new to group

[Guest guest]

---on the m.s front

see

Multiple sclerosis

Be sure that you have read carefully the cayce philosophy page as

missing any one of the principles there could cost you in some form –

we know we have done it.

One of the most important principles overlooked by thousands if not

millions of people outlined by cayce and others where people are

suffering from any condition is to do everything they can to help

others in whatever capacity they can. Cayce frequently mentioned

that this would bring faster results. This is a great ingredient in

helping all people to transmute their own karma. See other pages on

this particularly important aspect.

Multiple sclerosis is a disorder involving the inflammation and

degeneration of the myelin (a fatty material that insulates nerves)

in the brain and spinal cord. The loss of myelin is accompanied by a

disruption in the ability of the nerves to conduct electrical

impulses to and from the brain. This results in symptoms including

balance and coordination problems, weakness (especially in the

legs), visual disturbances, fatigue, bladder and bowel problems, and

cognitive and emotional disturbances.

These are extracts of the report which was prepared for the advisory

board of physicians based on the Edgar cayce readings.

Cayce gave a total of 100 readings for 69 separate people. Definite

diagnosis was difficult in some of the cases because of a lack of

medical history. However it appears from the report that 34 cases

have a high probability of being M.S.Twenty two cases seem to be

less certain and 13 cases seem to point to other illnesses and in

many of these cases Parkinson's was most probable.

M.S. A Drugless therapy approach.

Cayce sited the causes of M.S.as being varied but briefly it was the

lack of gold in the body which caused a glandular imbalance which in

turn caused a hormonal deficiency.This hormone was said to be vital

to the proper functioning of the nerves.

Also it can be stated that even with enough gold present in the

system the body still has to have the ability to use it, it was this

ability that was lacking in some of the cases that cayce dealt with.

The body has to have the ability to absorb or assimilate the gold.

Genetic factors would come into play in dealing with these issues.

Some people having a greater capacity to absorb gold than others it

would appear.

The destruction of the myelin sheaths probably occurred because of

the poisons within the cell walls from the lack of the nervous

forces.

The effect of the incorrect mental attitude which had its effect

upon the body especially the glands was also cited as a causative

factor in a few cases.

People must be positive in their thoughts and their words and their

actions frequently cayce mentioned this to many people indeed where

some people had a lack of progress cayce frequently pointed out it

was because their attitudes were holding them back. They had to be

prepared to serve others, to have a willingness to aid.

Treatment

Took the form of

1.Application of the atomic effect of gold into the body using the

cayce invention called the wet cell appliance, the gold is not given

orally but given as a vibration using electrical wires, this cayce

electrical invention was mentioned in hundreds of cases and was used

with great success.The wet cell appliance can be made or bought,

those wishing to make one of these devices would be well advised to

consult the book

The radial appliance and the wet cell battery by Doug s and

Mcmillin of the meridian institute, this book or the machine

itself can be purchased from john walsh at the Edgar cayce centre

England or from the Heritage store at Virginia beach or from the

A.R.E.headqarters Virginia beach.

The wet cell solution was to be prepared in the following manner, to

1.5 galls of distilled water add 2 pounds of copper sulphate, 1 oz

of concentrated sulphuric acid 30 grams of zinc, 0.5 pound of willow

charcoal. The gold chloride solution should be used at a strength of

I -3grains of gold chloride to 1oz of distilled water in the

solution jar to which the nickel pole goes through, however in as

many days iodine trichloride was to be used on alternate days from

the gold solution. Spirits of camphor was advised in 13 cases and

sometimes all three solutions were to be used in a three day

series.The nickel plate was to be placed on the umbilical lacteal

duct centre which is located on the right upper quadrant of the

abdomen a point of the distell end of the gall bladder. Various

positions were to be used along the spine for the copper plate but

the most frequent position was the ninth and tenth thoracic

vertebrae and at the level of the fourth lumbar.The wet cell was to

be recharged every 30 days and was to be used each day for between

30-60 mins. The best time for this to be given was before retiring

at night though not an absolute rule. The strength of the gold

solution varied between 1-3 grains of gold chloride in the distilled

water. The amount of sulfuric acid varied between 1 and 1.5 ounces.

Sometimes willow charcoal was to added to the wet cell and sometimes

not.

2.Massage was to be given immediately after the wet cell treatment

starting at the base of the skull and then working down the spine

and out to the bodies extremities using a circular motion and

sometimes massage was recommended to the chest and abdomen also. 56%

of the case studies were to use a combination of oils consisting of

2 oz of peanut oil mixed with 2oz olive oil and a quarter oz of

lanolin.25% were recommended an olive oil base plus peanut oil with

various combinations and amounts of Russian white oil, oil of

cedarwood, oil of sassafras root, oil of pine needles, nujol,

lanolin, oil of wintergreen, tincture of benzoin, tincture of myrrh,

whithhazel, spirits of camphor, spirits of turpentine, mutton suet

and oil of mustard. The most frequently used oils were the first

seven used in the preceding list. Preferably given daily for no more

than an hour.

3.Iodine therapies in the form of iodine trichloride by mouth was

recommended in 6 cases and eating seafood as a source of iodine in

the diet .In about 53% of cases some form of iodine was recommended.

4.Dietary changes were particularly advised, Low fat, foods

containing B Vitamins wheat germ or brewers yeast, seafood and any

light meats to be boiled and no fried foods. Daily Raw vegetables

such as watercress carrots, celery, beets and salads with gelatin.

Also many fruits were to be eaten.

5. A hopeful and positive prayerful attitude from the patient and

the helper was emphasized and considered essential.

6. Cayce emphasized this is a long term process giving three to

seven years as being the norm to gain recovery.

7.A helper to administer the wet cell treatments and give the

massage is almost an essential ingredient in achieving the

consistency of treatment which is an essential element in achieving

success.

8.Where possible the patient is to do everything they can to help

others in whatever capacity they can. Cayce frequently mentioned

that this will bring faster resultsThis is a great ingredient in

helping all people to transmute karma. See other pages on this

particularly important treatment.

