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I add half a bottle of peroxide to my bath. I use 4 cups of bentonite.

nne wrote:

>

> Gail,

>

> What a wonderful idea put plastic in the tub first, or 's idea as well

> I can just see myself take another

>

> kitty litter bath, hmmm.. I kept some of the clay that was in the tub, and I

> am hydrating it now, it seems to be much

>

> more softer, I'll try your method of a facial as well. I agree with you thou

> my skin seems very soft. Somehow, despite the muddy water, I feel very

> clean, am I imagining this now? Now, anyone, ? I've read you could add

> hydrogen peroxide to the clay water??? Yes or no?

>

> Thanks,

>

> nne

>

> OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

alternative self-help subjects.

>

> THERE IS NO MEDICAL ADVICE HERE!

>

> This list is the 1st Amendment in action. The things you will find here are

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  • 4 weeks later...
Guest guest

Dear Tom: My son is 10 and has been

Home Schooled for three months now and is doing very well. I have a couple of

suggestions. First do a search on, autism Tammy Glasser home school. Tammy

talks about Home Schooling her children and moderates a site for Home Schoolers

called AUT 2 B Home, accessed through providing a simple Bio through her web

site. To have a general idea what they are covering in Public School. I refer

to a Couple of books: “Home Learning Year by Year”, by Rupp

and “What your= Grader Needs To Know” by E.D. Hirsh I have a schedule that gets checked off

as we do the subject. However, if something just is not going to work for the

day, I switch gears and do something else, or we take a walk and then get back

to work. A good suggestion from another list is if the subject that the child

does not like, then make a rule of 20 min. for that subject. For math and As.

kids, I personally like Saxon math. also likes to cook, so we do this

also. Good computer programs might be good also. As far as socializing look for

Home School programs through the library, or just go to the library as there

is always some social situation going on. Also, volunteer at a Human Society,

visit an elderly neighbor( we have a couple of people in town who have puppies

that loves) We are lucky in

that has a couple of friends who we have over on the weekend. If the boy

has an interest that can be taken outside the home, work on that. You could go

to museums, out to lunch, to me this is all social. Now, I imagine if the boy

is being taken out of school, he probably is not in the best shape mentally. I

would take time, it may take several weeks, to do more activities, such as

cooking, gardening, museums etc. Yesterday we did math, reading, etc., but we

also spent time setting up a book shelf and placing the books in an organized

way by category. also put up a calendar and I had him figure out the

location and hammer in the picture hook. We all do so many things in a day we

don’t think about but kids need to be taught. Organization is usually a

problem for these kids. I incorporate learning every day skills in

the school day, such as doing laundry. This A.M. we are taking the car to be

inspected and will discuss this whole deal, and we will go to the library while

we wait. These skills would be important for a 14 year old to be learning. Those

are my ideas, good luck and ask any other questions. Gail

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:” Saxon Math”, by

Hake and Saxon, is done in a very organized, step by step manner

and through out the lessons brings in content learned earlier, they are always bringing in a bit of

review along with new information. The program has a good review by www.mathematicallycorrect.com.

and has worked well for some As.

kids with math difficulties. tested average in math but first and second

grade was a disaster, in part, a big part, I blame Mathlands and inconsistent teaching

methods. We have been through the mill and back because of this. A great

program for first grade and early years for As. kids or anyone having

difficulties is called Touch Math. Both Touch Math and Saxon can be viewed on

the internet. We have a long math saga, but is ready to get on with the

day. Take Care, Gail

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  • 4 months later...

Suzanna,

HI and Welcome to the group. There are alot of people here who are going through similar things as you or have "been there". Please feel free to post any questions you may have to the group :)

Have you contacted the school district in your town to get your son early intervention services?

Are you a single parent? If so there are many single parents on the list, im also a single parent.

TK

(unknown)

hello,

my name is suzanna and I am 23 yrs old . I have a son who is called reece and is nearly 3, he was diagnosed earlier this yr with ASD.

