Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 - Hi , Please note what others say on this issue and perhaps just consider this as a last resort - I KNOW I am going to sound like I am on my usual thing again but......... Charlie couldn't potty train at all and I had had to start getting the big size nappies until I took him off dairy and he potty trained within the week . Louis is NT but has been on the same diet as us for ages ( mostly gluten and dairy free) . He asked for pizza and ice cream cake for his 9th birthday party but , that night before bed he had a distressing episode when he lost bowel control ..not loose stools or diarrhea , just complete lack of control . He said he had no sensation whatsoever that he needed to go ( and now is refusing gluten and dairy in case it happens again !!) . I have spoken to lots of people and apparently there is some thought that too much dairy can dull your sensation and make it difficult to anticipate that you need to go. Maybe this is why Charlie had no control until I removed dairy - I had assumed it was just one of a number of improvements in awareness and behaviour . Just a thought ........ Charlie used to smear too - you have my sympathy !! I became completely paranoid about the house smelling !! Good luck - I hope you find something that helps !! Regards Deborah -- In @y..., " seanzonigal " <seanzonigal@h...> wrote: > Hi, > Well, Jack is doing great in everything but potty training. Why? I > have no idea!!! > He started 1 year ago going on the potty, and did great, although I > have to say wasn't " Potty Trained " until March this year. It took me > a week of staying home and just doing it. He did it and was even > starting to stay dry at night, but still put a pull up on at night. > But underwear all day and maybe had an accident 1 every 2 weeks. Now > in the past 2 1/2 weeks it is if he is completely not potty trained. > He is pooping in his pants, peeing in his pants all the time, even > right after I ask him if he needs to go!! > It is becoming that he rarely goes on the potty at all. I don't think > it a sensory issue or why would he have done so well for so long, he > can tell me when he has to go, he even can go by himself!!! > I even haven't put a pull up on him even with this backslide, like > they say, but unfortunatly my house is turning into 1 big toilet. I > have had to get my chair and couch cleaned 5 X in the last few weeks > becuase he will just pee right there and when he poops he will take > his underpants right off and Boom poop everywhere. > > > I have to be honest I am trying really hard to be good about it and > not get upset, but I am at the end of my rope with this, If I go back > to pull ups and he poops he still takes them right off and gets it > everywhere. > WHAT DO I DO NOW?????????? > THank you for any advice on this subject!!!!! > Eileen a mom who is at her wits end!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Hi Eileen, Sorry , some more practical tips too ..... When he does it take him stright to the bathroom and clean him up .It won't hurt to sit him on the potty then . Don't get angry or emotional with him and don't bombard him with language . Charlie used to do it when he was watching TV so I would always turn the TV off and not let him watch it for a while - I didn't say " naughty no TV " or anything - I just let him make the association that that meant the TV would go off . Don't check his nappy or change him anywhwere but in the bathroom , preferably the same one all the time to begin with. And on the occasions when he does get it right make the praise fantastic !! Kids ALWAYS do stuff for a payoff so see if you can figure out what it is. ( Sorry about this !!!! but ..) Charlie like the texture of the pooh as it had only firmed up when we changed his diet so I made sure that he had an endless supply of playdough etc to hand . I know that that got on the furniture too but it was WAY the better option !! I also realised that it was either when he was in front of the TV and that the TV was over-stimulating him - especially as he stood so close . So I cut right down on the TV time and made him sit way back from it . The other time was when he was just bored because mummy would come rushing in with bowls of hot water and cleaners and brushes - it was great entertainment !!! I had tried the thing of getting him to help me clear it up but he LOVED that - so I started putting him in his room while I claened and that , along woth no TV made the consequence outweigh the fun . He got worse for a while - ( to try and win !!!) but it then reduced down to strightforward accidents which he had no control over - and taking out milk dealt with those !! Good luck ! Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Sorry I don't remember how old Jack is... My older son didn't train until fairly recently - 3y9m. He knew what it was for, but didn't get himself there because it was too far away. We finally moved a potty into the living room (better than using the chair, no??) and got him on track. When I moved the potty back out of the living room and he had to go upstairs (no 1st floor bath) we had setbacks for a week or 2. It was brutal!! I feel your pain!! Here's what I did - but he's of an age of reason and so this worked... 1. He had to clean up his own mess. (ok, I did it again after, but he had to put his clothes in the laundry, wipe the floor, etc. This was a worse sensory issue for him than stopping what he was doing to go upstairs!!) 2. I borrowed a pullup from a neighbor and told him that if he kept refusing to try to go on the potty, he'd have to wear one. (My prob was that I, like you, would ask him if he had to go and he's say no...then pee on the couch. I finally stopped asking him " if " and just told him to go try. At this point, he was refusing to go try. It was this that was my real problem.) 3. I made sure he understood that getting to do big boy things (having a bb bed, going to school, getting to play in his room by himself, etc.) meant he had to be a big boy. He had to TRY. I told him that everyone makes mistakess - and sometimes it's hard to get to the potty in time. That's why we go there alot when we're learning, or go before going to the store, etc.. Ok, enough advice. If he's under 3.5, I'd say cut yourself some slack. In all my postings and talking to people, it seems that apraxic kids are late in this usually, too. I hated going back to diapers (we did this 2x earlier) because I was potty training him, he wasn't cooperating. You could be getting this reticence because he's not ready. Good luck. I know how crummy this can be - and the self-stripping is AWFUL!! Best, Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Hi Eileen, Did anything happen or change in his life or diet two and a half weeks ago? I know how frustrating it is. Tanner didn't completely potty train day and night for everything until he was almost four years old, which is much older than most of us would want, however Tanner's neurologist told me that due to the hypotonia he may train a bit later and to give him more time. Looking back on it now (two years later) I'm glad I took that advice -and it did appear to be true for Tanner. I'm not sure if that was what it was for Jack since he was trained and the accidents are only within the past two or three weeks. What does Jack's doctor say? When Tanner was not fully trained -or if he had a lapse like you are talking about -I put him back in diapers and didn't make a big deal about it. Our favorite beloved babysitter ita who passed away two years ago at 80 strongly advised us to only use the diapers or the underwear since the pull ups didn't give enough motivation and we did find that worked. Tanner of course didn't want diapers -he wanted pull ups or big boy underwear -so any step back to diapers was short lived so he could go to wearing " big boy " underwear again. For me whenever there was a you know what accident in the underwear I just threw them away. I would take Tanner to go with me to let him pick out new ones if he wanted when he was ready to " try " again. Sometimes when children are going through a growth spurt developmentally it seems that they may temporarily regress in other areas. So perhaps this is just temporary? Or could it be Jack's anxious or upset about something that's coming up? School, etc.? I encourage you to search our archives (we have lots on this) and search online. While you are looking for advice online or in books, remember that advice for typical developing children you may read may not always match with our kids -and not all the advice for special needs kids is relevant to your child. Unfortunately there just isn't enough out there yet for typical apraxic children -much is geared to autism (even though watching some of the kids on the mild side of the autism spectrum is at times like watching apraxic kids since all you can see different is the speech -and that blur is there again) Perhaps too it could be something that you may not know is bothering Jack - for example -most of our children have to deal with being in therapy or school during the summer while other children are playing with sand toys at the beach all day. Have any children or adults talked about this in front of him? I agree with 's advice about humor. When it feels like it's getting to be too much and you will lose your cool -try to think of some of the things I just wrote here, and if you can take Jack to see a funny movie. I recommend Stuart Little 2 right now! A fun interactive site and preview at http://www.stuartlittle.com/ How could you not love J. Fox!! and Lane is hysterical as Snowball the cat. It's one of those movies you'll have to walk away from in a good mood. (The way I talk Kathy you won't know if I work for Sony either! (Actually -if anyone knows Wilkes who is no longer with Sony but used to be one of the top there a few years back who offered to help me with the children's film I stopped doing when Dakota was born -please let me know) Actually maybe it's just me but I also loved Jimmy Neutron Boy Genius -OK -I like animation and kids movie I confess! How did I get here from potty training? Of that's right -to keep from the end of the rope- hope this advice helps a bit! