new to group

[Guest guest]

De & I were treatment twins..she has a better memory than I do..LOL....(we are close to 4 yrs)..Love ya miss Neese..hugs, patty

-----

Internal Virus Database is out-of-date.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.13/1211 - Release Date: 1/6/2008 11:57 AM

[Guest guest]

Hi

Try

http://digestive.niddk.nih.gov/ddiseases/pubs/chronichepc/index.htm ,

look up " Heading Who should be treated "

I was encouraged.

Page

>

> Welcome..Im patMc & Im 4yrs post treatment.. new to group

>

>

> Im sure this is a question that has been asked before, but this

is my

> first time on; Ive been told to try interferon by my specialist.

He

> says that it has a 50% success rate. I cant find any reports on

the

> success rate and its longevity. Has anyone actually been hep c

free for

> more than a year, after treatment? I tried it 15 years ago with

> negative results. Im hesitant to try again, but Im also pre-

cirrohis.

> Thanks for anyone's input

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

> Internal Virus Database is out-of-date.

> Checked by AVG Free Edition.

> Version: 7.5.516 / Virus Database: 269.17.13/1211 - Release Date:

1/6/2008 11:57 AM

>

[Guest guest]

Hi Steve, Welcome. We've got a strange but very loving & supportive bunch her, I think you'll like it, I do. I'm SuZie, 57 year old resident of the GWN(Great White North - Thunder Bay, Ont., Canada). I live with my roomie, pest control officer & master of all he surveys SpYke - yes, he's a cat. I too have had HCV since the 60s - dx'd(diagnosed) in 1990 but infected in 1969. I've been on tx(treatment) twice but did not respond either time so now I'm in ESLD(end stage liver disease) & being assessed for a t p (transplant). I've had cirrhosis since at least 1991 when I had my first biopsy - BTW, don't worry about the biopsy, I've had

2. I have a problem that's not very common with them but for most people it's just a stab in the side with a big needle - the worst part is lying on that side for the 3 or 4 hours afterwards before they'll let you go home. When I first got a computer, I was all over the place researching hep but then I got overloaded with info so I settled on 2 or 3 groups to stay with. This one quickly became my fave, mainly because of the people. Deb is my hero, I want to be just like her when I grow up! Anyways, welcome to the family, hope you'll join in anytime you feel like it. If you have any questions, just ask. Our unofficial group motto is "There's no such thing as a stupid question" SuZie & Sir SpYke the

Magnificent, G O T ( Galactic Overlord in Trainingn6tt wrote: Hi everyone,My name is Steve and Im 55 years old and was just told Ive got HCVwhich I probably contracted in 1960's. Boy what a shocker to say theleast.Anyway Ive been known to ramble so I will try and keep this short.Ivesubscribed to all the hep C groups and have been trying to read a fewof the posts but get pretty depressed just reading what the tx isgoing to be like so I can only take so much at a time. Im

juststarting on this end, Monday Im suppose to go into the hospital for aliver bio which im scared to death just thinking of it. I have notbeen to a doctor in over 30 years hence the long period to find theHCV. Just the thought of this simple test so they say makes meill...Silly I guess so, Im sure many are saying just wait till itstarts. The Doctor keeps sharing a little bit more each time I come. Iwas in denial for six months before I could even face the fact I hadit. Now im talking treatment but each day I can barely wrap my mindaround this...First he says oh you will have shots for one year thenthe next visit oh by the way I will teach you how to give yourselfshots.What?...I dont know what questions to ask him, im a mess. I canonly imagine what it will be like once I start the tx if i even decidetoo. Anyway thanks for letting me share. I will be lurking andreading. I cant believe my life changed so

drastically over night. Imusually a very up beat person....God Bless,Steve in California.K6NNNhotmail

Next time I'm coming back as a cat

[Guest guest]

Where in CA Steve?

Dick

At 05:41 AM 2/28/2008, you wrote:

Hi everyone,

My name is Steve and Im 55 years old and was just told Ive got HCV

which I probably contracted in 1960's. Boy what a shocker to say the

least.

Anyway Ive been known to ramble so I will try and keep this

short.Ive

subscribed to all the hep C groups and have been trying to read a

few

of the posts but get pretty depressed just reading what the tx is

going to be like so I can only take so much at a time. Im just

starting on this end, Monday Im suppose to go into the hospital for

a

liver bio which im scared to death just thinking of it. I have not

been to a doctor in over 30 years hence the long period to find the

HCV. Just the thought of this simple test so they say makes me

ill...Silly I guess so, Im sure many are saying just wait till it

starts. The Doctor keeps sharing a little bit more each time I come.

