RE: Questions, Questions, Questions!!!

[Guest guest]

Hi Sherry and welcome hon. I completely understand how you are feeling as will most if not all of the members here. I was diagnosed 3 years ago, was doing fine and then all of a sudden 4 years ago, it seemed to hit me all at once. In answer to your questions,

Have you found you cannot work: I can't work and am in the process of applying for disability. I do know many people tho' who work full-time.Have you found that has affected your teeth: Yes, I've always taken good care of my teeth but I notice lately that some are loose.Have you found you have loss interest in things you used to enjoy: I did at first but I put my symptoms for this down to depression, I am on my way out of the depression tunnel with the light becoming brighter every day. I'm also enjoying life again.Have you found that you maybe depressed or personality has changed: Definitely, but I'm on anti-depressants now so that has changed for the most part.Has your vision changed: Yes, but I was told that was because of the diabeties that I was diagnosed with in 09/2007.Do you ever feel disoriented or displaced (if you will): At times, in the beginning.Do you feel like you could sleep, sleep sleep: Yes, but then I couldn't sleep so now I take a sleeping aid.Do you have any problems with your legs? I don't but lots of people do.

I hope this helps.... many others will be able to help with more information hon.

There is lots of information out there, remember that we are all here for support and companionship. The mods here and members are full of information and can help you more than I can. We are all different and our symptoms are different. If you ever need to talk, my yahoo id is gingercakes2000 and my facebook name is Anya Schell... please add me if you like. That goes for everyone too.

~~~~~~~~~~~~~~~DameAnyaBest Friends are the siblings Goddidn't have room in our families to give us.Ciao, Bella~~ p.s. The body of this email is written inBrockScript. If you don't have this font,it is attached for your convience.

----- Original Message -----

From: Sherry Ulrich

HI Everyone, Okay this is gonna be a long post, but you all told me to bring on my questions - so here we go. I found out Aug 06 that I have HEP C. As everyone, first question is HOW. Well, after many questions from my doctor,he says I got in 1957 through a blood transfustion. 48 yrs before I notice???? Prior to getting tested, I had been having problems for a good year. Headaches, terrible fatigue, memory loss, bad vision, panic attack. Doctor tested me said I was postive and that's why I was having those problems. Moving up to now Jan 08 - have not started treatement - liver CT is clean - liver blood work has been normal. I have had to stop working as I can longer concentrete for any period of time. I get terribly tired in the afternoons. Vision getting worse. Absolutely cannot drive at night because of vision and tendency to have panic attacks. Okay, so my doctor recently retired and had to get a new doctor. Went to see him last week - he tells me that my fatigue, vision problems, etc ARE NOT because of the HEP C that there is something else wrong. Yet, all the doctors (3) that I had seen since Aug 06 say these are all side effects of HEP C. So my questions are is anyone else on the board experiencing what I am? I don't know what to think anymore. Have you found you cannot workHave you found that has affected your teethHave you found you have loss interest in things you used to enjoyHave you found that you maybe depressed or personality has changedHas your vision changedDo you ever feel disoriented or displaced (if you will)Do you feel like you could sleep, sleep sleepDo you have any problems with your legs? Well, I think that's enough for now. I am sure I will remember more that I have to ask- but right now that's all I can think of. Thank you so much for letting me post a STORY and thanks to all for listening. Sherry

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[Guest guest]

Sherry I have never really been able to focus on things but I now I get foggy and it makes me forget things because I am not focused when foggy. I understand the tired thing. I had been so tired for over a year. I thought it was due to working to hard fast paced jobs 12-14 hrs per day. Once I found out I had hep I stopped working so hard and am still very tired. It could be due to hep c or something else. Maybe its good to get checked for other things too. DSherry Ulrich wrote: HI

Everyone, Okay this is gonna be a long post, but you all told me to bring on my questions - so here we go. I found out Aug 06 that I have HEP C. As everyone, first question is HOW. Well, after many questions from my doctor,he says I got in 1957 through a blood transfustion. 48 yrs before I notice???? Prior to getting tested, I had been having problems for a good year. Headaches, terrible fatigue, memory loss, bad vision, panic attack. Doctor tested me said I was postive and that's why I was having those problems. Moving up to now Jan 08 - have not started treatement - liver CT is clean - liver blood work has been normal. I have had to stop working as I can longer concentrete for any period of time. I get terribly tired in the afternoons. Vision getting worse. Absolutely cannot drive at night because of vision and tendency to have panic attacks. Okay, so my doctor recently retired and had to get a new doctor. Went to

