Guest guest Posted December 25, 2008 Report Share Posted December 25, 2008 Oh THANKS o very much for the response! I have been so scared! I will look into the files and also the CBT/ERB therapy. I keep thinking i have done something wrong. Jonah is scared that he will be taken away from us, his parents. How do you handle it when he tells you such horrible thoughts? I don't know how and i panic which i know is not the right way. Again, thanks and i could use any help i can get. Jacquie > > Subject: Re: New here > To: > Date: Thursday, December 25, 2008, 4:50 PM > Hi Jacquie, > Just a quick note to say, " Welcome " > I'm glad you joined this group. Lots of support and > caring people here!! > I have two kids with OCD, 12yr old dd, and 7 yr old ds. My > son has the " bad thoughts " which include harming > me. Have you brought him for any CBT/ERP therapy? That is > the first step. Depending on his severity, the doctor may > also prescribe a med. There are many books on childhood OCD > at the bookstore and/or Library. > You can start by looking in the " files " section > of the group here also. > > We are here if you need us! > > A little tip to start is to tell him that his mind is > giving him these bad thoughts because it is like a hiccup. > It keeps coming and won't go away.This will help him to > realize he is not going crazy. Is he feeling a lot of > anxiety with the thoughts? You can also have him name the > thoughts, like the OCD Monster or something and tell him to > boss him away. > > Hugs > Judy > > > > > ________________________________ > > To: > Sent: Thursday, December 25, 2008 3:16:13 PM > Subject: New here > > > > I am Jacquie a homeschooling SAHM to one 8 year old son > whom seems to have thoughts he can't control. These > thoughts are of harming me. I researched on the net and > discovered OCD. Does anyone else have a child who has these > thoughts? I really need to learn how to help him and deal > with these thoughts. Any help would be appriciated. > > Thanks, > Jacquie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2008 Report Share Posted December 26, 2008 Hi, welcome to the group! You'll find some good info and advice here, but most of all, support from people who " understand " . My DD, 14, doesn't have the bad thought version, but the contamination fears instead. Have you had your son seen by a psychologist? When we thought our daughter had this (after I researched it), we set up an appointment without telling the doc what we suspected in the hopes we were wrong! No such luck! At least since you homeschool, you don't have to worry about that, but I'd definitely get him to someone to have an official diagnosis, unless you've already done that, of course. Debbie Debbie Cavender http://twochinadolls.blogspot.com ____________________________________________________________ Save $15 on Flowers and Gifts from FTD! Shop now at http://offers.netzero.net/TGL1241/?u=http://www.ftd.com/17007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2008 Report Share Posted December 26, 2008 Something that really helps my daughter is that it is okay to have any type of thought, and she need not feel guilty about any thought she has. That's pretty much how I've always handled mine. What has occasionally happened is the thought repeats and repeats...but I manage to deliberately distract myself after a bit. It's at those times that I feel I get a glimpse of how others suffer from the constant thoughts if distraction doesn't work and they just keep on & on & on.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2008 Report Share Posted December 26, 2008 What's interesting for me is that I don't have such issues when I am on medication, but do when off, so clearly it is chemical in nature. Re: New here Something that really helps my daughter is that it is okay to have any type of thought, and she need not feel guilty about any thought she has. That's pretty much how I've always handled mine. What has occasionally happened is the thought repeats and repeats...but I manage to deliberately distract myself after a bit. It's at those times that I feel I get a glimpse of how others suffer from the constant thoughts if distraction doesn't work and they just keep on & on & on.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2008 Report Share Posted December 26, 2008 Thanks so much! I did finally get to the library and i checked out some 15-20 books on OCD. I only skim read so far, but one book told of a therapist that treated OCD and had a patient that did not go to train depots. The patient was scared he would push someone into the oncoming train. So the therapist actually took this OCD patient to the train platform and stood in fron of the person and told him to push her into the train. The person REFUSED to do so even though the therapist was demanding it. This showed that it was a thoughts problem and not an action problem. I found that reassuring and very interesting. I keep thinking of all these questions i have. Some things i am discovering. Like our son confesses. A LOT. Now i am finding out that it is a part of it! Also, a few weeks ago he and i went into a dollar store to look around and as we were leaving he suddenly asks me if he stole something. He says he thought about it. He says he may have. He has done this once before too. Now i read that it is another OCD thing. I feel like i have been in a dark room and suddenly the light has been turned on bright. I noticed some of you are christian. We are too and it is taken toll there too. I mean, my first thought of his bad thoughts is that he is possessed or something. Now i am beginning to realize that it is THOUGHTS and although very disturbing, with help, it can be controlled more. All of you are a ray of sunshine here on these cloudy days. Thanks again, Jacquie > > Subject: Re: New here > To: > Date: Friday, December 26, 2008, 4:34 PM > Hi Jacquie and welcome. You