Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 Hello Everyone, A short time ago, I embarked on a journey that is the technical equivalent of climbing Mount Everest. A website that will cover ALL things Autism . There will be no specific agenda, and no specific cause. The goal is to provide everything, and I mean absolutely everything. I am even putting together a section to track the political scene, and already have at least one volunteer for that section. I don't want another parent to go through what I did, clicking hundreds of links out of Google search results only to find one vaccine rant, or theory from the planet Mars, after the other. Either that, or a page with ribbons, bows, puzzle pieces, and absolutely no helpful information. Meanwhile their child is behind them laying on the floor, watching something spin, or worse yet, sitting in a corner. There should be no need to waste so much time trying to learn about this disorder, and how to work with it. The time would be much better spent working with the child, instead of hunting for information, day after day. In addition to being a reference, the site will be a " community " . Some of you may know it as " Web 2.0 " . I am handling most of that myself, and since it's only code, I probably can. However, there are many other features I have in mind which I may need some help with in the future. As for the content, I cannot possibly populate the content for this site myself. I would be writing for years, and do not possess that kind of knowledge anyway. So, what I am asking for today is your help. I need volunteers with a professional background in Autism. I also need folks that may have a technology, legal, journalism, or art background. If you have lots of time, great. If not, I still need you. A few minutes is better than no minutes. At this point there are over 30 volunteers registered, with another 20 or so waiting to participate in later development stages. As you probably already know, I am going to need many more volunteers to launch this site successfully. Some of the areas I need your help in, and content sections will be: -Advertising/Marketing -Advocacy -Audio/Video specialists(for free podcasts and instructional videos) -Behavioral Therapy -Biomedical Treatment -Data Mining Specialists -Dietary -Content Editors -Education -Events, both tracking and planning -Financial Aid -Forum Moderators -Legal issues, both for parents, AND the site. -Local/Regional data -Occupational Therapy -Photography -Politics(related to Autism) -Products (reviews) -Psychology -Safety -Speech Therapy -Technical Professionals(to assist with site dev) ....and I'm sure the list will grow as time goes on. Keep in mind, this site will have a global audience. I am looking for volunteers from all countries, and all languages. The site will have a translation feature which will allow folks to switch to their first language. If you would like to volunteer, please email me at... volunteer -at sign- autisticliving.com If you are interested, but do not wish to volunteer at this time, you can sign up for the site launch mailing list here... http://www.autisticliving.com Keep in mind, I will be asking parents to participate in a " focus group " of sorts as we get closer to launch. The first place I will send out invitations from is that list. I hope to hear from you soon. Also, if you know of any others that you would see fit to contribute to a site like this, please feel free to forward along this information. You might even consider printing it out, and giving a copy to your developmental pediatrician on your next visit. Thank You, Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2007 Report Share Posted June 16, 2007 I will volunteer both mine & my husband's time. I am an experienced fund raiser/event planner with an Art & Marketing background. I even have celebrity connections and still have all my fundraising info w/ the addresses for some incredibly wealthy people in both NY & NJ. My husband has done some website work & has worked in the Audio Video field for about 18 years now. He used to travel all around before having kids and trained for some of the big companies. He would love to help and has a great many friends that would help too if he asked them. Our 2 year old is currently being evaluated to see if he's Autistic or has some sort of Speech Delay. We've found it to be overwhelming to try and read the books, research online, get the toys & therapy aids everyone suggests, schedule all of the doctors appointments, have the 5 days a week of therapy while also feeling like we could do more to advocate for our son. Please feel free to contact me if you're interested in our help. Thanks, C. > > Hello Everyone, > > > A short time ago, I embarked on a journey that is the technical > equivalent of climbing Mount Everest. A website that will cover ALL > things Autism . There will be no specific agenda, and no specific > cause. The goal is to provide everything, and I mean absolutely > everything. I am even putting together a section to track the > political scene, and already have at least one volunteer for that > section. I don't want another parent to go through what I did, > clicking hundreds of links out of Google search results only to find > one vaccine rant, or theory from the planet Mars, after the other. > Either that, or a page with ribbons, bows, puzzle pieces, and > absolutely no helpful information. Meanwhile their child is behind > them laying on the floor, watching something spin, or worse yet, > sitting in a corner. There should be no need to waste so much time > trying to learn about this disorder, and how to work with it. The time > would be much better spent working with the child, instead of hunting > for information, day after day. > > In addition to being a reference, the site will be a " community " . > Some of you may know it as " Web 2.0 " . I am handling most of that > myself, and since it's only code, I probably can. However, there are > many other features I have in mind which I may need some help with in > the future. As for the content, I cannot possibly populate the content > for this site myself. I would be writing for years, and do not possess > that kind of knowledge anyway. > > So, what I am asking for today is your help. I need volunteers > with a professional background in Autism. I also need folks that may > have a technology, legal, journalism, or art background. If you have > lots of time, great. If not, I still need you. A few minutes is better > than no minutes. At this point there are over 30 volunteers > registered, with another 20 or so waiting to participate in later > development stages. As you probably already know, I am going to need > many more volunteers to launch this site successfully. > > Some of the areas I need your help in, and content sections will > be: > > -Advertising/Marketing > -Advocacy > -Audio/Video specialists(for free podcasts and instructional videos) > -Behavioral Therapy > -Biomedical Treatment > -Data Mining Specialists > -Dietary > -Content Editors > -Education > -Events, both tracking and planning > -Financial Aid > -Forum Moderators > -Legal issues, both for parents, AND the site. > -Local/Regional data > -Occupational Therapy > -Photography > -Politics(related to Autism) > -Products (reviews) > -Psychology > -Safety > -Speech Therapy > -Technical Professionals(to assist with site dev) > > ...and I'm sure the list will grow as time goes on. > > Keep in mind, this site will have a global audience. I am looking > for volunteers from all countries, and all languages. The site will > have a translation feature which will allow folks to switch to their > first language. > > If you would like to volunteer, please email me at... > > volunteer -at sign- autisticliving.com > > If you are interested, but do not wish to volunteer at this time, you > can sign up for the site launch mailing list here... > > http://www.autisticliving.com > > Keep in mind, I will be asking parents to participate in a " focus > group " of sorts as we get closer to launch. The first place I will > send out invitations from is that list. > > I hope to hear from you soon. > > Also, if you know of any others that you would see fit to contribute > to a site like this, please feel free to forward along this > information. You might even consider printing it out, and giving a > copy to your developmental pediatrician on your next visit. > > Thank You, > > Chris > Quote Link to comment Share on other sites More sharing options...
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