I

was in denial for six months before I could even face the fact I had

it. Now im talking treatment but each day I can barely wrap my mind

around this...First he says oh you will have shots for one year then

the next visit oh by the way I will teach you how to give yourself

shots.What?...I dont know what questions to ask him, im a mess. I

can

only imagine what it will be like once I start the tx if i even

decide

too. Anyway thanks for letting me share. I will be lurking and

reading. I cant believe my life changed so drastically over night.

Im

usually a very up beat person....

God Bless,

Steve in California.

K6NNN@...

[Guest guest]

Hi Steve I am D I have genotype 2 and start treatment next week o march 7th. Nice to meet youn6tt wrote: Hi everyone,My name is Steve and Im 55 years old and was just told Ive got HCVwhich I probably contracted in 1960's. Boy what a shocker to say theleast.Anyway Ive been known to ramble so I will try and keep this short.Ivesubscribed to all the hep C groups and have been trying to read a fewof the posts but get pretty depressed just reading what the tx isgoing to be like so I can only

take so much at a time. Im juststarting on this end, Monday Im suppose to go into the hospital for aliver bio which im scared to death just thinking of it. I have notbeen to a doctor in over 30 years hence the long period to find theHCV. Just the thought of this simple test so they say makes meill...Silly I guess so, Im sure many are saying just wait till itstarts. The Doctor keeps sharing a little bit more each time I come. Iwas in denial for six months before I could even face the fact I hadit. Now im talking treatment but each day I can barely wrap my mindaround this...First he says oh you will have shots for one year thenthe next visit oh by the way I will teach you how to give yourselfshots.What?...I dont know what questions to ask him, im a mess. I canonly imagine what it will be like once I start the tx if i even decidetoo. Anyway thanks for letting me share. I will be lurking andreading. I cant believe my

life changed so drastically over night. Imusually a very up beat person....God Bless,Steve in California.K6NNNhotmail

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Hi Dick,

Sorry if I didnt respond properly but Im not sure if I need to delete

old message or what. As you can see I usually dont do much posting on

any newsgroups...I get the digests

Im in Manhattan Beach, Ca 5 miles south of LAX

Steve

> >Hi everyone,

> >

> >My name is Steve and Im 55 years old and was just told Ive got HCV

> >which I probably contracted in 1960's. Boy what a shocker to say the

> >least.

> >Anyway Ive been known to ramble so I will try and keep this short.Ive

> >subscribed to all the hep C groups and have been trying to read a few

> >of the posts but get pretty depressed just reading what the tx is

> >going to be like so I can only take so much at a time. Im just

> >starting on this end, Monday Im suppose to go into the hospital for a

> >liver bio which im scared to death just thinking of it. I have not

> >been to a doctor in over 30 years hence the long period to find the

> >HCV. Just the thought of this simple test so they say makes me

> >ill...Silly I guess so, Im sure many are saying just wait till it

> >starts. The Doctor keeps sharing a little bit more each time I come. I

> >was in denial for six months before I could even face the fact I had

> >it. Now im talking treatment but each day I can barely wrap my mind

> >around this...First he says oh you will have shots for one year then

> >the next visit oh by the way I will teach you how to give yourself

> >shots.What?...I dont know what questions to ask him, im a mess. I can

> >only imagine what it will be like once I start the tx if i even decide

> >too. Anyway thanks for letting me share. I will be lurking and

> >reading. I cant believe my life changed so drastically over night. Im

> >usually a very up beat person....

> >

> >God Bless,

> >

> >Steve in California.

> >K6NNN@...

>

[Guest guest]

Hi SuZie ,

I am pleased to meet you.

Thanks for the info and I checked out some of the sites you posted

earlier today which were right on time for me. Yes ive been reading so

much lately my sponge is over flowing and cant take anymore right now :-)

I can see there are a lot of great folks on these newsgroups and I

look forward to learning as much as I can.

I saw on one group where someone posted the abv. you folks use here

that I need to find. Like TX=treatement.

Thanks for your encouragement. it has enlightened me :-)

oh I can not spell worth a darn, If I dont have a spell checker I

usually dont worry about it and hope others wont either.

God Bless,

Steve <><

> Hi everyone,

>

> My name is Steve and Im 55 years old and was just told Ive got HCV

> which I probably contracted in 1960's. Boy what a shocker to say the

> least.

> Anyway Ive been known to ramble so I will try and keep this short.Ive

> subscribed to all the hep C groups and have been trying to read a few

> of the posts but get pretty depressed just reading what the tx is

> going to be like so I can only take so much at a time. Im just

> starting on this end, Monday Im suppose to go into the hospital for a

> liver bio which im scared to death just thinking of it. I have not

> been to a doctor in over 30 years hence the long period to find the

> HCV. Just the thought of this simple test so they say makes me

> ill...Silly I guess so, Im sure many are saying just wait till it

> starts. The Doctor keeps sharing a little bit more each time I come. I

> was in denial for six months before I could even face the fact I had

> it. Now im talking treatment but each day I can barely wrap my mind

> around this...First he says oh you will have shots for one year then

> the next visit oh by the way I will teach you how to give yourself

> shots.What?...I dont know what questions to ask him, im a mess. I can

> only imagine what it will be like once I start the tx if i even decide

> too. Anyway thanks for letting me share. I will be lurking and

> reading. I cant believe my life changed so drastically over night. Im

> usually a very up beat person....

