Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 , All my best wishes to you as you manage the following seas. It will be a very difficult time for you and I wish you all the best. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 , All my best wishes to you as you manage the following seas. It will be a very difficult time for you and I wish you all the best. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 , All my best wishes to you as you manage the following seas. It will be a very difficult time for you and I wish you all the best. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 With six days to go before I head overseas I have not had the time to post, but I have been reading all the messages I get while I am at work. I used to think we were so lucky to have my Mom stable and in a great place just a few minutes from my parent's house. But, my Mom being hospitalized last week was a major dose of reality of how unpredictable this horrible disease is. It breaks my heart to know that I am not there, and even worse that I have to head overseas for three months. But, I will count down the days until I get home and be with my family again. I thank God that I have such great sister-in-laws to take care of my Mom and my Dad, I don't know what I would do without them. Every time I read your posts Sandie it just amazes me how similar his progression sounds like my Mom. I can say that I have found comfort in knowing that there are (sadly) many of us out there that are confronted with the same heartaches, frustrations and experiences. Thank you for being such a great support to me. Hopefully our e-mail server will stay up most of the time we are at sea so I can keep up on the posts. My thoughts and prayers will be with you all. From the Mighty Warship... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 With six days to go before I head overseas I have not had the time to post, but I have been reading all the messages I get while I am at work. I used to think we were so lucky to have my Mom stable and in a great place just a few minutes from my parent's house. But, my Mom being hospitalized last week was a major dose of reality of how unpredictable this horrible disease is. It breaks my heart to know that I am not there, and even worse that I have to head overseas for three months. But, I will count down the days until I get home and be with my family again. I thank God that I have such great sister-in-laws to take care of my Mom and my Dad, I don't know what I would do without them. Every time I read your posts Sandie it just amazes me how similar his progression sounds like my Mom. I can say that I have found comfort in knowing that there are (sadly) many of us out there that are confronted with the same heartaches, frustrations and experiences. Thank you for being such a great support to me. Hopefully our e-mail server will stay up most of the time we are at sea so I can keep up on the posts. My thoughts and prayers will be with you all. From the Mighty Warship... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 With six days to go before I head overseas I have not had the time to post, but I have been reading all the messages I get while I am at work. I used to think we were so lucky to have my Mom stable and in a great place just a few minutes from my parent's house. But, my Mom being hospitalized last week was a major dose of reality of how unpredictable this horrible disease is. It breaks my heart to know that I am not there, and even worse that I have to head overseas for three months. But, I will count down the days until I get home and be with my family again. I thank God that I have such great sister-in-laws to take care of my Mom and my Dad, I don't know what I would do without them. Every time I read your posts Sandie it just amazes me how similar his progression sounds like my Mom. I can say that I have found comfort in knowing that there are (sadly) many of us out there that are confronted with the same heartaches, frustrations and experiences. Thank you for being such a great support to me. Hopefully our e-mail server will stay up most of the time we are at sea so I can keep up on the posts. My thoughts and prayers will be with you all. From the Mighty Warship... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 Sandie, Personal emails would be most welcomed. I was actually going to ask if I could email you directly if something came up that I would like to have posted. I really don't want to lose touch with the group. Going to see how things go in the next few weeks. Thanks! Hugs to you, Mariea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 In answer to the rigid arm movements: My mother is basically inmobil from LBD. She can not do anything for herself. Before this stage, she was very rigid and difficult to move or dress. She would do the opposite of what you would need her to do. For example if you needed her to bend her arm to put in an armhole she would straighen it. If she was aware that you were getting ready to move her from from the bed to the wheel chair, she would lay back down and become rigid and not sit up to help in the transport. It was so difficult to understand until we learned of the diagnosis and could see the correlation. In my opinion this is another sign of advancing LBD symptons. My other is a little easier know to care for in some ways. It seems if she trys to help with movement she fights it. She does not try to help at all anymore which in someways is easier. Good luck. My sympathies for all those who have lost their loved ones in the last month. I am reading and know that I am not far behind. As I fed my mother yesterday I could not help but notice