OCD

[Guest guest]

Bernie:

Have you ever tried Hyperbaric Oxygen therapy? I thought it was mainly used

for children with cerebral palsy.

Joyce

[ ] re: OCD

>

> << My son is also on celexa. He needs it for anxiety and OCD behavior,

> but it

> has definitely put weight on him. I wish we didn't need it.

> >>*****************

> My son also has/had OCD, among other things. OCD is documented

> by SPECT SCAN to involve developmental damage to certain cerbral areas

> of the brain, with reduced blood flow in those areas. Also imbalances

> in neurotransmitters.

> 5-HTP seemed to help my son. The damaged areas can be repaired by

> mercury detox and supplements and cognitive therapy together with those

> might even help in some cases. But Hyperbaric Oxygen treatment is

> documented to promote healing of such also in most cases. Takes over 20

> treatments usually. Most do SPECT Scans pre and post to document

> recovery. Lithium orate(www.vrp.com) also promotes regrowth and

> healing of such areas according to Medline studies among the references

> in the papers on the kids condition page of my web page:

> www.home.earthlink.net/~berniew1

> Bernie

>

>

>

> =======================================================

>

[Guest guest]

<< My son is also on celexa. He needs it for anxiety and OCD behavior,

but it

has definitely put weight on him. I wish we didn't need it.

>>*****************

My son also has/had OCD, among other things. OCD is documented

by SPECT SCAN to involve developmental damage to certain cerbral areas

of the brain, with reduced blood flow in those areas. Also imbalances

in neurotransmitters.

5-HTP seemed to help my son. The damaged areas can be repaired by

mercury detox and supplements and cognitive therapy together with those

might even help in some cases. But Hyperbaric Oxygen treatment is

documented to promote healing of such also in most cases. Takes over 20

treatments usually. Most do SPECT Scans pre and post to document

recovery. Lithium orate(www.vrp.com) also promotes regrowth and

healing of such areas according to Medline studies among the references

in the papers on the kids condition page of my web page:

www.home.earthlink.net/~berniew1

Bernie

[Guest guest]

Kathy,

I would guess the Peptizyde because it breaks down the opiate

peptides, but I did a little experiment lately that makes me wonder

if the ZP can help some with this, too. A few weeks ago, I took my

son off the ZP for several days. I noticed some of his obsessive

behaviors return. I put him back on and they went away. I think

this could be coincidence, and I would like to test again to be

sure. It makes more sense that the Pep would help with these

behaviors, though, so your friend could start with just one of the

enzymes for a month, then switch to the other. Since her son has

tested negatively for casein and gluten, I think she should consider

the Pep, since it is specifically designed to break down those

proteins. I'm being wishy-washy on this, because it should be the

Pep that helps in this area, and others have reported as such, yet

the ZP seemed to help my son somewhat, too.

> Listmates,

> I was just wondering which enzyme you think helps most with OCD

symptoms, Peptizide or Zyme Prime? My nephew with Asperger's tested

negative for casein and gluten in urine and he is already a happy

child, but he talks obsessively about certain things. Also has a

history of chronic antibiotic use.

> Thanks,

> Kathy

>

>

>

>

[Guest guest]

My daughter doesn't have autism but she has SID.She has come a long way with

therapy. She is only 19 months old so she hasn't been labeled OCD but I think

she has tendencies.My husband and I call it hair patrol.Some nights she will

sit in the tub and not play with her toys.She will search the ENTIRE bathtub

looking for hair and she will hand you each one. She will get my brushes out

from under the sink and clean them out for me. If she gets dog hair on her

hand she will walk up to us for us to wipe her hand off.Is this typical

OCD?ne

[Guest guest]

,SID is sensory integration dysfunction.There a different forms of

it.Hers has to do with oral defensiveness.She HATES food.It has taken us

almost 20 months to get her to start eating and then it is a very few

things,small amounts,and nothing is consistent.One day she might eat a little

bit of macaroni and cheese and the next day she screams at the sight of

it.She is almost 20 months old and weighs 21 pounds.TINY!!! Shw would never

take a bottle as an infant,no pacifire(sp?) I had to breast feed her all of

the time.She also has speech delay.Her therapists says that goes hand in hand

with eating.As soon as she learns to eat consistently she will talk.She has

to learn how to manipulate her mouth.She jibber jabbers all day but nothing

is clear.It is related to autism but it is a lot different.She

hugs,kisses,smiles,loves strangers,etc.But I was told by doctors it is in the

same family as autism.ne

[Guest guest]

> -----Original Message-----

> From: Hanna [mailto:angela.hanna@...]