>

> God Bless,

>

> Steve in California.

> K6NNN@...

>

>

>

>

>

>

> Next time I'm coming back as a cat

>

[Guest guest]

Hi, Steve. I'm VickieG. age, 58 until July. geno type 1b, started treatment the last week of June last year. I just took shot # 36 last Tuesday and will take shot 48 on May 26th, I think. Giving yourself the shot is not that bad. It is done with the small needle and goes into the body fat. depending on your weight, you will take either five or six pills a day. All the sides of treatment (tx) are listed, but you may or may not get them. It depends on your body and on going problems. Don't let that list rob you of treatment. Don't sweat the sides. Just take the treatment one day at a time. Understanding the sides that may occur, will help you understand if treatment is going ok or not. Or, if you need to call

the dr. for advise or other meds. You are in a good group here. You are not alone. Lurk or participate. It's up to you. You may want to talk at times and lurk at others. That's ok. Rely on your new friends here to help you through this battle you are about to begin. Hugs, VickieG

New to group

Hi everyone,My name is Steve and Im 55 years old and was just told Ive got HCVwhich I probably contracted in 1960's. Boy what a shocker to say theleast.Anyway Ive been known to ramble so I will try and keep this short.Ivesubscribed to all the hep C groups and have been trying to read a fewof the posts but get pretty depressed just reading what the tx isgoing to be like so I can only take so much at a time. Im juststarting on this end, Monday Im suppose to go into the hospital for aliver bio which im scared to death just thinking of it. I have notbeen to a doctor in over 30 years hence the long period to find theHCV. Just the thought of this simple test so they say makes meill...Silly I guess so, Im sure many are saying just wait till itstarts. The Doctor keeps sharing a little bit more each time I come. Iwas in denial for six months before I could even face the fact I hadit. Now im

talking treatment but each day I can barely wrap my mindaround this...First he says oh you will have shots for one year thenthe next visit oh by the way I will teach you how to give yourselfshots.What?. ..I dont know what questions to ask him, im a mess. I canonly imagine what it will be like once I start the tx if i even decidetoo. Anyway thanks for letting me share. I will be lurking andreading. I cant believe my life changed so drastically over night. Imusually a very up beat person....God Bless,Steve in California.K6NNNhotmail (DOT) com

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Hi Vicky D and ,

Pleased to meet you both, thanks so much to everyone for the kind

words both privately and via the group. Its wonderful to have kind

caring people who understand my feelings and dont rag on me..

Blessings to all,

SteveM in sunny Manhattan Beach, Ca.

>

> Hi, Steve. I'm VickieG. age, 58 until July. geno type 1b, started

treatment the last week of June last year. I just took shot # 36 last

Tuesday and will take shot 48 on May 26th, I think. Giving yourself

the shot is not that bad. It is done with the small needle and goes

into the body fat. depending on your weight, you will take either

five or six pills a day. All the sides of treatment (tx) are listed,

but you may or may not get them. It depends on your body and on going

problems. Don't let that list rob you of treatment. Don't sweat the

sides. Just take the treatment one day at a time. Understanding the

sides that may occur, will help you understand if treatment is going

ok or not. Or, if you need to call the dr. for advise or other meds.

You are in a good group here. You are not alone. Lurk or

participate. It's up to you. You may want to talk at times and lurk

at others. That's ok. Rely on your new friends here to help you through

> this battle you are about to begin. Hugs, VickieG

>

>

>

> New to group

>

> Hi everyone,

>

> My name is Steve and Im 55 years old and was just told Ive got HCV

> which I probably contracted in 1960's. Boy what a shocker to say the

> least.

> Anyway Ive been known to ramble so I will try and keep this short.Ive

> subscribed to all the hep C groups and have been trying to read a few

> of the posts but get pretty depressed just reading what the tx is

> going to be like so I can only take so much at a time. Im just

> starting on this end, Monday Im suppose to go into the hospital for a

> liver bio which im scared to death just thinking of it. I have not

> been to a doctor in over 30 years hence the long period to find the

> HCV. Just the thought of this simple test so they say makes me

> ill...Silly I guess so, Im sure many are saying just wait till it

> starts. The Doctor keeps sharing a little bit more each time I come. I

> was in denial for six months before I could even face the fact I had

> it. Now im talking treatment but each day I can barely wrap my mind

> around this...First he says oh you will have shots for one year then

> the next visit oh by the way I will teach you how to give yourself

> shots.What?. ..I dont know what questions to ask him, im a mess. I can

> only imagine what it will be like once I start the tx if i even decide

> too. Anyway thanks for letting me share. I will be lurking and

> reading. I cant believe my life changed so drastically over night. Im

> usually a very up beat person....

