Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 >>>Sometimes, as I understand it, if a child is getting a lot of extra b vitamins that can't be absorbed this can exacerbate a yeast problem. The yeast tend to thrive on the extra vitamins. This would explain someone getting really hyper on the super high doses of B's & a lot of kids I've heard get a yeasty rash when they get too much. If you have done a lot of work to heal the gut, the vitamins are probably getting absorbed better, and you're getting the desired results. Too many b vitamins can make someone a little jittery, but in correct dosage they are essential to getting enough rest and for relaxing. People with B vitamin deficiency often have sleep problems.<<<< Interesting. My nutrition had said something similar about the extra Bs and yeast and that they can produce a " drunken " affect which is what happened when Sammy took the extra B. He was like a silly hyper drunk; even my daughter noticed. Funny thing tho, his OAT showed no yeast problems and we've never had any physical (e.g. BM) indications of yeast. And, go figure, my son has sleep problems...but can't take the extra B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hi! Quick question for you IVIG experts. is set to go in for her first infusion and the starting rate is ).5cc/Kg/hr which amounts to about 25 ml/hr of a 5% solution of gammaguard.. She has had anaphylaxis and heart block before (other procedures/other meds) so I am leary because at the infusion center there is no cardiac anesthesiologist or cardiologist hanging around. (Also has a history of PVC's too) So what I am wondering is -- for people who have a history of funky allergic reactions to things do they start them off on a slower rate? Thanks for any advice Martha (mom to IgA, possible polysaccharide coated antibody deficiency etc.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 from Dale, Mom to Katy, CVID, age 19 Martha, I would feel much safer with her starting at 0.25 cc/kg/hr for at least 15 minutes before going to 0.5. Here in the states, I believe they start at around 10 ml/hour for the first 15 minutes - check all the vital signs, ask about headache or dizziness, etc. then if that's okay they increase slightly every 15 minutes doing the same re-check of everything. Gradually they can work up to their maximum comfort rate. Then how they react afterward can also determine whether the rate was okay or " too fast " . A headache occuring anytime within 24 hours post IV could indicate that the rate of infusion was too fast and should be slowed to give her body more time to adjust to it. So, take notes afterwards so you can adjust rate for next time. If the infusion nurses have any dispute with you about rates - ask to speak to your doctor or have them call Baxter and ask for their recommendation for a first infusion! They will recommend a slow rate for first time, too. In His service, Dale K979@... wrote: >Hi! >Quick question for you IVIG experts. is set to go in for her first >infusion and the starting rate is ).5cc/Kg/hr which amounts to about 25 ml/hr >of a 5% solution of gammaguard.. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Martha - 25 sounds like a good rate. When we infuse our cardiac kids here they use the same precautions as any other IVIG kid in the hospital. Are they going to premedicate her? That might be something to consider. ALso realize that many patients have side effects during and directly after their first infusion because the bacteria has been running amuk and now is actually faced with some competition. I hope things go well. I don't think her cardiac history will complicate the infusion or make her possible reactions any worse. Ursula Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2005 Report Share Posted April 17, 2005 In a message dated 4/17/05 5:34:57 AM Eastern Daylight Time, writes: > I would > love to have a miracle right about now. :-) > > Thanks again, > Carol. > .. .. >>> Well, Carol, I will 'order' TWO miracles.... one for you and one for my sweet son, Charlie. Keep on trying do not loose hope..... Charlie's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 Hello, Everyone, I have just read and reread the latest Digest, full of incredibly helpful information and even more importantly, personal experience, and I am so thankful to you all. , whose husband is the 'A' person, described how he brought up foam and saliva at night. Thank you, ! I did that two weeks ago and I thought, "what the heck is this?". I am so very glad you mentioned it. And about drinking liquids to help undigested stuff come back up and out, oy, yeah, baby, I've done that, too. Unfortunately, I did it about a month ago in a large and flashy mall on the Westside. I was dying for some real food. I'd been eating yoghurt, mashed this and that, V8 (which, actually, makes me feel full and I like it), etc. So I went to this lovely mall, got some great Chinese/Vietnamese savories and noodles, and just as soon as I'd "swallowed" the first two to three bites, I felt that "block-up". It made me angry, so I grabbed my drink and took a huge gulp, hoping it would flush the food down and, well, it really came out fast, out my nose, out my mouth and onto the table. I was lucky. I had loads of napkins and a small shopping bag from some other purchase. Oh, my! No more wonderful Chinese for a while. Oh, you guys! Your personal comments are GREAT! I feel so much just the moment I get into my e-mailbox and see the achalasia group there. I'm in the Pacific Palisades, near the ocean, and if anyone else near my locale would like to have a meeting, I'm interested. I see that there was a meeting in Pittsburgh (I love your airport and your city!). Perhaps the lady from Long Beach and I could form a small group. Just wondering. Thank you! Deborah on the beach in So. Cal. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 Hi Deborah: Talked to Sandy today after my pre-op meeting with my surgeon. I will be in Beverly Hills on August 4 for pre-op testing -- maybe we can all get together. I have found that the water thing takes practice -- you are essentially pressurizing your esophagus and then using a muscle combination to get that LES loose. I first spewed my breakfast all over MY BOSS when I was at your stage. I have learned how to gauge when it will go down and when it won't. I also always know where the restrooms are in any restaurant! Peggy > > Hello, Everyone, > > I have just read and reread the latest Digest, full of incredibly helpful information and even more importantly, personal experience, and I am so thankful to you all. , whose husband is the 'A' person, described how he brought up foam and saliva at night. Thank you, ! I did that two weeks ago and I thought, " what the heck is this? " . I am so very glad you mentioned it. And about drinking liquids to help undigested stuff come back up and out, oy, yeah, baby, I've done that, too. Unfortunately, I did it about a month ago in a large and flashy mall on the Westside. I was dying for some real food. I'd been eating yoghurt, mashed this and that, V8 (which, actually, makes me feel full and I like it), etc. So I went to this lovely mall, got some great Chinese/Vietnamese savories and noodles, and just as soon as I'd " swallowed " the first two to three bites, I felt that " block-up " . It made me angry, so I grabbed my drink and took a huge gulp, hoping it would > flush the food down and, well, it really came out fast, out my nose, out my mouth and onto the table. I was lucky. I had loads of napkins and a small shopping bag from some other purchase. Oh, my! No more wonderful Chinese for a while. > > Oh, you guys! Your personal comments are GREAT! I feel so much just the moment I get into my e-mailbox and see the achalasia group there. I'm in the Pacific Palisades, near the ocean, and if anyone else near my locale would like to have a meeting, I'm interested. I see that there was a meeting in Pittsburgh (I love your airport and your city!). Perhaps the lady from Long Beach and I could form a small group. Just wondering. > > Thank you! Deborah on the beach in So. Cal. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2005 Report Share Posted September 7, 2005 and : My Platinum Advanced Bionics body processor runs Hi-Res. I have the same maps on it and on my Auria. Audrey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Re: older autistic child: Verbal Behavior is a different form of ABA from standard Lovaas-style programs. You can find out more about this from the Mariposa School website -- it has a lot of free information. VB is much more effective than regular ABA for older kids. It has even been used to teach adults. We use it for my 14 year old. Darla Quote Link to comment Share on other sites More sharing options...
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