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Name:Barbara Giebel

Email:Bgiebel@...

Birthdate:12/14/1964

Location:Oshkosh, WI

How long have you been diagnosed:Since 1989

What meds do you currently take:none

Employment (if any):work fulltime as a papermill worker

Family Life:2 children, daughter 18, and son 5, I had to get help to get

pregnant with him, husband 37

Hobbies:Well I love to sew, I play softball and have done so since I was 15, and

I am a Captain on a volunteer Fire Dept. and a First Responder, I played

volleyball up until I had my son, and now I am going back to school, hopeful to

become a nurse.

I know this sounds like I don't have Stills Desease, but I have had two

reaccurances since 1989, when I almost lost my life to it. I was prescribed to

take Ecotrin,(which is a high dose of asprin), and within two weeks, my body

shut down. I was rushed from the hospital I was in to Madison University

Hospital where through a process of elimination and alot of hard work on there

part, they came up with the Stills desease. My family went through the worst of

it because they all had to come in and say good-bye to me, and have the minister

give me my last rights. Some how I made a turn around, you see my liver shut

down, my kidneys shut down, and my lungs collapsed. My family was told there is

a very slim chance that I would recover and if I did there was a good chance I

would have some brain damage, due to the fact that they could not get me

breathing for a while. So here I am, I don't know why, but I'm sure I have more

to finish in this life, I just don't know what it is yet. As far as I know, I

don't have brain damage, but who really knows, I am a happy go lucky type of

person. I take each day as it comes, and always try to pick out the best of

every moment. MY FAVORITE SAYINGS, " Where one door closes, another one opens " ,

" Take each day and make the most of it "

So hello to everyone on here, I wish I could take your pain away, and remember

someone loves you. Barb

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  • 3 years later...

Hi I am Barbara from Kentucky I am the mom to vanessa(6) and (2)

has been diagnosed as OCD ADHD and many many others.WE have been undergoing

genetic testing for four years with no answers.I am hoping to meet otherparents

who deal with the same things we do so I can learn to be a better mom to my

special kids

BarbaraJennings

www.freewebs.com/hopeforvanessaandjacob

 

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