all here for you, thru the good bad and the ugly.

take a deep breath and continue on with yourlife remember that it is very

important for the caretakers to take care of themsleves, as if you dont who

will.

hugs sharon m pensacola, florida

daughter/caregiver of Leonard, symptomatic from the early 1990's. we moved

in with him 1/19/03. diagnosed 5/04 broke hip ball 7/5/05, asp pneumonia

and lung blood clot 7/14/05, asp pneumonia and uti 8/05, passed away 9/25/05

-- RE:new to this process and seeking some answers

My Dad is but 60 yrs of age, has just been diagnosed with Lewy Body

Dementia, only I know something wasn't right for about 6 years now.

I talked my mother into taking him to ER one night after he called

me when he was having one of his " hallucinations " . That was when

this rollercoaster ride started. We are so naive , I just don't know

what to expect. He seems to be such a different person. Used to be

strict, yelling and screaming, not much of a father really. Now he

calls for the simplest things. I seem to be the only one that can

calm him down.He depends on me to be there for his doctor appts.and

I go. after all no matter what our relationship in the past was

like ,he is still my father. I'm having all this emotion overcome me

when I am by myself. I realize he is going thru this but it still

feels so surreal. Mom is doing the best she can , but I see the

difficulty of this situation for her. Her life is changing

drastically.I should say that I am and only child and that I am the

only support mom and dad have , albeit I have a small family of my

own to deal with as well.He has become almost childlike at times.If

there is anyone that can provide me with some kind of guidance and

help me to help them thru this it would be sooooooooooooo much

appreciated.I feel like I am to take them thru this journey and make

sure that they feel comforted and not alone.So far his meds are

Aricept, low-dose aspirin, high blood pressure and high cholesterol

meds. He is eating better now and hallucinations have cut down.He is

left at home while my mom is at work. we both call him to make sure

he is okay. I feel like I could go on so I'll stop here for now and

let someone respond. I am overwhelmed. sorry

Welcome to LBDcaregivers.

[Guest guest]

Welcome to the board. This is a great place for guidance and support.

Be sure to print the 'good drugs' / 'bad drugs' files - so your dad

gets the right meds. Feel free to use this board for vents - it feels

good and you get great advice!

; loving daughter of Maureen of Boston, MA; finally diagnosed

with LBD on 2/06 after also being diagnosed with everything from AD

to Vascular Dementia caused by mini strokes to Binswengers...; was

victim to rapid progression from Risperidone (or combination of

Risperidone with other drugs OR possibly received another " bad drug "

when she was observed/tested in a hospital in 10/05); in a NH since

11/05.

>

> My Dad is but 60 yrs of age, has just been diagnosed with Lewy Body

> Dementia, only I know something wasn't right for about 6 years now.

> I talked my mother into taking him to ER one night after he called

> me when he was having one of his " hallucinations " . That was when

> this rollercoaster ride started. We are so naive , I just don't

know

> what to expect. He seems to be such a different person. Used to be

> strict, yelling and screaming, not much of a father really. Now he

> calls for the simplest things. I seem to be the only one that can

> calm him down.He depends on me to be there for his doctor appts.and

> I go. after all no matter what our relationship in the past was

> like ,he is still my father. I'm having all this emotion overcome

me

> when I am by myself. I realize he is going thru this but it still

> feels so surreal. Mom is doing the best she can , but I see the

> difficulty of this situation for her. Her life is changing

> drastically.I should say that I am and only child and that I am the

> only support mom and dad have , albeit I have a small family of my

> own to deal with as well.He has become almost childlike at times.If

> there is anyone that can provide me with some kind of guidance and

> help me to help them thru this it would be sooooooooooooo much

> appreciated.I feel like I am to take them thru this journey and

make

> sure that they feel comforted and not alone.So far his meds are

> Aricept, low-dose aspirin, high blood pressure and high cholesterol

> meds. He is eating better now and hallucinations have cut down.He

is

> left at home while my mom is at work. we both call him to make sure

> he is okay. I feel like I could go on so I'll stop here for now and

> let someone respond. I am overwhelmed. sorry

>

[Guest guest]

Sharon,

I was curious that there were similarities with our dads. You said he became

hateful. I have yet to see this with my dad. he seems to have changed into a

sensitive and caring individual unlike what he was most of the time before lbd.

Is this normal you think?