will find reassurance and > information > here! It looks like others have covered the main things > and BJ has > given good book suggestions and ideas to reassure your son. > Not sure > what else I could add, other than to keep posting your > questions and > concerns and there will be someone here with ideas. > > We are all in the same boat here, learning as we go. OCD > is the most > bizarre disorder I have ever had experience with. The > beginning > stage of it, where you are IS really scary, and > particularily the > thoughts your son is reporting, so I understand your fears. > Our son > had harming thoughts too and he is a teen, so at times we > didn't know > what to think. > > One of the things they say about OCD is people do not carry > out there > thoughts, and usually feel guilt or anxious about them > which > indicates it is not something they want to do or will do. > But the > OCD keeps repeating the idea, so they start to think > it's because > it's something they want to or will do. It is called > the doubting > disease for this reason, it keeps them fearing and > wondering what is > real. > > Not sure if someone mentioned the website- > www.westsuffolkpsych.homestead, they have some good > articles written > by an expert who treats OCD. A good resource until you get > some > books. Just gooling OCD brings up a lot, I found the > Wikepedia had > up to date info on explanations and treatments. > > Hang in there. Knowledge is power and as you and your son > come to > understand the OCD it will get easier to know how to > manage. > > I am sending you a cyber HUG!!! > Barb > > > > > > Oh THANKS o very much for the response! I have been so > scared! I > will look into the files and also the CBT/ERB therapy. I > keep > thinking i have done something wrong. Jonah is scared that > he will be > taken away from us, his parents. How do you handle it when > he tells > you such horrible thoughts? I don't know how and i > panic which i know > is not the right way. Again, thanks and i could use any > help i can > get. > > Jacquie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2008 Report Share Posted December 27, 2008 Jacquie, I am so glad that you are feeling better about all of this now that you understand that your son is still the wonderful son you have always had, it is just a brain glitch that makes him have OCD thoughts and doubts.  His thoughts are quite common for those who have OCD.  I remember that I used to have a fear of being left alone in dressing rooms because I had this weird doubt whenever I left one that maybe I hurt someone in there.  It made no sense because the only person in the dressing room were my mom and I, but still...unless she waited and left with me, I would have this obsessive worry that would torture me.  There is a specific treatment that works for this called cognitive behavior therapy that involves exposure and response prevention.  You can try to locate such a therapist near you by going to the Obsessive Compulsive Foundation website.  Also, just by letting your son know about OCD and why he is having such thoughts and that there are many other kids who have them, I bet he will feel so much better about himself. Re: New here > To: > Date: Friday, December 26, 2008, 4:34 PM > Hi Jacquie and welcome. You will find reassurance and > information > here! It looks like others have covered the main things > and BJ has > given good book suggestions and ideas to reassure your son. > Not sure > what else I could add, other than to keep posting your > questions and > concerns and there will be someone here with ideas. > > We are all in the same boat here, learning as we go. OCD > is the most > bizarre disorder I have ever had experience with. The > beginning > stage of it, where you are IS really scary, and > particularily the > thoughts your son is reporting, so I understand your fears. > Our son > had harming thoughts too and he is a teen, so at times we > didn't know > what to think. > > One of the things they say about OCD is people do not carry > out there > thoughts, and usually feel guilt or anxious about them > which > indicates it is not something they want to do or will do. > But the > OCD keeps repeating the idea, so they start to think > it's because > it's something they want to or will do. It is called > the doubting > disease for this reason, it keeps them fearing and > wondering what is > real. > 0A> Not sure if someone mentioned the website- > www.westsuffolkpsych.homestead, they have some good > articles written > by an expert who treats OCD. A good resource until you get > some > books. Just gooling OCD brings up a lot, I found the > Wikepedia had > up to date info on explanations and treatments. > > Hang in there. Knowledge is power and as you and your son > come to > understand the OCD it will get easier to know how to > manage. > > I am sending you a cyber HUG!!! > Barb > > > > > > Oh THANKS o very much for the response! I have been so > scared! I > will look into the files and also the CBT/ERB therapy. I > keep > thinking i have done something wrong. Jonah is scared that > he will be > taken away from us, his parents. How do you handle it when > he tells > you such horrible thoughts? I don't know how and i > panic which i know > is not the right way. Again, thanks and i could use any > help i can > get. > > Jacquie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2008 Report Share Posted December 27, 2008 > > > > > > Oh THANKS o very much for the response! I have been so > > scared! I > > will look into the files and also the CBT/ERB therapy. I > > keep > > thinking i have done something wrong. Jonah is scared that > > he will be > > taken away from us, his parents. How do you handle it when > > he tells > > you such horrible thoughts? I don't know how and i > > panic which i know > > is not the right way. Again, thanks and i could use any > > help i can > > get. > > > Jacquie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2008 Report Share Posted December 27, 2008 Life will be good.  