Although not specifically recommended by cayce for ms, Spiritual

healing has the capacity to be very beneficial in all illnesses- see

other pages on this fascinating subject.

The original files on M.S. can be obtained through the A.R.E.at

www.are-cayce.com

More specific details of the wet cell ,oils, diet and massage can

be obtained through the A.R.E. or one of the many thousands of Edgar

cayce web sites.

There are two must have books Reba Ann karps book encyclopedia of

healing ISBN 0446 30981-8 which gives lots of treatments on all

manor of diseases.

And the Edgar cayce handbook for health by Harold reilly and Ruth

hagy brod

Isdn0-02601960-4 Obtained from the cayce centre

Actual readings and details of the wet cell appliance can be

obtained through the A.R.E.or the Edgar Cayce centre up in Durham 13

prospect terrace, new stanley, CO Durham, England DH9 7TR 01207

237696 E mail cayce.walsh.@... ask for one of the circulating

files on M.S.

The meridian institute, www.meridian institute.com/

ran by a team of doctors undertook a research project to explore

the cayce protocol, details can be obtained from their site but

after just six months all people doing the protocol had improved.

A brief summary of the meridian institute research project that had

nine participants.

This was undertaken over a 6 month period following the cayce

protocol.

Physical symptoms were assessed both by physiological measurements

of the autonomic nervous system (galvanic skin response and heart

rate variability) and by subjective questionnaires.

Mental/emotional/spiritual states were assessed by subjective

questionnaires.

Subjects who followed the protocol consistently (but none completely

or perfectly) averaged moderate improvement in MS symptoms over six

months, on both subjective symptom checklists and questionnaires,

and objective measurement of GSR. Three out of the seven reported

major improvement.

This rate of improvement was consistent with the typical Cayce

prognosis of gradual improvement over an extended period of time.

Continuation for a full year and attention to complete compliance

with the protocol should produce even stronger results.

Multiple sclerosis is a disorder involving the inflammation and

degeneration of the myelin (a fatty material that insulates nerves)

in the brain and spinal cord. The loss of myelin is accompanied by a

disruption in the ability of the nerves to conduct electrical

impulses to and from the brain. This results in symptoms including

balance and coordination problems, weakness (especially in the

legs), visual disturbances, fatigue, bladder and bowel problems, and

cognitive and emotional disturbances. In conventional medicine,

multiple sclerosis is thought to be an " autoimmune " disease, in

which the body attacks its own cells and tissues. Heredity,

infectious, and environmental factors may all play a role.

As an added treatment Spiritual healing is well advised .See the

information on this fascinating subject on the other pages.

Colloidal silver and M.S.

Here is the journal of one person's experience with Colloidal

Silver. I would caution you that if you decide to try this, be sure

to use only the highest quality CS and one with the smallest

particle size.

If you search the Internet for Colloidal Silver, you may find an

article from the medical establishment about one lady whose skin has

supposedly turned gray from taking CS. BUT...she obviously took some

with a very large particle size and she must have taken way too much

of it. Don't let this propaganda scare you away from CS. The FDA,

the AMA and other forces in the medical system - especially the

PharmaCartel - want to stop Colloidal Silver production and use

simply because it is an incredibly cheap and effective germ killer

and remedy for many ailments.

Feedback

I have been on Betaseron since it came on the market 6 or 7 years? I

would say it did as promised, I have had no exacerbation since I

began the injections. However, everyday I hate to get up to see what

additional symptom I have to add to my list to get used to.

My right had is numb, my feet, especially my toes are numb. When I

get hot or tired my right leg does not lift well. It drags when I

walk. After a day at work, I practically have to crawl to my car. I

must hold on to a wall at all times. I really should use a cane. I

cannot even go up a curb without holding on to someone or something.

No way can I climb a ladder.

When I sit for any length of time, My legs stiffen and get spasms

and I have to wait awhile before I can walk. It appears that I have

had too much to drink. I really should use a cane, but usually I can

take my companion's arm to get to my car.

If I sit on the floor for any reason, like play with my

grandchildren, I must first get on my knees, then on all four's,

then finally I can get up. Just like a cow. I cannot use help

getting up from the floor, I need more control. I sit on the floor

as little as possible.

When it is hot, I must wear a cold pack vest or I cannot walk. My

feet are hot all the time, and I cannot sleep unless my feet are

uncovered.

I have night paralysis. I must throw my body in order to turn to

another side. My legs are locked in the fetal position and it is a

real chore to get them unlocked and able to walk. I must use a cane

to get to the bathroom during the night. It is about ten feet from

my bed.

I drank 2 oz of Silver water twice a day - in the morning & at three

PM.

Day four I begin to drink 8 oz of Silver water two times per day. I

seem to have more energy and the end of the day seems to come a

little later. I do not drag as much to my car.

Day 12 the night paralyzation seems to be easing. I can get out of

bed with more ease

Day 14 through Day 18 my fingers and toes are tingling more and

more. My toes are aching. As the days go by my fingertips seem to be

aching, also.

Day 20 I seem to have surreal feelings in my fingers. It's like a

far away out of body feeling. They still ache.

Day 21, I am getting out of bed much easier and quicker. I climbed a

ladder at work, and I am not nearly so tired when I leave work. I

can actually walk to my car without

holding on to the wall. I did some things on the floor at work, and

was able to get up without too much trouble.

Week four, The bottom of my feet are tingling,

I could feel cool bathroom tile on bottom of my feet.

My legs ached all night. It was very painful, I wanted to scream

out. My legs hurt a great deal. The next morning I was able to walk

further than I had in years. Mike and I walked about four blocks

that morning. I feel stronger and stronger every day.

Week five, More and more feeling in both fingers and toes every day.

Less surreal and more natural. Both toes and finger get cold.

Week 10, Seem to have small changes every day. Again my toes ached

for several days, then I had more feeling in my toes. It's as though

I have a non-feeling pad at the bottom of my feet, but feeling all

the way around. Lie an animal's paw with the padded bottom. It seems

I hurt for a few days, then something feels better.

