Re: IVIG plus infiltration

[Guest guest]

<< Ben never cries for one stick, but gets upset with repeated sticks or

infiltration.>>

Two weeks ago, when Jamey had his last IVIG, the catheter infiltrated. I had

long sleeves on him so he wouldn't pull at the catheter. When we went to

take the catheter out, I couldn't get the sleeve up his arm. His forearm had

swollen up like a balloon. The nurse told me it the catheter must have

slipped and infiltrated Have any of your kids had this happen to this

extent? It was hard for me to tell how painful it was because his reactions

to pain aren't quite normal. His arm looked like Popeye's. Oddly enough, it

was the best he had ever been for the infusion because he had been given IV

steroids. This really helped with his side effects afterwards--he was like a

changed kid. The week following, he said three words--the first words he's

said in years.

[Guest guest]

<< you can imagine we were 4 hrs

into the infusion before anyone noticed that the level in the IVIG bottle

hadn't decreased. long experience all the way around. >>

That would have made for one long day! Did Macey tolerate it for that long

of a period? I would have been a mess myself. During the regular 4-5 hour

infusion, I feel like I'm sitting on pins and needles. It's always a relief

to get him in the car and drive home.

I don't think any nurse has ever checked his site after we've started. They

really need to wrap him up with that brown--gauze type tape then pull a

sleeve over it. It seems that if he can see it, he wants to pull it. If

it's covered he's not too aware of it. During the infusion where it

infiltrated, he actually fell asleep for about an hour. This was really

bizarre, because he NEVER sleeps during the day and sleeps short hours at

night. I think that the steroid gave him so much relief, he fell asleep.

We go again tommorow, hopefully all will go smoothly.

[Guest guest]

the first problem with this situation is that the nurse didn't keep the iv

site or a majority of skin up the vein exposed to keep an eye on it. Wasn't

the nurse checking the site periodically?

I hope the next one goes better for him.

One time we had an entire bag of 500 cc saline infuse before they figured

out that none of the IVIG had gone in. since the saline was piggybacked but

hadn't been clamped it hung higher on the pole and went in instead. since

we started at 5 cc's and worked our way up you can imagine we were 4 hrs

into the infusion before anyone noticed that the level in the IVIG bottle

hadn't decreased. long experience all the way around.

Ursula Holleman uahollem@...

and Macey's mom (5 yr. old with CVID, asthma, sinus disease, GERD,

kidney reflux, Sensory Integration Disorder, Diabetes Insipidus)

http://www.pedpid.com

/group/PedPID

[Guest guest]

Dear , Sorry to hear that Ben had such a hard time...can he not use

the peripheral veins or are they to hard to access. take care and hope he

is doing better.

annette and alissa

>From: Mich2minn@...

>Reply-To: PedPIDegroups

>To: PedPIDegroups

>Subject: Re: IVIG plus infiltration

>Date: Thu, 29 Jun 2000 00:00:01 EDT

>

><< Ben never cries for one stick, but gets upset with repeated sticks or

>infiltration.>>

>

>Two weeks ago, when Jamey had his last IVIG, the catheter infiltrated. I

>had

>long sleeves on him so he wouldn't pull at the catheter. When we went to

>take the catheter out, I couldn't get the sleeve up his arm. His forearm

>had

>swollen up like a balloon. The nurse told me it the catheter must have

>slipped and infiltrated Have any of your kids had this happen to this

>extent? It was hard for me to tell how painful it was because his

>reactions

>to pain aren't quite normal. His arm looked like Popeye's. Oddly enough,

>it

>was the best he had ever been for the infusion because he had been given IV

>steroids. This really helped with his side effects afterwards--he was like

>a

>changed kid. The week following, he said three words--the first words he's

>said in years.

>

>

>

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Dear Ursula: We just learned about the piggy back system in my IV class. You

must always place the secondary lower than the primary or they will run

together or shut off the the other IV bag. Hope we all do not have to learn

this lesson.

take care,

annette and alissa

>

>Reply-To: PedPIDegroups

>To: <PedPIDegroups>

>Subject: RE: IVIG plus infiltration

>Date: Thu, 29 Jun 2000 00:22:48 -0400

>

>the first problem with this situation is that the nurse didn't keep the iv

>site or a majority of skin up the vein exposed to keep an eye on it.

>Wasn't

>the nurse checking the site periodically?

>

>I hope the next one goes better for him.

>

>One time we had an entire bag of 500 cc saline infuse before they figured

>out that none of the IVIG had gone in. since the saline was piggybacked

>but

>hadn't been clamped it hung higher on the pole and went in instead. since

>we started at 5 cc's and worked our way up you can imagine we were 4 hrs

>into the infusion before anyone noticed that the level in the IVIG bottle

>hadn't decreased. long experience all the way around.

>

>Ursula Holleman uahollem@...

> and Macey's mom (5 yr. old with CVID, asthma, sinus disease, GERD,

>kidney reflux, Sensory Integration Disorder, Diabetes Insipidus)

>

>http://www.pedpid.com

>

>/group/PedPID

>

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

,

Yes, Ben has infiltrated probably 3 times in the past. He has had IVIG for

10 years though so I guess that is not too bad. I don't think it is terribly

painful.

I do think it hurts some. He is bad about not telling a nurse that he doesn't

know

really well that his arm is feeling bad. He plays Nintendo or Playstation while

the

IV is going. The nurse wraps his arm in gauze after taping the catheter in

place

and putting on the gauze covered board that keeps his arm straight. I always

put

short sleeves on him to keep the shirt out of the way. The nurse often uses the

elbow crook as those are very easy veins to hit. I ask him about his arm when I

come in to check how it is going with the nurse. I like to find infiltrations

early

so they are not so swollen. But, its hard to catch them when he's covered in

gauze and

doesn't mention it. I think its important to have the same nurse most all of

the time with

home IV therapy.

.. It hasn't happened to him in probably 4 years. I think

maybe it helps to be older. I don't know. He is 12. How exciting to hear

words from Jamey. Would you tell me more about Jamey?

Jan

Mich2minn@... wrote:

> << Ben never cries for one stick, but gets upset with repeated sticks or

> infiltration.>>

>

> Two weeks ago, when Jamey had his last IVIG, the catheter infiltrated. I had

> long sleeves on him so he wouldn't pull at the catheter. When we went to

> take the catheter out, I couldn't get the sleeve up his arm. His forearm had

> swollen up like a balloon. The nurse told me it the catheter must have

> slipped and infiltrated Have any of your kids had this happen to this

> extent? It was hard for me to tell how painful it was because his reactions

> to pain aren't quite normal. His arm looked like Popeye's. Oddly enough, it

> was the best he had ever been for the infusion because he had been given IV

> steroids. This really helped with his side effects afterwards--he was like a

> changed kid. The week following, he said three words--the first words he's

> said in years.

>

>

>

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Primary Immune Deficiency. Opinions or medical advice stated here are the sole

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