I have pretty severe OCD and I have a wonderful career and am raising my 9 year old twins on my own.  I have a handful of very close friends and then many more friends whom I consider more friends because our kids do things together.  Life is good here.  Yes, I had a hard fight against OCD involving medication (Anafranil was what helps me best.) and intensive cognitive behavior therapy with a wonderful therapist who specializes in OCD.  I still am on medication and I still have OCD fears/issues, but everyone in life has something they have to cope with so I don't dwell on my misfortune, but rather on how I can work around it.  My daughter has OCD and trich (compulsive hair pulling) and she is getting therapy for it and is on the same med I am on.  She is doing much better than before, but is still definitely stressed and worried a  lot of the time.  She has always seemed " different " , but it very bright and does amazingly academically.  She has some good friends, but would like more.  This vacation she has had a sleepover, or a playdate every day so far, but today when I was to tired to do anything but have a " lazy " day.  This is new to you so it seems overwhelming, but once you learn more about it and seek a therapist who specializes in OCD for your son, you will feel much more optimistic about life.  You don't have to change your hopes and dreams for him. Re: Re: New here Will life ever get good again? Will there ever be a normal again? How do i know it is not something worse? DH & I are going out and taking Jonah to a sitters tonight. DH & I NEVER go anywhere without our son normally but we really want to go to his company's holiday party tonight. Earlier this week Jonah assured me he would not tell these thoughts to anyone but us, now today he said he will TRY not to tell. I got the OCD book for kids that give steps on what to do and we have read the first chapter today. We talked about what important things to keep and what important things to toss in the trash. We talked about how the brain is the same way but sometimes his gets stuck and he needs to train his brain to toss some thoughts in the trash. We also talked about how these thoughts are not his fault and he can train his brain to toss these thoughts in the trash. Do any of your kids seem normal? Will my son loose the few friends he has? I am just so scared. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2008 Report Share Posted December 28, 2008 They are showing up for me, Kathy. BJ > > > > For some reason my messages aren't showing up today. > > > > ----- Forwarded Message ---- > > To: > Sent: Saturday, December 27, 2008 1:04:09 PM > Subject: Re: Re: New here > > > Hi Jacquie, > > Will life ever get good again? YES!! > > Kidlet and I have only been doing this since this past summer, and life is getting better. It has it's ups and its downs, but once the panic starts subsiding you will more than likely be able to look at this in a whole different light. So it at least gets different. We learn to adapt. The abnormal becomes the norm. > > You know it was just a couple months ago that she was unable to sleep over at anyone's house, and tonight she is happily going to a friends for the night. She just knows that she needs to take her meds while there and I send an extra dose of the anxiety meds just in case she needs them. It goes unspoken that if she gets to far into her thoughts, she will text me and get on reassurance and thats it. > > She was very ashamed of her thoughts in the beginning of all this and wanted nobody to know. Last month we were on a week long class trip and she told all the girls in our cabin about OCD and how it affects her. > > In September she was unable to shower but maybe once a week. When she showered, her thoughts would tell her her legs would turn to bloody streams. Last week she took 3 showers and during the last one I told her I would not be going into the bathroom to reassure her for anything and she was able to take the shower, work through the thoughts on her own and didn't come out looking pale as a ghost. > > The key for us, as it was explained to me by this group, was to first get the anxiety under control. Once the anxiety is under control they are more able to do the CBT and think a bit different. > > Things definately are not perfect in our house. Her thoughts still come and go, I think she is starting to get some contamination issues, and she has developed a vocal tic and a physical tic. Through educating myself and educating her though, we are no longer in panic mode. > > This is definately an adventure, but we learn to take things in stride. She's getting a little of her life back, and I'm getting a little of mine. We relish in the progress and learn to deal with the rest. > > Hang in there and stay close to this group. Again, I don't know what I would do with this group, especially while in panic mode. > > ~~Kathy > Courage is not living without fear. > Courage is being scared to death and doing the right thing anyway. > -Chae > > > > > > ________________________________ > > To: > Sent: Saturday, December 27, 2008 12:13:25 PM > Subject: Re: Re: New here > > > Will life ever get good again? Will there ever be a normal again? How do i know it is not something worse? DH & I are going out and taking Jonah to a sitters tonight. DH & I NEVER go anywhere without our son normally but we really want to go to his company's holiday party tonight. Earlier this week Jonah assured me he would not tell these thoughts to anyone but us, now today he said he will TRY not to tell. I got the OCD book for kids that give steps on what to do and we have read the first chapter today. We talked about what important things to keep and what important things to toss in the trash. We talked about how the brain is the same