I would like to speak to anyone who is in the same boat as myself. It is hard some times being on your own having to cope , but we get there :)

please mail me.

suzanna

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Welcome! I'm Annie in Albuquerque, NM. My dh Ron & I (married 29 yrs.

this Dec.) have two kidlets: Kris, 34, bi-polar and living in AZ, and

Louie, 23, HFA/AS and in supported living here in town. :) This is a

great place to come for information, since many of us have either been

down the road you're travelling or are travelling it themselves. :)

Lots of good advice, here. Good place to just vent sometimes, too. :)

I agree with T.K. about the early intervention. This will make a huge

difference for your son down the line. Talk to your son's diagnosing

dr. about this, and he/she may well be able to steer you in the right

direction. :)

Again, welcome!

Annie, who loves ya annie@...

--

No distance of place or lapse of time can lessen the friendship of those

who are thoroughly

persuaded of each other's worth. -- Southey

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Hi Annie, I also in am Albuquerque, but dealing with a 10 yo son,

what schools did your younger son attend and what services in town

were you able to get in place with him, my son is just in process of

being dx AS-Pdd NOS, and this is all new and stressful. We also

have older children that are at times lifesavers with our son. We

have a 31,21 and 20 yo daughters, and two granddaughters one that is

10 and one that recently passed on. If you have any resources that

are community specific I would love to learn about them.

Dana

-- In autism-aspergers , annie <annie@r...> wrote:

> Welcome! I'm Annie in Albuquerque, NM. My dh Ron & I (married 29

yrs.

> this Dec.) have two kidlets: Kris, 34, bi-polar and living in AZ,

and

> Louie, 23, HFA/AS and in supported living here in town. :) This

is a

> great place to come for information, since many of us have either

been

> down the road you're travelling or are travelling it

themselves. :)

> Lots of good advice, here. Good place to just vent sometimes,

too. :)

>

> I agree with T.K. about the early intervention. This will make a

huge

> difference for your son down the line. Talk to your son's

diagnosing

> dr. about this, and he/she may well be able to steer you in the

right

> direction. :)

>

> Again, welcome!

>

> Annie, who loves ya

annie@r...

> --

> No distance of place or lapse of time can lessen the friendship of

those

> who are thoroughly

> persuaded of each other's worth. -- Southey

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(((DANA))) Not sure if I read that correctly? Your Grandchild

recently passed? :( I'm sorry. If I read that wrong... accept my

hugs in strength either way....don't we all need a couple a day.

DES <do I need more coffee or less?

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Louie went to Grant Middle School and Manzano High School. He should

have gone to , since that's our neighborhood school, but they had

no autism programs at that time (11 years ago). We moved here when he

was 12 from Tulsa OK, where he did dev. pre-school, dev. kindergarten,

and dev. primary (1st & 2nd grades), then on to the public elementary

school. We held him back for another yr. in 5th grade because we both

knew the mid school they wanted to send him to, and it would have eaten

him alive (*very* rough school).

Anyway, here we got connected with a lot of stuff via the HSD, although

it was pretty piecemeal since they aren't real forthcoming about what's

available. You will want to get your son on the DD Waver (yes, I know

it should be Waiver, but that's how they spell it here) waiting list.

It took Louie 5 yrs. to get to the top of that list, but it's a

wonderland once it takes effect because all of a sudden people are

practically falling over themselves trying to get you to sign on to

their programs, therapy, etc. You'll want to check with the Parks

Dept., because they have a wonderful after-school respite program that's

year-round. Louie did this too. Lots of activities, handicrafts, and

playing. Really really good for socialization for your guy and for

community education about autistic folks for the typical kids who go

there. I recommend it.

I also recommend the childrens psychiatric clinic that UNMH runs. Louie

went here from the time we moved here to see a psychologist; sometimes

the things that an autistic person goes through societally are more

damaging than the autism itself, so a psychologist can help that person

through those rough places as well as help them to understand their own

syndrome. He also saw a psychiatrist there, because he takes meds and

psychologists can't prescribe.

