Guest guest Posted December 25, 2008 Report Share Posted December 25, 2008 I'm right with ya! It's 4 until 2 on Christmas morning here and I'm coming down from a night with OCD as well. If it is any consolation, my mom and I were having a discussion the other day and I was trying to explain to her that a behavior of Joei's was OCD and that is why I was not handling it in the manner she thought I should. It got a bit heated and I told her she should read some of the books I have recommended to help her understand. She flat out told me NO. lol I was angry for a bit until I realized that she is in a whole lot of fear over this OCD with her granddaughter and that by reading up on it, she would have to accept it. Accepting it is hard for her, she is still very upset and worried about it. I really strive to not let what others feel about this affect me. It is impossible to understand it unless they have been knee deep in it. I think our kids are good at hiding it in certain situations as well. Joei's code word when she is getting anxiety or thoughts is " monkeybutt. " We were at a family gathering tonite that had my own anxiety on edge and she came to me and told me " monkeybutt. " She looked so composed, the only reason I noticed is because I can see the faint twitch she gets in her nose and hear the little hum she is developing. I actually felt really alone at that time because there was a house full of people and nobody to understand because they have absolutely no clue! ~~Kathy Courage is not living without fear. Courage is being scared to death and doing the right thing anyway. -Chae ________________________________ To: Sent: Wednesday, December 24, 2008 11:09:21 PM Subject: Re: Re: Judy Hi. It's ten til two on Christmas morning and here I am just trying to hold on to a little bit of sanity. i think the whole Christmas thing was just too much for him. He was so overly excited and all he (my 7 year old with ocd) cared about was getting his latest obsession, toys. We had to let him open some gifts last night to take the edge off but I couldn't remember which package had what he really wanted. So he melted down, threw things and cursed. My mom is here and her response was to tell me how manipulative he is, as if I didn't know. I don't even want to show up for Christmas! What's worse is that my mom will be here until the 29th and I have to deal with Josiah who, although he is doing better than a month ago, is still a very big handful and can flip into rage on a dime. He hit me twice the other day. What do you do when this happens? He was not like this so much until recently. I have him on a point system for rewards and punishments but when he gets points taken off for bad behavior he goes into a rage again! Sometimes I just don't know how I'm going to make it! I think he has ODD on top of the OCD. Is that somewhat common? I know I'm rambling, so I'll sign off. Thanks to all of you very supportive listeners. Dare I even say Merry Christmas after all of my complaining? I do wish you all the best! Walk by Faith Tyler ____________ _________ _________ __ From: c ward <cward_riyahoo (DOT) com> To: @ yahoogroups. com Sent: Wednesday, December 24, 2008 2:30:29 PM Subject: Re: Re: Judy Judy, Is your daughter still doing well on the gluten free diet? in TN From: jchabot <jchabotsnet (DOT) net> Subject: Re: Re: Experience with abilify and hospitalization To: @ yahoogroups. com Date: Wednesday, December 24, 2008, 2:00 PM Hi Silvia, My 7 yr old son is on Abilify with Luvox. He has OCD and Bipolar , so we can't go up on the Luvox unless we also go up on the Abilify. My experience is that if you use the anti-psychotic alone, it will intensify the OCD. You must have an SSRI with it.My son has been horrendous lately. He has gained weight and needs a raise in the Abilify. He rages all day. He screams, spits, hits, etc, etc.He doesn't listen to anything I say, and punishments and time outs are just not effective. I'm hoping his doctor will raise the meds again, or he will have to be hospitalized also. I haven't had him hospitalized yet, but my daughter (12) has been there twice, and I know how hard it is. With your son being 17, you really have to consider how dangerous he could become if he is acting out. I think you did the right thing by hospitalizing him. Hang in there! It will get better! We are all here if you need to talk. Hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2008 Report Share Posted December 25, 2008 Thanks for writing! It feels good that there are people who do understand. I'll be glad when today is over. Hang in there. Walk by Faith Tyler ________________________________ To: Sent: Thursday, December 25, 2008 5:07:39 AM Subject: Re: Re: Judy---- I'm right with ya! It's 4 until 2 on Christmas morning here and I'm coming down from a night with OCD as well. If it is any consolation, my mom and I were having a discussion the other day and I was trying to explain to her that a behavior of Joei's was OCD and that is why I was not handling it in the manner she thought I should. It got a bit heated and I told her she should read some of the books I have recommended to help her understand. She flat out told me NO. lol I was angry for a bit until I realized that she is in a whole lot of fear over this OCD with her granddaughter and that by reading up on it, she would have to accept it. Accepting it is hard for her, she is still very upset and worried about it. I really strive to not let what others feel about this affect me. It is impossible to understand it unless they have been knee deep in it. I think our kids are good at hiding it in certain situations as well. Joei's code word when she is getting anxiety or thoughts is " monkeybutt. " We were at a family