>

> God Bless,

>

> Steve in California.

> K6NNNhotmail (DOT) com

>

>

>

>

>

>

________________________________________________________________________________\

____

> Looking for last minute shopping deals?

> Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

>

[Guest guest]

Hi Steve,

I'm Kim T. I'm 50 yrs old and I've just passed wk 24 of 48 wks of

treatment for type 1b. I've had to all but quit work because of side

effects. Welcome to our group. Whatever you find out or choose to do,

I think you'll find very helpful people here. Good luck.

Kim T.

[Guest guest]

Hi Steve,My name is L, You will like this group lot's of nice people and great imformation TX is different for everyone.and it's nice to have someone to talk to about this . I have had HCV since 1997 and I'am 64. God Bless ln6tt wrote: Hi everyone,My name is Steve and Im 55 years old and was just told Ive got HCVwhich I probably contracted in 1960's. Boy what a shocker to say theleast.Anyway Ive been known to ramble so I will try and keep this short.Ivesubscribed to all the hep C groups and have

been trying to read a fewof the posts but get pretty depressed just reading what the tx isgoing to be like so I can only take so much at a time. Im juststarting on this end, Monday Im suppose to go into the hospital for aliver bio which im scared to death just thinking of it. I have notbeen to a doctor in over 30 years hence the long period to find theHCV. Just the thought of this simple test so they say makes meill...Silly I guess so, Im sure many are saying just wait till itstarts. The Doctor keeps sharing a little bit more each time I come. Iwas in denial for six months before I could even face the fact I hadit. Now im talking treatment but each day I can barely wrap my mindaround this...First he says oh you will have shots for one year thenthe next visit oh by the way I will teach you how to give yourselfshots.What?...I dont know what questions to ask him, im a mess. I canonly imagine what it will be like

once I start the tx if i even decidetoo. Anyway thanks for letting me share. I will be lurking andreading. I cant believe my life changed so drastically over night. Imusually a very up beat person....God Bless,Steve in California.K6NNNhotmailLINDA

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Hi Kim T., Im pleased to meet you but sorry under these circumstances.

Well ive heard many folks have had to quit there jobs while on tx. Im

blessed there were I own a Environmental Company and Im semi retired

and was just about ready for retirement. It looks like I will probably

be starting the tx soon after my bio on Monday. I spoke with the

hospital yesterday and see Im worrying about nothing here but the fear

of the unknown I guess. Im not sure what type I have but believe he

said geno 1 and id need one year of tx. I will make sure to start

getting copies of everything now. Thanks for your note Kim, I will be

Praying for you. Have a good day,

God Bless,

Steve in Ca.

>

> Hi Steve,

> I'm Kim T. I'm 50 yrs old and I've just passed wk 24 of 48 wks of

> treatment for type 1b. I've had to all but quit work because of side

> effects. Welcome to our group. Whatever you find out or choose to do,

> I think you'll find very helpful people here. Good luck.

> Kim T.

>

[Guest guest]

Sorry I thought you were already on treatment,so your symptoms could be from a flare up of your liver.Get the doctor to check your liver function with bloodwork.I always knew when my liver was flaring by how I felt and was always right and had the bloodwork done.

Gail

-----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of DoyleSent: February 28, 2008 7:20 AMTo: HepatitisCSupportGroupForDummies Subject: Re: New to groupHi Steve I am D I have genotype 2 and start treatment next week o march 7th. Nice to meet youn6tt wrote:

Hi everyone,My name is Steve and Im 55 years old and was just told Ive got HCVwhich I probably contracted in 1960's. Boy what a shocker to say theleast.Anyway Ive been known to ramble so I will try and keep this short.Ivesubscribed to all the hep C groups and have been trying to read a fewof the posts but get pretty depressed just reading what the tx isgoing to be like so I can only take so much at a time. Im juststarting on this end, Monday Im suppose to go into the hospital for aliver bio which im scared to death just thinking of it. I have notbeen to a doctor in over 30 years hence the long period to find theHCV. Just the thought of this simple test so they say makes meill...Silly I guess so, Im sure many are saying just wait till itstarts. The Doctor keeps sharing a little bit more each time I come. Iwas in denial for six months before I could even face the fact I hadit. Now im talking treatment but each day I can barely wrap my mindaround this...First he says oh you will have shots for one year thenthe next visit oh by the way I will teach you how to give yourselfshots.What?...I dont know what questions to ask him, im a mess. I canonly imagine what it will be like once I start the tx if i even decidetoo. Anyway thanks for letting me share. I will be lurking andreading. I cant believe my life changed so drastically over night. Imusually a very up beat person....God Bless,Steve in California.K6NNNhotmail

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Hi Steve,

With regards to the biopsy, I pictured it being a slice like they could

put on a micrope slipe but instead cells that they pull up in a

syringe. They they good care of you, and you aren't alone. I felt

pampered, and they gave good drugs.