how much more difficult swallowing is for her. She has to concentrate with closed eyes and count to be able to urinate in the toliet. Sometimes she does not notice that she has urinated in the bed or chair. I about dropped her in the bathroom as her legs became crossed as I tried to transfer her to the wheelchair from the toliet and we both about went down. My dad could not hear me yell for him because he was listening to the Missouri vs Iowa State game. (If anyone listened to it you will understand why!) This event was upsetting for both of us. She got down to her knees but I knew if she got down to the floor we would have a terrible time. Somehow I got her into the chair but oh my...! She is only 80 plus pounds yet so heavy as dead weight. She is so slight and twisted that you don't know what to grab without hurting her. The event still bothers me. I hope mom has forgotten it. Colleen from Missouri \ Greetings Hello Group, It's been awhile since I have been able to post. I have been trying to keep up with the postings. I want to offer my sympathies to Sally, Donna and . Please forgive me if I've missed someone. I admire all of you, including Sandie, for continuing with the group. What you have to share is invaluable. Now for my update. I started back to work the end of September. I took CNA training through the NH Mom is at. Back in the beginning of the year I was accepted in to Nursing school (LPN). Back then Mom was living with me and we had it planned how we would work caring for Mom and my school schedule. But then everything changed. So inorder to work, go to school and continue to care for Mom, my solution was to start working at her NH. This way I can see her on a regular basis and stay on top of her care. School starts this Tuesday and I know I will be busier then ever. I had posted sometime back that I was concerned for my sister. She was to come out and visit and hadn't seen Mom since the Christmas Holidays and that Mom had changed so much since then. came out in mid October. And I had an answer to prayers. Mom was so on while she was here visiting. The first day she saw Mom she went back out to the car and Mom said to me, " When comes back I want to ask her something. " I was so happy that she recognized my sister and even was able to call her by name. Now granted by the time my sister came back in a few minutes later Mom didn't recall that she wanted to ask her something, but just the fact that she knew was there was enough for me. Mom is still in there! I have a question. Mom's right arm tends to become rigid from time to time. It can be rigid and then a few minutes later she is moving it. Then there are times when it stays rigid. I'm assuming this is the Parkinson's side of Lewy. Has anyone else experienced this with there LO? I don't think I will be able to keep up with the group after school starts this week. I have been having trouble keeping up to the post as is. I'm going to see what happens in the next few weeks. Prayers to all. Mariea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 In answer to the rigid arm movements: My mother is basically inmobil from LBD. She can not do anything for herself. Before this stage, she was very rigid and difficult to move or dress. She would do the opposite of what you would need her to do. For example if you needed her to bend her arm to put in an armhole she would straighen it. If she was aware that you were getting ready to move her from from the bed to the wheel chair, she would lay back down and become rigid and not sit up to help in the transport. It was so difficult to understand until we learned of the diagnosis and could see the correlation. In my opinion this is another sign of advancing LBD symptons. My other is a little easier know to care for in some ways. It seems if she trys to help with movement she fights it. She does not try to help at all anymore which in someways is easier. Good luck. My sympathies for all those who have lost their loved ones in the last month. I am reading and know that I am not far behind. As I fed my mother yesterday I could not help but notice how much more difficult swallowing is for her. She has to concentrate with closed eyes and count to be able to urinate in the toliet. Sometimes she does not notice that she has urinated in the bed or chair. I about dropped her in the bathroom as her legs became crossed as I tried to transfer her to the wheelchair from the toliet and we both about went down. My dad could not hear me yell for him because he was listening to the Missouri vs Iowa State game. (If anyone listened to it you will understand why!) This event was upsetting for both of us. She got down to her knees but I knew if she got down to the floor we would have a terrible time. Somehow I got her into the chair but oh my...! She is only 80 plus pounds yet so heavy as dead weight. She is so slight and twisted that you don't know what to grab without hurting her. The event still bothers me. I hope mom has forgotten it. Colleen from Missouri \ Greetings Hello Group, It's been awhile since I have been able to post. I have been trying to keep up with the postings. I want to offer my sympathies to Sally, Donna and . Please forgive me if I've missed someone. I admire all of you, including Sandie, for continuing with the group. What you have to share is invaluable. Now for my update. I started back to work the end of September. I took CNA training through the NH Mom is at. Back in the beginning of the year I was accepted in to Nursing school (LPN). Back then Mom was living with me and we had it planned how we would work caring for Mom and my school schedule. But then everything changed. So inorder to work, go to school and