You have to really lean on the school system here, in my experience,

more so in the secondary grades than the primary. It would seem that

the high schools are the worst; we had no problems at Grant Middle,

where Louie excelled in mainstream and special classes (honor roll every

9 weeks). Whatever you do, do not let your child enroll in Manzano high

school. We had a horrible experience there; the principal does not like

special kids on his campus and has segregated all special classes to one

corner of the campus, behind the football stadium, nowhere near the main

school building, and surrounded with chainlink fences (with padlocked

gates). But for now, make sure that your IEP for your son does what

it's supposed to do, which is give him the same education as typical

kids, but with arrangements made for those specialities that autistics

display. Make sure that he gets an academic education as well, and also

look at his school books every year to make sure they're not the same

ones from the previous year and that they're the same ones used in

regular classrooms (they will try this, believe me). A good place to

call for help with this (it can be confusing the first few times out) is

Child Protection and Advocacy; I can't come up with their number just

now, but you should be able to get it from Information. Ther is also an

Autism Association at UNM; you can get in touch with them via the main

switchboard at UNM. And if you run into road blocks with your school

(it happens), then you can talk directly to the District person by phone

as well.....and our Democratic Senator is really helpful as a last

resort, when all else fails.

BTW, if you are a limited income person (as am I), sign your son up ASAP

for SSI through the Social Security office. It will give him Medicaid

and a monthly check to help with the expenses that go along with having

a kid with differences. Also, if you need a church or your church turns

out to be less accepting than you might have hoped, Sandia Presbyterian

is the church to go to. They are very accepting of difference (Louie is

a member there, as am I), have more than just one or two members with

challenges, and they are a very close and wonderful congregation. It's

just off Paseo del Norte and Browning.

This is all I can think of right now.....if you have any specific

questions, feel free to ask. :)

Annie, who loves ya annie@...

--

No distance of place or lapse of time can lessen the friendship of those

who are thoroughly

persuaded of each other's worth. -- Southey

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Annie,

Oh my.. I was reading through your post until I got to the part about the highschool segragating the children. Our district did that to the autism program children and the parents filed a law suit against them. Thankfully the parents won.

That really urks me bacause that is how it is in many school districts. ..grr..

TK

Re: Re: (unknown)

Louie went to Grant Middle School and Manzano High School. He shouldhave gone to , since that's our neighborhood school, but they hadno autism programs at that time (11 years ago). We moved here when hewas 12 from Tulsa OK, where he did dev. pre-school, dev. kindergarten,and dev. primary (1st & 2nd grades), then on to the public elementaryschool. We held him back for another yr. in 5th grade because we bothknew the mid school they wanted to send him to, and it would have eatenhim alive (*very* rough school).Anyway, here we got connected with a lot of stuff via the HSD, althoughit was pretty piecemeal since they aren't real forthcoming about what'savailable. You will want to get your son on the DD Waver (yes, I knowit should be Waiver, but that's how they spell it here) waiting list. It took Louie 5 yrs. to get to the top of that list, but it's awonderland once it takes effect because all of a sudden people arepractically falling over themselves trying to get you to sign on totheir programs, therapy, etc. You'll want to check with the ParksDept., because they have a wonderful after-school respite program that'syear-round. Louie did this too. Lots of activities, handicrafts, andplaying. Really really good for socialization for your guy and forcommunity education about autistic folks for the typical kids who gothere. I recommend it. I also recommend the childrens psychiatric clinic that UNMH runs. Louiewent here from the time we moved here to see a psychologist; sometimesthe things that an autistic person goes through societally are moredamaging than the autism itself, so a psychologist can help that personthrough those rough places as well as help them to understand their ownsyndrome. He also saw a psychiatrist there, because he takes meds andpsychologists can't prescribe. You have to really lean on the school system here, in my experience,more so in the secondary grades than the primary. It would seem thatthe high schools are the worst; we had no problems at Grant Middle,where Louie excelled in mainstream and special classes (honor roll every9 weeks). Whatever you do, do not let your child enroll in Manzano highschool. We had a horrible experience there; the principal does not likespecial kids on his campus and has segregated all special classes to onecorner of the campus, behind the football stadium, nowhere near the mainschool building, and surrounded with chainlink fences (with padlockedgates). But for now, make sure that your IEP for your son does whatit's supposed to do, which is give him the same education as typicalkids, but with arrangements made for those specialities that autisticsdisplay. Make sure that he gets an academic education as well, and alsolook at his school books every year to make sure they're not the sameones from the previous year and that they're the same ones used inregular classrooms (they will try this, believe me). A good place tocall for help with this (it can be confusing the first few times out) isChild Protection and Advocacy; I can't come up with their number justnow, but you should be able to get it from Information. Ther is also anAutism Association at UNM; you can get in touch with them via the mainswitchboard at UNM. And if you run into road blocks with your school(it happens), then you can talk directly to the District person by phoneas well.....and our Democratic Senator is really helpful as a lastresort, when all else fails.BTW, if you are a limited income person (as am I), sign your son up ASAPfor SSI through the Social Security office. It will give him Medicaidand a monthly check to help with the expenses that go along with havinga kid with differences. Also, if you need a church or your church turnsout to be less accepting than you might have hoped, Sandia Presbyterianis the church to go to. They are very accepting of difference (Louie isa member there, as am I), have more than just one or two members withchallenges, and they are a very close and wonderful congregation. It'sjust off Paseo del Norte and Browning.This is all I can think of right now.....if you have any specificquestions, feel free to ask. :)Annie, who loves ya annie@...-- No distance of place or lapse of time can lessen the friendship of thosewho are thoroughlypersuaded of each other's worth. -- Southey

