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By all means, tell your neuro about LDN and then insist on trying it. If he

won't cooperate, which I doubt that he will, there are ways of getting it

without his assistance. It's your life and you have the right to take

control of your health. If I can be of any help in getting LDN, let me

know.

Noland

----- Original Message -----

From: <spexl@...>

<low dose naltrexone >

Sent: Tuesday, October 21, 2003 3:24 PM

Subject: [low dose naltrexone] (unknown)

> CONNIE

>

> I WAS ON AVONEX FOR QUITE A COUPLE OF YEARS AND BETASERON TOO. BOTH

> ENDED UP, IN THE END, MAKING ME FEEL WORSE THAN I DID. NOW I'M ON

> NOVANTRONE THROUGH UCSD AND THAT DOESN'T SEEM TO BE DOING THE TRICK

> EITHER. SO NOW I'M THINKING OF TELLING MY NEURO. AT UCSD ABOUT THE LDN

> AND IF HE WONT GIVE IT TO ME, THEN I'LL DO IT ON MY OWN. I FEEL THAT

> SOMETIMES YOU HAVE TO TAKE YOUR HEALTH INTO YOUR OWN HANDS. I HOPE

> THIS HELPED.

>

>

>

>

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My situation is the same. I hate MRI's so I refuse them since there isn't anything they can do about it regardless of the results - except continue to push Avonex, which I stopped taking in March.

However, over the years, the scans on my head never got worse, but I got alot worse. The doctor felt confident that it must be impacting my spinal column.

-----Original Message-----From: spexl@... [mailto:spexl@...]Sent: Friday, October 24, 2003 1:02 PMlow dose naltrexone Subject: [low dose naltrexone] (unknown)I JUST GOT THE RESULTS OF MY"MRI" BACK FROM THE DR. AND HE SCANNED MY HEAD. HE SAID THERE WASESSENTIALLY NO CHANGE. YET PARTS OF MY BODY ARE STILL PREGRESSIVELYGETTING NUMB. WOULD THIS SHOW UP IN MY HEAD OR SHOULD I ASK HIM TO LOOKAT MY SPINE. MY APPENDIX RUPTURED AND I DIDNT EVEN FEEL THAT. DOESANYONE OUT THERE HAVE ANY SUGGESTIONS.

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I would think so - that would be the responsible thing to do as far as I'm concerned - but mine never did. Maybe it's because he knew how much I hated MRI's ( I have a chronic phobia - last time, which was 4 years ago, they "knocked" me out) and that whatever the results were, he wouldn't prescribe anything different than Avonex. If not for my phobia of MRI's (and spinal taps), I would have requested a test.

-----Original Message-----From: spexl@... [mailto:spexl@...]Sent: Friday, October 24, 2003 1:00 PMlow dose naltrexone Subject: [low dose naltrexone] (unknown)CONNIEWOULDNT YOU THINK THEY SHOULD ASK FOR AN "MRI" OF THE SPINE?

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It's just interesting because what Dr. Bihari shared with me was that Avonex

and LDN counteract each other because they effect the body in different

ways. It might be worth asking your doctor.

-----Original Message-----

From: Palace8@... [mailto:Palace8@...]

Sent: Friday, October 24, 2003 2:49 PM

Connie.King@...

Subject: Re: [low dose naltrexone] (unknown)

i asked my doctor that question also and he said no, I had to continue to

take avonex. For me this feels like an arranged marriage

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-----Original Message-----From: CK Connie King (1452) Sent: Friday, October 24, 2003 3:22 PM'NoClue915@...'; CK Connie King (1452)Subject: RE: [low dose naltrexone] (unknown)

He didn't tell me to stop Avonex - I apologize for m isleading anyone. I asked him if I should stop, and he suggested that they counteract each other.

-----Original Message-----From: NoClue915@... [mailto:NoClue915@...]Sent: Friday, October 24, 2003 3:16 PMconnie.king@...Subject: Re: [low dose naltrexone] (unknown)Hi Connie, just read your e-mail about Avonex. Dr. B will not tell anyone to stop there meds. He can't. He told me after the fact, when I told him I stopped the Rebif, he was happy to hear it. He can probably be sued if he tells them to stop. How are you doing up till now? You have been taking ldn alot longer than most. Was it a year? Kiki

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Gotta love Semantics -- AND MIND READING.