Week 12, I feel like a caterpillar in a cocoon. I wonder if they

have pain during the metamorphosis. The bottom of my feet are no

longer numb, the fingers on my right hand tingle only at the very

tips. I don't even think about lifting a heavy container with my

right hand. For years, I wouldn't dare lift, or I would drop

whatever I was holding. I poured coffee from a pot without even

thinking about it, until I noticed myself. Doing it. There is NO WAY

I could be working the hours I have this Christmas, if not for the

water. Last year, I had to wear my cooling vest all day every day,

and when I went home I could barely walk to my car. Some days I

literally dragged my right leg to get to my car. I had to hold on to

the building to get around the corner and into my car. When I got

home I actually crawled on my hands and knees to get up the steps.

This year I never once had to wear my cooling vest. I walk normally

to my car at the end of the day, and the steps are not too much of a

problem. I still go up one leg only, but it is stronger. The fatigue

is minimized, also. I've worked many more hours this year than last.

Week 14: I started making my own water about three weeks ago, and

I've had to send samples to San for testing. It seems the

probe they sent me was not working to full potential, and for about

a week I was drinking water with very minimal amounts of silver.

After the week I KNEW IT! I was regressing. Things were not working

so well, again. I was regressing. Thankfully we figured out the

problem and within a couple of days I was back on track. Thank God.

This set back has convinced me even more. As if that were possible.

I have my life back. I will never give up silver water.

Week 20: Christmas Week. I had 16 people for dinner Christmas eve. I

had 7 people for dinner Christmas day, I worked 11 hours the day

after Christmas, and I had 14 people for dinner the next day. That

is four days out of four I entertained at my house. I can't remember

when I did something like that. I still have night paralysis, but

not nearly as bad as it used to be, and I have a lot of stiffness

still when I sit a long time, but nothing near as bad as it used to

be. My energy level is very high.

Week 24: It seems I was at a standstill for the last several weeks.

I didn't see much improvement, but then I saw NO back sliding - Just

status quo. This is OK with me if I don't improve much. I've come

such a long way back. However, the stiffness & night paralysis could

improve. I drink at least 16 oz of water per day. Some days when I

have a lot to do, or am especially busy I will drink 24 oz.

Week 28: I have been drinking 24 oz of water almost every day. The

night paralysis is lessening. It is not taking as long for my legs

to get moving in the night or in the morning. More of the numb parts

of my body have feeling.

I am a retired chiropractor, massage therapist, and registered

nurse.

I developed multiple sclerosis (MS) during the summer of 1991.

Some of my symptoms included numbness, blurred vision, difficulty

swallowing, tremors, muscle spasms, depression, fatigue, failing

memory, slurred speech, and bladder dysfunction.

Following Cayce's recommendations over a period of about two years

resulted in the gradual disappearance of ALL my MS symptoms.

I wrote a 120 page, illustrated book about my experience, The Edgar

Cayce Way of Overcoming Multiple Sclerosis: Vibratory Medicine,

which may be read online without cost or obligation by visiting

http://members.tripod.com/~dudley_delany/index-70.html

If you are a member of the A.R.E., you can purchase or borrow a set

of Cayce's readings on scoliosis, Circulating File 456F, by calling

1- USA

A number of years ago, a physician undertook an in-depth study of

the Cayce material on MS. The results of his efforts are presented

in a monograph entitled Medical Research Bulletin on Multiple

Sclerosis. To purchase a copy of this publication, call

1- USA

In my opinion, Edgar Cayce's approach to treating scoliosis has

great potential and merits most careful consideration.

In asthma , " JUST ANGEL " <angel_has_ms2@y...> wrote:

> hi my name is lori and i am 34 yrs old. i have multiple sclerosis

and

> asthma, lately i find it harder to control my asthma..i am using

my

> nebulizer machine every 6 hours and i just got a peak flow meter

but

> thenumbers werent set. is the lower yellow/red suppose to be set

at

> 250? and green/yellow at 450? can someone help me. i also take

> singulair and advair. thank you.

[Guest guest]

I think my " scared " phrase was more towards coming to terms with there

is a problem. . .and yet I know there is. . .he hurts me and dh. . .I

tell everyone we come in contact with that there is a problem. . .but I

think it is different with you all like I am admitting failure. . .I

don't know I can't put into words. He has 4 doctors. . .3 at one place

for the outburst. . . and then thinking he is a dog. . .so I feel I

have come to terms. . .I know I will gain lots of friends and knowledge

from this group. . .guess just scary starting out.

Thanks for all your help. . .am playing around with my business cards

still. . .a work in progress. . .plus I keep hearing screaming from my

3 boys in the other room so I have distractions. . .

Carmen

[Guest guest]

WELCOME TO OUR GROUP................ Here you will learn a lot and help

others a lot............ Hang on for a very wild

ride..................................... AUTISM!

mom4kody

age 8, Asperger, ADHD

________________________________

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of

DeForrest

Sent: Thursday, November 10, 2005 11:15 AM

To: ttyree

Subject: new to group

Hello, my name is & I'm new to this group. I have a daughter

who was diagnosed with autism & a seizure disorder at the age of 2.

Since then, we've had her on an ABA program. She is now 8 years old &

doing very well. We just moved to Lubbock from Phoenix in June & she

has done great with all the changes. We had been so devastated when we

were told there was no hope for my daughter. Because of her awesome

progress, I decided to go back to school to learn how to work with other

families affected by autism.

I've been amazed that there aren't many services available in the

Lubbock area. Or maybe I just haven't found them yet. But I've decided

to start my own business here in Lubbock. It is called Hope Abounds For

You. The web address is hopeabounds4u.com. Feel free to check it out,

ask questions, make suggestions, etc. I would really appreciate your

feedback!

I really look forward to being a part of this group.

---------------------------------

Yahoo! FareChase - Search multiple travel sites in one click.