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Annie, Thanks so much for all the info. We are in Eisenhower for mid

(which is supposed to have a decent twice exceptional program) and

Eldorado for high (which is supposed to suck pond scum) My daughter

has some connections and is already working on the DD Waver for

me.You are so right about the churches not be accomadating we are

Catholic and the Catechism classes at our church cause melt down

after meltdown because the classes are so uncontrolled, so we just

really attend Mass and have forgoten about religous ed for now. We

are also in the NE Heights right below Tramway (wrong side of Tram),

so you know the kind of uptight people with their perfect 2.3 kids

who would NEVER BEHAVE LIKE THAT we deal with daily, My husband has

actually told another parent who had a small complaint to get a life

I was so proud of him. The stuff some parents stress about, let them

live a day with one of these kids! Is SSI something you have to

financially qualify for because we live in that income zone where

you are elgible for nothing (made 217 dollars to much for the child

credit) and yet have no money for anything.

Dana ('s mom)

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Des, Thanks, Our little Angel was born with a condition called

Lissecephaly and had a seizure in her sleep that killed her May 16

of this year, she would have been 3 August 23rd. My little guy with

AS was scared to death to go to sleep for a couple of days because

we had explained Angel's seizures as her brain not being wired

right, and he knows his brain works differently too, it was and cont

to be very hard on us all.

- In autism-aspergers , " destinyiseek "

<destinyiseek@y...> wrote:

> (((DANA))) Not sure if I read that correctly? Your Grandchild

> recently passed? :( I'm sorry. If I read that wrong... accept

my

> hugs in strength either way....don't we all need a couple a day.

>

>

> DES <do I need more coffee or less?

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You know what, Dana? You don't live that far from us! You're about

Tramway & Candelaria, right? We're between Tramway & Tabo, just

off Lomas! :)

SSI is a federal program, and when we first got it for Louie when he was

3 and my husband and I were both still healthy and working. It couldn't

hurt to apply, y'know? And the office is just over on Cutler by the

highway overpass. They will refuse the first, and sometimes the second,

completed application....but the suspicion is that they just wanna make

sure you really want it. Give it a whack! :)

We have quite a few Catholics in our congregation, too. The church

isn't that far from you, too! When Louie joined, he didn't have to do

the Confirmation Class because we explained to the minister about his

problems with classroom situations; no problemo, they just baptized him

(we sprinkle too) and now he's a member. :) We always go to the 6:00

Saturday contemporary service, because it's very informal and not at all

dressy.....and other people with special kids go then too. And also

because my husband and I perform in the praise band. :) I hate people

who proselytize, but you should give us a try some Saturday. :)

Gee, it's nice to find someone else in 'burque! The only other persons

I know are a lady on another list who works at the U; she was told her

kids were never going to talk or be able to function in society. Now,

her daughter is going for her PhD and her son has a BA. And the other

person is a guy who plays drums in our band who has a Down's son; he and

his wife adopted all 4 of their kids from the Ukraine. Amazing guy. :)

Annie, who loves ya annie@...