----- Original Message -----

From: CK Connie King (1452)

'low dose naltrexone '

Sent: Friday, October 24, 2003 15:23

Subject: FW: [low dose naltrexone] (unknown)

-----Original Message-----From: CK Connie King (1452) Sent: Friday, October 24, 2003 3:22 PM'NoClue915@...'; CK Connie King (1452)Subject: RE: [low dose naltrexone] (unknown)

He didn't tell me to stop Avonex - I apologize for m isleading anyone. I asked him if I should stop, and he suggested that they counteract each other.

-----Original Message-----From: NoClue915@... [mailto:NoClue915@...]Sent: Friday, October 24, 2003 3:16 PMconnie.king@...Subject: Re: [low dose naltrexone] (unknown)Hi Connie, just read your e-mail about Avonex. Dr. B will not tell anyone to stop there meds. He can't. He told me after the fact, when I told him I stopped the Rebif, he was happy to hear it. He can probably be sued if he tells them to stop. How are you doing up till now? You have been taking ldn alot longer than most. Was it a year? Kiki

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THIS ALSO CAME TO ME

Hello,

I'm a Pharmacist (Irish) with a lot of clinical experience..if I can help,

e-mail me a list of your meds (privately if you prefer) my mail:

benquinn@... all advice is and should be free!

n

----- Original Message -----

From: <spexl@...>

<low dose naltrexone >

Sent: Friday, October 31, 2003 1:50 AM

Subject: [low dose naltrexone] (unknown)

> I JUST GOT BACK FROM U.C.S.D. AND THEY SAID THAT THEY WOULD'NT

> PRESCRIBE IT FOR ME AND THAT I SHOULD GO THROUGH MY PRIMARY NEURO. THEY

> SAID THEY DIDNT HAVE A PROBLEM WITH ME GOING ON LDN. BUT THAT ONE OF

> THE MEDICINES IN THERE IS A FORM OR STERIOD. IF THATS THE CASE DOES IT

> HAVE THE SAME EFFECTS AS A STERIOD? MUST YOU BE WEINED OFF OF IT?

> ......................PLEASE HELP ME TO UNDERSTAND.

>

>

>

>

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  • 2 weeks later...

Skip's? Boca Raton Florida

----- Original Message -----

From: spexl@...

low dose naltrexone

Sent: Saturday, November 08, 2003 17:59

Subject: [low dose naltrexone] (unknown)

SALLYI HAD AN APPT. WITH DR.SCOTT ON FRIDAY AND ORDERED MY PERSC. FROM SKIPSPHARMACY. WHEN I LOOKED FOR THEM IN THE PHONE BOOK I REALIZED I DON'THAVE THEIR CITY. SALLY CAN YOU HELP ME?

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Skip's Pharmacy is in Boca Raton, Fl. Their phone number is listed in

www.LDNinfo.org.

Noland

----- Original Message -----

From: <spexl@...>

<low dose naltrexone >

Sent: Saturday, November 08, 2003 3:59 PM

Subject: [low dose naltrexone] (unknown)

>

> SALLY

>

> I HAD AN APPT. WITH DR.SCOTT ON FRIDAY AND ORDERED MY PERSC. FROM SKIPS

> PHARMACY. WHEN I LOOKED FOR THEM IN THE PHONE BOOK I REALIZED I DON'T

> HAVE THEIR CITY. SALLY CAN YOU HELP ME?

>

>

>

>

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  • 2 weeks later...

I have a

forum I posted for people who have ms and use LDN. If anyone would be

interested, my group would surely love to hear how its

helped others. There

are just a hand full of people in my group currently using LDN and

I’ve passed on the link to this newsgroup so they may join and hear it

here but most are not into doing email newsgroups. As a matter of fact, most don’t

know how to do emails period.

Most of my members are new to the internet but with an online forum and

message board they can read the posts whenever they can. Just wanted to ask

those who have MS if they could please share their experiences.

http://pub21.bravenet.com/forum/show.php?usernum=1801162371 & cpv=2

son

Owner/

operator

Friends with MS.com

son

Owner/

operator

Friends with MS.com

-----Original Message-----

From: spexl@...

[mailto:spexl@...]

