Re:OCD Under Cover

[Guest guest]

This group is made up of the most loving, accepting people EVER! I too, am back,

like Beth after quite a long break. Our daughter, Caitlyn, was diagnosed in Aug.

and we were very lucky to start therapy a month later. So I haven't been around

here too much. We have been doing CBT only w/o meds. The therapist kept telling

us to be careful-OCD is sneaky and it can rear up unexpectedly. We kept bracing

ourselves but the other night it came back big time and I just feel our dd

carries alot of anger with her about it. She was a very happy girl with a go get

'em attitude. She was always the girl who lifted the spirits of everyone around

her and OCD has taken that from her in many ways and I feel she is so angry

about that. AAAHH! So frustrating!!!

 

So Beth,  I also feel your pain and know exactly what you mean about the " face " .

Although with my daughter she gets a certain tone to her voice and I just KNOW

w/o even looking at her. I'm sure all of you have experienced this, too. We are

at the crossroads of meds or not. I am so scared -I don't know what to do. I

know it has helped so many of your children. But I also know certain meds are

not right for certain kids and dosages have to be adjusted, then there are side

effects to watch for...Our therapist has a daughter with OCD and her daughter

begged to be put on meds. Caitlyn, even in the middle of everything the other

night, was crying and saying she did NOT want to be on meds because she is

scared. I am heartbroken for her and all our kids...

 

Anyway...I am sorry to be such a bummer. I feel such positivity from all of you

when I read through your posts. I'm just in a bit of a dark place right now.

However, it's Thanksgiving and I hope you all have a happy one. We are thankful

for this awesome group, continued research into OCD, our brave children who

fight this everyday and their fearless (chuckle!) families who are right their

with them never giving up because we know that one day they will be the boss of

OCD-not the other way around!!!   

[Guest guest]

You are not a bummer. ) We've all been in the dark place, and

chances are, we will again.

I understand your fear about meds. I was the same way. I would hide

from our son and cry every day, the first time he took them. I didn't

want him to see my fears, so kept them from him. I wondered if I was

doing irreparable damage to our son. Yet, if they get so bad that

they cannot function, what kind of life is that? Know what I mean.

So, we forged on, took the meds, and lo and behold, the very thing we

were terrified of, turned out to be a miracle, for us.

I know that isn't the case for everyone. But, you never know until

you try them. I'm not trying to talk you into them, but just saying,

if the OCD gets to out of control, and she is unable to handle it with

the CBT/ERP, it might be worth a try.

I remember reading in one of the many books I read about OCD, that

therapy should be the first line of treatment. But, that for some

kids, medication is needed too. Some will only need them for a period

of time, others might always need them.

I would prefer our son was medication free, but I've come to terms

with it this way. . . If he needed medication for diabetes, or heart

problems, or epilepsy, I wouldn't deny him those medications.

It's a personal choice.

I hope your daughter is able to get her OCD back under control with

the CBT/ERP.

OCD sure can rob them of some of the best things. :o/ Been there.

Hope you have a nice holiday.

BJ

>

> This group is made up of the most loving, accepting people EVER! I

too, am back, like Beth after quite a long break. Our daughter,

Caitlyn, was diagnosed in Aug. and we were very lucky to start therapy

a month later. So I haven't been around here too much. We have been

doing CBT only w/o meds. The therapist kept telling us to be

careful-OCD is sneaky and it can rear up unexpectedly. We kept bracing

ourselves but the other night it came back big time and I just feel

our dd carries alot of anger with her about it. She was a very happy

girl with a go get 'em attitude. She was always the girl who lifted

the spirits of everyone around her and OCD has taken that from her in

many ways and I feel she is so angry about that. AAAHH! So frustrating!!!

>  

> So Beth,  I also feel your pain and know exactly what you mean about

the " face " . Although with my daughter she gets a certain tone to her

voice and I just KNOW w/o even looking at her. I'm sure all of you

have experienced this, too. We are at the crossroads of meds or not. I

am so scared -I don't know what to do. I know it has helped so many of

your children. But I also know certain meds are not right for certain

kids and dosages have to be adjusted, then there are side effects to

watch for...Our therapist has a daughter with OCD and her daughter

begged to be put on meds. Caitlyn, even in the middle of everything

the other night, was crying and saying she did NOT want to be on meds

because she is scared. I am heartbroken for her and all our kids...

>  

> Anyway...I am sorry to be such a bummer. I feel such positivity from

all of you when I read through your posts. I'm just in a bit of a dark

place right now. However, it's Thanksgiving and I hope you all have a

happy one. We are thankful for this awesome group, continued research

into OCD, our brave children who fight this everyday and their

fearless (chuckle!) families who are right their with them never

giving up because we know that one day they will be the boss of

OCD-not the other way around!!!   

>

>