>

> Any one else's kid suffer with OCD.

> .

My autistic daughter has some OCD traits, she is not diagnosed as OCD

though. I know what she goes through is hard, for her and us. Mercury

toxicity is a possible cause of this disorder, in which case chelating

should help. I expect it to help my daughter.

Tana

[Guest guest]

Yes,

I would definetly classify it as an compulsion.

But obsessions and compulsions change from one thing to another.

From my personal experience with my son, these keep changing.

We finally get rid of one and think ..........Wow! it is gone and then

something else comes up. He keeps us on our toes this way.

His type of OCD in particular wax and wane. They are not ALWAYS

present. I wonder what the triggers could be?

If only I knew that I would have this thing beat.

Adrienne, What is SID?

.

At 20:43 18/02/2002 -0500, you wrote:

>My daughter doesn't have autism but she has SID.She has come a long way with

>therapy. She is only 19 months old so she hasn't been labeled OCD but I think

>she has tendencies.My husband and I call it hair patrol.Some nights she will

>sit in the tub and not play with her toys.She will search the ENTIRE bathtub

>looking for hair and she will hand you each one. She will get my brushes out

>from under the sink and clean them out for me. If she gets dog hair on her

>hand she will walk up to us for us to wipe her hand off.Is this typical

>OCD?ne

>

>

>

[Guest guest]

My son perseverates on topics like space, which I view as slightly OCD. I

notice that he gets more obsessive after getting sick, particularly with

strep. I treat strep with a penicillin shot instead of antibiotics by gut

but I'm not sure it always works. Whenever he gets more obsessive, I check

him for strep whether he acts sick or not. There is some research going on

about this at the NIMH (check their website). Also Dr. Goldberg in

California and some DAN doctors are beginning to pay attention to this

phenomenon, called PANDAS. Good luck.

[ ] OCD

> Any one else's kid suffer with OCD.

> At times I feel pretty much alone with this messy

> disorder. I hate it .

> I guess I know it drives him nuts enough without

> my commenting on it.

> I hate this more than I do his autism.

> As a matter of fact as autism goes he is pretty high functioning.

> And even if he weren't it still would not bother me as much as this OCD.

> It pretty much drives both of us crazy.

> I know moms with autistic kids without OCD. But yet to speak to one who's

kid

> is afflicted this way.

> OCD is a demon in its own right.

> Does anyone know if chelation helps with this disorder.

> If not chelation, what med then? My son's OCD comes and goes

> WE just went 7 weeks with NO ocd. It is never related to Something.

> Sometimes I think it is his own perception of the world or the stress

> therin that brings these horrendous bouts

> back on.

> Anyone out there with a child with OCD?

> Please share your experience.

> .

> .

> .

> I hope this is not contageous.

>

>

>

> =======================================================

>

[Guest guest]

This is so interesting. My son is very this way with his topics, we just

thought it was perseveration. These days it is LIGHTNING. (Aarg -- I would

be a happy woman if I never heard that word again in my life.) We were

totally shocked when after this huge time of obsessing over lightning a

sunday school teacher flipped the lights in the classroom to simulate

lightning (I think she was telling Noah's Ark story) and my son had a HUGE

meltdown. She later came to us and apologized for terrifying him. I was

*agape*.

I will have to read this book. Vitamins & special diet & ABA have taken my

son soooooo far but *nothing* has eliminated his obsessiveness.

Suzanne

on 2/18/02 9:30 PM, J. Greenberg at greenvil@... wrote:

Hi ,

Funny you should bring this topic up now when I'm finally aware of what

I'm dealing with too. For years I spoke with all the autism folks about

this behaviour of my daughter's and they all acted like I was merely

talking about perseveration. Granted, her OCD is atypical but it is NOT

perseveration....she has that too and this is different. And I didn't

know of any ASD kids who perserverated in this manner that ultimately

gets in the way of her life in a big, big way. Her OCD takes the form of

taking an interest in something---everything seems fine--then she starts

taking a greater interest, then it dominates just about every thought

and action she has; then she's taken the topic of interest waaaaay out

of it's original context into realms that make no sense; then she starts

freaking out about the topic and, if anybody brings up the topic in it's

regular context she has huge meltdowns; or if she sees the object of

obsession she has a meltdown acting like it's the most terrifying thing

in the world. Then the original interest, which began so harmless, has

entered the forbidden zone and becomes the object of extreme anxiety.