Sent: Sunday, November 23, 2003 10:20 AM

To:

low dose naltrexone

Subject: [low dose naltrexone]

(unknown)

WOW!!!! I'VE BEEN ON 3MG OF LDN FOR

ONE DAY SHORT OF 2 WEEKS. THIS

MORNING I FELL. USUALLY I HAVE TO CALL 911

TO HELP ME GET BACK UP ON MY

FEET AND TODAY I WAS ABLE TO GET UP BY MY

SELF. THATS THE FIRST TIME I

WAS ABLE TO DO THAT IN 3 YEARS!! I STARTED

THE BEE VENOM 2 DAYS AGO AND

YESTERDAY I TOOK 10 PILLS..........ANYWAY I'M SO

HAPPY I'M ALMOST UNFIT

TO LIVE WITH. I JUST WANTED TO SHARE THAT

WITH ALL OF YOU. YIPEEEEEE

To unsubscribe from this

group, send an email to:

low dose naltrexone-unsubscribe

Your use of

is subject to the

Terms of Service.

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Hi ....I am a member of your " Friends with MS

group....haven't been there for awhile, but I did renew my

membership for another year...lol. Nice to see you here and also on

LDN...It's a good thing.

Hugs, Sally

> I have a forum I posted for people who have ms and use LDN. If

anyone

> would be interested, my group would surely love to hear how its

helped

> others. There are just a hand full of people in my group currently

> using LDN and I've passed on the link to this newsgroup so they

may join

> and hear it here but most are not into doing email newsgroups. As

a

> matter of fact, most don't know how to do emails period. Most of

my

> members are new to the internet but with an online forum and

message

> board they can read the posts whenever they can. Just wanted to

ask

> those who have MS if they could please share their experiences.

> http://pub21.bravenet.com/forum/show.php?usernum=1801162371

> <http://pub21.bravenet.com/forum/show.php?usernum=1801162371 & cpv=2>

> & cpv=2

>

>

> son

> Owner/ operator

> Friends with MS.com <http://www.friendswithms.com/>

>

> son

> Owner/ operator

> Friends with MS.com <http://www.friendswithms.com/>

>

> -----Original Message-----

> From: spexl@w... [mailto:spexl@w...]

> Sent: Sunday, November 23, 2003 10:20 AM

> low dose naltrexone

> Subject: [low dose naltrexone] (unknown)

>

> WOW!!!! I'VE BEEN ON 3MG OF LDN FOR ONE DAY SHORT OF 2 WEEKS.

THIS

> MORNING I FELL. USUALLY I HAVE TO CALL 911 TO HELP ME GET BACK UP

ON MY

> FEET AND TODAY I WAS ABLE TO GET UP BY MY SELF. THATS THE FIRST

TIME I

> WAS ABLE TO DO THAT IN 3 YEARS!! I STARTED THE BEE VENOM 2 DAYS

AGO AND

> YESTERDAY I TOOK 10 PILLS..........ANYWAY I'M SO HAPPY I'M ALMOST

UNFIT

> TO LIVE WITH. I JUST WANTED TO SHARE THAT WITH ALL OF YOU.

YIPEEEEEE

>

>

>

>

>

>

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Anything that contains a narcotic.

----- Original Message -----

From: <spexl@...>

<low dose naltrexone >

Sent: Saturday, November 22, 2003 2:03 PM

Subject: [low dose naltrexone] (unknown)

>

>

> WHAT CAN'T YOU TAKE WITH LDN?

> ANYBODY?

>

>

>

>

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I

recognized your email now I know who you are J

I

decided to try to get on LDN. Someone

from this group is going to help me find a dr. and a pharmacy where I can get

it.

I have ms and Fibromyalgia and for the most part I have over all pain and

fatigue. My worst symptom is my

vision coming and going on me.

Well today I woke up and couldn’t stand up straight. My muscles are so tight in my legs and

back that I can’t straighten out. If I try I feel like my legs will

snap. I’m on baclofen and the

Neurologist just keeps increasing my dosage on me but it doesn’t seem to

help much anymore. He says I have a long way to go before I

would need the pump. Let me

tell you this…. I will try everything else first before I get a baclofen

pump implant!!! Last thing I want

to do is go through surgery and then once a month have to go the the hospital

for a refill on my pump!!! L

I’m so pissed at this

disease its not funny. Today for the first time I couldn’t

help get my 7 year old dressed or fix his hair. My 9 year old daughter said its ok mommy

I can do it… boy did I cry.

