Guest guest Posted April 8, 2007 Report Share Posted April 8, 2007 Apologies for x-post News story and info (below) on the Interactive Autism Network/IAN Project http://www.ianproject.org/ " National autism registry debuts Sunday, April 8, 2007 By LINDY WASHBURN; STAFF WRITER/ NorthJersey.com The first national autism registry was launched last week by the Kennedy Krieger Institute in Baltimore as an online link between families and researchers. The Interactive Autism Network (IAN) invites parents of children with autism to complete a detailed online survey of genealogical, environmental and treatment information. The researchers' goal is to compile the nation's largest pool of family-provided data... " FULL ARTICLE http://tinyurl.com/2booym or http://www.northjersey.com/page.php?qstr=eXJpcnk3ZjczN2Y3dnFlZUVFeXkzJmZnYmVsN2Y\ 3dnFlZUVFeXk3MTA4MzkzJnlyaXJ5N2Y3MTdmN3ZxZWVFRXl5Mg== ==================================================== Interactive Autism Network/IAN Project Kennedy Krieger Institute, Autism Speaks http://www.ianproject.org/ " What is the IAN Project? IAN, the Interactive Autism Network, is an innovative online project designed to accelerate the pace of autism research by linking researchers and families. Anyone impacted by an Autism Spectrum Disorder (ASD) can become part of IAN's online community to stay informed about autism research, provide feedback, and make their voices heard. In addition, families of children with an ASD can share information in a secure online setting and become part of the nation's largest online research effort. As a result, researchers will obtain valuable data, explain findings, and collaborate with families and one another. This dynamic exchange could lead to new discoveries about causes, diagnosis, treatments, and a possible cure for this puzzling group of disorders... " http://www.ianproject.org/ Quote Link to comment Share on other sites More sharing options...
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