[Guest guest]

where do you get mb12 shots? and can they be sold without RX? What's the difference b/w that and mb12 spray? Also I wanted to find out if anyone has used dmsa wnd ala together and what dosage did you use. Where can ala be purchased? Thanks for any in put. My son is 33 months old and non verbal. Roselinecburgett@... wrote: Hello all, I am new to the group and need some advice on starting Valtrex and MB12. My 2 1/2 year old son has been on b12 injections for about 5 months. We just

recently increased to one shot every other day at .5 ML. He seems to respond with clearer language and awareness to the shots. We are now getting ready to start Valtrex. Is there anything important I need to know before hand? What should I expect to see? Any help would be greatly appreciated. Cara mom to Jace 2.5 and Eliot 16 months Re: ear achesTo: mb12 valtrex > Hi,> > For earaches and/or infections we use Young Living's Grapefruit > Essential Oil on the outside of the ear and down the mastoid ? > bone. The pain is usually gone within 20 minutes.> > Contact me off-line if you'd like more information.> > Carmen Goldman> casgoldmanmsn

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Yahoo! Autos.

[Guest guest]

> Hello all, I am new to the group and need some advice on

starting Valtrex and MB12. My 2 1/2 year old son has been on b12

injections for about 5 months. We just recently increased to one shot

every other day at .5 ML. He seems to respond with clearer language

and awareness to the shots. We are now getting ready to start Valtrex.

Is there anything important I need to know before hand? What should I

expect to see? Any help would be greatly appreciated.

>

> Cara

> mom to Jace 2.5 and Eliot 16 months

>

> Re: ear aches

> To: mb12 valtrex

>

> > Hi,

> >

> > For earaches and/or infections we use Young Living's Grapefruit

> > Essential Oil on the outside of the ear and down the mastoid ?

> > bone. The pain is usually gone within 20 minutes.

> >

> > Contact me off-line if you'd like more information.

> >

> > Carmen Goldman

> > casgoldman@...

>

>

>

>

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Yahoo! Autos.

>

[Guest guest]

Cara, I can't stress enough that before you start the Valtrex make

sure you start an antifungal like Diflucan, Nystatin, etc. and

continue with the antifungals parade while on the Valtrex. We had my

son on Valtrex for 4 months with absolutely no antifungal (just a

natural one occasionally, Biocidin) and by the end of the 4th month

his yeast was sooooo bad. I have not put him back on Valtrex yet (I

stopped it last September). I am hoping to start again soon, but am

moving very slowly at getting him back on it. I started him on

diflucan 2 months ago and then realized that he had an allergic

reaction to it. I didn't pick up on that fact last September since

his yeast was so out of control. I thought it was just a yeast

problem. Anyways, we did see some gradual but nice cognitive

improvements so was very disappointed to have to stop the Valtrex,

but my sanity was going out the window when he regressed horribly in

his potty training by month 4 on Valtrex. Hope that may help you in

your experience.

>

> Hello all, I am new to the group and need some advice on starting

Valtrex and MB12. My 2 1/2 year old son has been on b12 injections

for about 5 months. We just recently increased to one shot every

other day at .5 ML. He seems to respond with clearer language and

awareness to the shots. We are now getting ready to start Valtrex. Is

there anything important I need to know before hand? What should I

expect to see? Any help would be greatly appreciated.

>

> Cara

> mom to Jace 2.5 and Eliot 16 months

>

> Re: ear aches

> To: mb12 valtrex

>

> > Hi,

> >

> > For earaches and/or infections we use Young Living's Grapefruit

> > Essential Oil on the outside of the ear and down the mastoid ?

> > bone. The pain is usually gone within 20 minutes.

> >

> > Contact me off-line if you'd like more information.

> >

> > Carmen Goldman

> > casgoldman@...

>

[Guest guest]

For MB12 shots or nasal spray a prescription is required. Kirkman

Labs sells ALA

capsules that can be opened. www.kirkmanlabs.com

Pamela

" Courage is doing what you're afraid to do. There

can be no courage unless you're scared. "

Eddie Rickenbacker, top US fighter ace, WWI

[Guest guest]

Have you tried making her soup? My son is a very picky eater and will eat soup.

My son is on a lot of the same supplements etc. as your daughter right down to

theIV Edta,

HBOT and the BH4. My son also regressed after his MMR and lost all of his

language then.

Have you tried any natural anti-virals (olive leaf extract or virastop) or a

high dose vitamin

A for 2 days? My guess is with that viral load for her to release any of those

metals she is

going to have to release the virus that is holding the metals in her body. Have

you read

Amy Yasko's " The Puzzle of Autism? " It explains the viral metal connection very

well. It

changed my thinking about how to address my son 's care. We have had

results with

Yasko's metals rna which works by helping to express al of the viruses that your

daughter

has such high titers for. It first addresses measels I and goes through all of

he main

viruses. I am routing for you. Valtrex really helped my son. He has been on

it for 1 1/2

years now and it has really helped him although after all of this time he still

has viral

issues. I hope it will do the same for your daughter. : ) Jeanine

>

> Hi -

>

> The information is very impressive. I have a few questions regarding

> the diet but just wanted to give a little history so you know about

> my just turned 6 year old daughter. We have had very minimal

> progress.

>

> I just got a script for Valtrex and as I was looking up information,

> I found this group. Great!!

>

> 1. GF/CF/SF/EF, etc. since she was 2 years old.

> 2. Methyl B-12 shots (1 year) , DAN protocol, etc.

> 3. SCD (approx. 5 weeks) - very sick/couldn't wake up. Maybe due

> to poor Krebs cycle, diet was too hard on her.

> 4. Yasko genetics then Hydroxy B-12 shots

> 5. DMPS (TD) and then many EDTA IVs

> 6. HBOT - 40 (1.5/100%) No postivies/negatives. Will hopefully

> try another round in a couple of months.

>

> - Huge Metal load - Chelation has not helped as my daughter has not

> been able to dump any reasonable amount of metals.

> - Viral load.

> - Rubeola 723 (100-650)

> - Mumps 408 (0-110)

> - Rubella 325 (0-100)

> - Tetanus 5 (.15-2.6)

> - 1 Herpes 200 (<100)

> - 2 Herpes 134 (<100)

> - Varicella 183 (0-100)

>

> - Severe brain inflammation (952) French tests

> - High oxidative stress

> - B-12 issues - MTRR mutations, etc.