Hes my youngest and last child and I cherish those little things. I miss being able to do hair cuts on my

kids and husband. I used to be a cosmetologist

and worked in a spa during the day and taught it at night. Now I can only hold the scissors

long enough to trim my cats butt lol

Have a Persian and don’t

know if anyone here has ever seen the back end of a Persian but its not pretty

when they get out of the litter box lol.

Any who…..

I want to thank everyone

here for helping make up my mind and trying to get on LDN

asap. I originally joined to

gather up information for my own group so all of us can be better educated

about this medication and have now decided instead of waiting till my avonex no

longer works, I’m going to try to get on LDN now.

Thank

you,

son

Owner/

operator

Friends with MS.com

-----Original Message-----

From: Sally

[mailto:salpal@...]

Sent: Sunday, November 23, 2003

5:55 PM

To:

low dose naltrexone

Subject: [low dose naltrexone] Re:

(unknown)

Hi ....I am a member of your " Friends

with MS

group....haven't been there for awhile, but I did

renew my

membership for another year...lol. Nice to

see you here and also on

LDN...It's a good thing.

Hugs, Sally

> I have a forum I posted for people who have

ms and use LDN. If

anyone

> would be interested, my group would surely

love to hear how its

helped

> others. There are just a hand full of

people in my group currently

> using LDN and I've passed on the link to this

newsgroup so they

may join

> and hear it here but most are not into doing

email newsgroups. As

a

> matter of fact, most don't know how to do

emails period. Most of

my

> members are new to the internet but with an

online forum and

message

> board they can read the posts whenever they

can. Just wanted to

ask

> those who have MS if they could please share

their experiences.

> http://pub21.bravenet.com/forum/show.php?usernum=1801162371

> <http://pub21.bravenet.com/forum/show.php?usernum=1801162371 & cpv=2>

> & cpv=2

>

>

> son

> Owner/ operator

> Friends with MS.com <http://www.friendswithms.com/>

>

> son

> Owner/ operator

> Friends with MS.com <http://www.friendswithms.com/>

>

> -----Original Message-----

> From: spexl@w... [mailto:spexl@w...]

> Sent: Sunday, November 23, 2003 10:20 AM

> low dose naltrexone

> Subject: [low dose naltrexone] (unknown)

>

> WOW!!!! I'VE BEEN ON 3MG OF

LDN FOR ONE DAY SHORT OF 2 WEEKS.

THIS

> MORNING I FELL. USUALLY I HAVE TO CALL

911 TO HELP ME GET BACK UP

ON MY

> FEET AND TODAY I WAS ABLE TO GET UP BY MY

SELF. THATS THE FIRST

TIME I

> WAS ABLE TO DO THAT IN 3 YEARS!! I

STARTED THE BEE VENOM 2 DAYS

AGO AND

> YESTERDAY I TOOK 10 PILLS..........ANYWAY I'M

SO HAPPY I'M ALMOST

UNFIT

> TO LIVE WITH. I JUST WANTED TO SHARE

THAT WITH ALL OF YOU.

YIPEEEEEE

>

>

>

>

>

>

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Good afternoon, :

Perhaps the following doctors will be closer. If not, then I believe a 3 hour drive will be time, money, and health well spent.

Dr. Bruce Sharpnack Hickory, PA 724-356-2273Dr. Jeff Esper Erie, PA 814-877-4600 Sullivan Mechanicsburg, PA 717-697-5050Best wishes,

Noland

----- Original Message -----

From: son

'Sally' ; low dose naltrexone

Sent: Monday, November 24, 2003 1:45 PM

Subject: RE: [low dose naltrexone] Re: (unknown)

My husband just got home from our primary dr. and he said that he can not prescribe the LDN for me because its not listed in the PDR. He did say that if I can find the proper information on it or a dr. who will prescribe it for me he will write up the referral for me ASAP. Someone from this group (Susie) emailed me a list of dr.’s who prescribe LDN and the closest one to me is in NJ. It will be a 3 hour drive but I’m going to call him and see if it’s possible to get an apt. with this guy.

If anyone knows of a dr. close to Philly who prescribes LDN please let me know?

