RE: Re: back from Dr. appt

[Guest guest]

Hi everyone,

We're back from Dr. appt. We knew Micah had Tourette's, and severe OCD, well

it turns out he also has ADD. The test is done on a scale I think, however

its scored, Micah's score was 98...I believe it only goes to 100.

No wonder the kid cant read and write anymore...all this is happening at

once.

Another thing, I'm a little down....have been for days. I finally told my

mother about what Micah's going through, with the TS, severe OCD. I emailed

her, I spent hours, writing, trying to put into words how he's feeling, we're

feeling....how hard this is on all of us...etc...

her response: thanks for the info, we'll pray for his recovery, what's he

want for Christmas.

that's it, no questions, no I'm sorry Micah is going through this, nothing,

completely void of any compassion or feeling.....ugggg!!

Micah has developed 2 new...I think tics....maybe OCD....I don't know. But

they are making me crazy. I don't know how to handle them. I'm sorry, I know

this is gross....he is rubbing his butt, then wiping it on walls, floor,

himself, anywhere....he has also started spitting...not at anyone, not when he's

upset, just out of the blue spits, on the floor, on himself, on the bed, the

wall....anywhere! The spitting I think is a tic, the other...I don't know what

to think.

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[Guest guest]

I'm sorry to hear your mom's response wasn't more sympathetic to what

you are going through. I have people in my life who think my son's OCD

is in MY head OR that he only does it with us and not them. Like we

are " making " him want to do his compulsions. He spent a few days at my

mother in laws and she said, he doesn't do anything here. Well, he

does, she just doesn't see it.

I just don't think people can understand until they are going through

it too.

Tracey

> Hi everyone,

> We're back from Dr. appt. We knew Micah had Tourette's, and severe

> OCD, well

> it turns out he also has ADD. The test is done on a scale I think,

> however

> its scored, Micah's score was 98...I believe it only goes to 100.

>

> No wonder the kid cant read and write anymore...all this is

> happening at

> once.

>

> Another thing, I'm a little down....have been for days. I finally

> told my

> mother about what Micah's going through, with the TS, severe OCD. I

> emailed

> her, I spent hours, writing, trying to put into words how he's

> feeling, we're

> feeling....how hard this is on all of us...etc...

>

> her response: thanks for the info, we'll pray for his recovery,

> what's he

> want for Christmas.

>

> that's it, no questions, no I'm sorry Micah is going through this,

> nothing,

> completely void of any compassion or feeling.....ugggg!!

>

> Micah has developed 2 new...I think tics....maybe OCD....I don't

> know. But

> they are making me crazy. I don't know how to handle them. I'm

> sorry, I know

> this is gross....he is rubbing his butt, then wiping it on walls,

> floor,

> himself, anywhere....he has also started spitting...not at anyone,

> not when he's

> upset, just out of the blue spits, on the floor, on himself, on the

> bed, the

> wall....anywhere! The spitting I think is a tic, the other...I don't

> know what

> to think.

>

>

> **************Life should be easier. So should your homepage. Try

> the NEW

> AOL.com.

>

(http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002

> )

>

>

[Guest guest]

Hi Tracey,

Thanks for the support....I was really having a bad few days. Im sorry your

family too, doesn't understand.

In a message dated 12/1/2008 1:21:52 P.M. Central Standard Time,

Tracey4567@... writes:

I'm sorry to hear your mom's response wasn't more sympathetic to what

you are going through. I have people in my life who think my son's OCD

is in MY head OR that he only does it with us and not them. Like we

are " making " him want to do his compulsions. He spent a few days at my

mother in laws and she said, he doesn't do anything here. Well, he

does, she just doesn't see it.

I just don't think people can understand until they are going through

it too.

Tracey

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[Guest guest]

Hey BJ,

sorry to be a drag to the list....its been so bad lately, I'm getting

depressed.