>

> My daughter is non-verbal but can use a few words.

> MMR pushed her totally over the edge - lost all language, connection,

> etc.

> We've (especially me) been hesitant to use anti-virals because when

> was 2.5 she was in the hospital with elevated liver enzymes

> (5,000+), fatty liver, unknown virus (couldn't walk, move, etc.)

>

> **Currently back to (pattern of) Methyl B-12 shots (2 days) and 3rd

> day Hydroxy B-12 shot

> **Major mito/oxidative stress/inflammation protocol. BH4 20 mg/day.

>

> My question is about the diet. My daughter's diet is very limited.

> Lamb, a few vegetables, a few fruits, a few seeds and rice pasta.

> If I took the pasta away, what should I use while still trying not to

> give her too much fruit/sugar?

>

> Thanks so much.

> Lainie

>

[Guest guest]

Hi and welcome, it is always so nice to hear of quick

improvements. And with 3 kids responding well, here is to more words and

happiness!!

there are many natural antivirals to try if you cannot get valtrex, OLE

did wonders for us. Also Transfer Factor (3-4 months course and then

phase out slowly) - it is quite expensive but was worth every penny for

us. We are just about to try Lactoferrin, also derived from cow's

collostrum, like TF, it is also an immune booster and goes after

herpesviruses!

you may also want to add epsom salts baths on board if you have not

already, we are doing this version with Vitamin C. lysine and baking

soda: http://www.krysalis.net/autism1.htm , we also add 1/2 teaspoon of

andrographis herb into theses baths (it is a powerful antiviral but very

bitter and no way a kid would swallow it!). lysine is effective against

herpesvirus too.

hth

natasa

>

> Hi there thanks for letting me join you group. My name is Tara

we have 3 children Cole 6 Jada 5 & Kaden 3 . Kaden and Jada were

diagnosed July 20 2007 with autism. I finally got someone to notice.

Cole will be diagnosed with aspergers they tell me. I always new since

they were around 12 months and on that they were sliding away from use.

Cole started to talk finally when he was 3 1/2. So after I found out I

told every person I know to ask every person they know if they ever find

anything out to help my kids phone. I could not believe that was it.

Like the doctors are telling me. They will not lead normal lives. The

first thing I did was stop dairy, The head banging stopped 3 days later

in Kaden. He was the only one who did it. So I got a email that told me

about SCD. So I started them the next day, we were already Gluten free

along the way I had discovered that all my kids and myself react to it.

So three days into the diet Kaden 3 1/2 walks up to me and say ( I eat )

I was amazed never before had I heard that. Later that day Jada walks up

to me and says ( I am so happy ) She looked right at me. Cole 6 years

old is feeling alot better more eye contact he does not talk about the

same things in one day. That is nice. I am in Canada in BC I have not

found any DAN doctors but I found a naturopath that believes in DAN so

she is helping we are sending in our

> organic acid test to Great Plains Laboratory today and hair samples

too. We have our kids on Brain child minerals and vitamins, Ascentra

Sea, SCDophilus, also have order Carlson's cod liver oil, Houston

peptizyde Houston zyme prime. After we get results we will start Methyl

B12 + folinic acid spray, Detoxification & Chelation.

> Our naturopath does not do valtrex or other prescription drugs she

does it naturally. I hope this is a good start. We really want to seek

out a doctor that will do valtrex.

> Stan I watched your videos yesterday they made me cry because that

is my story. x 3 kids. Kaden started saying hi dad at 10 months old

shortly after that he stopping and has never said it since. I printed A

Comprehensive antiviral Approach, what a great paper

> So we have just started this battle. The kids are improving slowly

with the diet and supplements. We may have to travel into the USA to get

a doctor to give us valtrex for our kids.

> Sorry for such along email, The story is alot longer I really

tried to shorten it. Any advise would be appreciated.

>

> Tara

> www.wildcharmbengals.com

> www.kentaraexcavating.com

>

[Guest guest]

Thank so much for your advice, its good to know about transfer factor and

OLE. We do epson baths but I will add the other stuff. We are not worried

about the expense of anything. Well we are worried cannot effort it but it

all goes on credit card we will worry about that later, right now we are

working on getting our kids feeling better. Thanks again.

Tara

www.wildcharmbengals.com

www.kentaraexcavating.com

Re: new to group

> Hi and welcome, it is always so nice to hear of quick

> improvements. And with 3 kids responding well, here is to more words and

> happiness!!

>

> there are many natural antivirals to try if you cannot get valtrex, OLE

> did wonders for us. Also Transfer Factor (3-4 months course and then

> phase out slowly) - it is quite expensive but was worth every penny for

> us. We are just about to try Lactoferrin, also derived from cow's

> collostrum, like TF, it is also an immune booster and goes after

> herpesviruses!

>

> you may also want to add epsom salts baths on board if you have not

> already, we are doing this version with Vitamin C. lysine and baking

> soda: http://www.krysalis.net/autism1.htm , we also add 1/2 teaspoon of

> andrographis herb into theses baths (it is a powerful antiviral but very

> bitter and no way a kid would swallow it!). lysine is effective against

> herpesvirus too.

>

> hth

>

> natasa

>

>

>

>

>

>

>

>>

>> Hi there thanks for letting me join you group. My name is Tara

> we have 3 children Cole 6 Jada 5 & Kaden 3 . Kaden and Jada were

> diagnosed July 20 2007 with autism. I finally got someone to notice.

> Cole will be diagnosed with aspergers they tell me. I always new since

> they were around 12 months and on that they were sliding away from use.

> Cole started to talk finally when he was 3 1/2. So after I found out I

> told every person I know to ask every person they know if they ever find

> anything out to help my kids phone. I could not believe that was it.

> Like the doctors are telling me. They will not lead normal lives. The

> first thing I did was stop dairy, The head banging stopped 3 days later

> in Kaden. He was the only one who did it. So I got a email that told me

> about SCD. So I started them the next day, we were already Gluten free

> along the way I had discovered that all my kids and myself react to it.

