Re: Re: OCD waxing and waning (Barb)

[Guest guest]

Hi Barb,

I had no idea it changed. I noticed it waxed and waned...but

changing...never entered my mind.

We think we may have found him a Dr.....here's hoping!!

You know what gets me....the reading and repeating the sentences, the

talking and repeating sentences...he does none of that at school. Just at home.

I asked him about it, and he said he works very hard to not do it at school.

sometimes it gets away from him, but most of the time he can control it.

In a message dated 11/23/2008 5:31:07 P.M. Central Standard Time,

barbnesrallah@... writes:

Hi ,

Not sure if someone answered this already, couldn't see...

OCD waxes and wanes and will switch from one thing to another, and

switch back. Basically graps onto whatever it can, will keep growing

itself until you find how to shut it down - ie not answer it in any

way with rituals, or even mental attention(can be a form of ritual).

It's possible your son has switched rituals, the repeating sentences,

or added, so he can do less of something else. Ours would find a

sentence to say to cover a whole bunch of things, which would work

until it didn't, usu a few days...

The waxing and waning, I don't know the why of, that's a good

question. But we would witness a gradual intensification, reach a

high point and then gradually subside, over about five days or so.

Could always feel it coming, edgeyness started.

With the switching, sometimes we would not see something for months

and then it would be back. If you " answer " it at all, ie do a ritual

of some kind, it just starts up again. That may be part of the

switching thing, not sure though.

Curious to see if others have info on this.

Was just erasing the attached post and noticed the comment about

stopping zoloft and OCD better from prev. poster. If the med. is not

right it definitely can make it worse, dose change usu makes it

intensify too, we certainly experienced this.

Some go through quiet periods, and then things erupt. Others seem to

have a slow gradual improvement, others faster results. Degree of

severity influences this of course. Also hink it may be the learning

curve with CBT/ERP, learning how to really manage the OCD can be a

long process.

We had sudden severe onset with unrelenting OCD 24/7, I mean even in

his dreams!, until medication was started. Then some immediate

relief, then huge adjustment period to medication, finally some

stability with medication, loooooong learning curve with the OCD,

until the realization from our son that he would have to deal, no

short cuts.

Barb

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[Guest guest]

Hi Barb,

I'm glad you understand. Yes, I've been very busy, and getting busier. So

much going on with Micah. And my daughter and her fiance are coming in for

Christmas on the 18.

No, right now I'm getting individual emails. I've never tried digest. Do you

like it better?

Insurance....well I got some better news about our insurance. They told me

they only offer 5 visits per year, but then someone else told me they have a

long term care plan, they evidently don't divulge that info unless you find out

elsewhere. Anyway his new Dr. is joining the network. But...it can take

months...so we are still out of pocket unless co. Agrees to pay while in

process...which would be great, but not likely.

the mental heath parity law goes into effect Jan 2010....cant get here too

soon.

In a message dated 12/2/2008 11:45:17 P.M. Central Standard Time,

barbnesrallah@... writes:

Hi ,

Never apologize, can't respond to everyone and everything! I've been

following your posts and you've been busy. Just wondered if you get

the digest version for messages, it saves getting multiple emails and

can be a bit easier to deal with.

Glad you found a doctor. Know the out of pocket part, we had no

insurance until just recently, so know this challenge. Only covers

seven visits so doesn't take you far anyway, hope yours is better.

Good that you are moving forward on this regardless, if this doctor

is experienced it can make such a difference.

Hope things move forward soon for you.

Barb

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