Re: OCD and Autism Connected?-diet success? Jordana

December 17, 2008

Hi Jordana,

That's great that the anafranil works so well for you. I am

wondering, and on behalf of my son too, thank you for your post on

that, why if you have done all this work you will still become so

disabled by the OCD? I understand that OCD is a chronic condition but

understood medication to be an assist, not a cure, and that the

CBT/ERP was what is really the answer.

I know it is individual for each person and I personally know people

who have been labelled " treatment resistent " because nothing has

worked for them, so the degree of severity varies of course, and as

you say if you did not have the medication you would not function. So

if someone has not found a medication that works and they are severe

I guess they stay stuck in the nonfunctioning category until they

come upon something medical/alternative or otherwise.

Having spoken directly to Dr Jeneke and several other doctors at the

oc conference, I came away with the understanding that OCD can

be " beaten " , or dialed right back if this work is done and one stays

vigilant. Is it that some thoughts/OCD things are just too hard to

fight and don't stop, or that you let your guard down and something

creeps up. I guess I'm just wondering your experience with this.

Thanks.

Barb

>

> If there was a " natural " remedy that could help my OCD, I'd go off

the Anafranil in a second.

> I just can't afford to become that disabled again from the OCD and

depression, especially while I'm raising

>

> two kids on my own, so I have to take the risks that might be

associated with long term use of this med.

>

> By the way, I can't begin to tell you just how desperately ill I

get when I am off it.

>

> Re: OCD and Autism Connected?-diet

success?

>

> OK, have to jump in with my thoughts.

>

> This topic started out about possible OCD, autism connection. Well -

>

> autism does include obsessive behaviors and ritual type. Now OCD

>

> falls under anxiety disorders (last I read; also read somewhere

about

>

> getting that changed). The behaviors that occur in autism aren't

>

> anxiety related (unless you try to stop them), they are more a

>

> calming behavior. Oh, you can work on the autism type if parent

>

> feels it's something that needs changed, probably similar to CBT,

but

>

> also could vary with child (based on functioning level).

>

> Still to me, it's very interesting that=2

>

> 0two separate " disorders " can

>

> have such similar behaviors.

>

> And lots of the diagnoses are all neurological.

>

> Serotonin isn't the only brain chemical involved with OCD. It's

just

>

> the neurotransmitter that the medications focus on since it's

obvious

>

> it helps the OCD.

>

> I find it hard to believe that everyone with OCD would have the

>

> same...cause? chemical imbalance? reason? for OCD. Plus with the

>

> different behaviors OCD causes (from checking things to repeating

>

> things to confessing or just bad thoughts) it just doesn't seem, to

>

> me, there would be one " trigger " for it all (thus the different

>

> neurotransmitters) .

>

> OK, LOL, so I'm getting to the diets, even supplements. What works

>

> for one person may work for them because that is what their body

>

> needs. Perhaps it's balancing out those " brain chemicals " ; or maybe

>

> the allergic type reaction to some food/ingredient or that the body

>

> can't handle processing the food/ingredient and is messing up the

>

> body some way, by withdrawing that food/ingred the OC behavior

>

> stops. Hey, my sons seem fine with foods with red or yellow dye,

>

> other kids it causes problem behavior.

>

> I've tried lots of supplements/ alternatives with . And one

>

> SSRI. The SSRI worked well. The alternative (inositol powder)

>

> worked well at one time, didn't help a bit years later when re-

tried

>

> it. But inositol has helped others, and some it hasn't.

>

> Just sayi

>

> ng that the

> re is not one solution for all, there is no *one*

>

> cause/trigger for OCD in everyone, and I like to read what others

are

>

> theorizing about and also trying, and especially the successes. And

>

> it's good to ask questions and " where did you read that " but

>

> sometimes it's just sort of " parent theory. " (like my reading about

>

> glucose and trying to tie it to OC behavior at one time)

>

December 17, 2008

You know, Barb, in all my reading, it seems some did imply it could go

away, others said it was a lifelong chronic disorder. I'm very

curious to see what your reply from the docs is.

