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Hi all,

You all have been here for me through so much and I wanted to share

some positive news.

First off, DD is doing very well this year. She had an initial flare

up at the beginning of the year - and has been much better after

going back on the Prozac. She most likely has ADHD as well - we

tried Focalin for this last weekend - it seemed to increase her

anxiety - so, not sure how we will wind up treating the ADHD. Her

grades are good - but homework is a continuous struggle.

Anyway, we had a meeting with the principal as our younger DD is

starting kindergarten next year and we were inquiring about some

programs (she's been in a Montessori school and is doing some

advanced work - so, we're trying to make sure she remains challenged

next year). Anyway, we started talking about our older DD and OCD.

I mentioned how difficult it's been to educate the teachers each year

and all the " stigmas " (school counselor's word to me) and stereotypes

about OCD. I mentioned that my DH and I would be happy to come in on

an " early release day " (kids are released early and the teachers

spend the afternoons in educational seminars) to do a power

point/educational seminar for OCD for the teachers. The principal

was super excited about this and referred me to the teacher who

schedules these conferences. She is also very excited and feels that

this is a much needed topic of education.

We most likely won't speak until Feb or March. I would welcome any

ideas that you all have as I begin to put my power point together. I

remember that there is an excellent handout in the files section on

the " role of school with OCD " . One thing I've heard over and over

again through the years is " wow, we didn't know that fear of throwing

up is OCD - I always thought it's washing your hands over and over " .

While we all know that the germ contamination/hand washing is one

fear with OCD - there are so many. In my presentation - I wanted to

try to present some different case scenarios of real OCD fears - so,

if any of you are willing to share your stories with me (of course,

I'd never use names or any identifying info) that you'd be willing

for me to share - please let me know.

I'm so excited about this opportunity and feel grateful at the chance

to further educate the teachers about OCD.

Happy Holidays to all,

Anne

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,

What an awesome opportunity! There are two points I would love for all

teachers to know. First, the point that Vicki made about OCD and her

own depression - please separate the disorder from the person. When we

figured out how to do this, the change was HUGE. It's like the child is

trapped inside, hidden behind the behaviors (thus we refer to flair ups

as Blair Syndrome from the Exorcist : ) ). Our son finally

stopped feeling unfairly " condemned " . We sruggled with how to

discipline with a disorder and stumbled onto naming behaviors/emotions

and now talk to " Edgar the Angry " or " Warren the Worrier " when our son

acts up. But like others have mentioned, we don't let our son use this

as an excuse. Edgar still has to go into time out or lose privilages

for misbehavior, and thus, my son has to suffer the consequences too.

Thus it's in his best interest to learn how to control these " other

guys " and he's ultimately responsible for his actions, disorder or not.

The second point is to please let the parents be part of the school

team. Our school is generally good making accomodations for kids with

special needs, they tend to have the attitude of " we're trained

professionals, let us handle it " instead of " please share with us what

works for your child. " It's so alientating and makes it hard to " turn

over your child " for 8 hours a day. Then we're left to handle the

stress and issues he's buried while at school. It would be so much

better for everyone if we were treated as peers and teammates instead

of outsiders.

Sorry for the long post. It's just a speech I wish I could give to our

own school. When you're done with your powerpoint, maybe you could

share it with the rest of us. You go girl!

(oh - by the way, there's a book called " Teaching the Tiger " that gives

specific ideas for teaching kids with ADHD, OCD and TS - it's $35, but

you may want to recommend it for the teachers)

=> if any of you are willing to share your stories with me (of course,

> I'd never use names or any identifying info) that you'd be willing

> for me to share - please let me know.

>

> I'm so excited about this opportunity and feel grateful at the chance

> to further educate the teachers about OCD.

>

> Happy Holidays to all,

> Anne

>

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I did a powerpoint presentation for my son's middle school staff last fall

before he entered the school (Just before school started). About 150 staff

showed up. It was a one hr presentation about how they might recognise

undiagnosed OCD or who they might want to refer, how it looks at home, how it

may look at school, learning problems, social problems, treatment modalities,

side effects , etc. It was very general about oCD. Then I gave a seperate hr

lecture to my sons team, with specifics for just him. I am happy to share with

anyone. I am a physician but made it clear to the staff that I qualified to

give this lecture not because of my MD, but because of my MOM status of a child

with OCD. i am happy to share my presentation with anyone- use what you like,

throw away the rest. if anyone wants it, just let me know and I will email it

to you. I am not sure how to post it here on the website.

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Hi , I would love to receive a copy, thank you.

floatmusic2@...

Marcia

>

> Subject: Re: Presentation for school

> To: " " < >

> Date: Thursday, December 11, 2008, 8:10 AM

> I did a powerpoint presentation for my son's middle

> school staff last fall before he entered the school (Just

> before school started). About 150 staff showed up. It was

> a one hr presentation about how they might recognise

> undiagnosed OCD or who they might want to refer, how it

> looks at home, how it may look at school, learning problems,

> social problems, treatment modalities, side effects , etc.

