Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Hi a, Jeff got done with treatment end of Dec. He took shots Friday nights. He did not have alot of side effects, but some. Tired alot, irritable, and the worse was the migraines he got. He still was able to work. His blood counts were getting lower also, but not to where he had to take meds. for that. Some people get alot of side effects, some don't. I wish you good luck. Sue Subject: Treatment Side EffectsTo: HepatitisCSupportGroupForDummies Date: Saturday, May 17, 2008, 9:25 AM Hi all...I introduced myself on here last week - I'm a complete newbie to this group but have found you all to be warm and receptive and what a relief that's been! Anyway, I see the GI doc on Tuesday (the 20th) and am going to push for treatment even tho my primary care physician said it may not be needed at this time since it's stage 1 and little or no damage has been done to the liver. I just want to go ahead while I feel strong and while it's early stages. I would really like to know about the side effects of the treatment as I have a 3 year old and I'm a single mother. I'm a paralegal by trade and am looking at giving limited guardianship for care and nurture to her godparents if the side effects are going to be such that I may be unable to care for her. It's not what I want to do - but I have to be practical if need be.Thanks for anything you can advise,a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Hi a. It sounds as if you have it pretty well thought out.. Good for YOU!!! Stage 1 is ofcourse the first one.. and you seem young, strong, able to make cognizant decisions about your future. The decision is totaly yours alone, (and the Doc's ofcourse). You're correct that the sides can go from mild to wild..and one never knows until it happens..or doesn't. Sorry, I'm, Deliman HCV pos stage 2b, with ESLD...end stage liver disease. You and I are are in two completely different types of boats in the same boat..but different bodies of water!!!! hahahaha. Al I can say is I can't tolerate Tx( treatment) two times at bat and two strike outs...my immune system allows infection to take over in the form of Staph infection. Oh...Yeah.. When I was Dx'd three years ago, I started out with the same " qualifications " as I have now. At stage 4 with ESLD, I would still try Tx again, but I will not be alone this time and no one should be! Having said that, were I younger and a stage 1, which is not the easiest to erradicate), I would do it in a heartbeat,especially considering the " window " of opportunity regarding your home situation. Would your baby be in the same town?? or could you see her?? That's an important factor. That is what I would do. Only me. Always consult your doc about ANY changes you experience, and what goes in your mouth, such as " Heals All and effective in losing weight " Green Tea or something similar..or even similac,, get his approval.. It alls goes through the liver. Good Luck! peace n love, Del Deliman Just for your sake, and your well being... don't mix a laxative, with something for sleeping! Subject: Treatment Side Effects To: HepatitisCSupportGroupForDummies Date: Saturday, May 17, 2008, 8:25 AM Hi all... I introduced myself on here last week - I'm a complete newbie to this group but have found you all to be warm and receptive and what a relief that's been! Anyway, I see the GI doc on Tuesday (the 20th) and am going to push for treatment even tho my primary care physician said it may not be needed at this time since it's stage 1 and little or no damage has been done to the liver. I just want to go ahead while I feel strong and while it's early stages. I would really like to know about the side effects of the treatment as I have a 3 year old and I'm a single mother. I'm a paralegal by trade and am looking at giving limited guardianship for care and nurture to her godparents if the side effects are going to be such that I may be unable to care for her. It's not what I want to do - but I have to be practical if need be. Thanks for anything you can advise, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Hi all... I introduced myself on here last week - I'm a complete newbie to this group but have found you all to be warm and receptive and what a relief that's been! Anyway, I see the GI doc on Tuesday (the 20th) and am going to push for treatment even tho my primary care physician said it may not be needed at this time since it's stage 1 and little or no damage has been done to the liver. I just want to go ahead while I feel strong and while it's early stages. I would really like to know about the side effects of the treatment as I have a 3 year old and I'm a single mother. I'm a paralegal by trade and am looking at giving limited guardianship for care and nurture to her godparents if the side effects are going to be such that I may be unable to care for her. It's not what I want to do - but I have to be practical if need be. Thanks for anything you can advise, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Hi a, My personal opinion is that you are right to want to go for treatment. It seems that the healthier we are the easier the treatment may be, and there may even be a better chance of clearing