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March 20, 2009

Angie! I am so sorry! My son has LF Autism, a seizure disorder and many other things. He will be 6 next month! He has a very hard time and we have actually thought about residential and how do you know it is time and it breaks my heart as your talk with your husband breaks yours! I am here to listen and help in any way I can and I know everyone else here is too! I have 2 other daughters. is 10 and has HF Autism sensory integration and a tic disorder and she was axtually just dxed with SI and Autism in may! is is 13 and NT! Welcome to the group! You will love it here.StacieSent via BlackBerry by AT&TFrom: "timothypeacock@..." Date: Fri, 20 Mar 2009 16:11:36 -0000To: <AutismBehaviorProblems >Subject: New here Hello, I am the parent of a 14 year-old low-functioning autistic boy. He has severe behavioral outbursts. We have done just about every medical test on him that you can imagine. Everything comes back normal or within range. Brain MRI-okay, gluten intolerance- okay, blood tests - okay, genetic test - okay. He is currently on four meds for aggression, Trileptal, Abilify, Ativan, Propanolol. Nothing seems to work. My husband is wanting to look into residential care for him. My heart is broken. I have given up on just about everything. I don't want to lose my son and we won't be a family without him in our lives and home. We live in southeastern Ohio. Thank you for letting me vent and release some frustrations. God Bless you all. Angie Peacocki

March 20, 2009

angie it is of much hard as a parent who wants of best for their child and they

cant seem to break through to reach of them in an outlet of mutucal

communication that is of understood between both.

please do a research on carly fleishman a 13 year considered LF autistic female

who is of found her outlet via keyboarding and she expresses self so very

clearly . she does share a sensation that I to experience mildly and moderately

but to her she feels of it profoundly, she shares it feels like her legs are of

on fire and her arms are of covered with crawling ants. which to me shouts of

over sensitive sensory sensations due to neurology and environmental imputs

which causes the nervous system to over react.

I to be fo always been of one hyper sensitive to things , medicines are a huge

trigger for me. too much bright lights are of a sensation that over a short time

will cause a serious sort of migrain like response, high pitch sounds, high

frequency sounds can cause the same sort of reaction. not being of able to

access comfort foods or sensations can create me to feel agitiated and if

prolonged it will cause of the SIB. I do not like to cause of self harm but in

the moment cant think and can only respond to my world around me which is of

seen as behaviors to others. for some of our kids we tend to think more is of

beter such as longer educational instructions, more therapy and things of this

and while that is of in part true it does not allow our systems time to recover

and the constant changes and transitions create havoc on our nervous systems and

tolerance of things the more we react the more we need to fight to resist as a

way of self adapting.

think about how hard something is of for you and lets say they now expect and

intensify it and force you to comply for extra hours instead of what you can

cope or tolerate. lets to say you hate of corn, but are required to eat it and

each time you are of to be maked to eat it you vomit which then only

intensifies you adversion to corn because you know how it is of going to make

you feel if you eat it.... now lets say you try to communicate you cant stand

corn it makes you sick but you cant and can only react and so they now instead

of putting one table spoon put a half cup to the plate and you are of forced to

eat it..... you reaction to that thinking will be of more powerful and

intense... we with autism respond much so to teh same. and so the end is of we

with autism learn we have no rights no voice to say NO and no validations to our

attempts to communicate.

now that I to explained of the process of what is of going on in the mindsets of

some of us with autism I to be of in no way say let us self endulge and in no

way saying do nothing, and in no way saying dont treat, but am of sharing so you

can have a insight to understand the core of major reactions are of often caused

by the child communicating via behavior that too much is of too much for them.

these kids also need very rigid routine and home schedules no real down time for

them to get of bored but the routine things should be of predictible and the

activies set to program can be of flexible such as can chose a TV show or

puzzle, or can chose train track or game. but to keep of them busy with then a

1/2 hour down time secluded and into a very sensory based comfort zone. many

kids like of the pup tents that one can have in the home and they pop up as soon

as they are of unfolded and then one can place a thick blanket and pillows and

books or favorite stuffed toys or things they find as calming.