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Sounds all too familiar... I asked my bf who's also a neighbor who knows my kids well, if she thought he was just being lazy and using the diapers as a toilet. When I explained that he could (when he wanted to) tell me he had to go in the store and then WAIT until we got home, she agreed that it was more of a " the potty is too far away from my toys " deal. We (after moving the potty into the living room) also spent mornings with no tv at all until he pooped (that was what he had the hardest time with). All I can say is (and someone else echoed this, too) make it MORE inconvenient for him to make the mistake then for him to go on the potty. Sorry. I was ready to pull my hair out and was on the verge of just losing it when he finally decided to snap out of it. Good luck - and all my best wishes... Marina --- In @y..., " seanzonigal " <seanzonigal@h...> wrote: > Thanks for the great advice, I forgot to tell you how old Jack is he > is 3.2 years. I think what is concerning is that he can go on the > potty, can tell me, etc. He doesn't care about the pull ups, wouldn't > mind if he wore them always, the pull ups however are getting tight > being that he is 46 lbs. > Anyway having an all around bad day. > Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Hi, I know how you are feeling. But I have to tell you my son was a whole lot older when he became potty trained! I knew when to take him, every 1 1/2 to 2 hours, but that didn't mean he was potty trained! My son was about 7 or 8 years old when he started. Although he still has some accidents in his pants. He also has some sensory problems, and I thought that maybe he can not feel it all the time when he has to go to the bathroom. He does better after seeing the chiroprator. So maybe the nerves leading to the bladder are sometimes blocked. I also read somewhere, (could be on an autistic site) that if you give your child some kind of stimulant it sometimes helps. On that site they where actually giving the kids drugs but they said other stuff like a little coke etc. would work too. But if it is a sensory thing you really can not rush it. Just try to keep calm and not get angry. I know how very frustrating it can be, I used to wash so much laundry during that time!! Alison " seanzonigal " <seanzonigal@h...> wrote: > > > I have to be honest I am trying really hard to be good about it and > not get upset, but I am at the end of my rope with this, If I go back > to pull ups and he poops he still takes them right off and gets it > everywhere. > WHAT DO I DO NOW?????????? > THank you for any advice on this subject!!!!! > Eileen a mom who is at her wits end!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 Check out this link on my web site....it is Frequently Asked Questions re: Potty Training that I wrote a few years ago: _http://www.verbalbehaviorapproach.com/faq2.html_ (http://www.verbalbehaviorapproach.com/faq2.html) . In addition, Chapter 11 of my new book gives a more in depth overview of toilet training procedures that I usually recommend. Hope this helps, _______ Lynch Barbera, RN, MSN, BCBA _www.vbapproach.com_ (http://www.vbapproach.com) ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2007 Report Share Posted June 25, 2007 Check out this link on my web site....it is Frequently Asked Questions re: Potty Training that I wrote a few years ago: _http://www.verbalbehaviorapproach.com/faq2.html_ (http://www.verbalbehaviorapproach.com/faq2.html) . In addition, Chapter 11 of my new book gives a more in depth overview of toilet training procedures that I usually recommend. Hope this helps, _______ Lynch Barbera, RN, MSN, BCBA _www.vbapproach.com_ (http://www.vbapproach.com) ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2010 Report Share Posted March 3, 2010 My son is on the autism spectrum with apraxia and didn't get it until he was six, don't give up In a message dated 3/3/2010 10:50:03 A.M. Central Standard Time, katie.m.stahl@... writes: Hello, I know this is not what you want to here, but even my neurotypical son did not potty train until his 4th birthday. We tried everything. But once he decided he was ready...he only had two accidents and everything has been great since. (He has been potty trained for 3 months now.) He is very stubborn and he resisted everything. He is also a perfectionist, so I wonder if he wanted to wait until