the virus. I am type 1a, stage 1 with little liver damage also. Tx wasn’t easy, but it was good to know I was kicking the dragons butt. I tested undetectable at 12 weeks. If I had to make the decision again I would do the same. To me, it doesn’t make sense to wait until you’re sick and damaged. Again, my own opinion here… but good luck! Llinda Hi all... I introduced myself on here last week - I'm a complete newbie to this group but have found you all to be warm and receptive and what a relief that's been! Anyway, I see the GI doc on Tuesday (the 20th) and am going to push for treatment even tho my primary care physician said it may not be needed at this time since it's stage 1 and little or no damage has been done to the liver. I just want to go ahead while I feel strong and while it's early stages. I would really like to know about the side effects of the treatment as I have a 3 year old and I'm a single mother. I'm a paralegal by trade and am looking at giving limited guardianship for care and nurture to her godparents if the side effects are going to be such that I may be unable to care for her. It's not what I want to do - but I have to be practical if need be. Thanks for anything you can advise, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Hi aIm so glad you joined our group hon and we'll help you through tx as much as possible.. Every person can react to tx different but most seem to have body aches, fevers, severe fatigue, depression from all the side effects, alteration in taste for foods, insomnia etc, but all of these can be controlled with proper medications... Its hard to say just whether or not you'll be able to care for your child.. I have known some who could and some who couldnt even take care of themselves let alone their child while on tx.. but I think that you will just have to wait and see,, and these folks are willing to help you right? Well then if it becomes necessary, you can just write them a letter designating that they have your approval to sign for any medical care your daughter might need or aything else in your absence etc.. Lets just hope you wont need to do that tho.. The first thing I would suggest you talk wtih your doc about is getting on an SSRI anti-depressant because the Interferon depletes your brain stores of its seretonin and will cause depression and insomnia... not everyone needs it but most typically do and since it takes weeks for these kinds of meds to become effective, you'd be smart to start on it weeks before starting the Peg and Riba.. so the severe depression and riba rage wont hit hopefully,, you can always have your doc up your dose if you need it but at least you'll be prepared... Start getting used to drinking half your body weight in ounces of filtered water too.. the water is the MOST important thing on tx as it washes the toxins out that are created by treatment.. so if you weight 150 pounds, you should drink 75 ounces of filtered water every day... You said that your primary doesnt think you need to treat yet so because he feels this way, will he be willing to treat your side effects??? Will he be willing to RX you the antidepressant, what about pain pills should you need them, will he rx them? What about sleeping pills for the insomnia? You really need to have your primary on your side when treating because most gastro's will not help with the side effects at all... so if your primary is not onboard with you, you might want to talk to him about it and make sure he will respect your choice to tx and will help you, otherwise find another primary care doc... its really important... How long will you have to treat for? Are you geno 1 or 4? That would keep you on tx for 48 + weeks , if you are geno 2 or 3, then you only have to tx for 24 weeks... Have you had a biopsy yet? you said you had little damage (stage 1) so Im assuming that you've had that biopsy,, thats good because it truely is the only way to see for sure what is going on in there... Anyway, thats my 2 cents,, hope it helps,, keep us all updated,, and dont forget to get copies of everything from your doc and keep it at home in a file for easy access.. hugs,jaxtawneeky wrote: Hi all... I introduced myself on here last week - I'm a complete newbie to this group but have found you all to be warm and receptive and what a relief that's been! Anyway, I see the GI doc on Tuesday (the 20th) and am going to push for treatment even tho my primary care physician said it may not be needed at this time since it's stage 1 and little or no damage has been done to the liver. I just want to go ahead while I feel strong and while it's early stages. I would really like to know about the side effects of the treatment as I have a 3 year old and I'm a single mother. I'm a paralegal by trade and am looking at giving limited guardianship for care and nurture to her godparents if the side effects are going to be such that I may be unable to care for her. It's not what I want to do - but I have to be practical if need be. Thanks for anything you can advise, a Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 janet i remember all the advise you gave me in the beginning and still do i may add, it was all of course true, the antidepressants yes i tk