New member

[Guest guest]

Hi New Member,

I'm a new member. Wish you the best of luck on your journey, and I hope you

succeed!

Morten

>

> > Hi,

> >

> > I'm the new guy. A 47 year old stay-at-home, homeschooling dad of a

> > thirteen year old daughter. 290+ lbs, with high blood pressure and

> > type II

> > diabetes. I've been working out and on a strict no gluten/sugar diet

> > on the

> > advice of my doctor for two months. In that time, I've only lost

> > about 5

> > pounds, but my A1C has dropped from over 10 to around 8, and my bp has

> > dropped from about 155/95 to about 130/85. Earlier this week I

> > discovered

> > the podcast. After listening to the Prologue, and the first couple of

> > episodes, I came here last night and signed up. I'm currently ready to

> > listen to episode 6, but I may go back and listen to 5 again first.

> > I'm

> > pumped up, and ready to go. Oh, I live in the Tampa Bay area of west

> > Florida.

> >

> >

> >

>

>

>

[Guest guest]

Welcome !

I think you will appreciate how emphasizes getting in touch with how your

body feels. That is important with your health issues as well as for weight

control.

You will notice as you spend time with IOWL that you feel better and feel more

in control of your weight and health issues.

Congratulations on deciding to follow IOWL.

Jean

Subject: New Member

To: insideoutweightloss

Date: Thursday, March 12, 2009, 9:36 PM

Hi,

I'm the new guy. A 47 year old stay-at-home, homeschooling dad of a

thirteen year old daughter. 290+ lbs, with high blood pressure and type II

diabetes. I've been working out and on a strict no gluten/sugar diet on the

advice of my doctor for two months. In that time, I've only lost about 5

pounds, but my A1C has dropped from over 10 to around 8, and my bp has

dropped from about 155/95 to about 130/85. Earlier this week I discovered

the podcast. After listening to the Prologue, and the first couple of

episodes, I came here last night and signed up. I'm currently ready to

listen to episode 6, but I may go back and listen to 5 again first. I'm

pumped up, and ready to go. Oh, I live in the Tampa Bay area of west Florida.

[Guest guest]

Jen -

Can you elaborate on " metabolic crisis " , and perhaps offer encouraging words as

to when I may leave this crisis mode, if in fact that is my problem? Every

single time I give 100% to diet AND exercise, with my husband, he drops 30

pounds in less than a month and I GAIN a few. I just cannot commit to continued

abuse with grueling workouts as I watch the scale go up and pants don't get

looser. What is the deal???? When will it end? What more do I need to do! I

do find myself shouting " It's not fair! " The worst of it is, though, is that

this unwanted result, so opposite of the desired result, sends me spiraling into

more depression, and all the awful behaviors that accompany that. Any advice?

-Amber

>

> > Hi,

> >

> > I'm the new guy. A 47 year old stay-at-home, homeschooling dad of a

> > thirteen year old daughter. 290+ lbs, with high blood pressure and

> > type II

> > diabetes. I've been working out and on a strict no gluten/sugar diet

> > on the

> > advice of my doctor for two months. In that time, I've only lost

> > about 5

> > pounds, but my A1C has dropped from over 10 to around 8, and my bp has

> > dropped from about 155/95 to about 130/85. Earlier this week I

> > discovered

> > the podcast. After listening to the Prologue, and the first couple of

> > episodes, I came here last night and signed up. I'm currently ready to

> > listen to episode 6, but I may go back and listen to 5 again first.

> > I'm

> > pumped up, and ready to go. Oh, I live in the Tampa Bay area of west

> > Florida.

> >

> >

> >

>

>

>

[Guest guest]

When you are pre-diabetic or diabetic your metabolism is what is affected. This

is why most have heart issues and other issues that develop as well. To move

back out of metabolic crisis you have to do some very specific things. They

include eating very often (like 5-6 small meals a day), avoiding the heck out of

sugar, and eating a Mediterranean diet. Many docs put you on Metformin to help

you get through this, including my doc, after fighting to lose weight for an

entire year (working out 4 hours a day) and only losing a total of 10 lbs. This

is why she figured out that I was in metabolic crisis. For 3 months after

figuring it out I was basically banned from working out due to messing up my

knee and needing therapy and recovery time.

Now I lose 1 lb a week and keep pushing forward. My husband just dropped 39 lbs

in 8 weeks so I totally understand how frustrating that is. The thing I remember

is that with the way I am losing the weight I will not be going back. He, on the

other hand, has done the crash dieting many times and eventually gains it back

plus a bit more. Now I look at what I am doing as a lifestyle. I don't eat

perfectly, but I also don't eat perfect for a week and go insane the next week

eating just junk. For workouts I keep it interesting. We recently purchased a

recumbent bike/rowing machine so we have 2 machines in one and I can do what I

can on each. I have learned that I actually do love to run so I do that when I

can. It's not far as of yet - just 2 miles, but I will be getting to go further

as my knee becomes stronger and I lose more weight. It really does more to make

me lose weight more than anything else that I know of. Jillian's workout is

excellent when you are in metabolic crisis because it incorporates weights with

cardio. This pulls you our faster than any other type of exercising. I also

recently ordered the ChaLEAN & Turbo Jam workouts too based on someone

mentioning them on here. I absolutely love both of them.

While my weight is not coming down as fast as I would like, I can say that

people can see the changes in my body. Instead of focusing on the weight amount

I actually focus on my body fat percentage and water amount. We have one of

those scales that does all three and I have to say it has really helped to give

me incentives to keep moving forward since even if the weight doesn't change I

see the changes in the body fat and water.

Just keep remembering to take it one day at a time and celebrate every small

accomplishment. As I tell everyone about running, it's not how fast you go it's

that you finish. This is the exact same thing with weight loss and most other

things in life.

Jen

>Jen -

>Can you elaborate on " metabolic crisis " , and perhaps offer encouraging words as

to when I may leave this crisis mode, if in fact that is my problem? Every

single time I give 100% to diet AND exercise, with my husband, he drops 30

pounds in less than a month and I GAIN a few. I just cannot commit to continued

abuse with grueling workouts as I watch the scale go up and pants don't get

looser. What is the deal???? When will it end? What more do I need to do! I

do find myself shouting " It's not fair! " The worst of it is, though, is that

this unwanted result, so opposite of the desired result, sends me spiraling into

more depression, and all the awful behaviors that accompany that. Any advice?

>-Amber

>

>

>>

>> > Hi,

>> >

>> > I'm the new guy. A 47 year old stay-at-home, homeschooling dad of a

>> > thirteen year old daughter. 290+ lbs, with high blood pressure and

>> > type II

>> > diabetes. I've been working out and on a strict no gluten/sugar diet

>> > on the

>> > advice of my doctor for two months. In that time, I've only lost

>> > about 5

>> > pounds, but my A1C has dropped from over 10 to around 8, and my bp has

>> > dropped from about 155/95 to about 130/85. Earlier this week I

>> > discovered

>> > the podcast. After listening to the Prologue, and the first couple of

>> > episodes, I came here last night and signed up. I'm currently ready to

>> > listen to episode 6, but I may go back and listen to 5 again first.

