Re: Looking for info - broken bones

[Guest guest]

Beth, sorry to hear about Wade's broken ankle! poor kiddo!

Diane, Mom to Kody age 4, IgG sub. def, steroid dependant asthma, GERD, and

seizure disorder?

[Guest guest]

Beth - Is Wade home? What's the latest update?

Ursula Holleman uahollem@...

and Macey's mom (5 yr. old with CVID, asthma, sinus disease, GERD,

kidney reflux, Sensory Integration Disorder, Diabetes Insipidus)

http://www.pedpid.com

/group/PedPID

[Guest guest]

Hi Ursula,

Unfortunately Wade is still not home yet. Don't worry, you'll hear me

screaming, shouting, dancing & shooting off fireworks all the way to Georgia

the day he comes home! I thought that I sent an update after the last

hearing, but maybe I didn't. Long story short... the last referee decided

that there was " suspicion of probable cause " so he sent it forward to

pre-trial. My lawyer demanded a judge & jury for pre-trial (not a referee) &

so we are still waiting to hear a date. In the meantime, Wade has been

diagnosed & treated for 3 sinus infections, pneumonia & bronchitis & that is

just in the last 6 weeks! Plus he fractured his right ankle on top of it

all! Oh & I was NO WHERE NEAR HIM when any of these things occurred!! Sorry,

I just had to get that " dig " in.

That's about all I know right now. How's Macey doing? Hope all the pumpkins

are as well as can be. Hug them for me!

Beth, Mom to Wade, CVID, Asthma,GERD,Neutropenia,Eczema & fractured right

ankle

RE: Looking for info - broken bones

Beth - Is Wade home? What's the latest update?

Ursula Holleman uahollem@...

and Macey's mom (5 yr. old with CVID, asthma, sinus disease, GERD,

kidney reflux, Sensory Integration Disorder, Diabetes Insipidus)

http://www.pedpid.com

/group/PedPID

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

[Guest guest]

I have a 9 year old girl with PID she has had several broken bones (arms,

fingers and nose). She also has seizures. We have not had any problem with

them healing, but the Doctor said he would see us within a year after the

first one and that was too true. I don't know if it has something to do with

PID or or possibly IVIG. Any info you might have would be helpful. As far

as any problems there was none with healing aaand as long as the skin was not

broke there is no concern obout infection per our immunologist.

Hope this helps.

Rose mom to Stefanie (9years old) igg def. asthma, epilepsy, and chronic

pneumonia

[Guest guest]

You are the first pid parent that's child also has epilepsy that I have

heard! do your doctors think that it is related to the immune def.? At this

point our doctors don't know. And we are waiting for the MRI to rule out a

brain tumor. Was told last Sunday that if it isn't a brain tumor it is

definitely epilepsy. I know nothing about either. And we are very anxious.

How does the epilepsy affect her immune deficiency? I have a ton of

questions!! Thank you!

Diane, Mom to Kody age 4, IgG sub. def, steroid dependent asthma, GERD, and

seizure disorder?

[Guest guest]

Diane,

We found out about Stef''s epilepsy before we knew she had PID. Her seizures

are pretty much under control now though when she broke her nose and one of

her arms it was due to seizures. Seizures don't seem to have much of an

effect on her PID status. Though this does cause her to get her more ofteeeen

and when it breaks the skin we have to worry about infection and bleeding.

Due to the IVIG and seizure med her white count goes down. Ibe glad to

answer any questions you have that I know the answers to. Stef was diagnosed

with epilepsy 7 and 1/2 years ago. She has myoclonic, atonic and petite mal

seizures. but like I said they are mostly under control. Let me know if I

can be of any help.

Rose mom to Stefanie IGG deficiency, asthma, epilepsy, and chronic pneumonia