--

No distance of place or lapse of time can lessen the friendship of those

who are thoroughly

persuaded of each other's worth. -- Southey

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Ann, We are actually Tram and Montgomery just across from Eldorado

basically, and I have been to your church once for a funeral of a

friend's son that commited suicide, and I remember thinking at the

time what a nice church it seemed like, so maybe I will try visiting

for services, I'm kind of in this big crisis of faith right now

since my grand daughter died, and I've been having pretty

devastating health problems that are threatening my career. So I am

trying to work through those issues right now also. I read one post

about trying to take care of ourselves physically when we deal with

our kiddos every day, I have pretty much ignored my health for years

and had 2 cardiac related admissions to hospitals this summer. My

husband and I both have now realized that my exercising and having

time to meditate is just as important as his time to exercise. We

made a plan what to do with our son if I did die as my husband knows

he is unable to take care of him alone. I don't know how you moms

with several children with AS deal with life, how do you deal with?

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I know what you mean about health probs, believe me! My dh just had

surgery last month to remove dead and dying bone from his ear and skull

after 2 years of excruciating pain and drs. who didn't want to do

anything. Thankfully, he's healing fine. I, otoh, was dx'ed in about

'95 with hepatitis C virus, and not the dormant kind either. I went

through chemo at home, long before Louie moved out, and now he's

concerned about his parents' health (says we're getting old now). :)

The chemo didn't do anything but make me suicidal. I get a CT scan

every 6 months, and the last one (just before my dh's surgery) showed a

lesion on my liver (I've already developed the cirrhosis and excess

fluid retention that comes with this little monster). So tomorrow at

6:30 (!) in the a.m. I have a liver biopsy scheduled. And my dr. wants

me to visit the pre-transplant clinic. sigh A friend tells me that the

dr. may be playing CYA to keep attorneys away later, but I guess the

results from tomorrow will tell the tale. I am very worried. And I am

very glad that Louie's been in supported living for 2 years now, and

isn't exposed to this on a daily basis (he comes to church on Saturdays

and over for dinner on Sundays).

I don't know how people with more than one autistic child cope either.

It was all we could do to raise just the one! But then, I have never

understood how my parents raised the 6 of us (all typical) in a 3

bedroom house with one bathroom, and on a single income.....and keep

their sanity. :)

Annie, who loves ya annie@...

--

No distance of place or lapse of time can lessen the friendship of those

who are thoroughly

persuaded of each other's worth. -- Southey

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  • 2 months later...

DES warbled:

> (((ANNIE))) Thats the FIRST time this has ever made sense to me....

> after all the 'professional' explainations...LOL Sorry, but its one

> of those questions that I've been dealing with for over 13 years!

> *nice to have closure eh?*

I'm glad you got something out of it! Thats the beauty of lists like

this: you never know when something you write will strike a chord with

someone..... :)

Annie, who loves ya

annie@...

--

Ambition is a poor excuse for not having enough sense to be lazy.

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DES warbled:

> (((ANNIE))) Thats the FIRST time this has ever made sense to me....

> after all the 'professional' explainations...LOL Sorry, but its one

> of those questions that I've been dealing with for over 13 years!

> *nice to have closure eh?*

I'm glad you got something out of it! Thats the beauty of lists like

this: you never know when something you write will strike a chord with

someone..... :)

Annie, who loves ya

annie@...

--

Ambition is a poor excuse for not having enough sense to be lazy.

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DES warbled:

> (((ANNIE))) Thats the FIRST time this has ever made sense to me....

> after all the 'professional' explainations...LOL Sorry, but its one

> of those questions that I've been dealing with for over 13 years!

> *nice to have closure eh?*

I'm glad you got something out of it! Thats the beauty of lists like

this: you never know when something you write will strike a chord with

someone..... :)

Annie, who loves ya

annie@...

--

Ambition is a poor excuse for not having enough sense to be lazy.

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Yeah, I do have a lava lamp, had it on 24/7 for a year after I got

it for Christmas. I had to sacrifice its power outlet spot, though,

for my amp. ;-)

Our(everybody's) eyes *do* see things slightly different from each

other, that's what gives us 3d-perception. I just probably find it

a bit more fascinating than the average person.

