Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Hi, . Sorry you got disappointing news. I'm also sorry your Mom wasn't more supportive. I've had similar circumstances from family. Even my sister, who has a son with OCD. His isn't as severe as Josh's, so I don't think they truly understand how bad it's been at times for us, since their experiences have been different. Seems so often it is something you truly don't get, unless you live it. We are here, , and we care. I know it's not quite the same, but it has always helped me to know I'm at least not alone in this. I'm not sure about the wiping thing. Haven't heard of that one before, but then again, OCD can sometimes be unique and manifest itself in different ways. So, it's hard to say. Can he put into words what he is feeling when he does it, so you might be able to figure out what thought he is trying to alleviate with the ritual? The spitting thing is more common. Some spit because they think they have something in their mouth, even when they know they don't. OCD is irrational though, so that's to be expected. Some also will think that somehow they got poison in their mouth, so spit. Has he commented on why he feels the need to spit? Maybe if he is up for it, you could fashion some type of ERP for it. Like have him wait a certain amount of time (let him choose where to start, time wise) before spitting, then increase the time limit, over time, to hopefully make it stop altogether. When does he start his therapy again? Sorry, can't remember. I know it gets discouraging. <sigh> But, it can get better. Don't lose hope. Hugs, BJ > > Hi everyone, > We're back from Dr. appt. We knew Micah had Tourette's, and severe OCD, well > it turns out he also has ADD. The test is done on a scale I think, however > its scored, Micah's score was 98...I believe it only goes to 100. > > No wonder the kid cant read and write anymore...all this is happening at > once. > > Another thing, I'm a little down....have been for days. I finally told my > mother about what Micah's going through, with the TS, severe OCD. I emailed > her, I spent hours, writing, trying to put into words how he's feeling, we're > feeling....how hard this is on all of us...etc... > > her response: thanks for the info, we'll pray for his recovery, what's he > want for Christmas. > > that's it, no questions, no I'm sorry Micah is going through this, nothing, > completely void of any compassion or feeling.....ugggg!! > > Micah has developed 2 new...I think tics....maybe OCD....I don't know. But > they are making me crazy. I don't know how to handle them. I'm sorry, I know > this is gross....he is rubbing his butt, then wiping it on walls, floor, > himself, anywhere....he has also started spitting...not at anyone, not when he's > upset, just out of the blue spits, on the floor, on himself, on the bed, the > wall....anywhere! The spitting I think is a tic, the other...I don't know what > to think. > > > **************Life should be easier. So should your homepage. Try the NEW > AOL.com. > (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Hi , I don't know much about the testing for ADD but do you think his OCD could have played a part in the scoring? Distraction, compulsions, thoughts, OCD stuff? Plus he already has difficulty with reading, writing...? What type of testing did they do? So sorry your mom sort of brushed it all off. Especially after you told her how hard it is on Micah and the family, etc. My mom wasn't understanding about OCD either and we lived with her. As to rubbing his butt and wiping on walls... -- do you mean he is smearing actual feces or just rubbing his butt (clean or clothed butt)? The spitting could be a tic, as you said. Especially with everything else going on. But with my 3 sons, they all went through a spitting stage. But generally spat on the ground, maybe their shirt...well, maybe anywhere, LOL, but I don't think the wall. Just that " something in my mouth " thing or maybe too much saliva? I dunno. Drove me batty at the time(s). > > Hi everyone, > We're back from Dr. appt. We knew Micah had Tourette's, and severe OCD, well > it turns out he also has ADD. The test is done on a scale I think, however > its scored, Micah's score was 98...I believe it only goes to 100. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 Hi , that's great you got your son to willingly throw out the bottles. Wanted to say on this topic that I've also read where this can be part of OCD. But then for some people there is another possibility too (sigh, why can't things be simple?), it can be part of " hoarding " ; some people who hoard have done this with urine and even feces. > > Yep, we had the gallon juice container (unfortunately it was apple juice containers). He would joke about anyone wanting apple juice. My son never did this before he was diagnosed with OCD so I really don't think it's a laziness thing. Also, it took more time for him to pee in the container than it would to just pee in the toilet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2008 Report Share Posted December 1, 2008 You are not a drag to the list, (((()))). We all go through rough patches, and we all need support. That is what the group is here for. Use it, for support, or to vent. We understand, and we care. ((((more hugs)))) for having had such a crummy week. BJ > > Hey BJ, > sorry to be a drag to the list....its been so bad lately, I'm getting > depressed. > You would think your sister would understand her son. I get a lot of Monk > jokes when I try to tell people in the family. You know, I used to like that > show, not so much now, just cant seem to laugh at it anymore. > > my mother tends to be icy anyway...I don't know why I expected anything > different. > > thanks for listening BJ, things just seem to be spinning out of control. > > well I guess it could go either way, in doing some reading, there's also a > smelling tic. He cant smell the odor, for some reason it's not registering in > his brain. but it smells awful, there's no BM, but you can smell it, though > you see nothing. I'm exhausted from washing walls, bedding, over and over. I > don't know what to do about the carpet, I cant clean it everyday. thankfully > you cant see it, it just makes his room smell. > > he doesn't know why he does it, all he said is that he cant smell it. I > found it the hard way, I went to