> So three days into the diet Kaden 3 1/2 walks up to me and say ( I eat )

> I was amazed never before had I heard that. Later that day Jada walks up

> to me and says ( I am so happy ) She looked right at me. Cole 6 years

> old is feeling alot better more eye contact he does not talk about the

> same things in one day. That is nice. I am in Canada in BC I have not

> found any DAN doctors but I found a naturopath that believes in DAN so

> she is helping we are sending in our

>> organic acid test to Great Plains Laboratory today and hair samples

> too. We have our kids on Brain child minerals and vitamins, Ascentra

> Sea, SCDophilus, also have order Carlson's cod liver oil, Houston

> peptizyde Houston zyme prime. After we get results we will start Methyl

> B12 + folinic acid spray, Detoxification & Chelation.

>> Our naturopath does not do valtrex or other prescription drugs she

> does it naturally. I hope this is a good start. We really want to seek

> out a doctor that will do valtrex.

>> Stan I watched your videos yesterday they made me cry because that

> is my story. x 3 kids. Kaden started saying hi dad at 10 months old

> shortly after that he stopping and has never said it since. I printed A

> Comprehensive antiviral Approach, what a great paper

>> So we have just started this battle. The kids are improving slowly

> with the diet and supplements. We may have to travel into the USA to get

> a doctor to give us valtrex for our kids.

>> Sorry for such along email, The story is alot longer I really

> tried to shorten it. Any advise would be appreciated.

>>

>> Tara

>> www.wildcharmbengals.com

>> www.kentaraexcavating.com

>>

>

>

>

>

>

>

[Guest guest]

LOL, same here re credit cards

if you do decide to add TF, most people I know use 4Life - Advanced

version (not the Advanced Plus), about $35-40 a month or less if you buy

bulk... there are other more expensive brands out there but this one

worked for a number of kids. Lactoferrin is similar in price.

Natasa

> >>

> >> Hi there thanks for letting me join you group. My name is

Tara

> > we have 3 children Cole 6 Jada 5 & Kaden 3 . Kaden and Jada were

> > diagnosed July 20 2007 with autism. I finally got someone to notice.

> > Cole will be diagnosed with aspergers they tell me. I always new

since

> > they were around 12 months and on that they were sliding away from

use.

> > Cole started to talk finally when he was 3 1/2. So after I found

out I

> > told every person I know to ask every person they know if they ever

find

> > anything out to help my kids phone. I could not believe that was it.

> > Like the doctors are telling me. They will not lead normal lives.

The

> > first thing I did was stop dairy, The head banging stopped 3 days

later

> > in Kaden. He was the only one who did it. So I got a email that

told me

> > about SCD. So I started them the next day, we were already Gluten

free

> > along the way I had discovered that all my kids and myself react to

it.

> > So three days into the diet Kaden 3 1/2 walks up to me and say ( I

eat )

> > I was amazed never before had I heard that. Later that day Jada

walks up

> > to me and says ( I am so happy ) She looked right at me. Cole 6

years

> > old is feeling alot better more eye contact he does not talk about

the

> > same things in one day. That is nice. I am in Canada in BC I have

not

> > found any DAN doctors but I found a naturopath that believes in DAN

so

> > she is helping we are sending in our

> >> organic acid test to Great Plains Laboratory today and hair samples

> > too. We have our kids on Brain child minerals and vitamins,

Ascentra

> > Sea, SCDophilus, also have order Carlson's cod liver oil, Houston

> > peptizyde Houston zyme prime. After we get results we will start

Methyl

> > B12 + folinic acid spray, Detoxification & Chelation.

> >> Our naturopath does not do valtrex or other prescription drugs she

> > does it naturally. I hope this is a good start. We really want to

seek

> > out a doctor that will do valtrex.

> >> Stan I watched your videos yesterday they made me cry because

that

> > is my story. x 3 kids. Kaden started saying hi dad at 10 months old

> > shortly after that he stopping and has never said it since. I

printed A

> > Comprehensive antiviral Approach, what a great paper

> >> So we have just started this battle. The kids are improving

slowly

> > with the diet and supplements. We may have to travel into the USA to

get

> > a doctor to give us valtrex for our kids.

> >> Sorry for such along email, The story is alot longer I really

> > tried to shorten it. Any advise would be appreciated.

> >>

> >> Tara

> >> www.wildcharmbengals.com

> >> www.kentaraexcavating.com

> >>

> >

> >

> >

> >

> >

> >

[Guest guest]

Questions are allowed. Bring them on! hugs, VickieG

New to Group

Hi Everyone, My name is Sherry and I am new to the group. Just found out last year I have Hep C. Do not know how long I have had it. I have seen several doctors and am being told so many different things, that I am feeling like I am going crazy and don't know who or what to believe. I am not in treatment right now. I have a ton of questions. Can I post them all to the board or is there someone on the board that would like to private email back and forth with me. I don't mind posting my questions, just not sure if the moderator wants someone rambling on with a thousand questions... . Thank you and God Bless all of youSherry

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Hi sherry I am glad you found us we are always here to listen or help with what we can. I dont know how much help i can be but you can always email me if you want to talk. There is a lot of info out there that you need to filter. Its hard. I found out because i itch all the time. Than i read that if you itch your liver is failing. Come to find out my liver is in pretty good condition concidering. We are all very helpful. D Sherry Ulrich wrote: Hi Everyone, My name is Sherry and I

am new to the group. Just found out last year I have Hep C. Do not know how long I have had it. I have seen several doctors and am being told so many different things, that I am feeling like I am going crazy and don't know who or what to believe. I am not in treatment right now. I have a ton of questions. Can I post them all to the board or is there someone on the board that would like to private email back and forth with me. I don't mind posting my questions, just not sure if the moderator wants someone rambling on with a thousand questions.... Thank you and God Bless all of youSherry

