new to group

August 1, 2008

E-mails crossed, I am not even going there again..

I take a very good one, you take a very good one.

Anyone free to e-mail me privately and I will

sing like a bird..

As you know, I am taking aplenty of Supplements UNTIL

I can treat again..

Sheena

From: harveyzumba <robertaglick@ hotmail.com>Subject: [Hepatitis_C_ Central] Re: New To GroupTo: Hepatitis_C_ Central@yahoogro ups.comDate: Friday, August 1, 2008, 6:51 PM

Can you you recommend a good Milk Thistle Product?- a> > From: mikelittlesdca <jaemichaels07@ ...>> > Subject: [Hepatitis_C_ Central] Finally Back ...> > To: Hepatitis_C_ Central@yahoogro ups.com> > Date: Wednesday, July 30, 2008, 7:46 AM> > > > > > > > > > > > > > > > > > > > > > > > I was diagnosed as non-A/non-B in 1985 and diagnosed > as Hep C+ in>

> > > 2005, just turned 51 a few weeks back and finally made it into a> > > > doctor I trusted - just got a blood work phone call back yesterday,> > > > said I looked great for a 51 y/o with a hep c background for this> > > > long, however my viral load was just under 4 million and well > within> > > > his guidelines for discussing PegaSys - which we're going to do > next week.> > > > > > > > Here's the questions I've posed to my local community who have gone> > > > through treatment:> > > > > > > > What was your viral load when you started Rx?> > > > On a 1-10 scale, what was your health/quality of life?> > > > How long was your treatment?> > > > On that same 1-10 scale, how

sick/miserable were you during > treatment?> > > > 1-10, How do you feel now?> > > > Given what you know now, would you do it as readily/quicker/ with > more> > > > thought again?> > > > > > > > I'm a local title holder and very active in community service so > I'm> > > > concerned about down time, however if I can feel better more often,> > > > contributing to a better quality of life overall than I have now, I> > > > think I'm ready to find out !> > > > > > > > Thanks for sharing,> > > > "Mr. Mike" - Mike Little> > > > Mr. San Diego Eagle 2008> > > > 1st Runner Up Mr. San Diego Leather 2007>

>>

August 2, 2008

Hi a,

I've had Hep C 40+ yrs. I chose not to treat---my age at diagnosis (64)and that my disease had not progressed rapidly. I am going to be 74 this month. But, the disease seems to do what it wants and how it wants and affects different people differently. There is a very good online book concerning Hep C that has a great chapter on nutritional supplements Chapter 16. http://www.hepcchallenge.org/choices/supplements.htm I have started with the supplements and am feeling better--not that I felt really bad before--just old and tired a lot. I vow to stay faithful to my supplements for a year and celebrate my 75th birthday with another biopsy. My supplements cost around $70.00 a month for everything. I do not take herbs except milk thistle---some are dangerous. I take vitamins and anti-oxidants. I just read an article on the net about an

herb supplement that had more fatalities than if you took nothing. I cannot name the name, but, as with others, will share the info if you email direct. I need to look up that article and post it.

There are some new treatments coming up that seem to have less side effects and better results than the current treatment. Doctors often do not read the many articles out there concerning new treatment and alternative treatment. The choice to treat or not treat is yours and your doc will not be the one going thru the side effects and there is no guarantee that you can complete treatment or will reach SVR or will not relapse. It is an individual choice that each of us must make and the more info you have, the more informed choice you can make. The disease is slow moving normally---and, of course, NO alcohol. I, also, ask about ANY prescribed med that I take to see if it will affect my liver and have for years.

I only take the supplements as I do not seem to have any other disease.

Hope this helps SuziQ

Quinn

In the swamp in secluded recesses, a shy and hidden bird is warbling a song. Walt Whitman

August 2, 2008

Great post, , thank you for sharing those thoughts.

The research is certainly out there..

As a disclaimer, I must say that Supplements can

NOT cure, only conventional treatment or spontaneity

can help one to reach SVR., but it seems for some,

they can and do keep their dragon in check for a time.

Quality of life can be improved in some, while they decide

on treatment, but if you do go that way, also always best

to stay under the care of a MD.

I am doing both. while I wait for the new treatment that's

in Phase 3 clinical trials.

IF you have the option of waiting, it may be approved

by 2011. If you do not, may be best to try now..

Treatment does take a big strain off of your liver for a time,

whether your reach SVR, or not,

Be Well,

Sheena

Hi a,

I've had Hep C 40+ yrs. I chose not to treat---my age at diagnosis (64)and that my disease had not progressed rapidly. I am going to be 74 this month. But, the disease seems to do what it wants and how it wants and affects different people differently. There is a very good online book concerning Hep C that has a great chapter on nutritional supplements Chapter 16. http://www.hepcchal lenge.org/ choices/suppleme nts.htm I have started with the supplements and am feeling better--not that I felt really bad before--just old and tired a lot. I vow to stay faithful to my supplements for a year and celebrate my 75th birthday with another biopsy. My supplements cost around $70.00 a month for everything. I do not take herbs except milk thistle---some are dangerous. I take vitamins and anti-oxidants. I just read

an article on the net about an herb supplement that had more fatalities than if you took nothing. I cannot name the name, but, as with others, will share the info if you email direct. I need to look up that article and post it.