Thank you,

son

Owner/ operator

Friends with MS.com

-----Original Message-----From: Sally [mailto:salpal@...] Sent: Sunday, November 23, 2003 5:55 PMlow dose naltrexone Subject: [low dose naltrexone] Re: (unknown)

Hi ....I am a member of your "Friends with MS group....haven't been there for awhile, but I did renew my membership for another year...lol. Nice to see you here and also on LDN...It's a good thing.Hugs, Sally> I have a forum I posted for people who have ms and use LDN. If anyone> would be interested, my group would surely love to hear how its helped> others. There are just a hand full of people in my group currently> using LDN and I've passed on the link to this newsgroup so they may join> and hear it here but most are not into doing email newsgroups. As a> matter of fact, most don't know how to do emails period. Most of my> members are new to the internet but with an online forum and message> board they can read the posts whenever they can. Just wanted to ask> those who have MS if they could please share their experiences.> http://pub21.bravenet.com/forum/show.php?usernum=1801162371> <http://pub21.bravenet.com/forum/show.php?usernum=1801162371 & cpv=2>> & cpv=2> > > son> Owner/ operator > Friends with MS.com <http://www.friendswithms.com/> > > son> Owner/ operator > Friends with MS.com <http://www.friendswithms.com/> > > -----Original Message-----> From: spexl@w... [mailto:spexl@w...] > Sent: Sunday, November 23, 2003 10:20 AM> low dose naltrexone > Subject: [low dose naltrexone] (unknown)> > WOW!!!! I'VE BEEN ON 3MG OF LDN FOR ONE DAY SHORT OF 2 WEEKS. THIS> MORNING I FELL. USUALLY I HAVE TO CALL 911 TO HELP ME GET BACK UP ON MY> FEET AND TODAY I WAS ABLE TO GET UP BY MY SELF. THATS THE FIRST TIME I> WAS ABLE TO DO THAT IN 3 YEARS!! I STARTED THE BEE VENOM 2 DAYS AGO AND> YESTERDAY I TOOK 10 PILLS..........ANYWAY I'M SO HAPPY I'M ALMOST UNFIT> TO LIVE WITH. I JUST WANTED TO SHARE THAT WITH ALL OF YOU. YIPEEEEEE> > > > > >

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My husband

just got home from our primary dr. and he said that he can not prescribe the

LDN for me because its not listed in the PDR. He did say that if I can find the proper

information on it or a dr. who will prescribe it for me he will write up the referral

for me ASAP. Someone from this group (Susie) emailed me a

list of dr.’s who prescribe LDN and the closest one to me is in NJ. It will be a 3 hour drive but I’m going

to call him and see if it’s possible to get an apt. with this guy.

If

anyone knows of a dr. close to Philly who prescribes LDN please let me know?

Thank

you,

son

Owner/

operator

Friends with MS.com

-----Original Message-----

From: Sally

[mailto:salpal@...]

Sent: Sunday, November 23, 2003

5:55 PM

To:

low dose naltrexone

Subject: [low dose naltrexone] Re:

(unknown)

Hi ....I am a member of your " Friends

with MS

group....haven't been there for awhile, but I did

renew my

membership for another year...lol. Nice to

see you here and also on

LDN...It's a good thing.

Hugs, Sally

> I have a forum I posted for people who have

ms and use LDN. If

anyone

> would be interested, my group would surely

love to hear how its

helped

> others. There are just a hand full of

people in my group currently

> using LDN and I've passed on the link to this

newsgroup so they

may join

> and hear it here but most are not into doing

email newsgroups. As

a

> matter of fact, most don't know how to do

emails period. Most of

my

> members are new to the internet but with an

online forum and

message

> board they can read the posts whenever they

can. Just wanted to

ask

> those who have MS if they could please share

their experiences.

> http://pub21.bravenet.com/forum/show.php?usernum=1801162371

> <http://pub21.bravenet.com/forum/show.php?usernum=1801162371 & cpv=2>

> & cpv=2

>

>

> son

> Owner/ operator

> Friends with MS.com <http://www.friendswithms.com/>

>

> son

> Owner/ operator

> Friends with MS.com <http://www.friendswithms.com/>

>

> -----Original Message-----

> From: spexl@w... [mailto:spexl@w...]

