Re: Re: New member - Gail from Georgia

[Guest guest]

OK Gail,

After reading your message here, now I am really interested in talking with

you. Please get in touch with me. It sounds like has the same

rashes that has and the same kind of blood work. Please call me. IF

it would be long distance for you you can email me your number and I will

call you.

Re: File - PedPIDemaillist.txt

> >

> >

> > My 9 year old was diagnosed with PID a few months ago. He had his

> first

> > infusion less than three weeks ago and his IgG levels have already

> dropped

> > below normal. He has to get another infusion next week. They can't

> identify

> > the reason

> > he's not producing antibodies because he has T cells and B cells.

> They are

> > sending his blood to different research centers to try to find

> answers. I

> > just want to talk to other parents that go through what we are going

> > through. I want

> > to learn everything I can learn. He stayed so sick for two days

> after his

> > last infusion...I dread him going through this again.

> >

> > My name is Gail and I'm from GA. My son's name is and he's

> being

> > treated at the Medical College of GA.

> >

> > I just want to communicate with others that might make it easier to

> cope

> > with this disease.

> >

> > Thank you

> > Gail

>

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>