he KNEW he could do it before he would even try. Our pediatrician told us not to push him because he would just resist even harder. This is the last thing in early childhood that they have total control of, so they don't want to let it go. So, as hard as it was, we just had to wait. I do feel for you though. We had the same issue with my son's pre-school, but luckily he was only there for three hours a day and he never had a bowel movement while he was there so a pull-up worked fine. (I am dreading the whole thing with my 25 month old son diagnosed with Apraxia.) One thing you could try that we tried (with little success) but I still think is a good idea is: We went to the store and picked out a big poster board with stickers and some of his favorite candies. (Be sure to make a big deal about the whole thing! Make it a special trip just about getting ready for potty training.) He and I made a chart (we painted and decorated it with stickers and his name) that had the following columns: Pull down pants, sit on the potty, go potty, pull up pants, and wash hands. We put a sticker in that column whenever he did any of those things. (This way he would be rewarded even for sitting on the potty.) I also taped a starburst or a small Reese's peanut butter cup to the end of the row so if he did all 5 things (even with a little help,) he got to have the treat. Then, we told him the first time he went in the potty that he would be able to go to one of his favorite places: Monkey Joe's! After that, we told him that if he stayed dry for a w hole day, then we would go to any other favorite place he wanted. Like I said. it didn't work perfectly for us, but I do know other people that it worked for. Good Luck and I hope it works! IL ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2010 Report Share Posted March 3, 2010 No advice, but I'm closely following this. My son turns three in a few weeks and I've been trying to potty train him for over a year. We talk about it, go every morning and after naps, wear underwear for a day which results in meltdowns by mid-afternoon. We've tried bribing with chocolate (only time he gets any) for over six months. The only time he showed interest was right after I pulled wheat from his diet, but he got horribly constipated and it got really cold and he regressed after a few days. That was about six weeks ago. He wears cloth, so he is aware of wetness. Does he freak out if you have him try every few hours? Liralen > > My son is three and a half years old and I am having an impossible time potty training him. I am interested in hearing if this is a problem others have also encountered with their children. I am also desperate to learn strategies to move this process along ( is my third child and the two older ones - a girl and a boy - had little trouble and were both potty trained fully by two and a half) > > A little background- > We are an American family, currently living abroad in Switzerland. is the third of four children. I suspected language delays early and started researching anglo-speaking speech therapists shortly after he turned two years old. This past spring and over the summer I had him evaluated both in Switzerland and in the US - his diagnosis is " severe speech production disorder comprised primarily of a phonological disorder and secondarily of dysarthria. Possible childhood apraxia of speech. " > > We started a regimen of fish oils shortly after I read " The Late Talker " (September 2009) - one Efalex a day / two capsules of Nordic Naturals EFA - per day. > > After a tremendous hassle of figuring out how to get the Nutriiveda in hand, we started on one scoop a day last Sunday. > > He has been making steady progress. We observed surges with the fish oils and a big surge with the Nutriivida as well. I have been following everyone else's posts very carefully and will add my comments to the survey once it is circulated. > > attends an English speaking private international school where he is able to receive speech 4x a week. I worked hard to get him into this school, however, from the start he was meant to be potty trained. I tried in vain during August, but he was not yet three and it was going no where so I gave up and struck a deal with his teachers that he would wear a pull up and if he had a bowel movement - I would go in to change it. I have been on call since September and frequently am called to go in to school to clean him up. > > Now that he is three and a half, the teachers are insisting he need to be potty trained or he should stay home. I spent the month of December fully focused on it and once again did not get anywhere. > > I am determined to figure this out as he needs to attend this particular school as it is the only place in our area that is English speaking and where he can receive speech therapy which I think is truly the critical component to his continued language improvement and social awareness/interaction etc.. > > Any advice will be warmly welcomed. Thank you! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2010 Report Share Posted March 3, 2010 Hi Michele, My son is Henry who is 37 months is struggling with being poop trained too. He has been 100% pee trained even at night since I put him in under ware 7 weeks ago. He had trouble with the poop the first week( to be expected but then week two started pooping on the potty then week 3 started pooping in his pants. I have tried everything and the last 3 weeks or so I have been completely ignoring it and just cleaning him up. Since he is in a 2 year old program at school ( all the kids started turning 3 after the new year, him being one of the first ones in Jan.) they do not mind changing him but next Sept. he has to be fully potty trained and I am worried he may not not be there with the poop. Yes it is 6 months away but they say children with motor planning issues has trouble mastering the poop or even the pee for a long time. I wish I had an answer for you but I don't. How is your son with the pee? Good luck! Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2010 Report Share Posted March 3, 2010 Hello, I know this is not what you want to here, but even my neurotypical son did not potty train until his 4th birthday. We tried everything. But once he decided he was ready...he only had two accidents and everything has been great since. (He has been potty trained for 3 months now.) He is very stubborn and he resisted everything. He is also a perfectionist, so I wonder if he wanted to wait until he KNEW he could do it before he would even try. Our pediatrician told us not to push him because he would just resist even harder. This is the last thing in early childhood that they have total control of, so they don't want to let it go. So, as hard as it was, we just had to wait. I do feel for you though. We had the same issue with my son's pre-school, but luckily he was only there for three hours a day and he never had a bowel movement while he was there so a pull-up worked fine. (I am dreading the whole thing with my 25 month old son diagnosed with Apraxia.) One thing you could try that we tried (with little success) but I still think is a good idea is: We went to the store and picked out a big poster board with stickers and some of his favorite candies. (Be sure to make a big deal about the whole thing! Make it a special trip just about getting ready for potty training.) He and I made a chart (we painted and decorated it with stickers and his name) that had the following columns: Pull down pants, sit on the potty, go potty, pull up pants, and wash hands. We put a sticker in that column whenever he did any of those things. (This way he would be rewarded even for sitting on the potty.) I also taped a starburst or a small Reese's peanut butter cup to the end of the row so if he did all 5 things (even with a little help,) he got to have the treat. Then, we told him the first time he went in the potty that he would be able to go to one of his favorite places: Monkey Joe's! After that, we told him that if he stayed dry for a whole day, then we would go to any other favorite place he wanted. Like I said. it didn't work perfectly for us, but I do know other people that it worked for. Good Luck and I hope it works! IL ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2010 Report Share Posted March 3, 2010 The following are archives from here, articles from the web -and a link to our apraxia.org facebook page on this very common topic -hope between all the suggestions something works for you soon! Re: Potty training a non-verbal 3 year old Most in this group potty train by " late three or early four " . Here's an archive on this topic: From: " kiddietalk " <kiddietalk@...> Date: Tue May 17, 2005 10:02 pm Subject: Re: potty training kiddietalk Whomever first posted that they have some new (and improved?) potty training tips that worked, Jan? Please just post it here so all can see. Late to potty train is pretty par for the course in this group ...actually for many kids today in general for some reason. For those that want archived info -here's one From: " kiddietalk " <kiddietalk@...> Date: Wed Oct 22, 2003 11:20 pm Subject: Re: Potty Training - not till 5 y/o???? In this group it's not unusual for our children not to potty train till late three or early four (overall) due to low tone. Not sure which group five is normal in? I just posted recently that even " normal " kids are training late today, but am too fried to find the post (must be under a different subject which is why subject titles are important) So searched quick and found these links on it at google Lots more out there -may want to cut and paste links Quote Link to comment Share on other sites More sharing options...
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