New here

November 27, 2002

I want to thank you all for your warm welcome. I have sent previous email

about unsubscribing because I was getting so many emails that I could not

handle them. But I have found out that I did not need to get the emails and

have changed my account so that I don't get them any more and I can go right

to the site to read the messages.

My husband is on Seroquil and Excelon. I got a call from his doctor today

and we have found that my husbands hallucinations really started about the

time he started taking the Seroquil and we are going to take him off of it

for a while and see if it makes any difference. He also sees relatives that

are no longer with us. His dad has been dead for 20 years and now he is

living in our barn. So my husband is constantly going out and leaving all

of the lights on and our power bills are sky high because of it. I have a

hard time to get him to turn them off because he says that dad is out there.

He actually hallucinates about 90% of the time and is in his own little

world. Always seeing things and people who are not there. He is always

talking to them but he is not afraid at all. I think he likes the

companionship of having them around. He is usually in a good mood but he

does have his bad times but that is only when I try to stop him from doing

things that he should not be doing.

So I take one day at a time and pray that I can get thru another day and

that is how I have been dealing with this terrible disease. I live with my

husband who is now a stranger to me. We used to do everything together and

now I can not even get him to go anywhere. He talks more to his invisible

friends and the cat more than he talks to me and there is absolutely not

emotional feelings from him towards me at all. This is what I miss. We

were always holding hands and sitting together and were very close. Now

there is nothing. I don't think he remembers.

Enough for now, again I want to thank everyone for your help and prayers. I

am not going to post to each of you so I hope that you will read this post

and not think that I am ignoring anyone.

Have a Happy Thanksgiving and know that my prayers are also with you all here.

November 27, 2002

Gail,

My mom also started her hallucinations about the time she started Seroquel.

She subscquently started taking Risperdone instead which helped. Now after

about 8 months and hip replacement surgery the doctor has had her taking

Seroquel twice a day 25mg for about a month.Not quite sure they changed it

without notification and I haven't seen any ill effects,so we will see. No

hallucinations either this time around and they say Seroquel is safer now.

So far so good. Write anytime, glad I was able to provide you with the other

info yesterday and Cheryl says she was glad to help also. Have a happy

thanksgiving and holidays. Shirley

>

>Reply-To: LBDcaregivers

>To: <LBDcaregivers >

>Subject: Re: Re: New here

>Date: Wed, 27 Nov 2002 18:43:34 -0500 (Eastern Standard Time)

>

>I want to thank you all for your warm welcome. I have sent previous email

>about unsubscribing because I was getting so many emails that I could not

>handle them. But I have found out that I did not need to get the emails

>and

>have changed my account so that I don't get them any more and I can go

>right

>to the site to read the messages.

>

>My husband is on Seroquil and Excelon. I got a call from his doctor today

>and we have found that my husbands hallucinations really started about the

>time he started taking the Seroquil and we are going to take him off of it

>for a while and see if it makes any difference. He also sees relatives

>that

>are no longer with us. His dad has been dead for 20 years and now he is

>living in our barn. So my husband is constantly going out and leaving all

>of the lights on and our power bills are sky high because of it. I have a

>hard time to get him to turn them off because he says that dad is out

>there.

> He actually hallucinates about 90% of the time and is in his own little

>world. Always seeing things and people who are not there. He is always

>talking to them but he is not afraid at all. I think he likes the

>companionship of having them around. He is usually in a good mood but he

>does have his bad times but that is only when I try to stop him from doing

>things that he should not be doing.

>

>So I take one day at a time and pray that I can get thru another day and

>that is how I have been dealing with this terrible disease. I live with

>my

>husband who is now a stranger to me. We used to do everything together and

>now I can not even get him to go anywhere. He talks more to his invisible

>friends and the cat more than he talks to me and there is absolutely not

>emotional feelings from him towards me at all. This is what I miss. We

>were always holding hands and sitting together and were very close. Now

>there is nothing. I don't think he remembers.

>

>Enough for now, again I want to thank everyone for your help and prayers.

>I

>am not going to post to each of you so I hope that you will read this post

>and not think that I am ignoring anyone.

>

>Have a Happy Thanksgiving and know that my prayers are also with you all

>here.

>

November 27, 2002

Gail

Sounds like you have your hands full. The emotions that go along with

LBD are beyond explanations. The disease fluctuates so often that it

seems like a roller coaster ride that no one paid for.

My dad had taken Exelon as well. We had very good results with it. He

seemed to come out of a shell. He even talked about things that

happened many months before. Like he had been inside all that time just

couldn't talk. Please post your feelings as often as possible. One

fact remains in this group...many people can relate to what you are

going through, and no one judges anyone for their feelings or actions.