>> > I'm

>> > pumped up, and ready to go. Oh, I live in the Tampa Bay area of west

>> > Florida.

>> >

>> >

>> >

>>

>>

>>

[Guest guest]

Sam,I don't know if you saw my post earlier to you b/c I didn't put your name on the top. Anyway, I wanted to chime in that you definitely need to do the Mehta casting and the doctor we see in Rochester,NY is top notch and there is another doctor there who is also highly recommended. Patty, mom of Isabella, 23 months old, in 1st cast (Rochester)To: infantile_scoliosis Sent: Thursday, July 30, 2009 10:13:00 PMSubject: Re: New member

 

Hello ,

Thank you replying back. My Son's COBB last time it was measured (about 6 months ago)was 29*. The last two recent x-rays were taken with the charlston brace on and it was 10* and still 29* with the Boston Brace.

We are living in the Boston area but we are open to take him to any center that has the most experience dealing with infentile scoliosis.

Last week we had an appointment with Dr. Masso at Shriner's hospital located in Springfield, MA. Dr. Masso said that he has done body casting before but not using Dr. Mehta's method. So, that leads me to believe that they do not have all the right equipment for this. I rather go to a center that has a lot of experience with Inf. Sc. anyway.

Which center did you take your son for treatment?

Thanks- Sam

>

>

> Hi Sam,

>

> Welcome!

>

>

>

> Can I ask your son's COBB measurements? Also, where are you located?

>

>

>

> My son, Noah, started casting a little older too (21 months) and we've had great sucess. Noah also had a curve at only 6 months old.

>

>

>

> Noah started casting at 36* and is now at 9* in a brace.

>

> ~

> Noah 4 years old

> 9 months of casting in SLC; Currently on month 18 of bracing

> And Mariella 6 months old currently waiting and watching at 11*

>

>

>

>

>

>

> To: infantile_scoliosis @yahoogroups. com

> From: sbehta@...

> Date: Thu, 30 Jul 2009 12:10:24 -0700

> Subject: [infantile_scoliosi s] New member

>

>

>

>

>

>

> Hello All,

> We are a new member to Infantile Scoliosis group and very much

> appreciate any help you can provide us to better understand various

> treatment options available to treat scoliosis on my 27 month old son.

>

> First, a little background on where we are with my son's scoliosis.

> His initial diagnosis was confirmed at the age of six months. The

> initial MRI and x-rays showed that the bone structure and spine were

> normal and free from any defect. So weak muscles were flagged as the

> main contributor to his scoliosis. Because of this, the proposed

> initial treatment was to observe combined with physical therapy and

> stretch exercises. This continued for another few months with his

> scoliosis getting worse at each subsequent visit. The next treatment

> proposed was to use a Boston Brace that he wears 20-24 hrs a day. The

> follow-up checkup after that showed that the brace had some success in

> slowing down his scoliosis progression but had minimal effect in

> correcting it. The next suggestion was to augment the Boston Brace

> with a ton Brace during night. We have been using the

> combination of the two braces to date for about six months now.

> Prognosis, No Change. I guess that in itself is a good news but all

> that has been able to accomplish is to slow down the scoliosis.

>

> What is disappointing is that his most recent x-ray is showing that

> few of his vertebrate bones are growing unevenly due to uneven

> pressure caused by his scoliosis. So, now we have taken a step

> backward.

>

> Right from the beginning, me and my wife have been very clear with the

> doctor that we are interested in a very aggressive treatment as early

> as possible because we did not want to lose any time and anything good

> that we might have had on our side. It also seemed logical that

> treating the scoliosis early should be relatively easier with better

> possible outcome. Instead, the approach of the doctor has been very

> conservative and taking action only when things were clearly going the

> wrong direction. Also, the lack of sharing timely and correct

> information on his diagnosis has been frustrating.

>

> Bottom line, I want to avoid the need for a spinal surgery, fusion and

> alike. And I do not want to lose any more precious time and miss an

> opportunity.

>

> So I have come across the CAST group during my Internet research. I

> have already read the treatment paper published by Dr Mehta (Growth as

> a corrective force in the early treatment of progressive infantile

> scoliosis). It looks very promising and may be even that magical

> treatment that we are looking for. However, before we dive into this I

> appreciate it if the CAST members can share their experiences with Dr.

> Mehta's method. Success stories are encouraging, but I am also

> interested in learning about what did not work!

>

> Thank you for sharing your thoughts with us.

> Sam

>

>

>

>

>

>

>

>

> ____________ _________ _________ _________ _________ _________ _

> Windows Live™ Hotmail®: Search, add, and share the web's latest sports videos. Check it out.

> http://www.windowsl ive.com/Online/ Hotmail/Campaign /QuickAdd? ocid=TXT_ TAGLM_WL_ QA_HM_sports_ videos_072009 & cat=sports

>

[Guest guest]

Hi Sam,

Yes, I would definately take him to a center that has experience in this method. I believe the closet hospital to you is in Rochester NY. There are 2 docs there that I hear are wonderful. There are quite a few parents on this group who's children go there. There is also a little video of Rochester casting on www.infantilescoliosis.org site. Just scroll down to the bottom of the main page.

I wouldn't delay at all since your little boy is getting past that wonderful growth time of 0-2 years.

Let me know if I can be of any more help.~Noah 4 years old9 months of casting in SLC; Currently on month 18 of bracingAnd Mariella 6 months old currently waiting and watching at 11*

To: infantile_scoliosis From: sbehta@...Date: Fri, 31 Jul 2009 02:13:00 +0000Subject: Re: New member