> Thanks Mike... my lil guy (age 11) is never still either. Its not

> a 'hyperactive' kinda thing... its more that NEED to move. Nice

> hearing it from another persons perspective. I suppose you LOVE

> the 'lamps' like lava, or those energy globes? Mine is drawn like

> bees to nectar in those 'speciality shops'. LOL

>

> He DID mention as well that 'one eye sees one thing, and if I

cover

> the other....' theory. I, of course, being his mother took him to

> the eye Dr. (they said... I should have made the appointment with

the

> Psychiatrist instead of course). They found nothing abnormal. I

> after 7 years of these 'seeing things differently' finally

accepted

> that JUST MAYBE my son has a better perspective on things. LOL

>

> Life IS a vision to him.... why should I try to fix that?

>

> DES

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Yeah, I do have a lava lamp, had it on 24/7 for a year after I got

it for Christmas. I had to sacrifice its power outlet spot, though,

for my amp. ;-)

Our(everybody's) eyes *do* see things slightly different from each

other, that's what gives us 3d-perception. I just probably find it

a bit more fascinating than the average person.

> Thanks Mike... my lil guy (age 11) is never still either. Its not

> a 'hyperactive' kinda thing... its more that NEED to move. Nice

> hearing it from another persons perspective. I suppose you LOVE

> the 'lamps' like lava, or those energy globes? Mine is drawn like

> bees to nectar in those 'speciality shops'. LOL

>

> He DID mention as well that 'one eye sees one thing, and if I

cover

> the other....' theory. I, of course, being his mother took him to

> the eye Dr. (they said... I should have made the appointment with

the

> Psychiatrist instead of course). They found nothing abnormal. I

> after 7 years of these 'seeing things differently' finally

accepted

> that JUST MAYBE my son has a better perspective on things. LOL

>

> Life IS a vision to him.... why should I try to fix that?

>

> DES

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Yeah, I do have a lava lamp, had it on 24/7 for a year after I got

it for Christmas. I had to sacrifice its power outlet spot, though,

for my amp. ;-)

Our(everybody's) eyes *do* see things slightly different from each

other, that's what gives us 3d-perception. I just probably find it

a bit more fascinating than the average person.

> Thanks Mike... my lil guy (age 11) is never still either. Its not

> a 'hyperactive' kinda thing... its more that NEED to move. Nice

> hearing it from another persons perspective. I suppose you LOVE

> the 'lamps' like lava, or those energy globes? Mine is drawn like

> bees to nectar in those 'speciality shops'. LOL

>

> He DID mention as well that 'one eye sees one thing, and if I

cover

> the other....' theory. I, of course, being his mother took him to

> the eye Dr. (they said... I should have made the appointment with

the

> Psychiatrist instead of course). They found nothing abnormal. I

> after 7 years of these 'seeing things differently' finally

accepted

> that JUST MAYBE my son has a better perspective on things. LOL

>

> Life IS a vision to him.... why should I try to fix that?

>

> DES

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  • 6 months later...
Guest guest

:

Your experience with New Fill in New York is very different from my experience here in Paris, France which I will share with you.

--Treatments are always at least two months apart

--You apply a local anestetic cream (EMLA) to your face at least two hours before the injections.

--Doctor here does either cheeks or temples but not both during the same session. It is too much.

--My swelling totally disappears with one or two days. And the day after treatment, even the very first, you can already see fantastic results in the mirror.

--I have had a total of three treatments, each of which last no more than 20 minutes on the table at the doctor's office, and my face is totally back to normal.

--My doctor tells me I will have to do some touch-up every 9-12 months.

--Here in Paris, each treatment costs $250 including the injected medicine.

--The doctor fills out the insurance form in such a way that I receive full reimbursement from my health insurance in the United States.

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In a message dated 6/11/2004 3:16:27 PM Eastern Daylight Time, Gringocholo2

writes:

> :

> Your experience with New Fill in New York is very different from my experience

here in Paris, France which I will share with you.

>

> --Treatments are always at least two months apart

> --You apply a local anestetic cream (EMLA) to your face at least two hours

before the injections.

> --Doctor here does either cheeks or temples but not both during the same

session. It is too much.

> --My swelling totally disappears with one or two days. And the day after

treatment, even the very first, you can already see fantastic results in the

mirror.

> --I have had a total of three treatments, each of which last no more than 20

minutes on the table at the doctor's office, and my face is totally back to

normal.

> --My doctor tells me I will have to do some touch-up every 9-12 months.

> --Here in Paris, each treatment costs $250 including the injected medicine.