hug him, well he had done it, and evidentially > rubbed his neck......I thought I would puke! the smell was overwhelming. > > we found a therapist.... first appt is Dec 8, but that is for us, then Micah > after that. still working on the psychiatrist for meds....4 month wait! will > try neurologist, to see if he's willing to do meds. > > thanks so much for listening, its been a lousy > week, > > > > > > > In a message dated 12/1/2008 2:58:27 P.M. Central Standard Time, > BJClosner@... writes: > > Hi, . Sorry you got disappointing news. > > I'm also sorry your Mom wasn't more supportive. I've had similar > circumstances from family. Even my sister, who has a son with OCD. > His isn't as severe as Josh's, so I don't think they truly understand > how bad it's been at times for us, since their experiences have been > different. Seems so often it is something you truly don't get, unless > you live it. > > We are here, , and we care. I know it's not quite the same, but > it has always helped me to know I'm at least not alone in this. > > I'm not sure about the wiping thing. Haven't heard of that one > before, but then again, OCD can sometimes be unique and manifest > itself in different ways. So, it's hard to say. Can he put into > words what he is feeling when he does it, so you might be able to > figure out what thought he is trying to alleviate with the ritual? > > The spitting thing is more common. Some spit because they think they > have something in their mouth, even when they know they don't. OCD is > irrational though, so that's to be expected. Some also will think > that somehow they got poison in their mouth, so spit. Has he > commented on why he feels the need to spit? > > Maybe if he is up for it, you could fashion some type of ERP for it. > Like have him wait a certain amount of time (let him choose where to > start, time wise) before spitting, then increase the time limit, over > time, to hopefully make it stop altogether. > > When does he start his therapy again? Sorry, can't remember. > > I know it gets discouraging. <sigh> But, it can get better. Don't > lose hope. > > > **************Life should be easier. So should your homepage. Try the NEW > AOL.com. > (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 I used to do that with Josh, , when he was really bad. I would put my best, positive face on, so as not to freak him out. I didn't want him to think I was scared, or doubtful. I knew that would really do a head job on him. He had to believe that I believed it was going to get better. And actually, I did believe that,. . But, it was just hard to endure when things were at their worst. Still, a person can only do that for so long. I had my moments where I would have my nervous breakdowns, usually daily, in the shower. The only place I could get completely away, and let some of it out. Then I would pull myself back together, put my positive, " everything's going to be okay " face back on, and keep going. So, I guess this is my clumsy way of saying I understand. And you don't have to pretend here. You can have your sad face here, because people understand, they can relate, and they care. I'm glad you are here and can share here too. I can only imagine all the stress is contributing to your migraines. ( Hugs, BJ > > Thanks BJ, > I try to stay up all the time, maybe the way I was raised. No sad faces > allowed. > > Some days I just can't do it, I'm glad I can share here. thank you > > > > In a message dated 12/1/2008 10:28:49 P.M. Central Standard Time, > BJClosner@... writes: > > You are not a drag to the list, (((()))You are not a dr > rough patches, and we all need support. That is what the group is > here for. Use it, for support, or to vent. We understand, and we care. > > ((((more hugs)))) for having had such a crummy week. > > BJ > > > **************Life should be easier. So should your homepage. Try the NEW > AOL.com. > (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 A word of encouragement, . When Josh started his CBT/ERP, the stuff that needed to " feel just right " , was the easiest for him to overcome. The stuff with the anxiety attached was a bit harder. So, if Micah has a lot that needs to " feel just right " , it might go quick, like it did for us. ) Here's hoping. . . BJ > > Hi Kathy, > Micah's teachers don't see it, they've noticed a few things, but I don't > think they realize what they we're seeing. > > when Micah comes home...different kid....touching everything.....he has > recently started touching with the top of his hand. rubbing his hand across the > surface...until it feels right. > > he has no fears, everything seems to be " feel right " motivated. > > although, he did go through a time, when he was obsessed with karma, but > that may have been his age too. I'm not sure, but he doesn't mention it anymore. > > he only has 1 fear, other than the kids finding out. and that's the dark. > that's the one he cant shake. still sleeps with a lamp on, night light didn't > put out enough light for him to feel safe. > > irritate the hell out of you.... I can totally relate! > > I'm so grateful for this list....thanks Kathy!! > > > > In a message dated 12/1/2008 6:51:36 P.M. Central Standard Time, > gkathy40@... writes: > > Hi , > > My daughter doesn't show symptoms in front of anyone else either, or they > just aren't in tune to it as I am. I just got back from parent teacher > conferences with her 3 teachers, they all talked about how she appears to just be a > normal kid at school. I just smiled and told them that I was glad things go > so well for her at school. > > I also have other people in my life that don't get this either. They always > seem to say things that irritate the hell out of me. lol I have to remember > though that they don't know because they are not going through it. It isn't > visible to them, as a physical sickness would be so they have problems > " getting " it. > > Like someone else said.... you have us. This group has been so helpful to > me and it was a relief to know people understood and didn't question what I > was saying! > > ~~Kathy > > > **************Life should be easier. So should your homepage. Try the NEW > AOL.com. > (http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002) > > > Quote Link to comment Share on other sites More sharing options...
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