Hello ,Thank you replying back. My Son's COBB last time it was measured (about 6 months ago)was 29*. The last two recent x-rays were taken with the charlston brace on and it was 10* and still 29* with the Boston Brace.We are living in the Boston area but we are open to take him to any center that has the most experience dealing with infentile scoliosis.Last week we had an appointment with Dr. Masso at Shriner's hospital located in Springfield, MA. Dr. Masso said that he has done body casting before but not using Dr. Mehta's method. So, that leads me to believe that they do not have all the right equipment for this. I rather go to a center that has a lot of experience with Inf. Sc. anyway.Which center did you take your son for treatment?Thanks- Sam>> > Hi Sam,> > Welcome!> > > > Can I ask your son's COBB measurements? Also, where are you located?> > > > My son, Noah, started casting a little older too (21 months) and we've had great sucess. Noah also had a curve at only 6 months old.> > > > Noah started casting at 36* and is now at 9* in a brace.> > ~> Noah 4 years old> 9 months of casting in SLC; Currently on month 18 of bracing> And Mariella 6 months old currently waiting and watching at 11*> > > > > > > To: infantile_scoliosis > Date: Thu, 30 Jul 2009 12:10:24 -0700> Subject: New member> > > > > > > Hello All,> We are a new member to Infantile Scoliosis group and very much> appreciate any help you can provide us to better understand various> treatment options available to treat scoliosis on my 27 month old son.> > First, a little background on where we are with my son's scoliosis.> His initial diagnosis was confirmed at the age of six months. The> initial MRI and x-rays showed that the bone structure and spine were> normal and free from any defect. So weak muscles were flagged as the> main contributor to his scoliosis. Because of this, the proposed> initial treatment was to observe combined with physical therapy and> stretch exercises. This continued for another few months with his> scoliosis getting worse at each subsequent visit. The next treatment> proposed was to use a Boston Brace that he wears 20-24 hrs a day. The> follow-up checkup after that showed that the brace had some success in> slowing down his scoliosis progression but had minimal effect in> correcting it. The next suggestion was to augment the Boston Brace> with a ton Brace during night. We have been using the> combination of the two braces to date for about six months now.> Prognosis, No Change. I guess that in itself is a good news but all> that has been able to accomplish is to slow down the scoliosis.> > What is disappointing is that his most recent x-ray is showing that> few of his vertebrate bones are growing unevenly due to uneven> pressure caused by his scoliosis. So, now we have taken a step> backward.> > Right from the beginning, me and my wife have been very clear with the> doctor that we are interested in a very aggressive treatment as early> as possible because we did not want to lose any time and anything good> that we might have had on our side. It also seemed logical that> treating the scoliosis early should be relatively easier with better> possible outcome. Instead, the approach of the doctor has been very> conservative and taking action only when things were clearly going the> wrong direction. Also, the lack of sharing timely and correct> information on his diagnosis has been frustrating.> > Bottom line, I want to avoid the need for a spinal surgery, fusion and> alike. And I do not want to lose any more precious time and miss an> opportunity.> > So I have come across the CAST group during my Internet research. I> have already read the treatment paper published by Dr Mehta (Growth as> a corrective force in the early treatment of progressive infantile> scoliosis). It looks very promising and may be even that magical> treatment that we are looking for. However, before we dive into this I> appreciate it if the CAST members can share their experiences with Dr.> Mehta's method. Success stories are encouraging, but I am also> interested in learning about what did not work!> > Thank you for sharing your thoughts with us.> Sam> > > > > > > > > __________________________________________________________> Windows Live™ Hotmail®: Search, add, and share the web's latest sports videos. Check it out.> http://www.windowslive.com/Online/Hotmail/Campaign/QuickAdd?ocid=TXT_TAGLM_WL_QA_HM_sports_videos_072009 & cat=sports>

Windows Live™ Hotmail®: Search, add, and share the web’s latest sports videos. Check it out.

[Guest guest]

Hi Dave,

Iam new to the group also. My daughter is currently 9 months with a 21 degree curve. We are on our last weeks waiting to have her re-xrayed to find out if it is progressive. We went to 3 top hospitals to find they all brace & do surgery regardless. It is known this doesn't work.We flew to Alabama & saw an amazing doc there with1 1/2 week time. We will now travel to Rochester since it is closer. I am not sure the one doc you are seeing is Mehta trained in casting. Please see. We moved very quickly seeing 4 ortho docs between May 20 & June 10. 3 were a waste of time other then learning not to revisit & have our child eventually receive life altering surgery (which is unfortunately what the greater part of ortho/spine surgeons will do. I still feel we lost valuable time but we are headed in the right direction now if Addie needs further treatment.

From: genericallyloud <jennifer.leggett@ gmail.com>Subject: [infantile_scoliosi s] Re: New MemberTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, August 12, 2009, 12:26 PM

Hi. My son is 19 months and has a 23 degree curve (down from a 47 degree curve) and is now in his second curve. We go to Rochester and love it. I know they can get you in within the month usually. At least Dr. R can. His secretary is amazing and can answer so many questions. We were actually able to send our x-rays over 1st to get their opinion. We ended up seeing DR. S there and he is also amazing. He is usually booked a bit further out I think. I know it is probably usually best to get the MRI done 1st but since it was going to take them 2 months to get ours scheduled in Albany we were able to get the cast on first and then take the MRI in cast. I know it was also a possibility with Dr. R to get the cast on and do the MRI the same day so you only have to do the anesthesia once. I would absolutely schedule an appointment with a Mehta trained doctor as soon as possible. The earlier they are treated the less time you will have to spend in a

cast. I have both of the numbers for the Rochester doctors if you want them. Just email me and I can give you whatever information you need - jennifer.leggett@ gmail.com .Good luck, Jenn Mommy to Cole, 19 months, 2nd cast from rochester, 23 degrees curve down from 47>> Hello Everyone,> > To introduce myself to the group, my name is Dave and my wife and I just received news that my 5 month old son has a 40 degree curve in his spine; I am sorry but I don't understand the specifics of that curve yet. My first son had some issues so we noticed early on that had torticolis,

which he has been receiving physicial therapy for. At 3 months, his pediatrician suggested that we see a pediatric orthopedic surgeon to make sure that everything was ok and he sent us for the x-ray. Once getting news that the curve was 40 degrees, the surgeon informed us that the situation was too severe for him to handle so he referred us to a spinal surgeon. We have scheduled two appointments, one with a Dr Vitale (ped ortho surgeon) and a Dr Errico (spinal surgeon) both in NYC. The appointments are approaching but neither my pediatrician nor the radiologist have ever seen this before and of course they do not have any real information. I was> hoping to reach out to the group for any advice and to hear back in case anyone has had a similar situation. It sounds like the casting has worked for some of you and I am not sure (1) whether my doctor will do it (2) whether I should do it immediately rather than waiting to see if the curve

worsens; and (3) what the percentage of early onset patients is whose curve resolves on its own. I would appreciate any help.> > Thanks!> > Dave F>

[Guest guest]

Dave,

Let me share a little bit about my experience....yes, ET casting worked for my son. He is now measuring "zero" degrees in his brace. I found his curve at 7 months of age, measuring 17 degrees. It was appropriate to "wait and see" at that time, since the curve was measuring below 20. There is a 80% chance of the curve resolving if the curve is below 20 degrees. The literature states that if the curve is measuring above 20 degrees there is only a 20% chance that the curve will resolve. Yes, 90% of Idipoathic Infantile Scoliosis does resolve...but that stat comes from a.... left, thorasic, single curve in a male patient. It is all VERY confusing....therefore I can not stress enough the importance of finding a Dr. Mehta trained MD to care for your child.

There are many doctors out there that will "cast" your child, but for the curve to be corrected properly with no rib malformation you need a Dr. that is expereienced in Progrssive Infantile Scoliosis, casting, and has the appropriate casting table. I am not familiar with any of the MD's in your area...but you can go to the Database on the web site to access a list of MD's that are Mehta trained. I went to UCLA Medical Center for a second opinion and I really thought that the MD was familiar with ET and Dr. Min Mehta, but that was clearly NOT the case. So please be very careful in terms of thinking that you are at the "best of the best".

Lastly I would encourage you to get an MRI to determine if the curve is Idiopathic of Congenital, this information will help direct you to what type of treatment is best for your child. Casting can not "cure" a congenital curve, but it can buy some valuable time before surgery. Please feel free to post with any additional questions or concerns. I know your head is spinning right now....we have all been there. Wishing you the very best.