It's like she gets a lock on something and doesn't know how to let go,

thus it escalates to a painful point. I had to see a non-autism,

ordinary therapist to help me understand this behaviour because

everybody else was insisting it was perseveration and that we should

build upon it, expand it, accept it as part of her autism.

Unfortunately, all we were doing was feeding her to an ultimate

meltdown. I'm all for joining and building on kids perseverations....my

daughter has those as well and joining/building was greatly

successful.....but not the OCDs. With the OCDs, joining and building was

like giving her, at age 7.5, the keys to the car, knowing she wouldn't

be able to control the vehicle. The therapist explained that an, overall

anxiety issue creates the need to lock onto something as a way of

relieving the anxiety, but then that thing becomes the object of the

anxiety.

Enough about us.

Here's what I've learned that might be able to help you: We're using a

great book called " Freeing Your Child from Obsessive/Compulsive

Disorder " by Tamar Chansky. We're implementing some of the techniques in

the book with great success and I think my daughter is finally relieved

to have her OCD stuff identified and addressed.

Also, they say OCD is anxiety based and my father insists that vitamin

B1 cured him of his anxiety issues. We havn't tried yet for various

reasons (a special diet we're on), but it might be worth a try to try

the water soluble kind. Only problem is one nutritionist told me it

feeds yeast, so don't do it if she's dealing with yeast issues.

I can't speak with intelligence about the application of chelation to

OCD, but if your child is mercury toxic (and my daughter is) I don't

think it's doing her any favors by staying there.

I hope this helps and, I agree, it can seem harder than the autism

itself. My daughter is also high functioning and, until recently, I've

felt that this was the most significant issue we've been dealing with.

Good luck!

Marisol

[Guest guest]

Hi,

At 04:11 PM 2/20/02, you wrote:

>B1 cured him of his anxiety issues. We havn't tried yet for various

>reasons (a special diet we're on), but it might be worth a try to try

>the water soluble kind. Only problem is one nutritionist told me it

>feeds yeast, so don't do it if she's dealing with yeast issues.

From what I've heard the B-vitamins that are derived from or contain yeast

aren't good when you're battling yeast. I've never heard of 'clean'

B-vitamins feeding yeast, to the contrary. Then again, I'm by no means an

expert on the subject, but maybe you should ask the nutritionist where she

got her information.

[Guest guest]

Lindsey has OCD

Lindsey's was so bad at one point her psychologist said she was very close to

being put in the hospital.

Here are some things that Lindsey did. She is on Risperdal now and it has helped

so much!!!!!

When Lindsey woke up she had to check to make sure all the doors are shut then

presses on them,and the lights. Theres a certain light she had to have on. The

chairs had to be right too. She would also line up the shoes and know right away

if one has been touched.

She also had to touched something over and over. These things would go on ALL

day.

OCD is something that really interfered with her life. She could not finish a

meal because someone left a door open,and she could think of NOTHING but that

door.

She NEEDED to do these things to make her feel good for a brief period until the

urge took over again.Its like needing a drug and not feeling right until you

have it.

She's had alot of tics also,so the Dr is calling it Tourettes. We see the

Psychiatrist every 2 months and was seeing a psychologist once a week, at my

house and at school.

There was a time that instead of playing at the park she would fix every ones

shoes instead, or at a restaurant she would have to fix all the chairs,sometimes

before the person has barely gotten out of his chair,but for the most part she

would refrain from OCD until she gets home and then it explodes. Last year at

school she fixed all the chairs and thats it! but at home ,she could barely eat

because the OCD was so strong. Her worse OCD behavior was saying " sorry mom " I

cant even tell you how severe this was,I have her on tape but I can't even watch

it. Not only did she say " sorry mom " 100 times a day, she needed me to respond a

certain way.

This is the OCD that I know about! Nothing to do with your situation,but I just

wanted to share. I do not know all the types of OCD.

OCD runs in my family,so that and having apraxia could play a part,I guess?