> It was very general about oCD. Then I gave a seperate hr

> lecture to my sons team, with specifics for just him. I am

> happy to share with anyone. I am a physician but made it

> clear to the staff that I qualified to give this lecture

> not because of my MD, but because of my MOM status of a

> child with OCD. i am happy to share my presentation with

> anyone- use what you like, throw away the rest. if anyone

> wants it, just let me know and I will email it to you. I am

> not sure how to post it here on the website.

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I would love to get a copy of your presentation, ! My daughter does

not qualify for services at school but I've chatted with the school

psychologist about OCD and she's got a couple of kids that she believes

may have it. I'd really like to see what you said about it and, possibly,

pass it on to the school psychologist! Thanks!

You can email me directly at: BethBV@...

Beth

> I did a powerpoint presentation for my son's middle school staff last fall

> before he entered the school (Just before school started). About 150

> staff showed up. It was a one hr presentation about how they might

> recognise undiagnosed OCD or who they might want to refer, how it looks at

> home, how it may look at school, learning problems, social problems,

> treatment modalities, side effects , etc. It was very general about oCD.

> Then I gave a seperate hr lecture to my sons team, with specifics for just

> him. I am happy to share with anyone. I am a physician but made it clear

> to the staff that I qualified to give this lecture not because of my MD,

> but because of my MOM status of a child with OCD. i am happy to share my

> presentation with anyone- use what you like, throw away the rest. if

> anyone wants it, just let me know and I will email it to you. I am not

> sure how to post it here on the website.

>

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Hi there, I would love to take a look at what you did. 

 

Thanks :)

~~Kathy

 

gkathy40@...

http://www.myspace.com/clearingachannel

yahoo messenger id  gkathy40@...

Courage is not living without fear.

Courage is being scared to death and doing the right thing anyway.

-Chae

> From: Trabulsy, <mario.trabulsy@ vtmednet. org>

> Subject: Re: Presentation for school

> To: " @ yahoogroups. com " <@ yahoogroups. com>

> Date: Thursday, December 11, 2008, 8:10 AM

> I did a powerpoint presentation for my son's middle

> school staff last fall before he entered the school (Just

> before school started). About 150 staff showed up. It was

> a one hr presentation about how they might recognise

> undiagnosed OCD or who they might want to refer, how it

> looks at home, how it may look at school, learning problems,

> social problems, treatment modalities, side effects , etc.

> It was very general about oCD. Then I gave a seperate hr

> lecture to my sons team, with specifics for just him. I am

> happy to share with anyone. I am a physician but made it

> clear to the staff that I qualified to give this lecture

> not because of my MD, but because of my MOM status of a

> child with OCD. i am happy to share my presentation with

> anyone- use what you like, throw away the rest. if anyone

> wants it, just let me know and I will email it to you. I am

> not sure how to post it here on the website.

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Hello, I'd love to see this. I'm at pegster66@...

Thanks!

Peggy

> From: Trabulsy, <mario.trabulsy@ vtmednet. org>

> Subject: Re: Presentation for school

> To: " @ yahoogroups. com " <@ yahoogroups. com>

> Date: Thursday, December 11, 2008, 8:10 AM

> I did a powerpoint presentation for my son's middle

> school staff last fall before he entered the school (Just

> before school started). About 150 staff showed up. It was

> a one hr presentation about how they might recognise

> undiagnosed OCD or who they might want to refer, how it

> looks at home, how it may look at school, learning problems,

> social problems, treatment modalities, side effects , etc.

> It was very general about oCD. Then I gave a seperate hr

> lecture to my sons team, with specifics for just him. I am

> happy to share with anyone. I am a physician but made it

> clear to the staff that I qualified to give this lecture

> not because of my MD, but because of my MOM status of a

> child with OCD. i am happy to share my presentation with

> anyone- use what you like, throw away the rest. if anyone

> wants it, just let me know and I will email it to you. I am

> not sure how to post it here on the website.

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Hi, I would like to have a copy of this, too, if you wouldn't mind. You can

email it to deborahcavender@...

Thanks!

Debbie Cavender

http://twochinadolls.blogspot.com

____________________________________________________________

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Hi all,

Thank you for all of your great replies and information. I have been

printing them off to save for when I put together my power point. I

will definitely keep you all posted.

Thanks again,

Anne

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I have attached my file and sent it to those of you who wanted copies directly (

I think I got you all- maybe I better check (2 million times - Ha, Ha :) )If I

missed you and you want it I sent it to Louis Harkins who will upload it to the

files and you can get it from there or email me. The last portion relates

directly to my son Quinn and is headed Quinn. I left it in because it is an

example of things I thought would help to ask for. You can delete the whole

section or just change the name or add or delete things that pertain to your

kid. The first part is about OCD in general- again feel free to add or take

away anything you wish. Hope it helps someone. My shcool has been FABULOUS in

response. Couldn't ask for more ( he does have a 504 and has been relatively

well since starting there but still. I know they will work with me and we all

have at least baseline knowlege

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