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Sherry ~~ You're among friends here. Questions and support are what we are all about!! I learned an incredible amount of information from the folks here and continue to do so. Later, my Hepatologist that I was referred to "the specialist's specialist," confirmed every thing I had learned here without exception. These are the "go to guys" with "in the trenches" experience. No question is too little and none too big. I trust you will find this a board that you will find answers and people to walk beside you through your experiences. Blessings, Sherry Ulrich wrote: Hi Everyone, My name is Sherry and I am new to the group. Just found out last year I have Hep C. Do not know how long I have had it. I have seen several doctors and am being told so many different things, that I am feeling like I am going crazy and don't know who or what to believe. I am not in treatment right now. I have a ton of

questions. Can I post them all to the board or is there someone on the board that would like to private email back and forth with me. I don't mind posting my questions, just not sure if the moderator wants someone rambling on with a thousand questions.... Thank you and God Bless all of youSherry

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Welcome Sherry, Questions are not just allowed, they're encouraged! Ask away "There is no such thing as a stupid question" SuZie & Sir SpYke the FuzzyVickieG wrote: Questions are allowed. Bring them on! hugs, VickieG New to Group Hi Everyone, My name is Sherry. I have a ton of questions. Can I post them all to the board or is there someone on the board that would like to private email back and forth with me. I don't mind posting my questions, just not sure if the moderator wants someone rambling on with a thousand questions... . Thank you and God Bless all of youSherry Never miss a thing. Make Yahoo your homepage.

Next time I'm coming back as a cat

[Guest guest]

Hi

Sherry! We’re glad to have you. Questions is what we’re here for.

I’ll post some articles for newly diagnosed, but ask away. Any of the

moderators and many of the members are happy to go private with you if you need

to, but there is a wealth of information and experience in this group.

Geno 1,

successful tx in 2004

Dragon Slayer

New to Group

Hi Everyone, My name is

Sherry and I am new to the group. Just found

out last year I have Hep C. Do not know how long I have had it. I

have seen several doctors and am being told so many different things,

that I am feeling like I am going crazy and don't know who or what to

believe. I am not in treatment right now. I have a ton of questions.

Can I post them all to the board or is there someone on the board that

would like to private email back and forth with me. I don't mind

posting my questions, just not sure if the moderator wants someone

rambling on with a thousand questions....

Thank you and God Bless all of you

Sherry

[Guest guest]

I haven't read all of the answers to your post yet, but I would like to

throw my 2 cents in. You said that you have been to several doctors. I

made sure to get copies of every test result. I would ask for that and

put it into a folder with bills and anything else the doc gave me. That

way, if I had to see another doc for anything, I had test results from

the gastro. That seemed to save some time and money and my poor arm

from more blood tests.

Oh, and the best thing in the world is to keep your sense of humor. It

might take some work at times, but it will pull you through a lot of

things. And it will help the people around you to deal with it.

Much love.

<><Tammie><>

-- In HepatitisCSupportGroupForDummies , " Sherry Ulrich "

wrote:

>

> Hi Everyone, My name is Sherry and I am new to the group. Just found

> out last year I have Hep C. Do not know how long I have had it. I

> have seen several doctors and am being told so many different things,

> that I am feeling like I am going crazy and don't know who or what

to

> believe. I am not in treatment right now. I have a ton of questions.

> Can I post them all to the board or is there someone on the board

that

> would like to private email back and forth with me. I don't mind

> posting my questions, just not sure if the moderator wants someone

> rambling on with a thousand questions....

>

> Thank you and God Bless all of you

> Sherry

>

[Guest guest]

Tammie,

I did something similar but it got to be too much, so I ended up

putting together an excel spreadsheet with every bloodtest listed on

it and the dates going down in each column. At the end of each row

is the reference range. This allows me to see what is trending up,

down and staying the same. I thought it would be pretty stupid, but

the last time I was at the transplant clinic, I had seen a different

dr., and he was brushing off some of the test results until I showed

him this. It made a difference.

Judy

> >

> > Hi Everyone, My name is Sherry and I am new to the group. Just

found

> > out last year I have Hep C. Do not know how long I have had it.

I

> > have seen several doctors and am being told so many different

things,

> > that I am feeling like I am going crazy and don't know who or

what

> to

> > believe. I am not in treatment right now. I have a ton of

questions.

> > Can I post them all to the board or is there someone on the

board

> that

> > would like to private email back and forth with me. I don't mind

> > posting my questions, just not sure if the moderator wants

someone

> > rambling on with a thousand questions....

> >

> > Thank you and God Bless all of you

> > Sherry

> >

>

[Guest guest]

What

a great idea, Judy! Much easier to have it all together than to

have the docs all go thru all the different pages! Then you’d have the

actual reports for backup if they wanted to see them.

Re: New to Group

Tammie,

I did something similar but it got to be too much, so I ended up

putting together an excel spreadsheet with every bloodtest listed on

it and the dates going down in each column. At the end of each row

is the reference range. This allows me to see what is trending up,

down and staying the same. I thought it would be pretty stupid, but

the last time I was at the transplant clinic, I had seen a different

dr., and he was brushing off some of the test results until I showed

him this. It made a difference.

Judy

[Guest guest]

There's a treatment tracker at http://www.hepatitis.va.gov/vahep?page=treat-chart that's primarily for treatment tracking but has sections for test results & normal values. It can be printed out so you can fill it in. Somewhere in my files I have a test result tracker that's similar but I can't find it right now. I'll look later, o k? SuZie Motley wrote: What a great idea, Judy! Much easier to have it all together than to have the docs all go thru all the different pages! Then you’d have the actual reports for backup if they wanted to see them. -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of jkost1959Sent:

Monday, January 14, 2008 10:25 PMTo: HepatitisCSupportGroupForDummies Subject: Re: New to Group Tammie,I did something similar but it got to be too much, so I ended up putting together an excel spreadsheet with every bloodtest listed on it and the dates going down in each column. At the end of each row is the reference range. This allows me to see

what is trending up, down and staying the same. I thought it would be pretty stupid, but the last time I was at the transplant clinic, I had seen a different dr., and he was brushing off some of the test results until I showed him this. It made a difference.Judy

Next time I'm coming back as a cat

[Guest guest]

My Treatment Diary

Using a Treatment Diary will help you anticipate your side effects and identify patterns of side effects. You will be better able to plan your life, work and family time around your medication schedule if your know what side effects to anticipate after taking your medications.