Jennie

mom to Lindsey- age 7

[Guest guest]

My son very slowly (over a period of nine months) got a bad reaction

to Strattera, an antidepressant. I actually consulted with my pdoc

about OCD or bipolar. Neither quite fit, but I knew something was

amiss. My pdoc told me to take him off the antidepressant ASAP, and

put him on no other meds, (thank God!!!) Once he was off of it, he

went right back to his normal sweet self. Very go-with-the-flow.

So if this has happened all of a sudden, I'd also look to see if

there is something else going on.

Here is a great web site on bipolar:

www.bpkids.org

HTH

Sio

(

> I know that I have seen lots of posts on OCD in the past and

didn't pay

> alot of attention because it wasn't that big of an issue for us.

> However, we are now dealing with it big-time and would appreciate

any

> words of wisdom, treatment, or advice.

>

> Thanks-

> SJ

[Guest guest]

My son gets OCD tendencies during and after colds, which makes me believe for

him it's strep or virus related.

Debbie

[Guest guest]

Hi SJ,

Consider checking for strep virus .

R

[Guest guest]

, Paxil has helped my daughter's OCD go from being literally

debilitating to being a minor nuisance. We tried this only after

dietary modifications, OT/speech therapies, supplements, and much

prayer.

Debi

--- In , Hanna

> If not chelation, what med then? My son's OCD comes and goes

> WE just went 7 weeks with NO ocd.

[Guest guest]

Olive leaf extract does not interfere with medications. But I give my children

both are autistic, choline & inositol it seems to help calm the OCD behaviors.

Aminah

-------------- Original message --------------

> What kind of luck have you folks had in dealing with OCD naturally or

> otherwise? My son is on three meds to help with moods and anxiety and

> the OCD is still a problem--not nearly as bad, but still there.....I

> have heard that OLE is good for OCD but does it interfere with

> medication?

>

> Thanks

> SJ

>

>

>

>

> =======================================================

>

[Guest guest]

What does your son does that is OCD?

I am a little bit confused sometimes between stimming and OCD.

My son takes inositol and his anxiety is gone.

Sometimes he lines up objects, sometimes he gets fixated on something

(he decides he wants to do something and then get stuck on that even

if it is something he cannot do), his play tends to be repetitive.

Is that OCD?

I am guessing that these are viruses related. I have not fully

addressed viruses yet, but I am doing a little bit of Lauricidin, OLE

and I did the mega dose vit A protocol.

> What kind of luck have you folks had in dealing with OCD naturally

or

> otherwise? My son is on three meds to help with moods and anxiety

and

> the OCD is still a problem--not nearly as bad, but still

there.....I

> have heard that OLE is good for OCD but does it interfere with

> medication?

>

> Thanks

> SJ

[Guest guest]

> What does your son does that is OCD?

>

> I am a little bit confused sometimes between stimming and OCD.

> My son takes inositol and his anxiety is gone.

> Sometimes he lines up objects, sometimes he gets fixated on

something

> (he decides he wants to do something and then get stuck on that

even

> if it is something he cannot do), his play tends to be repetitive.

> Is that OCD?

> I am guessing that these are viruses related. I have not fully

> addressed viruses yet, but I am doing a little bit of Lauricidin,

OLE

> and I did the mega dose vit A protocol.

>

-add in some 5-HTP and see if that makes a difference.

Some of his behaviour will disappear as he gradually gets better and

becomes less autistic. A few rounds of chealtion could make a big

difference here.

Steve

[Guest guest]

> What kind of luck have you folks had in dealing with OCD naturally or

> otherwise? My son is on three meds to help with moods and anxiety and

> the OCD is still a problem--not nearly as bad, but still there.....I

> have heard that OLE is good for OCD but does it interfere with

> medication?

I use anti-virals. OLE works best for my son, followed by Lauricidin

and protease enzymes.

High dose vitamin A protocol was also good. That was the first

anti-viral I did, and helped quite a bit.

Dana

[Guest guest]

Dana- How much OLE, Lauricidin and enzymes did you use for your son?

My son is 9 and weighs about 70 pounds. We tried the vitamin A and

didn't see anything back in December......

SJ

On Thursday, September 16, 2004, at 12:10 PM, Autism-

Mercury wrote:

> Message: 21

> Date: Thu, 16 Sep 2004 14:09:58 -0000

> From: " danasview " <danasview@...>

> Subject: Re: OCD

>

>

>> What kind of luck have you folks had in dealing with OCD naturally or

>> otherwise? My son is on three meds to help with moods and anxiety and

>> the OCD is still a problem--not nearly as bad, but still there.....I

>> have heard that OLE is good for OCD but does it interfere with

>> medication?