Keep us informed. Good Luck.

Kim T.

[Guest guest]

Hi ,

and what a lucky little girl. What’s her name? And I almost forgot…

Welcome! We’ve lots of info in our files section and many people willing

to help as we can. We don’t know much about the virus in children. I

suspect this will be a learning process for all of us.

Llinda

From:

HepatitisCSupportGroupForDummies

[mailto:HepatitisCSupportGroupForDummies ] On Behalf Of

Sent: Friday, May 02, 2008 4:52 AM

To: HepatitisCSupportGroupForDummies

Subject: new to group

Hi everyone, I am new to the group. I recently

adopted and infant

from Vietnam with HIV antibodies and Hep C that was very active. Since

being home almost a year the HIV antibodies are gone and the Hep C

viral load is decreasing. I look forward to the advice and support as

we must wait to start interferon untill she is 4 years old. Thanks

again,

[Guest guest]

Welcome .I know that for the past few years they have been treating children,but have no idea how that is going.Please keep us informed on what the doctor says.I imagine the syptoms are similar as an adult,but I find children bounce better then adults.Welcome to our group,this will be a learning experience for us too.Adults I know have to drink a gallon of water or liquids a day to help wash out the toxins while on treatment.Check with the specialist what quanity they have to drink to help flush them out while on treatment and help her get used to it in advance to treatment.With us anything in vitamins with iron in it is a no no,so if she is on childrens vitamins etc,leave out the iron.

Gail

-----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of LlindaSent: May 2, 2008 8:15 AMTo: HepatitisCSupportGroupForDummies Subject: RE: new to group

Hi , and what a lucky little girl. What’s her name? And I almost forgot… Welcome! We’ve lots of info in our files section and many people willing to help as we can. We don’t know much about the virus in children. I suspect this will be a learning process for all of us.

Llinda

From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of Sent: Friday, May 02, 2008 4:52 AMTo: HepatitisCSupportGroupForDummies Subject: new to group

Hi everyone, I am new to the group. I recently adopted and infant from Vietnam with HIV antibodies and Hep C that was very active. Since being home almost a year the HIV antibodies are gone and the Hep C viral load is decreasing. I look forward to the advice and support as we must wait to start interferon untill she is 4 years old. Thanks again,

[Guest guest]

Welcome,

. I don’t want to be discouraging, but we don’t know much

about Hep C in babies. We are an adult group and all did treatment (tx) as

adults. But we’ll support you the best we can.

Suppose you were an

idiot. And suppose you were a member of Congress.... But then I

repeat myself.

-Mark Twain

new to

group

Hi everyone, I am new to

the group. I recently adopted and infant

from Vietnam with HIV antibodies and Hep C that was very active. Since

being home almost a year the HIV antibodies are gone and the Hep C

viral load is decreasing. I look forward to the advice and support as

we must wait to start interferon untill she is 4 years old. Thanks

again,

[Guest guest]

-Thanks for the welcome. Her name is Lillian. We are very fortunate

to have a very good and attentive pediatric gastro that has alot of

experience with kids born with Hep C. She is confident we can get

her " cured " She has genotype 6 which I understand is rare. Only

found in Vietnam, Hong Kong, and Macau. They are giving us a

statistic of over 80 % for a cure. But even if the drugs don't work

the kids born with it seem to fare better in the long run than

others who contract it later in life. I'm an RN but have been

learning a tremendous amount about Hep C now that I never knew

before. We have experienced some negativity from family members and

I'm wondering if any of you have been outcasted due to others

ignorance. My husband and I do truly appreciate the support this

group has to offer as well. I'm glad we found you.

-- In HepatitisCSupportGroupForDummies , Llinda

wrote:

>

> Hi , and what a lucky little girl. What's her name? And I

almost

> forgot. Welcome! We've lots of info in our files section and many

people

> willing to help as we can. We don't know much about the virus in

children. I

> suspect this will be a learning process for all of us.

>

> Llinda

>

>

>

> From: HepatitisCSupportGroupForDummies

> [mailto:HepatitisCSupportGroupForDummies ] On

Behalf Of

> Sent: Friday, May 02, 2008 4:52 AM

> To: HepatitisCSupportGroupForDummies

> Subject: new to group

>

>

>

> Hi everyone, I am new to the group. I recently adopted and infant

> from Vietnam with HIV antibodies and Hep C that was very active.