them, the anxity, the moodswings, the fatigue, the rash on my stomach got the prescription lotion in my case the home remedies didnt work, the hate , the anger, the emotions, the insomia, still taken the sleeping pills, i am and will allways be gratefull to you and all the memebers of this grp,,,,,,,,,,,my latest blood work last wek is all great even my plateletts are back to norm, and the wbs is up, i am in the stretch now dont need to go back till 4 weeksJackie on wrote: Hi aIm so glad you joined our group hon and we'll help you through tx as much as possible.. Every person can react to tx different but most seem to have body aches, fevers, severe fatigue, depression from all the side effects, alteration in taste for foods, insomnia etc, but all of these can be controlled with proper medications... Its hard to say just whether or not you'll be able to care for your child.. I have known some who could and some who couldnt even take care of themselves let alone their child while on tx.. but I think that you will just have to wait and see,, and these folks are willing to help you right? Well then if it becomes necessary, you can just write them a letter designating that they have your approval to sign for any medical care your daughter might need or aything else in your absence etc.. Lets just hope you wont need to do that tho.. The first thing I would suggest you talk wtih your doc about is getting on an SSRI anti-depressant because the Interferon depletes your brain stores of its seretonin and will cause depression and insomnia... not everyone needs it but most typically do and since it takes weeks for these kinds of meds to become effective, you'd be smart to start on it weeks before starting the Peg and Riba.. so the severe depression and riba rage wont hit hopefully,, you can always have your doc up your dose if you need it but at least you'll be prepared... Start getting used to drinking half your body weight in ounces of filtered water too.. the water is the MOST important thing on tx as it washes the toxins out that are created by treatment.. so if you weight 150 pounds, you should drink 75 ounces of filtered water every day... You said that your primary doesnt think you need to treat yet so because he feels this way, will he be willing to treat your side effects??? Will he be willing to RX you the antidepressant, what about pain pills should you need them, will he rx them? What about sleeping pills for the insomnia? You really need to have your primary on your side when treating because most gastro's will not help with the side effects at all... so if your primary is not onboard with you, you might want to talk to him about it and make sure he will respect your choice to tx and will help you, otherwise find another primary care doc... its really important... How long will you have to treat for? Are you geno 1 or 4? That would keep you on tx for 48 + weeks , if you are geno 2 or 3, then you only have to tx for 24 weeks... Have you had a biopsy yet? you said you had little damage (stage 1) so Im assuming that you've had that biopsy,, thats good because it truely is the only way to see for sure what is going on in there... Anyway, thats my 2 cents,, hope it helps,, keep us all updated,, and dont forget to get copies of everything from your doc and keep it at home in a file for easy access.. hugs,jaxtawneeky <tawneeky> wrote: Hi all...I introduced myself on here last week - I'm a complete newbie to this group but have found you all to be warm and receptive and what a relief that's been! Anyway, I see the GI doc on Tuesday (the 20th) and am going to push for treatment even tho my primary care physician said it may not be needed at this time since it's stage 1 and little or no damage has been done to the liver. I just want to go ahead while I feel strong and while it's early stages. I would really like to know about the side effects of the treatment as I have a 3 year old and I'm a single mother. I'm a paralegal by trade and am looking at giving limited guardianship for care and nurture to her godparents if the side effects are going to be such that I may be unable to care for her. It's not what I want to do - but I have to be practical if need be.Thanks for anything you can advise,aJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 Super! Great news!! Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceann silva Sent: Saturday, May 17, 2008 9:27 PM To: Hepatitis_C_Central Subject: Re: Treatment Side Effects janet i remember all the advise you gave me in the beginning and still do i may add, it was all of course true, the antidepressants yes i tk them, the anxity, the moodswings, the fatigue, the rash on my stomach got the prescription lotion in my case the home remedies didnt work, the hate , the anger, the emotions, the insomia, still taken the sleeping pills, i am and will allways be gratefull to you and all the memebers of this grp,,,,,,,,,,,my latest blood work last wek is all great even my plateletts are back to norm, and the wbs is up, i am in the stretch now dont need to go back till 4 weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2008 Report Share Posted May 19, 2008 a, my hep doc said I could treat or wait also, but like you, I