way but sometimes his gets stuck and he needs to train his brain to toss some thoughts in the trash. We also talked about how these thoughts are not his fault and he can train his brain to toss these thoughts in the trash. > Do any of your kids seem normal? Will my son loose the few friends he has? I am just so scared. > > Jacquie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2009 Report Share Posted February 12, 2009 no I havent read any books yet I will defintely check those out. I am still trying to figure out everything. I dont know anything about anti depressants or actually any kind of meds associated with this. I do know that ever since my son was in kindergarten every teacher has asked me if he was ADD. they tested him this year in 7th grade and they said he wasnt. I dont know if OCD and ADD goes hand and hand? I just want to educate myself before the 19th so when they decide to put him on a certain med I will atleast know what will happen. Is it normal for kids with OCD to have worrisome thoughts? does puberty make it show up more? steph > > Hi Steph, > The SSRI's won't make your son walk around like a zombie. They will start out at the lowest dosage and work there way up as needed. >  My daughter is 12 and was diagnosed at age 5. She has been on Zoloft all this time. We have had to raise it, but luckily for her, that med worked for the OCD and is still working. > My son(7) , on the other hand was diagnosed at age 4, and has had to try several different SSRI'S. They all stopped his thoughts, but he became very hyper on them and we had to add other meds. > The thoughts don't all stop on meds alone though. It takes alot of therapy-CBT and/or ERP. You mentioned your son was in therapy already, so you are off to a great start. > Have you read any books yet. ? A good suggestion is " Freeing your child from OCD " by Tamar Chansky, and another good one is " What to do when your child has OCD " by Aureen Pinto Wagner " " Imp of the Mind " by Lee Baer is good for explaining the " bad thoughts " > This is a very supportive group. You'll find lots of help here! We are all here for you!!! Glad you joined! > Hugs > judy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2009 Report Share Posted February 12, 2009 no I havent read any books yet I will defintely check those out. I am still trying to figure out everything. I dont know anything about anti depressants or actually any kind of meds associated with this. I do know that ever since my son was in kindergarten every teacher has asked me if he was ADD. they tested him this year in 7th grade and they said he wasnt. I dont know if OCD and ADD goes hand and hand? I just want to educate myself before the 19th so when they decide to put him on a certain med I will atleast know what will happen. Is it normal for kids with OCD to have worrisome thoughts? does puberty make it show up more? steph > > Hi Steph, > The SSRI's won't make your son walk around like a zombie. They will start out at the lowest dosage and work there way up as needed. >  My daughter is 12 and was diagnosed at age 5. She has been on Zoloft all this time. We have had to raise it, but luckily for her, that med worked for the OCD and is still working. > My son(7) , on the other hand was diagnosed at age 4, and has had to try several different SSRI'S. They all stopped his thoughts, but he became very hyper on them and we had to add other meds. > The thoughts don't all stop on meds alone though. It takes alot of therapy-CBT and/or ERP. You mentioned your son was in therapy already, so you are off to a great start. > Have you read any books yet. ? A good suggestion is " Freeing your child from OCD " by Tamar Chansky, and another good one is " What to do when your child has OCD " by Aureen Pinto Wagner " " Imp of the Mind " by Lee Baer is good for explaining the " bad thoughts " > This is a very supportive group. You'll find lots of help here! We are all here for you!!! Glad you joined! > Hugs > judy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2009 Report Share Posted February 12, 2009 no I havent read any books yet I will defintely check those out. I am still trying to figure out everything. I dont know anything about anti depressants or actually any kind of meds associated with this. I do know that ever since my son was in kindergarten every teacher has asked me if he was ADD. they tested him this year in 7th grade and they said he wasnt. I dont know if OCD and ADD goes hand and hand? I just want to educate myself before the 19th so when they decide to put him on a certain med I will atleast know what will happen. Is it normal for kids with OCD to have worrisome thoughts? does puberty make it show up more? steph > > Hi Steph, > The SSRI's won't make your son walk around like a zombie. They will start out at the lowest dosage and work there way up as needed. >  My daughter is 12 and was diagnosed at age 5. She has been on Zoloft all this time. We have had to raise it, but luckily for her, that med worked for the OCD and is still working. > My son(7) , on the other hand was diagnosed at age 4, and has had to try several different SSRI'S. They all stopped his thoughts, but he became very hyper on them and we had to add other meds. > The thoughts don't all stop on meds alone though. It takes alot of therapy-CBT and/or ERP. You mentioned your son was in therapy already, so you are off to a great start. > Have you read any books yet. ? A good suggestion is " Freeing your child from OCD " by Tamar Chansky, and another good one is " What to do when your child has OCD " by Aureen Pinto Wagner " " Imp of the Mind " by Lee Baer is good for explaining the " bad thoughts " > This is a very supportive group. You'll find lots of help here! We are all here for you!!! Glad you joined! > Hugs > judy > > Quote Link to comment Share on other sites More sharing options...
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