My Lab Tracker

Lab results can be complicated. It's easy to forget what your results were from labs drawn days or weeks ago. Using My Lab Tracker helps you record variations in your labwork - an important part of monitoring your reactions to medications.

This is what I found.

http://www.hepatitisneighborhood.com/content/treatment_options/medications_for_hepatitis_1409.aspx

hugs

d

[HepatitisCSupportG roupForDummies] Re: New to Group

Tammie,I did something similar but it got to be too much, so I ended up putting together an excel spreadsheet with every bloodtest listed on it and the dates going down in each column. At the end of each row is the reference range. This allows me to see what is trending up, down and staying the same. I thought it would be pretty stupid, but the last time I was at the transplant clinic, I had seen a different dr., and he was brushing off some of the test results until I showed him this. It made a difference.Judy

Next time I'm coming back as a cat

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Welcome

to our crazy, loving family. I’m aka De. The

new pegylated interferon + Ribavirin has a better success rate than the old

stuff because it’s time released and keeps a steady dose of the meds in

your system al week long rather than the peaks & valleys of the old

stuff. Many members of our group have been clear over a year. Patty & I have been clear over 3 years post-tx. I’ll

post a list we did recently of members who responded to a status question for

another member. The success rate for geno 1 is about 50%, & better

for types 2 & 3. We discussed this many times in group and the consensus

of our members is that they’d try it again if given the chance. I’m

sure you’ll get plenty of responses.

new to

group

Im sure this is a

question that has been asked before, but this is my

first time on; Ive been told to try interferon by my specialist. He

says that it has a 50% success rate. I cant find any reports on the

success rate and its longevity. Has anyone actually been hep c free for

more than a year, after treatment? I tried it 15 years ago with

negative results. Im hesitant to try again, but Im also pre-cirrohis.

Thanks for anyone's input

[Guest guest]

Hi Bob, I'm SuZie, 57, single female Canadian living up here in the GWN(Great White North - Thunder Bay, Ontario). I've tried treatment twice but didn't respond & when I wanted to try a third time, my doctors wouldn't let me 'cause I was in ESLD (end stage liver disease, I've been cirrhotic since diagnosis). If I could, I'd JUMP at the chance to try again! I can't tho', I'm waiting for a liver transplant now, the docs found a "lesion" on my liver that they thought was cancer (maybe not) You've got a chance to stop the dragon in his tracks & I'd say Go for it! We're here to help with any sides & even if you don't clear, at least you'll have tried. Also, being on tx gives your liver, if no other part of your body, a

break & can give your liver time to regenerate a bit. There are quite a few sites that'll list the side effects of tx but remember, they list all the sides - no one gets all of them. Try The Combo Survival Guide From A to Z - http://www.hepcsurvivalguide.org/comboguide.htm . It needs to be updated but it's comprehensive & has a sense of humour about things :-) I love a sense of humour, sometimes it's all that keeps me going. Ask any questions you have, if we don't have the answer, we'll know where to find it, promise! We've got a wide cross section of people & experiences in the Dummies & our reason for being is helping others cope. SuZie & Sir SpYke the Magnificent G O T (Galactic Overlord in Training), my cuddle buddy, roomie, pest control officer & boss of all he surveys (yes, he's a cat, lol)glosman828 wrote: Im sure this is a question that has been asked before, but this is my first time on; Ive been told to try interferon by my specialist. He says that it has a 50% success rate. I cant find any reports on the success rate and its longevity. Has anyone actually been hep c free for more

than a year, after treatment? I tried it 15 years ago with negative results. Im hesitant to try again, but Im also pre-cirrohis. Thanks for anyone's input

Next time I'm coming back as a cat

[Guest guest]

HI Bob welcome. I must have missed your post. I am D. Nice to met yousuzie wrote: Hi Bob, I'm SuZie, 57, single female Canadian living up here in the GWN(Great White North - Thunder Bay, Ontario). I've tried treatment twice but didn't respond & when I wanted to try a third time, my doctors wouldn't let me 'cause I was in ESLD (end stage liver disease, I've been cirrhotic

since diagnosis). If I could, I'd JUMP at the chance to try again! I can't tho', I'm waiting for a liver transplant now, the docs found a "lesion" on my liver that they thought was cancer (maybe not) You've got a chance to stop the dragon in his tracks & I'd say Go for it! We're here to help with any sides & even if you don't clear, at least you'll have tried. Also, being on tx gives your liver, if no other part of your body, a break & can give your liver time to regenerate a bit. There are quite a few sites that'll list the side effects of tx but remember, they list all the sides - no one gets all of them. Try The Combo Survival Guide From A to Z - http://www.hepcsurvivalguide.org/comboguide.htm . It needs to be updated but it's comprehensive & has a sense of humour about things :-) I love a sense of humour, sometimes it's all that keeps me going. Ask any questions you have, if we don't have the answer, we'll know where to find it, promise! We've got a wide cross section of people & experiences in the Dummies & our reason for being is helping others cope. SuZie & Sir SpYke the Magnificent G O T (Galactic Overlord in Training), my cuddle buddy, roomie, pest control officer & boss of all he surveys (yes, he's a cat, lol)glosman828 <glosman828> wrote: Im sure this is a question that has been asked before, but this is my first time on; Ive been told to try interferon by my specialist. He says that it has a 50% success rate. I cant find any reports on the success rate and its longevity. Has anyone actually been hep c free for more than a year, after treatment? I tried it 15 years ago with negative results. Im hesitant to try again, but Im also pre-cirrohis. Thanks for anyone's input Next time I'm coming back as a cat

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Welcome..Im patMc & Im 4yrs post treatment.. new to group

Im sure this is a question that has been asked before, but this is my first time on; Ive been told to try interferon by my specialist. He says that it has a 50% success rate. I cant find any reports on the success rate and its longevity. Has anyone actually been hep c free for more than a year, after treatment? I tried it 15 years ago with negative results. Im hesitant to try again, but Im also pre-cirrohis. Thanks for anyone's input

Internal Virus Database is out-of-date.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.13/1211 - Release Date: 1/6/2008 11:57 AM