gathering tonite that had my own anxiety on edge and she came to me and told me " monkeybutt. " She looked so composed, the only reason I noticed is because I can see the faint twitch she gets in her nose and hear the little hum she is developing. I actually felt really alone at that time because there was a house full of people and nobody to understand because they have absolutely no clue! ~~Kathy Courage is not living without fear. Courage is being scared to death and doing the right thing anyway. -Chae ____________ _________ _________ __ From: Tyler <suddenly17yahoo (DOT) com> To: @ yahoogroups. com Sent: Wednesday, December 24, 2008 11:09:21 PM Subject: Re: Re: Judy Hi. It's ten til two on Christmas morning and here I am just trying to hold on to a little bit of sanity. i think the whole Christmas thing was just too much for him. He was so overly excited and all he (my 7 year old with ocd) cared about was getting his latest obsession, toys. We had to let him open some gifts last night to take the edge off but I couldn't remember which package had what he really wanted. So he melted down, threw things and cursed. My mom is here and her response was to tell me how manipulative he is, as if I didn't know. I don't even want to show up for Christmas! What's worse is that my mom will be here until the 29th and I have to deal with Josiah who, although he is doing better than a month ago, is still a very big handful and can flip into rage on a dime. He hit me twice the other day. What do you do when this happens? He was not like this so much until recently. I have him on a point system for rewards and punishments but when he gets points taken off for bad behavior he goes into a rage again! Sometimes I just don't know how I'm going to make it! I think he has ODD on top of the OCD. Is that somewhat common? I know I'm rambling, so I'll sign off. Thanks to all of you very supportive listeners. Dare I even say Merry Christmas after all of my complaining? I do wish you all the best! Walk by Faith Tyler ____________ _________ _________ __ From: c ward <cward_riyahoo (DOT) com> To: @ yahoogroups. com Sent: Wednesday, December 24, 2008 2:30:29 PM Subject: Re: Re: Judy Judy, Is your daughter still doing well on the gluten free diet? in TN From: jchabot <jchabotsnet (DOT) net> Subject: Re: Re: Experience with abilify and hospitalization To: @ yahoogroups. com Date: Wednesday, December 24, 2008, 2:00 PM Hi Silvia, My 7 yr old son is on Abilify with Luvox. He has OCD and Bipolar , so we can't go up on the Luvox unless we also go up on the Abilify. My experience is that if you use the anti-psychotic alone, it will intensify the OCD. You must have an SSRI with it.My son has been horrendous lately. He has gained weight and needs a raise in the Abilify. He rages all day. He screams, spits, hits, etc, etc.He doesn't listen to anything I say, and punishments and time outs are just not effective. I'm hoping his doctor will raise the meds again, or he will have to be hospitalized also. I haven't had him hospitalized yet, but my daughter (12) has been there twice, and I know how hard it is. With your son being 17, you really have to consider how dangerous he could become if he is acting out. I think you did the right thing by hospitalizing him. Hang in there! It will get better! We are all here if you need to talk. Hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2008 Report Share Posted December 25, 2008 My dad is a big part of our lives, and even though he had to deal with my severe OCD as I was a teen, he still doesn't really accept my daughter's. Â I do believe that it is because he hopes she won't have to go through what I did. Â He was over for Chanukah last night and my son got an iDog from me as a gift. Â My daughter was enjoying playing with the idog that is just so adorable; it dances and lights up to the music that plays through it from my son's ipod nano. Â Anyway, my dad made a comment that it is a waste of money and alluded to the whole economic mess in the country and that we shouldn't be spending such money. Â Well, that is exactly the OPPOSITE of what he should say in front of my daughter. Â She has a whole obsession about anyone spending any money on her. Â Just now she brought up what my father said last night and was upset by it. Â He knows she has this issue with getting things, but he just ignores it and thinks it will go away and that I am making things seem worse for her than they are. Â OCD is a very isolating illness and it is also isolating for the parents. Â That is what is so great about this group! Re: Re: Experience with abilify and hospitalization To: @ yahoogroups. com Date: Wednesday, December 24, 2008, 2:00 PM Hi Silvia, My 7 yr old son is on Abilify with Luvox. He has OCD and Bipolar , so we can't go up on the Luvox unless we also go up on the Abilify. My experience is that if you use the anti-psychotic alone, it will intensify the OCD. You must have an SSRI with it.My son has been horrendous lately. He has gained weight and needs a raise in the Abilify. He rages all day. He screams, spits, hits, etc, etc.He doesn't listen to anything I say, and punishments and time outs are just not effective. I'm hoping his doctor will raise the meds again, or he will have to be hospitalized also. I haven't had him hospitalized=2 0yet, but my daughter (12) has been there twice, and I know how hard it is. With your son being 17, you really have to consider how dangerous he could become if he is acting out. I think you did the right thing by hospitalizing him. Hang in there! It will get better! We are all here if you need to talk. Hugs Judy Quote Link to comment Share on other sites More sharing options...
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