There are some new treatments coming up that seem to have less side effects and better results than the current treatment. Doctors often do not read the many articles out there concerning new treatment and alternative treatment. The choice to treat or not treat is yours and your doc will not be the one going thru the side effects and there is no guarantee that you can complete treatment or will reach SVR or will not relapse. It is an individual choice that each of us must make and the more info you have, the more informed choice you can make. The disease is slow moving normally---and, of course, NO alcohol. I, also, ask about ANY prescribed med that I take to see if it will affect my liver and have for years.

I only take the supplements as I do not seem to have any other disease.

Hope this helps SuziQ

Quinn

In the swamp in secluded recesses, a shy and hidden bird is warbling a song. Walt Whitman

August 2, 2008

Hi Ro

Welcome to the group. This is a great place to get information. I

sometimes think we all live on the computer looking for the answer and

I don't think there is one answer. I think how you decide to treat

yourself comes down to each individual, how the disease is affecting

your life, your situation, family, friends, finances heck your whole

life and what you want. I too have a daughter and that is my main

concern, to see her grow into an adult that can survive this world and

get out of it what she wants and deserves. Mine is almost there.

Well I think so most the time. I've never been one for doctors and

now I've got 3. a gi specialist, my primary and a naturopath. I've

changed my life style, eating habits and stress levels. And I am

still working on these. I think you just need to keep moving

forward. I find the most up to date info or links to here. You can

ask any question to the group that you are wondering about. I get

armed here with info and questions which I bring to my doctor before

making any decisions. I have not treated but I did not have to make

that choice so cannot help you there. Glad you found this group and

welcome.

Debbie

August 2, 2008

SuziI would very much like to hear about the supplements you have spoken of, the ones that are very dangerous, please email me off the list and send me this info,thanksJackieSubject: Re: New To GroupTo: Hepatitis_C_Central Date: Saturday, August 2, 2008, 5:57 AM

Hi a,

I've had Hep C 40+ yrs. I chose not to treat---my age at diagnosis (64)and that my disease had not progressed rapidly. I am going to be 74 this month. But, the disease seems to do what it wants and how it wants and affects different people differently. There is a very good online book concerning Hep C that has a great chapter on nutritional supplements Chapter 16. http://www.hepcchal lenge.org/ choices/suppleme nts.htm I have started with the supplements and am feeling better--not that I felt really bad before--just old and tired a lot. I vow to stay faithful to my supplements for a year and celebrate my 75th birthday with another biopsy. My supplements cost around $70.00 a month for everything. I do not take herbs except milk thistle---some are dangerous. I take vitamins and anti-oxidants. I just

read an article on the net about an

herb supplement that had more fatalities than if you took nothing. I cannot name the name, but, as with others, will share the info if you email direct. I need to look up that article and post it.

There are some new treatments coming up that seem to have less side effects and better results than the current treatment. Doctors often do not read the many articles out there concerning new treatment and alternative treatment. The choice to treat or not treat is yours and your doc will not be the one going thru the side effects and there is no guarantee that you can complete treatment or will reach SVR or will not relapse. It is an individual choice that each of us must make and the more info you have, the more informed choice you can make. The disease is slow moving normally---and, of course, NO alcohol. I, also, ask about ANY prescribed med that I take to see if it will affect my liver and have for years.

I only take the supplements as I do not seem to have any other disease.

Hope this helps SuziQ

Quinn

In the swamp in secluded recesses, a shy and hidden bird is warbling a song. Walt Whitman

December 4, 2008

Hello everyone. My name is Shana. I have four kids and my oldest who is

9 has OCD. His rituals are making the entire family crazy and I just

want to help him. It seems his OCD has gotten better over the last

year, but it still interfers with life. His rituals include: going in

and out of doors the exact same way everytime, going around people in a

certain order, only wearing certain socks and even those sometimes bug

him. He's picky about his shoes. And he will only wear athletic pants

with certain pockets. The clothes thing is driving me crazy because it

seems like everything I buy for him he won't wear. It also makes him

late for school because he has a hard time getting dressed in the

morning. He hoards things, has number rituals, good and bad numbers. It

seems like his brain never shuts off. I'm sure there are many more that

I can't think of right now. My husband and I first just thought he was

being defiant until we realized that something else was going on. He

was seeing a mental health specialist but she really wasn't helping so

we stopped going. I know he needs some kind of help before he goes

crazy or we do. Any advice would be appreciated.

December 4, 2008

HI Shana... welcome

My daughter was diagnosed last August and we are still learning to navigate this

stuff! This group has been a life saver for me. There are many knowledgeable

parents here.

These two books also helped me in the beginning to understand OCD, the right

treatment and also what I should be doing:

What to do when your Child has Obsessive-Compulsiv e Disorder by Aureen

Pinto Wagner Ph.D.

Freeing Your Child from Obsessive-Compulsiv e Disorder by Tamar E. Chansky

Again... welcome!

~~Kathy

gkathy40@...

http://www.myspace.com/clearingachannel

yahoo messenger id gkathy40@...

Courage is not living without fear.

Courage is being scared to death and doing the right thing anyway.

-Chae

Subject: new to group

To:

Date: Thursday, December 4, 2008, 6:44 PM