~KristaJack's Mom, Jack is 24 months old, in his 1st braceJack started casting at 41 degrees and is now measuring 0 in his brace!!! Receiving care from Shriners Hospital in Salt Lake City, Utah

Subject: New MemberTo: infantile_scoliosis Date: Wednesday, August 12, 2009, 3:20 PM

Hello Everyone,To introduce myself to the group, my name is Dave and my wife and I just received news that my 5 month old son has a 40 degree curve in his spine; I am sorry but I don't understand the specifics of that curve yet. My first son had some issues so we noticed early on that had torticolis, which he has been receiving physicial therapy for. At 3 months, his pediatrician suggested that we see a pediatric orthopedic surgeon to make sure that everything was ok and he sent us for the x-ray. Once getting news that the curve was 40 degrees, the surgeon informed us that the situation was too severe for him to handle so he referred us to a spinal surgeon. We have scheduled two appointments, one with a Dr Vitale (ped ortho surgeon) and a Dr Errico (spinal surgeon) both in NYC. The appointments are approaching but neither my pediatrician nor the radiologist have ever seen this before and of course they do not have any real

information. I washoping to reach out to the group for any advice and to hear back in case anyone has had a similar situation. It sounds like the casting has worked for some of you and I am not sure (1) whether my doctor will do it (2) whether I should do it immediately rather than waiting to see if the curve worsens; and (3) what the percentage of early onset patients is whose curve resolves on its own. I would appreciate any help.Thanks!Dave F

[Guest guest]

,

I am not familiar with the MD that you are Dave are speaking of...but I have to ask...is this MD Mehta trained? Does this MD have the appropriate casting table? Is he on the Database of MD's that are Mehta trained? I really do not know. I am really only familiar with the West Coast MD's. As I mentioned in my email to Dave, this is a very important subject for me when it comes to parents knowing who is properly trained, because I was "told" that the "top MD" was trained, was familiar with Progressive Infantile Scoliosis...but that was not the case!!! I got 5 different MD opinions before deciding to have Jack cared for at SLC. I just what new/old members to get the very best for all of our kids!!~KristaJack's Mom, Jack is 24 months old, in his 1st braceJack started casting at 41 degrees and is now measuring 0 in his brace!!! Receiving care from Shriners Hospital in Salt Lake

City, Utah

Subject: Re: New MemberTo: infantile_scoliosis Date: Thursday, August 13, 2009, 1:30 AM

Hi Dave,I do know of one doctor you mentioned and have heard only VERY good things about him. I know the parents of some of his patients and have even exchanged a few e-mails with him myself. He seems to be committed specifically to fighting infantile scoliosis (he even wrote something called "Early Onset Scoliosis - the Unsolved Challenge").If you wish to e-mail me, please feel free to do so at mariaf305yahoo (DOT) com. I believe that it is against the Netiquette rules here give opinions about doctors by name, even if the feedback is positive, so that is why I am not doing so (just don't want you to think I'm being mysterious!) .Best of luck to you!>> Hello Everyone,> > To introduce myself to the group, my name is Dave and my wife and I just received news that my 5 month old son has a 40 degree curve in his spine; I am sorry but I don't understand the specifics of that curve yet. My first son had some issues so we noticed early on that had torticolis, which he has been receiving physicial therapy for. At 3 months, his pediatrician suggested that we see a pediatric orthopedic surgeon to make sure that everything was ok and he sent us for the x-ray. Once getting news that the curve was 40 degrees, the surgeon informed us that the situation was too severe for him to handle so he referred us to a spinal surgeon. We have scheduled two appointments, one with a Dr Vitale (ped ortho surgeon) and a

Dr Errico (spinal surgeon) both in NYC. The appointments are approaching but neither my pediatrician nor the radiologist have ever seen this before and of course they do not have any real information. I was> hoping to reach out to the group for any advice and to hear back in case anyone has had a similar situation. It sounds like the casting has worked for some of you and I am not sure (1) whether my doctor will do it (2) whether I should do it immediately rather than waiting to see if the curve worsens; and (3) what the percentage of early onset patients is whose curve resolves on its own. I would appreciate any help.> > Thanks!> > Dave F>

[Guest guest]

Hi Krista,

I don't mind you asking - and I'll share what I know (without mentioning names).

My contact with this doctor was regarding adding his name to the VBS (vertebral

body stapling) list, as I co-moderate the VBS website and had heard from a few

of his patients that he had begun performing VBS. In those discussions, it

became clear that he had a particular interest in infantile and juvenile cases

and a passion for finding better ways to treat those patients.

Casting did come up at one point - and if I recall correctly, I was told that he

was Mehta trained, and was in the process of acquiring the proper AMIL

table/frame. This was maybe a year ago.

Of course, any parent should check that he, or any doctor for that matter, meets

both the above criteria.

I was just trying to share that the impression I got from talking to him, and

also to parents of his patients, that he was truly one of those guys who " thinks

outside the box " and is very highly regarded in his field, particularly with

regard to early-onset cases of scoliosis.

Around the same time that I had contact with this doctor, I learned that one of

the docs at Shriners in Philadelphia (where my son has been going for over five

years) also does casting. I was told and am 100% sure that he is Metha trained

AND that they have the appropriate table/frame there. This had been confirmed

to me around a year ago as well - and I throw this out there since folks in

NY/NJ are also a short drive from Philly, and I would highly recommend the team

there based on my personal experience over the past 5+ years.

(BTW, at the time I found out about the doctor in Philly doing casting, his name

was not yet on the database - I just happened to learn this from another parent

whose child was being casted by him - so I contacted his PA to confirm that he

was both Mehta trained and had the proper AMIL frame. He meets both criteria

and is now on the list.)

Anyway, Krista - I totally agree with you and can understand your wanting all of

the members, old and new, to find the very best treatment for their kids!!

> >

> > Hello Everyone,

> >

> > To introduce myself to the group, my name is Dave and my wife and I just

received news that my 5 month old son has a 40 degree curve in his spine; I am

sorry but I don't understand the specifics of that curve yet. My first son had

some issues so we noticed early on that had torticolis, which he has

been receiving physicial therapy for. At 3 months, his pediatrician suggested

that we see a pediatric orthopedic surgeon to make sure that everything was ok

and he sent us for the x-ray. Once getting news that the curve was 40 degrees,

the surgeon informed us that the situation was too severe for him to handle so

he referred us to a spinal surgeon. We have scheduled two appointments, one with

a Dr Vitale (ped ortho surgeon) and a Dr Errico (spinal surgeon) both in

NYC. The appointments are approaching but neither my pediatrician nor the

radiologist have ever seen this before and of course they do not have any real

information. I was

> > hoping to reach out to the group for any advice and to hear back in case

anyone has had a similar situation. It sounds like the casting has worked for

some of you and I am not sure (1) whether my doctor will do it (2) whether I

should do it immediately rather than waiting to see if the curve worsens; and

(3) what the percentage of early onset patients is whose curve resolves on its

own. I would appreciate any help.

> >

> > Thanks!

> >

> > Dave F

> >

>

[Guest guest]

I just wanted to add one thing.

There is a doctor at Shriners in Philly who also works out of the Erie Shriners

Hospital. He is properly trained in casting - in fact, I think some folks here

may see him in Erie for that purpose, I'm not sure, but I know others folks who

do.

But for those in NY/NJ, it would be more convenient to see him in Philadelphia.