>

>

> I use anti-virals. OLE works best for my son, followed by Lauricidin

> and protease enzymes.

>

> High dose vitamin A protocol was also good. That was the first

> anti-viral I did, and helped quite a bit.

>

> Dana

[Guest guest]

> Dana- How much OLE, Lauricidin and enzymes did you use for your son?

I started with lower doses, and I recently reduced the doses, but the

high was 3000 mg OLE, 6 scoops Lauricidin, and 2 each of 4 different

enzymes, each day.

> My son is 9 and weighs about 70 pounds.

My son is 8 and weighs about 65 pounds.

>>We tried the vitamin A and

> didn't see anything back in December......

I had to do it twice, my experience is here

http://www.danasview.net/vitamina.htm

Dana

[Guest guest]

Initially, for my son, it was enzymes. After having PANDAS last

year, we found Cognitive Behavioral Therapy (CBT) had to be added to

the equation. We also treated for strep throat which did not always

have outwardly visable signs (several times), but all the testing

confirmed. I have links on my page below; the Wagner paper is a good

explanation of CBT for children. The Tourette's message boards

listed are often very active with discussion of alternatives for

OCD.

www.enzymestory.com/PANDAS.html

> What kind of luck have you folks had in dealing with OCD naturally

or

> otherwise?

[Guest guest]

OCD tends to be linked to low serotonin

For OCD, try inositol and tryptophan/5HTP. B6/P5P can also help a

little. But inositol has a real track record in this area and helps

most people. andy put me onto it and we got almost instant results

look at giving tryptophan-rich foods with carbs (eg dairy with grains,

yogurt with mashed banana, chicken/turkey with vegetables.) turkey

breast is esp. hihg in tryptophan

also look at cleaning up gut problems, esp. constipation, as serotonin

also acts in the gut. Butyrate, a short-cahin fatty acid, can help

with this

Steve

[Guest guest]

--- Thanks Steve, I do have some Inositol and 5-Htp, and have given

him " some " ...I wonder how much would be appropriate? he weighs 145

lbs. B6-P5P is that from Kirkman? My son is on Gluten-Casien free

diet, so most grains and dairy are out...maybe that is why he may be

deficient? Butyrate helps with leaky gut?

I am also OCD,ADD and a little Aspergerish. I suppose I should be

taking them also. This gets expensive for me and my 3 kids...we

don't even take OTC meds anymore. I really miss this list. I feel I

have lost so much ground...I used to read every post, but since I

moved back to FL...there is no time to even get online. I swear time

goes faster here!

Lindy

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

In , " steve_rotherham "

<steve.rotherham@b...> wrote:

>

> OCD tends to be linked to low serotonin

>

> For OCD, try inositol and tryptophan/5HTP. B6/P5P can also help a

> little. But inositol has a real track record in this area and

helps

> most people. andy put me onto it and we got almost instant results

>

> look at giving tryptophan-rich foods with carbs (eg dairy with

grains,

> yogurt with mashed banana, chicken/turkey with vegetables.) turkey

> breast is esp. hihg in tryptophan

>

> also look at cleaning up gut problems, esp. constipation, as

serotonin

> also acts in the gut. Butyrate, a short-cahin fatty acid, can help

> with this

>

> Steve

[Guest guest]

>

> --- Thanks Steve, I do have some Inositol and 5-Htp, and have

given

> him " some " ...I wonder how much would be appropriate?

-- I'm not sure re 5htp. Search Onibasu for " inositol 5htp OCD " -

andy has discussed this. With inositol you can go to large amounts,

so buy powder rather than caps and build up slowly looking for a

point where you either get results or side-effects

> lbs. B6-P5P is that from Kirkman?

-- lots of people sell it. P5P is a form of b6

>My son is on Gluten-Casien free

> diet, so most grains and dairy are out...maybe that is why he may

be deficient?

-- probably. Consider trying enzymes and goat/sheep dairy, esp. raw

milk. otherwise give turkey or chicken with vegetables

>Butyrate helps with leaky gut?

-- a bit. more with gut motility and ammonia levels

Steve