You would think your sister would understand her son. I get a lot of Monk

jokes when I try to tell people in the family. You know, I used to like that

show, not so much now, just cant seem to laugh at it anymore.

my mother tends to be icy anyway...I don't know why I expected anything

different.

thanks for listening BJ, things just seem to be spinning out of control.

well I guess it could go either way, in doing some reading, there's also a

smelling tic. He cant smell the odor, for some reason it's not registering in

his brain. but it smells awful, there's no BM, but you can smell it, though

you see nothing. I'm exhausted from washing walls, bedding, over and over. I

don't know what to do about the carpet, I cant clean it everyday. thankfully

you cant see it, it just makes his room smell.

he doesn't know why he does it, all he said is that he cant smell it. I

found it the hard way, I went to hug him, well he had done it, and evidentially

rubbed his neck......I thought I would puke! the smell was overwhelming.

we found a therapist.... first appt is Dec 8, but that is for us, then Micah

after that. still working on the psychiatrist for meds....4 month wait! will

try neurologist, to see if he's willing to do meds.

thanks so much for listening, its been a lousy

week,

In a message dated 12/1/2008 2:58:27 P.M. Central Standard Time,

BJClosner@... writes:

Hi, . Sorry you got disappointing news.

I'm also sorry your Mom wasn't more supportive. I've had similar

circumstances from family. Even my sister, who has a son with OCD.

His isn't as severe as Josh's, so I don't think they truly understand

how bad it's been at times for us, since their experiences have been

different. Seems so often it is something you truly don't get, unless

you live it.

We are here, , and we care. I know it's not quite the same, but

it has always helped me to know I'm at least not alone in this.

I'm not sure about the wiping thing. Haven't heard of that one

before, but then again, OCD can sometimes be unique and manifest

itself in different ways. So, it's hard to say. Can he put into

words what he is feeling when he does it, so you might be able to

figure out what thought he is trying to alleviate with the ritual?

The spitting thing is more common. Some spit because they think they

have something in their mouth, even when they know they don't. OCD is

irrational though, so that's to be expected. Some also will think

that somehow they got poison in their mouth, so spit. Has he

commented on why he feels the need to spit?

Maybe if he is up for it, you could fashion some type of ERP for it.

Like have him wait a certain amount of time (let him choose where to

start, time wise) before spitting, then increase the time limit, over

time, to hopefully make it stop altogether.

When does he start his therapy again? Sorry, can't remember.

I know it gets discouraging. <sigh> But, it can get better. Don't

lose hope.

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[Guest guest]

Gosh, I cant tell you all how relieved I am to find out this isn't totally

odd. With all that's been happening, my mind was running wild, thinking that

next they would tell me he was schizophrenic.

Its so nice, even though, I'm sorry for what you all are dealing with too,

to know he's ok.

In a message dated 12/1/2008 3:22:54 P.M. Central Standard Time,

sam269@... writes:

Wow! I'm surprised to hear this....

My son was peeing in the yard, now he does in gallon buckets and he has

some stored in his bedroom, he doesn't want to throw them away. So is

this OCD???? I was very upset about this. I even offered to do it myself

and he said, no leave that alone.

How do we know it's OCD and not just being lazy???

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[Guest guest]

Hi ,

 

My daughter doesn't show symptoms in front of anyone else either, or they just

aren't in tune to it as I am. I just got back from parent teacher conferences

with her 3 teachers, they all talked about how she appears to just be a normal

kid at school.  I just smiled and told them that I was glad things go so well

for her at school.

 

I also have other people in my life that don't get this either. They always seem

to say things that irritate the hell out of me. lol I have to remember though

that they don't know because they are not going through it. It isn't visible to

them, as a physical sickness would be so they have problems " getting " it. 

 

Like someone else said.... you have us. This group has   been so helpful to me

and it was a relief to know people understood and didn't question what I was

saying!

~~Kathy

 

gkathy40@...

http://www.myspace.com/clearingachannel

yahoo messenger id  gkathy40@...

Courage is not living without fear.

Courage is being scared to death and doing the right thing anyway.