Hope this helps.

> > >

> > > Hello Everyone,

> > >

> > > To introduce myself to the group, my name is Dave and my wife and I just

received news that my 5 month old son has a 40 degree curve in his spine; I am

sorry but I don't understand the specifics of that curve yet. My first son had

some issues so we noticed early on that had torticolis, which he has

been receiving physicial therapy for. At 3 months, his pediatrician suggested

that we see a pediatric orthopedic surgeon to make sure that everything was ok

and he sent us for the x-ray. Once getting news that the curve was 40 degrees,

the surgeon informed us that the situation was too severe for him to handle so

he referred us to a spinal surgeon. We have scheduled two appointments, one with

a Dr Vitale (ped ortho surgeon) and a Dr Errico (spinal surgeon) both in

NYC. The appointments are approaching but neither my pediatrician nor the

radiologist have ever seen this before and of course they do not have any real

information. I was

> > > hoping to reach out to the group for any advice and to hear back in case

anyone has had a similar situation. It sounds like the casting has worked for

some of you and I am not sure (1) whether my doctor will do it (2) whether I

should do it immediately rather than waiting to see if the curve worsens; and

(3) what the percentage of early onset patients is whose curve resolves on its

own. I would appreciate any help.

> > >

> > > Thanks!

> > >

> > > Dave F

> > >

> >

>

[Guest guest]

I have been to see the doctor in question in NYC in May 2009. He told me he is Mehta trained and has the correct table for mehta casting. he was trained by Dr. S out of University of Rochester. IMHO, He is a WONDERFUL dr. with extensive knowledge in infantile scoliosis.

A good resource for those of us in NJ/NYC area!

Subject: Re: New MemberTo: infantile_scoliosis Date: Thursday, August 13, 2009, 2:13 PM

I just wanted to add one thing. There is a doctor at Shriners in Philly who also works out of the Erie Shriners Hospital. He is properly trained in casting - in fact, I think some folks here may see him in Erie for that purpose, I'm not sure, but I know others folks who do. But for those in NY/NJ, it would be more convenient to see him in Philadelphia.Hope this helps.>

> >> > > Hello Everyone,> > > > > > To introduce myself to the group, my name is Dave and my wife and I just received news that my 5 month old son has a 40 degree curve in his spine; I am sorry but I don't understand the specifics of that curve yet. My first son had some issues so we noticed early on that had torticolis, which he has been receiving physicial therapy for. At 3 months, his pediatrician suggested that we see a pediatric orthopedic surgeon to make sure that everything was ok and he sent us for the x-ray. Once getting news that the curve was 40 degrees, the surgeon informed us that the situation was too severe for him to handle so he referred us to a spinal surgeon. We have scheduled two appointments, one with a Dr Vitale (ped ortho surgeon) and a Dr Errico (spinal surgeon) both in NYC. The appointments are approaching but neither my pediatrician nor the radiologist have ever seen

this before and of course they do not have any real information. I was> > > hoping to reach out to the group for any advice and to hear back in case anyone has had a similar situation. It sounds like the casting has worked for some of you and I am not sure (1) whether my doctor will do it (2) whether I should do it immediately rather than waiting to see if the curve worsens; and (3) what the percentage of early onset patients is whose curve resolves on its own. I would appreciate any help.> > > > > > Thanks!> > > > > > Dave F> > >> >>

[Guest guest]

and -

Great! As you mentioned a great resource for you NYC...East Coast Folks! How about if we run it by and hopefully we can add his name to the "Database". I really feel comfortable knowing that if I encourage/recommend someone use the "Database" that this MD has been checked out and has been trained, has the table and is using the method correctly. Hopefully we can add this MD as a resource soon. Thank you.~KristaJack's Mom, Jack is 24 months old, in his 1st braceJack started casting at 41 degrees and is now measuring 0 in his brace!!! Receiving care from Shriners Hospital in Salt Lake City, Utah

From: <mariaf305yahoo (DOT) com>Subject: [infantile_scoliosi s] Re: New MemberTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 2:13 PM

I just wanted to add one thing. There is a doctor at Shriners in Philly who also works out of the Erie Shriners Hospital. He is properly trained in casting - in fact, I think some folks here may see him in Erie for that purpose, I'm not sure, but I know others folks who do. But for those in NY/NJ, it would be more convenient to see him in Philadelphia.Hope this helps.> > >> > > Hello Everyone,> > > > > > To introduce myself to the group, my name is Dave and my wife and I just

received news that my 5 month old son has a 40 degree curve in his spine; I am sorry but I don't understand the specifics of that curve yet. My first son had some issues so we noticed early on that had torticolis, which he has been receiving physicial therapy for. At 3 months, his pediatrician suggested that we see a pediatric orthopedic surgeon to make sure that everything was ok and he sent us for the x-ray. Once getting news that the curve was 40 degrees, the surgeon informed us that the situation was too severe for him to handle so he referred us to a spinal surgeon. We have scheduled two appointments, one with a Dr Vitale (ped ortho surgeon) and a Dr Errico (spinal surgeon) both in NYC. The appointments are approaching but neither my pediatrician nor the radiologist have ever seen this before and of course they do not have any real information. I was> > > hoping to reach out to the group for any advice and to hear back

in case anyone has had a similar situation. It sounds like the casting has worked for some of you and I am not sure (1) whether my doctor will do it (2) whether I should do it immediately rather than waiting to see if the curve worsens; and (3) what the percentage of early onset patients is whose curve resolves on its own. I would appreciate any help.> > > > > > Thanks!> > > > > > Dave F> > >> >>

[Guest guest]

Thank you everyone for all of your comments and feedback. All of the

information really allowed my wife and I to get a strong grasp of the situation

and gave us everything that we needed to know before we went in to meet our

doctor. We met with him this afternoon and learned that my son actually has a

45 degree curve, rather than the 40 degree curve that we had originally

expected. However, the doctor also told us that the RVAD is 9, which according

to several of you indicates that there is a good chance that the scoliosis may

naturally reverse itself. Given his low RVAD, the doctor agrees that there

might be a good chance that it will reverse itself, so he would like to wait to

get the second x-ray. In the meantime, the doctor has advised us to get an

ultrasound of the kidneys and heart as well as an MRI in order to rule out any

anomolies. I have pushed to get the second x-ray in only 6 weeks time since I

am concerned about any progression and he said that we can address a potential

casting if the curve either stays the same or worsens. Hopefully we will see an

improvement. Thanks again for all of your help and please feel free to forward

any more information that you feel may be helpful as we wait. Also, I would be

happy to add this doctor to the database, as he has been trained in casting and

does have the casting table.