Since

> being home almost a year the HIV antibodies are gone and the Hep C

> viral load is decreasing. I look forward to the advice and support

as

> we must wait to start interferon untill she is 4 years old. Thanks

> again,

>

[Guest guest]

I

haven’t personally experienced any out casting, but there are plenty here

who can share their experiences with you. I’m so glad you have a good

doctor.

Suppose you were an

idiot. And suppose you were a member of Congress.... But then I

repeat myself.

-Mark Twain

new to group

>

>

>

> Hi everyone, I am new to the group. I recently adopted and infant

> from Vietnam with HIV antibodies and Hep C that was very active.

Since

> being home almost a year the HIV antibodies are gone and the Hep C

> viral load is decreasing. I look forward to the advice and support

as

> we must wait to start interferon untill she is 4 years old. Thanks

> again,

>

[Guest guest]

Hi, I am SHaron, age 65. I have treated twice, this time I'm in SVR (remission) for a year now. Treatment was hard for me, but not as hard as it was for others who have taken this treatment. I was sick enough for me. It took about 3 months after treatment both times to begin to feel normal again for me. I now have a great deal more energy and stamina than I've had since getting this disease in my thirties, so that's saying a lot. I have even gone back to work to fill some of my time. I recommend treating, but I am speaking from my experience. It's an individual thing and not all people come through it unscathed, for sure. If your doctor is pressing for treatment, I'd sure listen to him.I think most of the people who have treated feel better after a period of time allowing for the drugs to leave the body, it's only a few who have greater problems after tx You just can't know what will happen for YOU until you try. Nothing ventured, nothing gained is my motto here.New drugs are being tested all the time and one is sure to be released in the near future. If your damage is not great, you can afford to wait. It's my understanding, tho that Hep C victims are at greater risk of liver cancer as well as further damage from the virus. Sharon in NW WashingtonKnitting is...time and love made tangible. Alison HydeHi,I am new to the group too. I was diagnosed with Hep C Genotype 1, 5 years ago. I had a liver biopsy then that showed I was in stage 1. My viral load has always been in the thousands but the last time I had it checked it was in the low millions. I have watched several of my friends undergo treatment in the last couple of years and to be honest, after seeing them go through I am scared to do it myself. Part of me wonders is I would be able to live a normal life if I never do treatment. Another part of me wonders if there is a better drug around the corner that may come out that will be easier on the body. I have a 6 year old child and I am a very active mom and I don't have any symptoms or feel bad. I work full time and I don't want to give up my quality of life as it currently is. A big thing that scares me about treatment is that many people tell me that you never feel the same after completing it. That treatment brings out other health issues. So I wonder is all worth it. I also wonder if I was at a stage 1 5 years ago, could it be much worse? My doctor is pressuring me to start treatment and I just keep procrastinating. I am also scared that if I don't treat that I may not be around to watch my child grew up or see my grandchildren. Can anyone offer me any insight? I guess what I really need to hear is people tell me that the side effects weren't too bad and that they were back to normal after treatment ended.- Ro

[Guest guest]

Hi,

Welcome to the Group!

It's really a matter of (YOUR) choice, personally I'd never let a doctor push

me to treatment without very just cause..

Treatment can be harsh, especially long for a Geneotype 1, and sides differ

from person to person... life does go on after treatment.

Some reach SVR, some do not..

You do need to be protecting your liver as much as you possible, though

until such time as you may decide to treat..

Especially, no alcohol and a good Milk Thistle..that helps with the inflammation..

Take care,

Sheena

Hi,I am new to the group too. I was diagnosed with Hep C Genotype 1, 5 years ago. I had a liver biopsy then that showed I was in stage 1. My viral load has always been in the thousands but the last time I had it checked it was in the low millions. I have watched several of my friends undergo treatment in the last couple of years and to be honest, after seeing them go through I am scared to do it myself. Part of me wonders is I would be able to live a normal life if I never do treatment. Another part of me wonders if there is a better drug around the corner that may come out that will be easier on the body. I have a 6 year old child and I am a very active mom and I don't have any symptoms or feel bad. I work full time and I don't want to give up my quality of life as it currently is. A big thing that scares me about treatment is that many people tell me that you never feel the same after

completing it. That treatment brings out other health issues. So I wonder is all worth it. I also wonder if I was at a stage 1 5 years ago, could it be much worse? My doctor is pressuring me to start treatment and I just keep procrastinating. I am also scared that if I don't treat that I may not be around to watch my child grew up or see my grandchildren. Can anyone offer me any insight? I guess what I really need to hear is people tell me that the side effects weren't too bad and that they were back to normal after treatment ended.- Ro> From: mikelittlesdca <jaemichaels07@ ...>> Subject: [Hepatitis_C_ Central] Finally Back ...> To: Hepatitis_C_ Central@yahoogro ups.com> Date: Wednesday, July 30, 2008, 7:46 AM> > > > > > > > > >