-Chae

Subject: Re: Re: back from Dr. appt

To:

Date: Monday, December 1, 2008, 11:10 AM

Hi everyone,

We're back from Dr. appt. We knew Micah had Tourette's, and severe OCD, well

it turns out he also has ADD. The test is done on a scale I think, however

its scored, Micah's score was 98...I believe it only goes to 100.

No wonder the kid cant read and write anymore...all this is happening at

once.

Another thing, I'm a little down....have been for days. I finally told my

mother about what Micah's going through, with the TS, severe OCD. I emailed

her, I spent hours, writing, trying to put into words how he's feeling, we're

feeling....how hard this is on all of us...etc...

her response: thanks for the info, we'll pray for his recovery, what's he

want for Christmas.

that's it, no questions, no I'm sorry Micah is going through this, nothing,

completely void of any compassion or feeling..... ugggg!!

Micah has developed 2 new...I think tics....maybe OCD....I don't know. But

they are making me crazy. I don't know how to handle them. I'm sorry, I know

this is gross....he is rubbing his butt, then wiping it on walls, floor,

himself, anywhere.... he has also started spitting...not at anyone, not when

he's

upset, just out of the blue spits, on the floor, on himself, on the bed, the

wall....anywhere! The spitting I think is a tic, the other...I don't know what

to think.

************ **Life should be easier. So should your homepage. Try the NEW

AOL.com.

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m00000002)

[Guest guest]

My daughter was the same way -- no one at school would have known Kate was

struggling except for the rare occasion with OCD got the best of her. For the

most part she was able to hide it in public but would fall apart once she got

home where she felt " safe. "

We were so fortunate, though, because Kate's teacher also has OCD! Amazing!

When I went to her with Kate's issues she started watching and, sure enough, she

was able to see when Kate was struggling. She would take her aside and ask what

was up . . . this teacher also knew how to get Kate through a rough patch the

" right " way. One time a couple of teachers came upon Kate crying in the hallway

and started to baby her . . . but her teacher came along and sent the others

packing. She took Kate firmly by the arm and said, " We are walking back to the

classroom and, on the way, you are going to tell me everything you see. " So

they walked back with Kate saying, " door . . . 4th graders . . . bulletin board

.. . . water fountain " and, by the time they got back to the classroom, the OCD

had been vanquished again.

I am amazed by this teacher! She was just the absolute right person Kate needed

in her life at that time. This was last year but I still go into that classroom

when Kate has a problem and I want to know, " What would G. do? " She's so

helpful to me! And, best of all, she just adores Kate. She said to me last

year, " I look at that child and I see myself. I know exactly what she's dealing

with. "

Beth

Re: Re: back from Dr. appt

To:

Date: Monday, December 1, 2008, 11:10 AM

Hi everyone,

We're back from Dr. appt. We knew Micah had Tourette's, and severe OCD, well

it turns out he also has ADD. The test is done on a scale I think, however

its scored, Micah's score was 98...I believe it only goes to 100.

No wonder the kid cant read and write anymore...all this is happening at

once.

Another thing, I'm a little down....have been for days. I finally told my

mother about what Micah's going through, with the TS, severe OCD. I emailed

her, I spent hours, writing, trying to put into words how he's feeling, we're

feeling....how hard this is on all of us...etc...

her response: thanks for the info, we'll pray for his recovery, what's he

want for Christmas.

that's it, no questions, no I'm sorry Micah is going through this, nothing,

completely void of any compassion or feeling..... ugggg!!

Micah has developed 2 new...I think tics....maybe OCD....I don't know. But

they are making me crazy. I don't know how to handle them. I'm sorry, I know

this is gross....he is rubbing his butt, then wiping it on walls, floor,

himself, anywhere.... he has also started spitting...not at anyone, not when

he's

upset, just out of the blue spits, on the floor, on himself, on the bed, the

wall....anywhere! The spitting I think is a tic, the other...I don't know what

to think.

************ **Life should be easier. So should your homepage. Try the NEW

AOL.com.