wanted to get going with it. I wanted to nip it in the bud to stop the damage as soon as possible and leave more time for something else if it didn’t work. I was/am grade 1 also. I am a single mom, but mine were teens. Many people get thru tx just fine without giving up their jobs or kids. I worked overtime as a real estate paralegal the whole year. When I was thinking the worst that I could lose my job, my house, etc. because of treatment, my doc said no, , the worst that could happen is you have to stop treatment. a that’s the worst that could happen to you, too. Are the godparents or anyone else geographically close to you to help out, because you will be tired? Part of it is making up your mind that you WILL get through it and you WILL make it work. It seems like several of the people on tx in the group right now have been really nauseous with tx, but plenty of us went along business as usual with fatigue and decreased recreation. We were able to accomplish what absolutely had to be done. Suppose you were an idiot. And suppose you were a member of Congress.... But then I repeat myself. -Mark Twain Treatment Side Effects Hi all... I introduced myself on here last week - I'm a complete newbie to this group but have found you all to be warm and receptive and what a relief that's been! Anyway, I see the GI doc on Tuesday (the 20th) and am going to push for treatment even tho my primary care physician said it may not be needed at this time since it's stage 1 and little or no damage has been done to the liver. I just want to go ahead while I feel strong and while it's early stages. I would really like to know about the side effects of the treatment as I have a 3 year old and I'm a single mother. I'm a paralegal by trade and am looking at giving limited guardianship for care and nurture to her godparents if the side effects are going to be such that I may be unable to care for her. It's not what I want to do - but I have to be practical if need be. Thanks for anything you can advise, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2008 Report Share Posted May 19, 2008 Thanks to all of you for the kind support and for the information. I'm learning so much! As for the godparents - yes, they live in my town and my daughter would be close. I'm really hoping that it won't come to giving limited guardianship but I wanted to know from those undergoing the treatment what I might expect. I have an auto-immune disease called Behcet's Disease on top of the Hep C and was told today by my rheumatologist that there is a possibility through the treatment that I may have to contend with a " flare " . I'm sure there are others out there who have an auto-immune disease as well and am wondering if you had problems with it because of the Hep C treatment? I see the GI doc tomorrow to find out everything (including genotype, I hope, since he has a report from the biopsy) and to gather more information. Warmly, a > > a, my hep doc said I could treat or wait also, but like you, I wanted to > get going with it. I wanted to nip it in the bud to stop the damage as soon > as possible and leave more time for something else if it didn't work. I > was/am grade 1 also. I am a single mom, but mine were teens. Many people > get thru tx just fine without giving up their jobs or kids. I worked > overtime as a real estate paralegal the whole year. When I was thinking the > worst that I could lose my job, my house, etc. because of treatment, my doc > said no, , the worst that could happen is you have to stop treatment. > a that's the worst that could happen to you, too. Are the godparents or > anyone else geographically close to you to help out, because you will be > tired? > > > > Part of it is making up your mind that you WILL get through it and you WILL > make it work. It seems like several of the people on tx in the group right > now have been really nauseous with tx, but plenty of us went along business > as usual with fatigue and decreased recreation. We were able to accomplish > what absolutely had to be done. > > > > > > Suppose you were an idiot. And suppose you were a member of Congress.... > But then I repeat myself. > -Mark Twain > > > > > Treatment Side Effects > > > > Hi all... > > I introduced myself on here last week - I'm a complete newbie to this > group but have found you all to be warm and receptive and what a relief > that's been! Anyway, I see the GI doc on Tuesday (the 20th) and am > going to push for treatment even tho my primary care physician said it > may not be needed at this time since it's stage 1 and little or no > damage has been done to the liver. I just want to go ahead while I > feel strong and while it's early stages. I would really like to know > about the side effects of the treatment as I have a 3 year old and I'm > a single mother. I'm a paralegal by trade and am looking at giving > limited guardianship for care and nurture to her godparents if the side > effects are going to be such that I may be unable to care for her. > It's not what I want to do - but I have to be practical if need be. > > Thanks for anything you can advise, > a > Quote Link to comment Share on other sites More sharing options...
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