PANDAS - anyone have a subsequent flair up triggered by a cold?

[Guest guest]

Well, I was enjoying " lurking " here the past few weeks while my son

enjoyed some normal time. I'd about convinced myself that what we

experienced in Oct/Nov was PANDAS. (2 strep infections this fall, two

episodes of tics and OCD behavior, followed by normal, really

pleasant times).

Last Thursday & Fri, my son stayed home with a cold. Not a biggie,

just kept him home as a precaution. Over the weekend, the cold

started to get better and now he's just a little stuffy. But last

night he twitched a little bit. He brought it to our attention, but

we thought maybe he was just faking it, after enjoying 4 days home.

His throat wasn't sore or red.

This evening, he started twitching again and there was a slight,

recognizable change in his behavior. Like the way the sky looks

before a thunderstorm - you see it coming. Saw some minor OCD

behaviors reappear too. At bedtime, he was a wreck, begging for

someone to sleep next to him for the night. Very afraid of being

alone.

I think I've heard some of you say that subsequent flair ups didn't

have to be triggered by strep. That the stress of other illness could

be a trigger once PANDAS had been " turned on " . But as cold? Or is it

worth the $60 to for a rapid strep test? Also, should I be bracing

myself? Does each episode get worse? Oh, I'm so not ready for this...

Thanks for any insight...

[Guest guest]

Hi, isn't PANDAS but his OCD would worsen with a fever and

occasionally without a fever.

>

> Well, I was enjoying " lurking " here the past few weeks while my son

> enjoyed some normal time. I'd about convinced myself that what we

> experienced in Oct/Nov was PANDAS. (2 strep infections this fall, two

> episodes of tics and OCD behavior, followed by normal, really

[Guest guest]

Glad you got an antibiotic. It really does seem like PANDAS if his

OCD calms down so much inbetween strep/illness. I guess doctor was

talking about dopamine since it relates to tics. If you try the

Risperadol too, let us know how that goes. Well, the antibiotics

too, be interesting to see those results.

When got put on an antibiotic once, I was eager to see if his

OCD calmed down (acted up worse when sick) but no decrease.

>

> Hi all,

> Just got back from the CVS minute clinic (we're unhappy with our

> pediatrician and have an appt with a new one next week, so we're

> between doctors). The rapid strep test was negative but his glands

are

> swollen. The doctor was unfamiliar with PANDAS but was very

sympathetic

> when I explained what we've been through the past 4 months.

>

>