continue to care for Mom, my solution was to start working at her NH. This way I can see her on a regular basis and stay on top of her care. School starts this Tuesday and I know I will be busier then ever. I had posted sometime back that I was concerned for my sister. She was to come out and visit and hadn't seen Mom since the Christmas Holidays and that Mom had changed so much since then. came out in mid October. And I had an answer to prayers. Mom was so on while she was here visiting. The first day she saw Mom she went back out to the car and Mom said to me, " When comes back I want to ask her something. " I was so happy that she recognized my sister and even was able to call her by name. Now granted by the time my sister came back in a few minutes later Mom didn't recall that she wanted to ask her something, but just the fact that she knew was there was enough for me. Mom is still in there! I have a question. Mom's right arm tends to become rigid from time to time. It can be rigid and then a few minutes later she is moving it. Then there are times when it stays rigid. I'm assuming this is the Parkinson's side of Lewy. Has anyone else experienced this with there LO? I don't think I will be able to keep up with the group after school starts this week. I have been having trouble keeping up to the post as is. I'm going to see what happens in the next few weeks. Prayers to all. Mariea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 Mariea I have missed seeing you in here. If you are unable to keep us with the group, would it be all right to send personal emails? I don't remember my dads arm being rigid, yet do know he had one side more dominant than the other. Just setting here, I feel blank in trying to remember which was which....hmmm. Seems to me his left side functioned better, leaving the right leg and foot lacking. I do know his left had was usually outstretched as if he was always losing his balance and his right hand was clenched with thumb very close to fingers. The last 10 days or so, both hands were held in the clenched position and he was more rigid than ever. My heart was warmed by the thought of you working in the NH where your mom lives. Talk about an answer to a prayer. What a very wonderful idea. If you can, please just pop into the group and briefly let us know how you are and how your mom is. I continue to keep you and your mom in my prayers. Also, you are so right that a prayer was answered that when your sister visited, your mom was doing well. As the saying goes, God works in mysterious ways. Hugs!! Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 Mariea I have missed seeing you in here. If you are unable to keep us with the group, would it be all right to send personal emails? I don't remember my dads arm being rigid, yet do know he had one side more dominant than the other. Just setting here, I feel blank in trying to remember which was which....hmmm. Seems to me his left side functioned better, leaving the right leg and foot lacking. I do know his left had was usually outstretched as if he was always losing his balance and his right hand was clenched with thumb very close to fingers. The last 10 days or so, both hands were held in the clenched position and he was more rigid than ever. My heart was warmed by the thought of you working in the NH where your mom lives. Talk about an answer to a prayer. What a very wonderful idea. If you can, please just pop into the group and briefly let us know how you are and how your mom is. I continue to keep you and your mom in my prayers. Also, you are so right that a prayer was answered that when your sister visited, your mom was doing well. As the saying goes, God works in mysterious ways. Hugs!! Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 Colleen Keep up the good work of caring for your mom. Know you are not being judged for what you " almost " did in almost dropping your mom, but for the care you gave in getting her to and from the bathroom. My dad also had a terrible time swallowing toward the end. He would " pool " the food in his mouth and just wouldn't swallow. Even liquids became a problem. I feel that is why he chose not to eat...then he would clench his jaws, and turn his head away. Didn't take long to realize what he was doing. I pray for the utmost strength and courage for you as you go through this time with your mom. Praying for God to wrap his arms around you so you know you are not alone. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 Thanks for the comments. I don't reply much but know there are a number of us out here listening and learning. It is so interesting to see the similarities and share with others what I have learned here. As you described it, she is pooling food in her mouth and is not swallowing unless you direct her to. There are stains on the bed sheets where she rests after lunch -where food or medicines drool out of her mouth. Are others as worried about following our loved one with us suffering this disease as I am? It makes a case for nursing home insurance doesn't it! Thanks - Colleen Re: Greetings Colleen Keep up the good work of caring for your mom. Know you are not being judged for what you " almost " did in almost dropping your mom, but for the care you gave in getting her to and from the bathroom. My dad also had a terrible time swallowing toward the end. He would " pool " the food in his mouth and just wouldn't swallow. Even liquids became a problem. I feel that is why he chose not to eat...then he would clench his jaws, and turn his head away. Didn't take long to realize what he was doing. I pray for the utmost strength and courage for you as you go through this time with your mom. Praying for God to wrap his arms around you so you know you are not alone. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 Katz!!! SO good to hear from you!!! Oh how I wish I could come to Delano in March to see you! Have you heard from ? Are you DJ'ing and Karaoking?? Still in Nebraska? big hugs, cindy lee > > Greetings, all!! > > Yes, a phantom from the past......still alive and well and pretty > much the same size I ended up after my slow DS loss. It amazes me > that I pretty much eat like a horse, just about pre-DS volume, and > yet remain at what I consider normal size. Course I poop like a > horse, too!!!!!!!!! LOL. > > Anyway, wanted to let you all know that I will be in for my 3 yr. > check-up on March 7 and attending the meeting on the 8th. I ONLY > come back to see my friends, so I hope that I'll get that chance. > Look forward to seeing you and catching up in a month. > > Love, Katz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 Katz!!! SO good to hear from you!!! Oh how I wish I could come to Delano in March to see you! Have you heard from ? Are you DJ'ing and Karaoking?? Still in Nebraska? big hugs, cindy lee > > Greetings, all!! > > Yes, a phantom from the past......still alive and well and pretty > much the same size I ended up after my slow DS loss. It amazes me > that I pretty much eat like a horse, just about pre-DS volume, and > yet remain at what I consider normal size. Course I poop like a > horse, too!!!!!!!!! LOL. > > Anyway, wanted to let you all know that I will be in for my 3 yr. > check-up on March 7 and attending the meeting on the 8th. I ONLY > come back to see my friends, so I hope that I'll get that chance. > Look forward to seeing you and catching up in a month. > > Love, Katz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 Woooohoooo! looking forward to seeing you! Can't wait! Yipppeeee! Katz is coming to town!!! Hugs Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 Woooohoooo! looking forward to seeing you! Can't wait! Yipppeeee! Katz is coming to town!!! Hugs Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 > > > Date: 2005/02/03 Thu PM 03:26:53 EST > To: DS_Friends_Keshishian > Subject: Greetings > > Hi Katz.. rats.. I was going to Delano for my 3 year in March, but brother Jac has dec ided to have his DS in Louisiana on Feb 22, 3 years to the day from mine. I will miss it too, as I am in Oklahoma babysitting til the 26th. Please have a great trip.. try to get back for marta's in August. Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 > Anyway, wanted to let you all know that I will be in for my 3 yr. > check-up on March 7 and attending the meeting on the 8th. I ONLY > come back to see my friends, so I hope that I'll get that chance. > Look forward to seeing you and catching up in a month. > > Love, Katz ~~~~~~~~~~~~~~~~`` WOAH!!!!!!!!!! She lives!!!!!!!!!!! LOL, will be good to see ya. God bless, Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 > Anyway, wanted to let you all know that I will be in for my 3 yr. > check-up on March 7 and attending the meeting on the 8th. I ONLY > come back to see my friends, so I hope that I'll get that chance. > Look forward to seeing you and catching up in a month. > > Love, Katz ~~~~~~~~~~~~~~~~`` WOAH!!!!!!!!!! She lives!!!!!!!!!!! LOL, will be good to see ya. God bless, Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 > Anyway, wanted to let you all know that I will be in for my 3 yr. > check-up on March 7 and attending the meeting on the 8th. I ONLY > come back to see my friends, so I hope that I'll get that chance. > Look forward to seeing you and catching up in a month. > > Love, Katz ~~~~~~~~~~~~~~~~`` WOAH!!!!!!!!!! She lives!!!!!!!!!!! LOL, will be good to see ya. God bless, Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2005 Report Share Posted February 4, 2005 > Anyway, wanted to let you all know that I will be in for my 3 yr. > check-up on March 7 and attending the meeting on the 8th. I ONLY > come back to see my friends, so I hope that I'll get that chance. > Look forward to seeing you and catching up in a month. > > Love, Katz Wow! Hi Katz! March is going to be a great meeting! So glad to hear from you. I have missed you! See you in March! love Sharon in Onyx hugs from one slow loser to another! lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2005 Report Share Posted February 4, 2005 > Anyway, wanted to let you all know that I will be in for my 3 yr. > check-up on March 7 and attending the meeting on the 8th. I ONLY > come back to see my friends, so I hope that I'll get that chance. > Look forward to seeing you and catching up in a month. > > Love, Katz Wow! Hi Katz! March is going to be a great meeting! So glad to hear from you. I have missed you! See you in March! love Sharon in Onyx hugs from one slow loser to another! lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2005 Report Share Posted February 4, 2005 Okay, that does it! I am actually going to put in the paperwork so I can go to the meeting in March. I have been working late forever. So far I can go to the meeting next week, too. My partner was making noise about trading with me so he can get off early, but I told him no way! lol Marta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2005 Report Share Posted February 4, 2005 Okay, that does it! I am actually going to put in the paperwork so I can go to the meeting in March. I have been working late forever. So far I can go to the meeting next week, too. My partner was making noise about trading with me so he can get off early, but I told him no way! lol Marta Quote Link to comment Share on other sites More sharing options...
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