> > I was diagnosed as non-A/non-B in 1985 and diagnosed as Hep C+ in> > 2005, just turned 51 a few weeks back and finally made it into a> > doctor I trusted - just got a blood work phone call back yesterday,> > said I looked great for a 51 y/o with a hep c background for this> > long, however my viral load was just under 4 million and well within> > his guidelines for discussing PegaSys - which we're going to do next week.> > > > Here's the questions I've posed to my local community who have gone> > through treatment:> > > > What was your viral load when you started Rx?> > On a 1-10 scale, what was your health/quality of life?> > How long was your treatment?> > On that same 1-10 scale, how sick/miserable were you during treatment?>

> 1-10, How do you feel now?> > Given what you know now, would you do it as readily/quicker/ with more> > thought again?> > > > I'm a local title holder and very active in community service so I'm> > concerned about down time, however if I can feel better more often,> > contributing to a better quality of life overall than I have now, I> > think I'm ready to find out !> > > > Thanks for sharing,> > "Mr. Mike" - Mike Little> > Mr. San Diego Eagle 2008> > 1st Runner Up Mr. San Diego Leather 2007>

[Guest guest]

Can you you recommend a good Milk Thistle Product?

- a

> > From: mikelittlesdca <jaemichaels07@ ...>

> > Subject: [Hepatitis_C_ Central] Finally Back ...

> > To: Hepatitis_C_ Central@yahoogro ups.com

> > Date: Wednesday, July 30, 2008, 7:46 AM

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > I was diagnosed as non-A/non-B in 1985 and diagnosed

> as Hep C+ in

> >

> > 2005, just turned 51 a few weeks back and finally made it into a

> >

> > doctor I trusted - just got a blood work phone call back

yesterday,

> >

> > said I looked great for a 51 y/o with a hep c background for this

> >

> > long, however my viral load was just under 4 million and well

> within

> >

> > his guidelines for discussing PegaSys - which we're going to do

> next week.

> >

> >

> >

> > Here's the questions I've posed to my local community who have

gone

> >

> > through treatment:

> >

> >

> >

> > What was your viral load when you started Rx?

> >

> > On a 1-10 scale, what was your health/quality of life?

> >

> > How long was your treatment?

> >

> > On that same 1-10 scale, how sick/miserable were you during

> treatment?

> >

> > 1-10, How do you feel now?

> >

> > Given what you know now, would you do it as readily/quicker/ with

> more

> >

> > thought again?

> >

> >

> >

> > I'm a local title holder and very active in community service so

> I'm

> >

> > concerned about down time, however if I can feel better more

often,

> >

> > contributing to a better quality of life overall than I have now,

I

> >

> > think I'm ready to find out !

> >

> >

> >

> > Thanks for sharing,

> >

> > " Mr. Mike " - Mike Little

> >

> > Mr. San Diego Eagle 2008

> >

> > 1st Runner Up Mr. San Diego Leather 2007

> >

>

[Guest guest]

We typically dont recommend any specific brand,but what I will say is that I know of two formulations that are good, 1. Maximum Milk Thistle and 2. Liver Essentials from Unicity. These two forumulations are Silipho bound milk thistle which has proven to be 10 times more effective than simple silymarin.. You should be able to speak to someone at any health food store who can make sure you get a brand that IS siliphos- bound. I will email a very good article about milk thistle to you via your email addy..JackieSubject: Re: New To GroupTo:

Hepatitis_C_Central Date: Friday, August 1, 2008, 6:51 PM

Can you you recommend a good Milk Thistle Product?

- a

> > From: mikelittlesdca <jaemichaels07@ ...>

> > Subject: [Hepatitis_C_ Central] Finally Back ...

> > To: Hepatitis_C_ Central@yahoogro ups.com

> > Date: Wednesday, July 30, 2008, 7:46 AM

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > I was diagnosed as non-A/non-B in 1985 and diagnosed

> as Hep C+ in

> >

> > 2005, just turned 51 a few weeks back and finally made it into a

> >

> > doctor I trusted - just got a blood work phone call back

yesterday,

> >

> > said I looked great for a 51 y/o with a hep c background for this

> >

> > long, however my viral load was just under 4 million and well

> within

> >

> > his guidelines for discussing PegaSys - which we're going to do

> next week.

> >

> >

> >

> > Here's the questions I've posed to my local community who have

gone

> >

> > through treatment:

> >

> >

> >

> > What was your viral load when you started Rx?

> >

> > On a 1-10 scale, what was your health/quality of life?

> >

> > How long was your treatment?

> >

> > On that same 1-10 scale, how sick/miserable were you during

> treatment?