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m00000002)

[Guest guest]

My daughter used to spit as inconspicuously as possible whenever she felt she

might have become contaminated by someone or something.  It was her compulsion

to relieve this anxiety.

Re: back from Dr. appt

Hi , I don't know much about the testing for ADD but do you

think his OCD could have played a part in the scoring? Distraction,

compulsions, thoughts, OCD stuff? Plus he already has difficulty

with reading, writing...? What type of testing did they do?

So sorry your mom sort of brushed it all off. Especially after you

told her how hard it is on Micah and the family, etc. My mom wasn't

understanding about OCD either and we lived with her.

As to rubbing his butt and wiping on walls... -- do you mean he is

smearing actual feces or just rubbing his butt (clean or clothed

butt)?

The spitting could be a tic, as you said. Especially with everything

else going on. But with my 3 sons, they all went through a spitting

stage. But generally spat on the ground, maybe their shirt...well,

maybe anywhere, LOL, but I don't think the wall. Just

that " something in my mouth " thing or maybe too much saliva? I

dunno. Drove me batty at the time(s). 20

>

> Hi everyone,

> We're back from Dr. appt. We knew Micah had Tourette's, and severe

OCD, well

> it turns out he also has ADD. The test is done on a scale I think,

however

> its scored, Micah's score was 98...I believe it only goes to 100.

[Guest guest]

I believe him, we mentioned it to the Neuropsychiatrist, and he believed him

too, saying the ol factory senses aren't working as they should in him, as

he has both TS and sensory issues. I think he smells it, but not to the same

degree, or in the same way that we would, he has trouble smelling other things

too, as does his Dad. Or even with me....most people hate the smell of

skunk, but for some reason I cant smell it.

.. In a message dated 12/1/2008 10:54:52 P.M. Central Standard Time,

Jordana120@... writes:

I would bet that he CAN smell it and the smell is appealing to him. I don't

mean this in a mocking way. Odd smells can smell appealing to different

people. My daughter tells me that she loves the smell of her feet. She smells

them when she is home, but I told her that it looks funny and she should make

sure she doesn't do this when other people are around.

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[Guest guest]

Hey

I was wondering that too. Mainly because up until the OCD and tics started

he was A/B honor roll. So if he has ADD, it wasn't interfering enough to make

his grades bad.

I really object to using multiple meds, if we don't have to. Husband and I

talked about it and we've decided to treat OCD first and see if things improve.

If not then we will go from there. I don't know how the Dr will feel about

our decision. Can they force him on ADD meds if we don't want them?

I don't know the testing they did, he's going to send us a copy of

everything. He says he was 98%, Im guessing that's of 100. But dont know the

name on

the test.

Your mother.....ouch....living with her and not understanding, that would

make it really hard. My mother and I are pretty much estranged, only speak about

Micah, and that's about every 2 years.

No, just rubbing butt (clean), no feces, just the smell of it. But he cant

smell it. Dr. believes the Ol Factory senses aren't working properly, maybe due

to the TS, or sensory issues. Cant say I care for this much though, as I can

smell it. yuk.

I'm leaning towards tic on the spitting....it was much better last night,

but the head shake was very bad. it had waned a little. The thing about the

spitting, I asked where he was spitting, he said he didn't know, as he also

closes his eyes, this would make it a complex motor tic. wont miss this one!

Just like I don't miss the screaming tic!

Until this tic is gone, I've asked him to get to the bathroom when he feels

the urge, so this is working so far, we may have to give him a coffee can like

my GGrandpa, he was a tobacco chewer....yuk again.

what's weird is that I had actually noticed this tic, kind of, a couple of

weeks ago, it started when he spit his food into the napkin, and its been with

him ever since. But, he's not spitting out his food anymore.

Never a dull moment

In a message dated 12/1/2008 9:01:34 P.M. Central Standard Time,

@... writes:

Hi , I don't know much about the testing for ADD but do you

think his OCD could have played a part in the scoring? Distraction,

compulsions, thoughts, OCD stuff? Plus he already has difficulty

with reading, writing...? What type of testing did they do?