> --The doctor fills out the insurance form in such a way that I receive full

reimbursement from my health insurance in

> the United States.

Sounds very different and much less expensive as well. I just went and had my

second treatment last Tuesday (two weeks after the first)and have scheduled for

a third in three weeks. I've had amazing results thus far and I'm very pleased.

In fact, I think by the third, I will be satisfied with the way my face has

filled in.. I have to mention that I had mild case (in my opion) of lipo, which

I was becoming more and more aware of..

My face did swell up a bit and still hurts a litte also (particularly when I

open my mouth wide-- I know, just don't open your mouth wide!)

I understand that FDA approval should come soon in the states but still there is

a question if insurance reimbursement will follow. I was told that the process

is somewhat tedious, requiring psychological testaments to the affects of the

lipo on ones self-esteem and such..

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  • 2 months later...

My son does that shaking thing. We just had a 48hr EEG on 9-1-04 because we were worried about siezures. No results yet. He is 15 if not seizures we were thinking maybe it could be hormonal.

davitavi wrote:

Our daughter Tiara has been shaking lately,like a cold chill,or something.She is doing it farely often.Does anyone know what it could be?It is scaring us.__________________________________________________

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  • 2 months later...

Hi brandy,

first off,, dont panic,, this disease moves in decades

not in 5 or 6 years.. it can take 20 years or more OR

might never get any worse.. lots depends on how he

treats his health,, NO ALCOHOL, none ,, nada,, that is

the most important thing he can stop doing if he does

drink.. Drinking alcohol is like pouring lighter fluid

on an already burning fire, it makes the virus

replicate like fire!

IF he is only stage 1, he may not need to do

treatment.. He is right to stop to consider what might

happen, sometimes it does make the virus worse and the

side effects can be disabling.I know several ppl who

the treatment has made worse and also know at least

one person who died from the tx... I was also genotype

1 and I had stage 3-4 with early cirrhosis ( your dad

has fibrosis, not cirrhosis at stage 1) so I had to

treat, I did and I cleared and am still clear almost 2

years after I finished the tx, BUT , I am left totally

disabled by the treatment with Rheumatoid arthritis,

osteoarthritis, fibromyalgia, and now sarcoidosis in

one eye that has taken my eyesite... so treatment is

not to be taken lightly, one has to weigh the pros and

cons..

Your dad will have to make the decision for himself,

but the depression is common, so maybe an

antidepressant is something he should talk with his

doc about.

IF he takes good care of himself, no alcohol, eats a

liver friendly diet, he will most likely die WITH this

disease NOT from it!....He could live a normal life

span,, I know lots of people who have had this for

decades, like 30 years or more that only have stage 1

damage,, so it is possible for him to just monitor and

watch his liver enzymes and have another biopsy in a

year or two and then see if he has progresed at all.

He might not have in several more years.. The point is

that there are lots of newer meds in the pipeline and

he could even wait for better treatment. Its just a

personal decision.But whatever he decides, he will

need lots of understanding and lots of hugs,, just

dont use his razor, nail clippers, toothbrush (yuk) or

anything else that might draw blood.

God bless and stay in touch!

jax

--- branmouse313 wrote:

>

> my dad was just dx with hep c. He has genotype 1a

> and he is in the

> first stage of cirrhosis. When I went to the gi doc

> with him he told

> the doc that he did want to start treatment. I tried

> to help him get

> as many questions answered as possible. The thing is

> now he is not

> sure if he should do tx or not. When we left the

> doc's all he could

> talk about was the long list of side effects and the

> fact that tx

> could make his liver worst off than it is. He's 46

> yrs old and a

> contruction foreman. He is really worried about not

> being able to

> work. I don't live with him right now. My brother

> does though and he

> just told me all this. The way he is describing how

> my dad is acting

> along will all the doubting, it sounds like my dad

> is getting

> depressed. I know that if he gets on tx or even if

> he doesn't his

> depression is just going to get worse. I am even

> starting to doubt

> whether or not he should do treatment, but then the

> doc only said he

> would have 5 or 6 yrs. I am planning to move down

> and live with him

> for as long as I have to because my brother can

> handle it alone. But

> I just dont know what to tell him anymore. Thanks,

>

>

>

>

>

=====

Jackie

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