In my own " trying to " understand, while reading, I reasoned that it

could be because some are more mild than others, it seems, and maybe

the mild sufferers are the ones who have the potential to move into

that category where they no longer meet the criteria to be diagnosed

as actual OCD anymore. I could be way off here, just saying that was

the conclusion I came to while reading and trying to sort it out in my

own head.

It would be nice if it could go away, wouldn't it. Watching Josh over

the years, and seeing my own husband and his family, I have to say, it

hasn't for them. Yet, none of them have tried therapy, or meds, other

than Josh (meds and therapy) and his Dad, (meds only). As I watch it

morph into new things with Josh, I wonder if he will ever be one that

it is not a struggle for.

On the other hand, I have a nephew (one side of the family) and niece

(on the other side of the family) who seem to not suffer at all

anymore. But, you never know what is really going on inside someone's

head, unless they tell you. So. . . <shrug>, who knows.

Here's to hoping. With no hope, you often have depression, so I'm

going to continue to hope. Hoping for continued improvement or even

continued stability, hoping it doesn't get worse again, and hoping

that someday there may even be a cure.

Hugs to you, Barb.

BJ

> >

> > If there was a " natural " remedy that could help my OCD, I'd go off

> the Anafranil in a second.

> > I just can't afford to become that disabled again from the OCD and

> depression, especially while I'm raising

> >

> > two kids on my own, so I have to take the risks that might be

> associated with long term use of this med.

> >

> > By the way, I can't begin to tell you just how desperately ill I

> get when I am off it.

> >

> > Re: OCD and Autism Connected?-diet

> success?

> >

> > OK, have to jump in with my thoughts.

> >

> > This topic started out about possible OCD, autism connection. Well -

>

> >

> > autism does include obsessive behaviors and ritual type. Now OCD

> >

> > falls under anxiety disorders (last I read; also read somewhere

> about

> >

> > getting that changed). The behaviors that occur in autism aren't

> >

> > anxiety related (unless you try to stop them), they are more a

> >

> > calming behavior. Oh, you can work on the autism type if parent

> >

> > feels it's something that needs changed, probably similar to CBT,

> but

> >

> > also could vary with child (based on functioning level).

> >

> > Still to me, it's very interesting that=2

> >

> > 0two separate " disorders " can

> >

> > have such similar behaviors.

> >

> > And lots of the diagnoses are all neurological.

> >

> > Serotonin isn't the only brain chemical involved with OCD. It's

> just

> >

> > the neurotransmitter that the medications focus on since it's

> obvious

> >

> > it helps the OCD.

> >

> > I find it hard to believe that everyone with OCD would have the

> >

> > same...cause? chemical imbalance? reason? for OCD. Plus with the

> >

> > different behaviors OCD causes (from checking things to repeating

> >

> > things to confessing or just bad thoughts) it just doesn't seem, to

> >

> > me, there would be one " trigger " for it all (thus the different

> >

> > neurotransmitters) .

> >

> > OK, LOL, so I'm getting to the diets, even supplements. What works

> >

> > for one person may work for them because that is what their body

> >

> > needs. Perhaps it's balancing out those " brain chemicals " ; or maybe

> >

> > the allergic type reaction to some food/ingredient or that the body

> >

> > can't handle processing the food/ingredient and is messing up the

> >

> > body some way, by withdrawing that food/ingred the OC behavior

> >

> > stops. Hey, my sons seem fine with foods with red or yellow dye,

> >

> > other kids it causes problem behavior.

> >

> > I've tried lots of supplements/ alternatives with . And one

> >

> > SSRI. The SSRI worked well. The alternative (inositol powder)

> >

> > worked well at one time, didn't help a bit years later when re-

> tried

> >

> > it. But inositol has helped others, and some it hasn't.

> >

> > Just sayi

> >

> > ng that the

> > re is not one solution for all, there is no *one*

> >

> > cause/trigger for OCD in everyone, and I like to read what others

> are

> >

> > theorizing about and also trying, and especially the successes. And

> >

> > it's good to ask questions and " where did you read that " but

> >

> > sometimes it's just sort of " parent theory. " (like my reading about

> >

> > glucose and trying to tie it to OC behavior at one time)

> >

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