see him last week - he tells me that my fatigue, vision problems, etc ARE NOT because of the HEP C that there is something else wrong. Yet, all the doctors (3) that I had seen since Aug 06 say these are all side effects of HEP C. So my questions are is anyone else on the board experiencing what I am? I don't know what to think anymore. Have you found you cannot workHave you found that has affected your teethHave you found you have loss interest in things you used to enjoyHave you found that you maybe depressed or personality has changedHas your vision changedDo you ever feel disoriented or displaced (if you will)Do you feel like you could sleep, sleep sleepDo you have any problems with your legs? Well, I think that's enough for now. I am sure I will remember more that I have to ask- but right now that's all I can think of. Thank you so much for letting me post a STORY and thanks to all for listening.

Sherry

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[Guest guest]

Hi Sherry, Yes, it can take a long time before you get any symptoms - I've had it since 1969 & found out only because I asked to be tested. I had no symptoms at that time. The specialist I first saw ( a very good doctor) told me that I was lucky because a lot of people don't find out until "just it's too late" - some people don't get anything but fatigued until their liver is so damaged there's nothing much that can be done. I get so tired I don't get off of the couch for days at a time. No energy at all. I've always been an enthusiastic gardener but gave it up last year because I couldn't get up the energy to go out & plant or weed. I have memory lapses, I've lost days or forgotten what day it is. . . I

always make a list before going shopping but I have been known to forget the damn list! One of our members ( no names Possum Flinger) got lost coming home from the supermarket! I have Restless Leg Syndrome as do quuite a few of us - whether or not they're connected, I don't know. I had to have all my teeth out 2 years ago, they were breaking off at the roots, my dentist said it probably had a lot to do with the side effects of a couple of meds - noone told me that if you get dry mouth you should try to keep your mouth moist or you can get gum disease & lose your teeth! I've lost interest in most things but that's assosciated with depression & I'm on anti-depressants now. Of course you'll find you may suffer from depression, you're not well! Most sick people get

depressed. I've been on disability for three years now. I was fired from my last job because I couldn't show up for work on time - I couldn't sleep so when I did sleep I'd sleep through the alarm or I'd forget my schedule. One suggestion - Hep C + people get diabetes more often than the general population & diabetes can make you tired. Get yourself tested for diabetes. Also, get yourself a new doctor! This one has no idea about HCV. SuZieSherry Ulrich wrote: had to get a new doctor. Went to see him last week - he tells me that my fatigue, vision problems, etc ARE NOT because of the HEP C that there is something else wrong. Yet, all the doctors (3) that I had seen since Aug 06 say these are all side effects of HEP C. So my questions are is anyone else on the board experiencing what I am? I don't know what to think anymore. Have you found you cannot workHave you found that has affected your teethHave you found you have loss interest in things you used to enjoyHave you found that you maybe depressed or personality has changedHas your vision changedDo you ever feel disoriented or

displaced (if you will)Do you feel like you could sleep, sleep sleepDo you have any problems with your legs? Well, I think that's enough for now. I am sure I will remember more that I have to ask- but right now that's all I can think of. Thank you so much for letting me post a STORY and thanks to all for listening. Sherry

Next time I'm coming back as a cat

[Guest guest]

Sherry,

I don’t have much damage (stage 1, grade 2) but my answers to your

questions are below. Progression is different in everyone. It’s

highly possible for you to have it that long before your symptoms start to appear,

or they appeared slowly in a way we think its normal aging or chalk it up to

something else. That’s how many people end up not even diagnosed

until they are ESLD.

Questions, Questions, Questions!!!

Also, remember

that tx sides are a lot like hep symptoms, too.

Have you found you cannot

work I still work and worked thru tx

Have you found that has affected your teeth No

Have you found you have loss interest in things you used to enjoy Yes, but that can be depression also

Have you found that you maybe depressed or personality has changed Chronic illness can cause depression

Has your vision changed yes, but I

think mine was aging until tx then it got worse. Not much progression on

that since tx was over

Do you ever feel disoriented or displaced (if you will) On tx, yes, not much since.

Do you feel like you could sleep, sleep sleep Hell yes!

Do you have any problems with your legs? I have RLS

Well, I think that's enough for now. I am sure I will remember more

that I have to ask- but right now that's all I can think of. Thank

you so much for letting me post a STORY and thanks to all for

listening.

Sherry