> >

> > 1-10, How do you feel now?

> >

> > Given what you know now, would you do it as readily/quicker/ with

> more

> >

> > thought again?

> >

> >

> >

> > I'm a local title holder and very active in community service so

> I'm

> >

> > concerned about down time, however if I can feel better more

often,

> >

> > contributing to a better quality of life overall than I have now,

I

> >

> > think I'm ready to find out !

> >

> >

> >

> > Thanks for sharing,

> >

> > "Mr. Mike" - Mike Little

> >

> > Mr. San Diego Eagle 2008

> >

> > 1st Runner Up Mr. San Diego Leather 2007

> >

>

[Guest guest]

Okay, so the boss lady can list brands..I am glad, was worried as

Milk Thistle IS important..

From: harveyzumba <robertaglick@ hotmail.com>Subject: [Hepatitis_C_ Central] Re: New To GroupTo: Hepatitis_C_ Central@yahoogro ups.comDate: Friday, August 1, 2008, 6:51 PM

Can you you recommend a good Milk Thistle Product?- a> > From: mikelittlesdca <jaemichaels07@ ...>> > Subject: [Hepatitis_C_ Central] Finally Back ...> > To: Hepatitis_C_ Central@yahoogro ups.com> > Date: Wednesday, July 30, 2008, 7:46 AM> > > > > > > > > > > > > > > > > > > > > > > > I was diagnosed as non-A/non-B in 1985 and diagnosed > as Hep C+ in>

> > > 2005, just turned 51 a few weeks back and finally made it into a> > > > doctor I trusted - just got a blood work phone call back yesterday,> > > > said I looked great for a 51 y/o with a hep c background for this> > > > long, however my viral load was just under 4 million and well > within> > > > his guidelines for discussing PegaSys - which we're going to do > next week.> > > > > > > > Here's the questions I've posed to my local community who have gone> > > > through treatment:> > > > > > > > What was your viral load when you started Rx?> > > > On a 1-10 scale, what was your health/quality of life?> > > > How long was your treatment?> > > > On that same 1-10 scale, how

sick/miserable were you during > treatment?> > > > 1-10, How do you feel now?> > > > Given what you know now, would you do it as readily/quicker/ with > more> > > > thought again?> > > > > > > > I'm a local title holder and very active in community service so > I'm> > > > concerned about down time, however if I can feel better more often,> > > > contributing to a better quality of life overall than I have now, I> > > > think I'm ready to find out !> > > > > > > > Thanks for sharing,> > > > "Mr. Mike" - Mike Little> > > > Mr. San Diego Eagle 2008> > > > 1st Runner Up Mr. San Diego Leather 2007>

>>

[Guest guest]

Dahlin,, Im not the bossman,, I just knew of two brands that ARE siliphos bound, I know that there are others out there and hopefully someone will list them,, I think that Source Naturals might have one too..Jackie

From: harveyzumba <robertaglick@ hotmail.com>Subject: [Hepatitis_C_ Central] Re: New To GroupTo: Hepatitis_C_ Central@yahoogro ups.comDate: Friday, August 1, 2008, 6:51 PM

Can you you recommend a good Milk Thistle Product?- a> > From: mikelittlesdca <jaemichaels07@ ...>> > Subject: [Hepatitis_C_ Central] Finally Back ...> > To: Hepatitis_C_ Central@yahoogro ups.com> > Date: Wednesday, July 30, 2008, 7:46 AM> > > > > > > > > > > > > > > > > > > > > > > > I was diagnosed as non-A/non-B in 1985 and diagnosed > as Hep C+ in>

> > > 2005, just turned 51 a few weeks back and finally made it into a> > > > doctor I trusted - just got a blood work phone call back yesterday,> > > > said I looked great for a 51 y/o with a hep c background for this> > > > long, however my viral load was just under 4 million and well > within> > > > his guidelines for discussing PegaSys - which we're going to do > next week.> > > > > > > > Here's the questions I've posed to my local community who have gone> > > > through treatment:> > > > > > > > What was your viral load when you started Rx?> > > > On a 1-10 scale, what was your health/quality of life?> > > > How long was your treatment?> > > > On that same 1-10 scale, how

sick/miserable were you during > treatment?> > > > 1-10, How do you feel now?> > > > Given what you know now, would you do it as readily/quicker/ with > more> > > > thought again?> > > > > > > > I'm a local title holder and very active in community service so > I'm> > > > concerned about down time, however if I can feel better more often,> > > > contributing to a better quality of life overall than I have now, I> > > > think I'm ready to find out !> > > > > > > > Thanks for sharing,> > > > "Mr. Mike" - Mike Little> > > > Mr. San Diego Eagle 2008> > > > 1st Runner Up Mr. San Diego Leather 2007>

>>