Judy

Sharon wrote: judy and carolyn

welcome to our family although it saddens me that you had to search us out.

here you are family, we are all going thru or have been thru lbd experiences

i too am an only child and had to put the past behind me inorder to take

care of my father. my mom and dad divorced in 1988 so he had noone but me.

the hallucinations usullay arent scary but friendly, however, my dads

halluciantions were bad, he thought the kgb and cia were after him and would

use me to get to him. he also went thru very hateful stages. where i was

the enemy not the family that was there helping him, that hurt alot, but i

learned to overlook the words and actions and realize it was ' the little

man in my head' as dad called lbd. dad too had high blood pressure at the

onset of this dreadful disase. but it changed dramaticallyh to orthostatic

(fluctutating bp) which was what eventually took his life. feel free to ask

any questions, vent, scream, cry, yell, stomp your feet, share funny sad

happy stories. we are all here for you, thru the good bad and the ugly.

take a deep breath and continue on with yourlife remember that it is very

important for the caretakers to take care of themsleves, as if you dont who

will.

hugs sharon m pensacola, florida

daughter/caregiver of Leonard, symptomatic from the early 1990's. we moved

in with him 1/19/03. diagnosed 5/04 broke hip ball 7/5/05, asp pneumonia

and lung blood clot 7/14/05, asp pneumonia and uti 8/05, passed away 9/25/05

-- RE:new to this process and seeking some answers

My Dad is but 60 yrs of age, has just been diagnosed with Lewy Body

Dementia, only I know something wasn't right for about 6 years now.

I talked my mother into taking him to ER one night after he called

me when he was having one of his " hallucinations " . That was when

this rollercoaster ride started. We are so naive , I just don't know

what to expect. He seems to be such a different person. Used to be

strict, yelling and screaming, not much of a father really. Now he

calls for the simplest things. I seem to be the only one that can

calm him down.He depends on me to be there for his doctor appts.and

I go. after all no matter what our relationship in the past was

like ,he is still my father. I'm having all this emotion overcome me

when I am by myself. I realize he is going thru this but it still

feels so surreal. Mom is doing the best she can , but I see the

difficulty of this situation for her. Her life is changing

drastically.I should say that I am and only child and that I am the

only support mom and dad have , albeit I have a small family of my

own to deal with as well.He has become almost childlike at times.If

there is anyone that can provide me with some kind of guidance and

help me to help them thru this it would be sooooooooooooo much

appreciated.I feel like I am to take them thru this journey and make

sure that they feel comforted and not alone.So far his meds are

Aricept, low-dose aspirin, high blood pressure and high cholesterol

meds. He is eating better now and hallucinations have cut down.He is

left at home while my mom is at work. we both call him to make sure

he is okay. I feel like I could go on so I'll stop here for now and

let someone respond. I am overwhelmed. sorry

Welcome to LBDcaregivers.

[Guest guest]

judy, my dad had dr jekyll mr hyde routines, and when he was dr jekyll dad

was hateful and argumentative when he was mr hyde he told me he loved me and

was so glad i was here, dad problaby told me more in the 2.5 years since we

moved here than in 43 years before that combined i saw no rhyme nor reason

to the mood swings nothing we noted that would trigger it, we would just

have to see wjhat each day brought,

hugs sharon m pensacola, florida

daughter/caregiver of Leonard, symptomatic from the early 1990's. we moved

in with him 1/19/03. diagnosed 5/04 broke hip ball 7/5/05, asp pneumonia

and lung blood clot 7/14/05, asp pneumonia and uti 8/05, passed away 9/25/05

-- RE:new to this process and seeking some answers

My Dad is but 60 yrs of age, has just been diagnosed with Lewy Body

Dementia, only I know something wasn't right for about 6 years now.

I talked my mother into taking him to ER one night after he called

me when he was having one of his " hallucinations " . That was when

this rollercoaster ride started. We are so naive , I just don't know

what to expect. He seems to be such a different person. Used to be

strict, yelling and screaming, not much of a father really. Now he

calls for the simplest things. I seem to be the only one that can

calm him down.He depends on me to be there for his doctor appts.and

I go. after all no matter what our relationship in the past was

like ,he is still my father. I'm having all this emotion overcome me

when I am by myself. I realize he is going thru this but it still

feels so surreal. Mom is doing the best she can , but I see the

difficulty of this situation for her. Her life is changing

drastically.I should say that I am and only child and that I am the

only support mom and dad have , albeit I have a small family of my

own to deal with as well.He has become almost childlike at times.If

there is anyone that can provide me with some kind of guidance and

help me to help them thru this it would be sooooooooooooo much

appreciated.I feel like I am to take them thru this journey and make

sure that they feel comforted and not alone.So far his meds are

Aricept, low-dose aspirin, high blood pressure and high cholesterol

meds. He is eating better now and hallucinations have cut down.He is

left at home while my mom is at work. we both call him to make sure

he is okay. I feel like I could go on so I'll stop here for now and

let someone respond. I am overwhelmed. sorry

Welcome to LBDcaregivers.