So sorry your mom sort of brushed it all off. Especially after you

told her how hard it is on Micah and the family, etc. My mom wasn't

understanding about OCD either and we lived with her.

As to rubbing his butt and wiping on walls... -- do you mean he is

smearing actual feces or just rubbing his butt (clean or clothed

butt)?

The spitting could be a tic, as you said. Especially with everything

else going on. But with my 3 sons, they all went through a spitting

stage. But generally spat on the ground, maybe their shirt...well,

maybe anywhere, LOL, but I don't think the wall. Just

that " something in my mouth " thing or maybe too much saliva? I

dunno. Drove me batty at the time(s).

in NC

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[Guest guest]

Thanks BJ,

I try to stay up all the time, maybe the way I was raised. No sad faces

allowed.

Some days I just can't do it, I'm glad I can share here. thank you

In a message dated 12/1/2008 10:28:49 P.M. Central Standard Time,

BJClosner@... writes:

You are not a drag to the list, (((()))You are not a dr

rough patches, and we all need support. That is what the group is

here for. Use it, for support, or to vent. We understand, and we care.

((((more hugs)))) for having had such a crummy week.

BJ

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[Guest guest]

Me to! This email got past me some how.

wow...that sounds so much like Micah. just recently the guys at school were

burying each other in leaves, and they were competing to see if they could

fart the leaves off!

gosh....thanks for the laugh Lk and BJ!!

I needed it.

In a message dated 12/1/2008 10:40:22 P.M. Central Standard Time,

BJClosner@... writes:

Really had to laugh at this, Lk. Boys really are rather obsessed with

that stuff, even the ones without OCD. Many of Josh's friends, over

the years, were as obsessed as he is/was about it. They literally had

farting contests. Seems some of the older boys (men) haven't outgrown

it either. lol

Escapes me, the " why " of it all. <shrug>

BJ

--- In _@ocdandparentocd_

(mailto: ) , " Knutson " <LKnutson@..L>

wrote:

>

> ,

>

> My son just made 12 last week. He was diagnosed 2 months ago. I made

mention of this email and he said, " Don't forget turd. " . I really

thinks it helps him know that he's not alone.

>

> He doesn't like to bathe and brush his teeth and it's difficult to

get him to do it on his own. He also farts a lot and seems to be

rather proud...then again most boys his age would be.

>

>

> Lk

>

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[Guest guest]

Hi Kathy,

Micah's teachers don't see it, they've noticed a few things, but I don't

think they realize what they we're seeing.

when Micah comes home...different kid....touching everything.....he has

recently started touching with the top of his hand. rubbing his hand across the

surface...until it feels right.

he has no fears, everything seems to be " feel right " motivated.

although, he did go through a time, when he was obsessed with karma, but

that may have been his age too. I'm not sure, but he doesn't mention it

anymore.

he only has 1 fear, other than the kids finding out. and that's the dark.

that's the one he cant shake. still sleeps with a lamp on, night light didn't

put out enough light for him to feel safe.

irritate the hell out of you.... I can totally relate!

I'm so grateful for this list....thanks Kathy!!

In a message dated 12/1/2008 6:51:36 P.M. Central Standard Time,

gkathy40@... writes:

Hi ,

My daughter doesn't show symptoms in front of anyone else either, or they

just aren't in tune to it as I am. I just got back from parent teacher

conferences with her 3 teachers, they all talked about how she appears to just

be a

normal kid at school. I just smiled and told them that I was glad things go

so well for her at school.

I also have other people in my life that don't get this either. They always

seem to say things that irritate the hell out of me. lol I have to remember

though that they don't know because they are not going through it. It isn't

visible to them, as a physical sickness would be so they have problems

" getting " it.

Like someone else said.... you have us. This group has been so helpful to

me and it was a relief to know people understood and didn't question what I

was saying!

~~Kathy

**************Life should be easier. So should your homepage. Try the NEW

AOL.com.