Best,

Dave

> > > >

> > > > Hello Everyone,

> > > >

> > > > To introduce myself to the group, my name is Dave and my wife and I just

received news that my 5 month old son has a 40 degree curve in his spine; I am

sorry but I don't understand the specifics of that curve yet. My first son had

some issues so we noticed early on that had torticolis, which he has

been receiving physicial therapy for. At 3 months, his pediatrician suggested

that we see a pediatric orthopedic surgeon to make sure that everything was ok

and he sent us for the x-ray. Once getting news that the curve was 40 degrees,

the surgeon informed us that the situation was too severe for him to handle so

he referred us to a spinal surgeon. We have scheduled two appointments, one with

a Dr Vitale (ped ortho surgeon) and a Dr Errico (spinal surgeon) both in

NYC. The appointments are approaching but neither my pediatrician nor the

radiologist have ever seen this before and of course they do not have any real

information. I was

> > > > hoping to reach out to the group for any advice and to hear back in case

anyone has had a similar situation. It sounds like the casting has worked for

some of you and I am not sure (1) whether my doctor will do it (2) whether I

should do it immediately rather than waiting to see if the curve worsens; and

(3) what the percentage of early onset patients is whose curve resolves on its

own. I would appreciate any help.

> > > >

> > > > Thanks!

> > > >

> > > > Dave F

> > > >

> > >

> >

[Guest guest]

Dave,

That is wonderful! I hope it is self-resolving, the best possible situation. It's great that you are so on top of this. Wishing you all of the best.

Warmest,Heidi, Bexon's Mama, (2 years old, in 3rd cast from Salt Lake City Shriners, currently down from 61 degrees to 25)

Subject: Re: New MemberTo: infantile_scoliosis Date: Thursday, August 13, 2009, 5:06 PM

Thank you everyone for all of your comments and feedback. All of the information really allowed my wife and I to get a strong grasp of the situation and gave us everything that we needed to know before we went in to meet our doctor. We met with him this afternoon and learned that my son actually has a 45 degree curve, rather than the 40 degree curve that we had originally expected. However, the doctor also told us that the RVAD is 9, which according to several of you indicates that there is a good chance that the scoliosis may naturally reverse itself. Given his low RVAD, the doctor agrees that there might be a good chance that it will reverse itself, so he would like to wait to get the second x-ray. In the meantime, the doctor has advised us to get an ultrasound of the kidneys and heart as well as an MRI in order to rule out any anomolies. I have pushed to get the second x-ray in only 6 weeks time since I am concerned about any progression and he

said that we can address a potential casting if the curve either stays the same or worsens. Hopefully we will see an improvement. Thanks again for all of your help and please feel free to forward any more information that you feel may be helpful as we wait. Also, I would be happy to add this doctor to the database, as he has been trained in casting and does have the casting table.Best,Dave > > > >> > > > Hello Everyone,> > > > > > > > To introduce myself to the group, my name is Dave and my wife and I just received news that my 5 month old son has a 40 degree curve in his spine; I am sorry but I don't understand the specifics of that curve yet. My first son had some issues so we noticed early

on that had torticolis, which he has been receiving physicial therapy for. At 3 months, his pediatrician suggested that we see a pediatric orthopedic surgeon to make sure that everything was ok and he sent us for the x-ray. Once getting news that the curve was 40 degrees, the surgeon informed us that the situation was too severe for him to handle so he referred us to a spinal surgeon. We have scheduled two appointments, one with a Dr Vitale (ped ortho surgeon) and a Dr Errico (spinal surgeon) both in NYC. The appointments are approaching but neither my pediatrician nor the radiologist have ever seen this before and of course they do not have any real information. I was> > > > hoping to reach out to the group for any advice and to hear back in case anyone has had a similar situation. It sounds like the casting has worked for some of you and I am not sure (1) whether my doctor will do it (2) whether I should do it

immediately rather than waiting to see if the curve worsens; and (3) what the percentage of early onset patients is whose curve resolves on its own. I would appreciate any help.> > > > > > > > Thanks!> > > > > > > > Dave F> > > >> > >> >

[Guest guest]

Dave,

Im so happy your appointment went well. I really hope it resolves on its own. Please keep us posted!

From: difleishman <difleishman@ yahoo.com>Subject: [infantile_scoliosi s] Re: New MemberTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 5:06 PM

Thank you everyone for all of your comments and feedback. All of the information really allowed my wife and I to get a strong grasp of the situation and gave us everything that we needed to know before we went in to meet our doctor. We met with him this afternoon and learned that my son actually has a 45 degree curve, rather than the 40 degree curve that we had originally expected. However, the doctor also told us that the RVAD is 9, which according to several of you indicates that there is a good chance that the scoliosis may naturally reverse itself. Given his low RVAD, the doctor agrees that there might be a good chance that it will reverse itself, so he would like to wait to get the second x-ray. In the meantime, the doctor has advised us to get an ultrasound of the kidneys and heart as well as an MRI in order to rule out any anomolies. I have pushed to get the second x-ray in only 6 weeks time since I am concerned about any progression and he

said that we can address a potential casting if the curve either stays the same or worsens. Hopefully we will see an improvement. Thanks again for all of your help and please feel free to forward any more information that you feel may be helpful as we wait. Also, I would be happy to add this doctor to the database, as he has been trained in casting and does have the casting table.Best,Dave > > > >> > > > Hello Everyone,> > > > > > > > To introduce myself to the group, my name is Dave and my wife and I just received news that my 5 month old son has a 40 degree curve in his spine; I am sorry but I don't understand the specifics of that curve yet. My first son had some issues so we noticed early on that had torticolis, which he has been receiving physicial therapy for. At 3 months, his pediatrician suggested that we

see a pediatric orthopedic surgeon to make sure that everything was ok and he sent us for the x-ray. Once getting news that the curve was 40 degrees, the surgeon informed us that the situation was too severe for him to handle so he referred us to a spinal surgeon. We have scheduled two appointments, one with a Dr Vitale (ped ortho surgeon) and a Dr Errico (spinal surgeon) both in NYC. The appointments are approaching but neither my pediatrician nor the radiologist have ever seen this before and of course they do not have any real information. I was> > > > hoping to reach out to the group for any advice and to hear back in case anyone has had a similar situation. It sounds like the casting has worked for some of you and I am not sure (1) whether my doctor will do it (2) whether I should do it immediately rather than waiting to see if the curve worsens; and (3) what the percentage of early onset patients is whose curve resolves on

its own. I would appreciate any help.> > > > > > > > Thanks!> > > > > > > > Dave F> > > >> > >> >

[Guest guest]

Dave,Thanks for the update and keep us posted!  Hopefully, some of what was posted today did not turn you off from this group.  I don't know what was wrong with everyone but I hope things settle down and you continue to get the support that you need!  Good luck! Patty, mom of Isabella, 23 months old, in 1st cast (Rochester)To:

infantile_scoliosis Sent: Thursday, August 13, 2009 8:06:07 PMSubject: Re: New Member

 

Thank you everyone for all of your comments and feedback. All of the information really allowed my wife and I to get a strong grasp of the situation and gave us everything that we needed to know before we went in to meet our doctor. We met with him this afternoon and learned that my son actually has a 45 degree curve, rather than the 40 degree curve that we had originally expected. However, the doctor also told us that the RVAD is 9, which according to several of you indicates that there is a good chance that the scoliosis may naturally reverse itself. Given his low RVAD, the doctor agrees that there might be a good chance that it will reverse itself, so he would like to wait to get the second x-ray. In the meantime, the doctor has advised us to get an ultrasound of the kidneys and heart as well as an MRI in order to rule out any anomolies. I have pushed to get the second x-ray in only 6 weeks time since I am concerned about

any progression and he said that we can address a potential casting if the curve either stays the same or worsens. Hopefully we will see an improvement. Thanks again for all of your help and please feel free to forward any more information that you feel may be helpful as we wait. Also, I would be happy to add this doctor to the database, as he has been trained in casting and does have the casting table.