Sending many hugs and prayers your way!! :-))

Sandie

Des Moines, IA

November 27, 2002

Gail

Sounds like you have your hands full. The emotions that go along with

LBD are beyond explanations. The disease fluctuates so often that it

seems like a roller coaster ride that no one paid for.

My dad had taken Exelon as well. We had very good results with it. He

seemed to come out of a shell. He even talked about things that

happened many months before. Like he had been inside all that time just

couldn't talk. Please post your feelings as often as possible. One

fact remains in this group...many people can relate to what you are

going through, and no one judges anyone for their feelings or actions.

Sending many hugs and prayers your way!! :-))

Sandie

Des Moines, IA

September 9, 2003

Miko the children's of me is to be of this:Aimee is to be of 15 and undx but

is very much a mild Aspergers kid.Isaiah is to be of dx as apsergers and is

of age 14, Mikey is to be of age 12 and much rigid in hims Aspergers ways

with aggressions, My missy is to be with Aspergers and much LD issues. the

mother of me is to be to show much Autism like things in her too as well as

the father of me to show Aspergers syndrome. He to travel all over digging

up rocks and to be to have hims basement full of them all lined up much neat

and labeled and he to be to make jewelry out of the cut and polished pieces.

My mother to never have job , never to learn to drive and such. There are

much people with ASD who to start out more impaired in the beginning who to

over time and development make many gains and can become some what

functional in life as you to share you life to be, so has of mine been. I to

escaped special educations due to family and many , many moves. I to know of

I to be to attended 13 schools before age 16, Sped laws to not be enforced

in my areas at the time either so since could do the work at times they to

know I to be of able to do the work but were of very confused by my ways as

maybe then they to not be exposed to one such as me in the schools at the

times. No knowing of the different forms of autism back then so they to

assumed I was of major brat with many home issues, but not for sure.

September 9, 2003

Hi Juli =)

I remember you from I think was it AutAdvo? I know we are on a list

together...

I'm glad you are here. We need more autistic influence, and I love

hearing about how you and tte are together.

Kassiane

< Re: new here

Hello I am Juli mother to Nicollette, yes, we both in spectrum, yes,

Nicollette low functioning, yes. Myself higher functioning, yes. So we

are both girls

I think this so with autism, yes. myself woman person, yes, but was a

girl

with autism once, woman now, yes, and Nicollette is now 6 year old girl

with

autism, now.

hope to meet peoples well here, yes.

Juli ASD mother to Nicollette Rett Syndrome w/autism

January 27, 2004

I've just finished a training seminar on the SCENAR given by Jerry Tennant, MD,

the ophthalmologist from Dallas who is the US distributor. His training was

excellent. He's a very humble guy who got into SCENAR when medicine had no

answers for his own illnesses. He will not sell the devices without training,

but he will sell them to private citizens who take the training and want to use

them for themselves and their families. Essentially, he " prescribes " them for

people.

I believe he's entirely correct in requiring training (it's only an evening,

introductory lecture, plus 1.5-2 days) as I doubt I would have readily picked up

how to use it without the training. His method, which he learned from Dr.

Frost who is introducing it to the English speaking world, is a streamlined

version of the Russian method. He teaches several " short cuts " plus some of

his own discoveries, and this alone is worth taking his seminar.

I believe SCENAR is an exciting development. Dr. Tennant's site is:

www.sEnergyMedicineGroup.com. Dr. Frost's site is: www.scenarworld.com

Aloha,

new here

>

> Hello everyone,

> My name is Colleen and I am from Indiana about 55 miles west

> of Indy. I have just been introduced to the rife machine and I am

> trying to learn all I can.

> after 3 years of fertility treatment we were blessed with

> quadruplets that will be 2 in Feb. Trouble is that ever since I have

> been suffering with hormonal problems and migraines. I have

> exhausted most of the medical help. I know of someone locally that

> has a rife and my neighbor and I are thinking about investing in and

> sharing time with by buying one to share. Just wanted to find out as

> much as I could. Thanks, Colleen

>

[***** LONG UNNECESSARY REPEATING FOOTERS REMOVED ****]

January 29, 2004

Yeh, about 1 minute is all it takes. The more money you spend the

better the product.

--

Best regards,

Bil Green

2001 TV VCR

Mammoth Lakes, CA 93546

mailto:tv.vcrrepair@...