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[Guest guest]

that is great!! Micah really needs a teacher like that. he's getting so

discouraged in one of his classes.

He has one really great teacher, that's learning as much as she can about

teaching a child with OCD and TS. and another...that's not.

I'm so grateful he has this teacher that's willing to go the extra mile as

his core class teacher!!

In a message dated 12/1/2008 7:07:33 P.M. Central Standard Time,

BethBV@... writes:

We were so fortunate, though, because Kate's teacher also has OCD! Amazing!

When I went to her with Kate's issues she started watching and, sure enough,

she was able to see when Kate was struggling. She would take her aside and

ask what was up . . . this teacher also knew how to get Kate through a rough

patch the " right " way. One time a couple of teachers came upon Kate crying in

the hallway and started to baby her . . . but her teacher came along and sent

the others packing. She took Kate firmly by the arm and said, " We are walking

back to the classroom and, on the way, you are going to tell me everything

you see. " So they walked back with Kate saying, " door . . . 4th graders . . .

bulletin board . . . water fountain " and, by the time they got back to the

classroom, the OCD had been vanquished again.

I am amazed by this teacher! She was just the absolute right person Kate

needed in her life at that time. This was last year but I still go into that

classroom when Kate has a problem and I want to know, " What would G. do? " She's

so helpful to me! And, best of all, she just adores Kate. She said to me last

year, " I look at that child and I see myself. I know exactly what she's

dealing with. "

**************Life should be easier. So should your homepage. Try the NEW

AOL.com.

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[Guest guest]

Josiah had all of these poopy loving behaviors too! He constantly had the smell

on his fingers a d always touched his bottom from age 2 to 6. He did some

smearing too. THe last time he smeared, we were working on his sensory

processing disorder and I read that it was related, so I used a two pronged

approach.

First, realizing that he could be needing the sensory input, I gave him a can of

shaving cream and told him that if he ever wanted to squish something on the

wall to use the shaving cream on the bathroom tiles. Second, I sort of used his

fear of germs to my advantage and told him that poop has a lot of germs. It

worked and he never did it again.

I am really curious about this peeing outside thing. He did that a lot too! I

came home not too long ago and he was peeing on the front porch, I had a fit,

but he seemed confused as to why I was so upset.

Walk by Faith

Tyler

________________________________

To:

Sent: Monday, December 1, 2008 8:59:10 PM

Subject: Re: Re: back from Dr. appt

Hi ,

Well I'm glad to know Micah's not the only one. It was difficult to mention.

He doesn't have BM on his fingers, just BM odor. He has always been fixated

with BM too.

In 5th grade, they wrote books, and all of them had a poop theme. the

teacher finally told him no more body functions!

how old is your son? this started when Micah was 9, but then went away, and

now is recently back. I was so glad to see it go. I don't want to deal with

this again.

the odd thing is that he cant smell it...it just doesn't seem to register in

his brain, so he smells his fingers over and over after rubbing his butt.

sorry, hope that wasn't too gross.

thanks so much for sharing , I feel better.

In a message dated 12/1/2008 3:09:11 P.M. Central Standard Time,

LKnutsonhhsc (DOT) org writes:

I'm a little relieved to have read your email and son's symptoms of the

wiping. while my son doesn't do it to that extreme, he seems to be fixated on

poop. He always talks about it in a variety of topics from making chocolate

pudding, to calling his brothers dodo but, dodo head, or just saying dodo. He

also would wipe himself w/ toilet paper and then put it in the rubbish can

rather than flushing. For a while, he wouldn't pee in the toilet and would pee

in

a bottle and save it. He was hiding this from us until I came across it under

the bathroom sink. I read up that being obsessed with one's bodily fluids is

one of the top 10 obsessions so I wasn't too concerned. We finally was able

to get him to throw it all away and rewarded him when he did. Then he would

just go outside in the yard to pee. This weekend, he had another

accomplishment and is now peeing in the toilet! Of course we rewarded him for

that as

well.

Best of luck and hang in there!

lisa

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