Best,

Dave

> > > >

> > > > Hello Everyone,

> > > >

> > > > To introduce myself to the group, my name is Dave and my wife and I just received news that my 5 month old son has a 40 degree curve in his spine; I am sorry but I don't understand the specifics of that curve yet. My first son had some issues so we noticed early on that had torticolis, which he has been receiving physicial therapy for. At 3 months, his pediatrician suggested that we see a pediatric orthopedic surgeon to make sure that everything was ok and he sent us for the x-ray. Once getting news that the curve was 40 degrees, the surgeon informed us that the situation was too severe for him to handle so he referred us to a spinal surgeon. We have scheduled two appointments, one with a Dr Vitale (ped ortho surgeon) and a Dr Errico (spinal surgeon) both in NYC. The appointments are approaching but neither my pediatrician nor the radiologist have ever seen this before and of course they do not have any real information. I was

> > > > hoping to reach out to the group for any advice and to hear back in case anyone has had a similar situation. It sounds like the casting has worked for some of you and I am not sure (1) whether my doctor will do it (2) whether I should do it immediately rather than waiting to see if the curve worsens; and (3) what the percentage of early onset patients is whose curve resolves on its own. I would appreciate any help.

> > > >

> > > > Thanks!

> > > >

> > > > Dave F

> > > >

> > >

> >

[Guest guest]

,

Thanks for posting that! I had been wondering if that doc was trained yet and was so hopeful.... How is Luke? - Noelle's mommy, 2 1/2 years old and in 7th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: <mariaf305yahoo (DOT) com>Subject: [infantile_scoliosi s] Re: New MemberTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 2:13 PM

I just wanted to add one thing. There is a doctor at Shriners in Philly who also works out of the Erie Shriners Hospital. He is properly trained in casting - in fact, I think some folks here may see him in Erie for that purpose, I'm not sure, but I know others folks who do. But for those in NY/NJ, it would be more convenient to see him in Philadelphia.Hope this helps.> > >> > > Hello Everyone,> > > > > > To introduce myself to the group, my name is Dave and my wife and I just

received news that my 5 month old son has a 40 degree curve in his spine; I am sorry but I don't understand the specifics of that curve yet. My first son had some issues so we noticed early on that had torticolis, which he has been receiving physicial therapy for. At 3 months, his pediatrician suggested that we see a pediatric orthopedic surgeon to make sure that everything was ok and he sent us for the x-ray. Once getting news that the curve was 40 degrees, the surgeon informed us that the situation was too severe for him to handle so he referred us to a spinal surgeon. We have scheduled two appointments, one with a Dr Vitale (ped ortho surgeon) and a Dr Errico (spinal surgeon) both in NYC. The appointments are approaching but neither my pediatrician nor the radiologist have ever seen this before and of course they do not have any real information. I was> > > hoping to reach out to the group for any advice and to hear back

in case anyone has had a similar situation. It sounds like the casting has worked for some of you and I am not sure (1) whether my doctor will do it (2) whether I should do it immediately rather than waiting to see if the curve worsens; and (3) what the percentage of early onset patients is whose curve resolves on its own. I would appreciate any help.> > > > > > Thanks!> > > > > > Dave F> > >> >>

[Guest guest]

I would really be interested in knowing the doc you saw! We've been to AL & are headed to Rochester in 10 days to see dr S. This is still a 6 hour drive straight through, so with 2 little ones...kimberlyb326@...

From: <mariaf305yahoo (DOT) com>Subject: [infantile_scoliosi s] Re: New MemberTo: infantile_scoliosis @yahoogroups. comDate: Thursday, August 13, 2009, 2:13 PM

I just wanted to add one thing. There is a doctor at Shriners in Philly who also works out of the Erie Shriners Hospital. He is properly trained in casting - in fact, I think some folks here may see him in Erie for that purpose, I'm not sure, but I know others folks who do. But for those in NY/NJ, it would be more convenient to see him in Philadelphia.Hope this helps.> > >> > > Hello Everyone,> > > > > > To introduce myself to the group, my name is Dave and my wife and I just

received news that my 5 month old son has a 40 degree curve in his spine; I am sorry but I don't understand the specifics of that curve yet. My first son had some issues so we noticed early on that had torticolis, which he has been receiving physicial therapy for. At 3 months, his pediatrician suggested that we see a pediatric orthopedic surgeon to make sure that everything was ok and he sent us for the x-ray. Once getting news that the curve was 40 degrees, the surgeon informed us that the situation was too severe for him to handle so he referred us to a spinal surgeon. We have scheduled two appointments, one with a Dr Vitale (ped ortho surgeon) and a Dr Errico (spinal surgeon) both in NYC. The appointments are approaching but neither my pediatrician nor the radiologist have ever seen this before and of course they do not have any real information. I was> > > hoping to reach out to the group for any advice and to hear back

in case anyone has had a similar situation. It sounds like the casting has worked for some of you and I am not sure (1) whether my doctor will do it (2) whether I should do it immediately rather than waiting to see if the curve worsens; and (3) what the percentage of early onset patients is whose curve resolves on its own. I would appreciate any help.> > > > > > Thanks!> > > > > > Dave F> > >> >>

[Guest guest]

Hi Dave,

That's great news! The doc that I currently use is the one that has trained yours and I assure you that he is excellent. Your son is starting at at about the same degree of curvature that my daughter did, so I'm anxious to see how he responds to treatment if he needs it. Praying it resolves for you and feel free to e-mail me. It's nice to have company in the Tri-State area! - Noelle's mommy, 2 1/2 years old and in 7th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: Re: New MemberTo: infantile_scoliosis Date: Friday, August 14, 2009, 12:06 AM

Thank you everyone for all of your comments and feedback. All of the information really allowed my wife and I to get a strong grasp of the situation and gave us everything that we needed to know before we went in to meet our doctor. We met with him this afternoon and learned that my son actually has a 45 degree curve, rather than the 40 degree curve that we had originally expected. However, the doctor also told us that the RVAD is 9, which according to several of you indicates that there is a good chance that the scoliosis may naturally reverse itself. Given his low RVAD, the doctor agrees that there might be a good chance that it will reverse itself, so he would like to wait to get the second x-ray. In the meantime, the doctor has advised us to get an ultrasound of the kidneys and heart as well as an MRI in order to rule out any anomolies. I have pushed to get the second x-ray in only 6 weeks time since I am concerned about any progression and he

said that we can address a potential casting if the curve either stays the same or worsens. Hopefully we will see an improvement. Thanks again for all of your help and please feel free to forward any more information that you feel may be helpful as we wait. Also, I would be happy to add this doctor to the database, as he has been trained in casting and does have the casting table.Best,Dave > > > >> > > > Hello Everyone,> > > > > > > > To introduce myself to the group, my name is Dave and my wife and I just received news that my 5 month old son has a 40 degree curve in his spine; I am sorry but I don't understand the specifics of that curve yet. My first son had some issues so we noticed early