Wednesday, January 28, 2004, 2:20:22 PM, you wrote:

r> Hello eceryone

r> I am glad to be here. I have just recently learned about rife

r> technology and I am amazed! I would like to have a rife machine

r> but do not know wich one is the best nor do I have the money at

r> this time.

r> I have spoken with the good folks at rifemachine.com and they seem

r> to have a very good product. They told me that thier machines are

r> made with vacume tubes and that produces a higher quality of signal.

r> I was wondering if someone could comment on this or recomend any

r> particular type of rifemachine?

r> I also have spoken to an aquaintance of mine that has an ongoing

r> illness due to poisoning. I was suprised to learn that she had

r> heard of rife machines before and I was shocked when she said that

r> they realy did not work. I have never used a rife machine before

r> so I dont exactly undderstand thier limits. I am assuming that if you

r> are sick and use a rife machine that just a few minutes will take

r> care of it. I was wondering if someone could kinda give me a rife101

r> if you will. on how effective all of this stuff really is.

r> Thanks so much for your support

r> Todd

January 30, 2004

Good day, ALL.

I, too, have a lot of questions about the different machines and

frequencies. Since I have been following this group, trying to learn

on my own as you seem to keep recommending, through you and your

posts, it seems that the people here are not too eager to share which

machine they have and/or make recommendations to others and that

disappoints me because there are so many to choose from. How can I,

a novice, ever make an informed decission? You have the answers. I

believe we are all trying for the same thing, ultimate health. Why

are you so " hush-hush " about which machine you are using? I do

understand, better than many, the need to watch our butts with what

we say and how we say things here. I am as concerned as anyone with

the foulings of our government and will someday be a part of it's

falling but I digress...

What I would really like is if those of you who use machines would

tell us who do not yet, which machine you have; what you use it for

and how much it cost.

My intentions for a machine will be to assist others with cancer on a

daily basis. Right now, I am a massage therapist whom specializes in

working with the terminally ill. I would like to help offer them

hope when our medical community has fail them.

Could you assist me, and others in this way, please?

Thank you in earnest for your assistance.

With light, laughter and love,

Diane

WWW.transitionallifecare.com

Diane@...

January 31, 2004

Dear ALL,

I would like to take a moment to thank everyone who has personally

emailed me and/or written here to help myself and others. The

information I'm receiving is helping immensely!

Please continue with the assistance... PLEASE!

From the bottom of my heart,

With light, laughter and love,

Diane

diane@...

www.transitionallifecare.com

The past does not equal the future.

January 31, 2004

Out of respect to others and for our own protection, I will share

with anyone who would like it, the information I have received but

not here. Please email me at:

diane@...

With light, laughter and love,

Diane

diane@...

www.transitionallifecare.com

The past does not equal the future.

September 16, 2004

Have you tried any diet changes? I am wandering what type of area you live? Have you moved in the past 6 years? We relocated from Nebraska to Northwest arkansas well lookout mold count crazy here! Amy

Hi all, my name's and I've had asthma for 6 years now. It started out pretty mild, but now it's severe/brittle and has been this way for about the past year and a half. I'm currently on 11 different medications including xolair now and they seem to help some, but none of them have allowed me to fully reverse all my air way obstruction and my Fev-1 is in a constant downward spiral as of late.

September 16, 2004

Have you tried any diet changes? I am wandering what type of area you live? Have you moved in the past 6 years? We relocated from Nebraska to Northwest arkansas well lookout mold count crazy here! Amy

Hi all, my name's and I've had asthma for 6 years now. It started out pretty mild, but now it's severe/brittle and has been this way for about the past year and a half. I'm currently on 11 different medications including xolair now and they seem to help some, but none of them have allowed me to fully reverse all my air way obstruction and my Fev-1 is in a constant downward spiral as of late.

September 17, 2004

Amy,

I think Arkansas is a terrible state for suffers of allergies and

asthma. We moved from Florida to Indiana and 6 years ago to central

Arkansas and we have all been sneezing and coughing since! My

youngest three were born here so I can't really say they would do

better somewhere else but our oldest son has asthma and had been

symptoms free for years ... until we moved here. I don't know what

it is that grows here that has everyone sneezing and runny nose --

and whats up with the mold count!! Maybe we will be able to move

from here!

have a great day!

sharon

> Have you tried any diet changes? I am wandering what type of area

you live?

> Have you moved in the past 6 years? We relocated from Nebraska to

Northwest

> arkansas well lookout mold count crazy here! Amy

>

> > Hi all, my name's and I've had asthma for 6 years now.

It

> > started out pretty mild, but now it's severe/brittle and has

been

> > this way for about the past year and a half. I'm currently on

11

> > different medications including xolair now and they seem to help

> > some, but none of them have allowed me to fully reverse all my

air

> > way obstruction and my Fev-1 is in a constant downward spiral as

of

> > late.

> >

September 17, 2004