> Sent: Sunday, November 23, 2003 10:20 AM

> low dose naltrexone

> Subject: [low dose naltrexone] (unknown)

>

> WOW!!!! I'VE BEEN ON 3MG OF

LDN FOR ONE DAY SHORT OF 2 WEEKS.

THIS

> MORNING I FELL. USUALLY I HAVE TO CALL

911 TO HELP ME GET BACK UP

ON MY

> FEET AND TODAY I WAS ABLE TO GET UP BY MY

SELF. THATS THE FIRST

TIME I

> WAS ABLE TO DO THAT IN 3 YEARS!! I

STARTED THE BEE VENOM 2 DAYS

AGO AND

> YESTERDAY I TOOK 10 PILLS..........ANYWAY I'M

SO HAPPY I'M ALMOST

UNFIT

> TO LIVE WITH. I JUST WANTED TO SHARE

THAT WITH ALL OF YOU.

YIPEEEEEE

>

>

>

>

>

>

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  • 5 years later...

Beautiful work Randy :>)

Peace, Love, Light, and Joy, Cherylvisit me at: www.myspace.com/senegalady

You are a vast and courageous Being and I am honored to travel the way home with you this incarnation.

You are a vast and courageous Being and I am honored to travel the way home with you

In a message dated 1/23/2009 4:05:35 P.M. Eastern Standard Time, jqpublic_59@... writes:

The Last Spring That I Remember

The last spring that I rememberwas born of you.All of the seasonaltell tale manifestationsyou held within your being-Inner and outer equally.

Your eyes reflected the sun.Perhaps it originated there.The light of life, of gentle warmth.The testament foundin the shadows of flowersleaning in your directionto get a better look,as did I to give praise.

Praise. Beyond words praise.Humility and blissful gratitudewhich turned to jelloevery time I tried to make a sentenceor attempt a complimentfrom the never ending sky of metaphorswhich fit you as perfectlyas the ocean meeting the shore.Our best conversations heldin the depths of silent smiles.Oh so many stories we shared.We lived.

To this day,this dark lonely desolate day,I try to understand.I try to find the moment,the reason whyyou left my arms,leaving me onlywith taunting mimicing dreams.Waking abruptlybecause I thought you were there.

I can never love anotheras I did you...

The first spring that I rememberwas born of you.All of the seasonaltell tale manifestationsyou held within your being-Inner and outer equally.

-Randy From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news.

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  • 4 months later...
Guest guest

majitha, so good to hear from you! please email me @ lauraanneevans@.... I've tried to email you, i get a return message that there is an error.

From: Majitha E <majitha79@...>; discerningangels ; Baba <cruiserlj79@...>; Dr Boylan <drboylan@...>; Bro <johnson_s4u@...>; cb <clb1017@...>; Jeff England <best_sol@...>; Rosey Rainjana <thesacredrose59@...>; Shaine <shamendrasen@...>; Wendi <BlackfootTurtle@...>Sent: Tuesday, June 9, 2009 3:10:42 AMSubject: [] (unknown)

http://www.buddhane t.net/xmedfile. htm

MAJI

Treat people as if they were what they ought to be, and you'll help them to become what they are capable of becoming.

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Guest guest

Dear ,

I wanted to ask you something.. Is pranic healing is also something like light working or are they both the same???

Majitha

MAJI

Treat people as if they were what they ought to be, and you'll help them to become what they are capable of becoming.

From: Anne <lauraanneevans@...>Subject: Re: [] (unknown) Date: Tuesday, June 9, 2009, 8:34 AM

majitha, so good to hear from you! please email me @ lauraanneevans@.... I've tried to email you, i get a return message that there is an error.

From: Majitha E <majitha79@...>; discerningangels ; Baba <cruiserlj79@...>; Dr Boylan <drboylan@...>; Bro <johnson_s4u@...>; cb <clb1017@...>; Jeff England <best_sol@...>; Rosey Rainjana <thesacredrose59@...>; Shaine <shamendrasen@...>; Wendi <BlackfootTurtle@...>Sent: Tuesday, June 9, 2009 3:10:42 AMSubject: [] (unknown)

http://www.buddhane t.net/xmedfile. htm

MAJI

Treat people as if they were what they ought to be, and you'll help them to become what they are capable of becoming.

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