on that had torticolis, which he has been receiving physicial therapy for. At 3 months, his pediatrician suggested that we see a pediatric orthopedic surgeon to make sure that everything was ok and he sent us for the x-ray. Once getting news that the curve was 40 degrees, the surgeon informed us that the situation was too severe for him to handle so he referred us to a spinal surgeon. We have scheduled two appointments, one with a Dr Vitale (ped ortho surgeon) and a Dr Errico (spinal surgeon) both in NYC. The appointments are approaching but neither my pediatrician nor the radiologist have ever seen this before and of course they do not have any real information. I was> > > > hoping to reach out to the group for any advice and to hear back in case anyone has had a similar situation.. It sounds like the casting has worked for some of you and I am not sure (1) whether my doctor will do it (2) whether I should do it

immediately rather than waiting to see if the curve worsens; and (3) what the percentage of early onset patients is whose curve resolves on its own. I would appreciate any help.> > > > > > > > Thanks!> > > > > > > > Dave F> > > >> > >> >

[Guest guest]

Hi, BridgetMy husband and I are originally from the Twin Cities, but now

live in NH. It's nice to keep up with the real-food movement going on in MN

through this list.

If your family struggles with food sensitivities, you just need some more

time eating probiotic lacto-fermented foods - only those foods which are

fermented - sauerkraut, kefir, traditional sourdough bread, etc., and it

might even be a good idea to consider taking probiotics for a few months, to

give your system some assistance. The only probiotics or digestive enzymes

I use are by Dr. Houston of Houston Pharmaceuticals. He's just a really

decent, honorable person who has a tremendous depth-of-knowledge when it

comes to these issues. He even does phone consults for no charge, if you

have questions on which product to use. I'm not affiliated in any way, btw.

I have followed his work with Autistic children over the last 10 years,

and been really impressed. When I did a phone consult with him, when we

discovered our son had Autism, what impressed me the most was how much

respect he had for Fallon, NT/WAPF, and suggested we stay with her diet -

100% of it - for 6 months, and then talk to him again about " tweaking " with

some of his products.

https://www.houston-enzymes.com/store/product.php?c=12 & p=44

The " fishy " milk may be due to a " nonsense mutation " in the FM03 gene.

Yeah, I know..doesn't mean that much to me either. But it is a common

problem in some cows. The entire article is here:

http://genome.cshlp.org/content/12/12/1885.full.pdf

<http://genome.cshlp.org/content/12/12/1885.full.pdf> " Fishy " isn't even the

norm for fish, and it shouldn't be for milk. Try a different raw milk

farmer. Personally? I recommend goat milk. And the kefir made from goat

milk is amazing. The only downside to goat milk is you won't get folates

like you will with cow milk. And goat milk is also lower in Vitamin D, iron

and Vit B12. But, it is easier to digest for many people, so if you have

intolerances, goat milk kefir would be a great solution. It would be much

more preferable than any processed off-the-shelf store product.

HTH!

Sharon, NH

>

>

> Hi all.

> My name is Bridget and I live is So. Mpls.

> My life turned around when I read Nourishing Traditions, stopped eating

> gluten and got rid of the majority of processed foods. I do better off of

> dairy but am still trying to find the right replacement, e.g. goat based,

> raw, only fermented products or the newer So Delicious products.

>

> Our family struggles with food sensitivities and I've been trying to become

> as educated as I can in order to be a good leader for them. Some changes to

> a traditional diet have been easier to bring into daily life than others

> (especially with teenagers).

>

> I feel better about our choices when they support local producers and when

> we utilize as much of the food as possible (i.e. peeled carrots to make a

> carrot souffle or something and saving the skins for stock.) I am still

> learning how to prepare the various parts of the animal other than the

> " normal " cuts. I'll be reading for tips/advice on that.

>

> We tried purchasing raw milk for the first time five or six years ago and

> we were all surprised at how 'fishy' the milk smelled/tasted. We did it for

> three months and too much was being wasted b/c the kids weren't adjusting.

> Is this the norm?

>

> I look forward to meeting you all.

>

>

[Guest guest]

Come on down to the Traditional Foods of Minnesota (TFMN) warehouse and we will

point you to the things you are seeking. Google us to see web site/directions.

 

Warren Burgess

TFMN Business Manager

Subject: New Member

To: trad-foods-MN

Date: Wednesday, September 30, 2009, 9:13 PM

 

Hello all,

My wife () and I (Jeff) are new to the group, but not strangers to

Weston Price or Nourishing Traditions. We have one child Judah (2) and

another child due any day.

We really got into healthier eating about 5 years ago after we spent 3 weeks

in Ukraine for a mission trip. Day in and day out we ate garden fresh

tomatoes, cucumbers and other foods. Once we came back to the states, it

was challenging to find the types of foods which actually had the flavor

that they should have had.

Eventually realized that she had an allergy or food sensitivity to

soy, so we have been doing what we can to avoid soy and other things. Most

of you know then that we need to make most things from scratch, because soy

is in many many things.

We used to live in Mankato where I attended school and we were fairly

satisfied with the products which were available to us. Real milk from a

local farmer and eggs from a decent source, but we have been having a little

more difficulty locating a reliable source for eggs and real milk in the

Albert Lea area (so if anyone has any info we would love to find out).

As we continue educating ourselves, we realize more and more the importance

of wholesome foods, no matter what the cost. But we must still do what we

can to live within our means since I am a student pastor and is a stay

at home mother who works one day a week.

Both of us grew up on farms and have a good concept of the work it takes to

produce a quality product. My farm was a little more of the crop rotation

and pasturing cattle persuasion than was 's, but we have learned a lot

over the past few years and are eager to learn more.

Thanks for your help,

Jeff and Merseth

[Guest guest]

Welcome. I hope that you are not doing the same muscles with the dumbbells one

day and then with the Bullworker on the next. You need time to recover, esp at

71 yrs of age.

>

> Hi Group. My name is and I reside in , British Columbia, Canada.

I am almost 71 years old. and I am using an old Brown Handle Bullworker that I

bought many,many years ago.

> I am trying to regain some muscle that I lost due to a long illness caused by

an infected ulcer. At this time I am using a dumbbell weight program on day 1 ,

Bullworker on day 2, off day 3, repeat cycle day 4.

>

[Guest guest]

No, I work a different set of muscles so that in the span of a week I get a full body workout. I have been doing free weights for close to twenty years. At age 65 I was bench pressing 210 lbs. and 320 lb squats, using a Machine.

[Guest guest]

Hi,

More than 10 years ago I used to use the Bullworker regularly for workouts but somehow got out of the habit. I'm now starting to use the Bully again but can't remember much about my original training program. I have what I believe is the most current wall chart, and also a pdf of an old manual (red and blue cover) from back in the 70's or 80's. The exercises, warm ups and recommendation in these two documents don't seem to match so initially wasn't sure which regime to follow. I have now decided that as the wall chart is the most recent publication that's the way I'll go for the time being. I would be interested to hear which of the guides other people are using and why that is their preference.

Regards

Chris