Guest guest Posted July 6, 2000 Report Share Posted July 6, 2000 Dale and Everyone: Welcome back! How was your trip? Glad to hear Katy and Dad did ok while you were gone! Hope the IV went well today! So sorry to hear about your Migraine - I get those terrible headaches too - for days at a time! As far as we are doing, Mike Immunologist (who is out on sick leave) decided to give Mike the summer off from Infusions to give his body a rest from the severe headaches he was getting. He immediately got sick with a sinus infection and needed antibiotics. Still no IVIG though and Mike is exhausted!!!!! Yes we do have a consult in Mt Sinai but the doctor called to canel and change the appointment TWICE! The new one is now at the end of July, So we wait and pray he doesn't get sick again with his sinus infections. He sleeps so much of the day he is exhausted! I just returned home from the hospital with my oldest child, who's seizures have been so bad. We were evaluated for surgery (for the VNS) and had video EEG testing etc. We will be going to do the operation - would like to hold off until the end of the summer if we can wait. This way I will have already seen the new consult for and hopefully have a new approach for his treatments. did ok while we were gone my husband did a wonderful job! I will keep you updated. Thanks so much for asking. Tina ( 14, CVID, Asthma, JRA, Fibromyalgia) Quote Link to comment Share on other sites More sharing options...
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