Allow sunglasses to be within reach if you know they are of light sensitive, and

sound cancellation systems if they are of sound sensitive to help them cope the

over load of so many sensations, if you also note that when you are of cooking

they tend to react in behavior of agitiation and or aggression it may be of the

fumes of the meal that is of too powerful for them and seen as an adversion.

espeically if they are of very picky eaters. try of some safe aroma therapy

sorts of things within the home that can produce a sense of calm and you will

have to experiement with the scents.

make sure indoor lighting is of not bright but with the lowed level bulbs and

safe the more bright lights for specific rooms such as kitchen and one good

reading lamp.

figure out the little subtle things he shows in behavior that he is of

escalating as we rarily ever just explode we show small little subtle things

that we are of building in agitiation and overload what for these and get of a

good base line of what hims subtle ways of showing anxiety looks like, bordom

looks like, frustration looks like. so that you can begin to read of the cues

with more success of intervening before full escalation occurs.

chart on a baseline of all agitations and all acts of aggression. so that you

can see if there is of a pattern with them. if you know of the anecedent, such

as he was calm but the door bell rang and you saw the subtle cues of building,

and then as the guest is there for a short time he goes to full agitiation or

SIB or aggression then if you begin to see of a pattern you might conclude the

unexpected change , the sound of the door bell created teh sudden fight or

flight response.... led to a change in the room and the change lasted and

changed my routine, and calm I to just build to now chaos and noise that is of

overwhelming? this is of just one example of cause for a behavior outburst.

sondra

March 20, 2009

Angie

I am the parent of a 17 year old boy with higher functioning autism.....but dealing with alot of the same issues. We are currently taking propranolol and loxapine for behaviors....but still have meltdowns that can be pretty severe. We have tried many medications. Lithium didnt work by its self but combined with topamax it was great......but there is all the bloodwork involved.....and it got to a point of being too tramatic for my son.

We havean awesome medication doctor.....but it seems that medications just dont make things better......sometimes only worse. My son has severe OCD and anexities.....this is what triggers the behaviors. We have talked to the doctor about a surgery......inserting a brain stimulator......but have alot to check out on this still. I understand your pain.....my son is my world.

Deb

Subject: New hereTo: AutismBehaviorProblems Date: Friday, March 20, 2009, 11:11 AM

Hello,I am the parent of a 14 year-old low-functioning autistic boy. He has severe behavioral outbursts. We have done just about every medical test on him that you can imagine. Everything comes back normal or within range. Brain MRI-okay, gluten intolerance- okay, blood tests - okay, genetic test - okay. He is currently on four meds for aggression, Trileptal, Abilify, Ativan, Propanolol. Nothing seems to work. My husband is wanting to look into residential care for him. My heart is broken. I have given up on just about everything. I don't want to lose my son and we won't be a family without him in our lives and home. We live in southeastern Ohio. Thank you for letting me vent and release some frustrations. God Bless you all.Angie Peacocki

March 20, 2009

Thank you Stacie,

We also have a daughter who is not on the spectrum. She has had to learn to

not be dramatic as to not upset her brother. I feel like she is a much stronger

person than her peers because of her brother. Our son doen't have seizures, but

the Trileptal is for moodiness. IEP's have been horrible in the past, as have

bussing issues. We love our son and for the most part, he is a delightful boy. I

just hate that we haven't been able to help him anymore than we have. I pray to

God that he will give me the courage if we have to place him or the knowledge to

help him. Thanks again!

>

> Angie! I am so sorry! My son has LF Autism, a seizure disorder and many other

things. He will be 6 next month! He has a very hard time and we have actually

thought about residential and how do you know it is time and it breaks my heart

as your talk with your husband breaks yours! I am here to listen and help in

any way I can and I know everyone else here is too! I have 2 other daughters.

is 10 and has HF Autism sensory integration and a tic disorder and she

was axtually just dxed with SI and Autism in may! is is 13 and NT! Welcome

to the group! You will love it here.

> Stacie

> Sent via BlackBerry by AT & T

>

> New here

>

> Hello,

> I am the parent of a 14 year-old low-functioning autistic boy. He has severe

behavioral outbursts. We have done just about every medical test on him that you

can imagine. Everything comes back normal or within range. Brain MRI-okay,

gluten intolerance- okay, blood tests - okay, genetic test - okay. He is

currently on four meds for aggression, Trileptal, Abilify, Ativan, Propanolol.

Nothing seems to work. My husband is wanting to look into residential care for

him. My heart is broken. I have given up on just about everything. I don't want

to lose my son and we won't be a family without him in our lives and home. We

live in southeastern Ohio. Thank you for letting me vent and release some

frustrations. God Bless you all.

> Angie Peacocki

>

March 20, 2009

Angie, I am so sorry; I understand. We have been through that with Karac when he was that age. Sometimes it is the meds that are causing the problem. The only med that helped karac without making it worse was Clonidine. have you tried that? Karac is now 16 and not on anything and he is so much better. My heart goes out to you. I had to sleep in a heavy coat with gloves and a hat on for about three weeks before Karac got detoxed from the meds that were making him worse. I will be praying for you daily.What is your son's name? Pat K

New here

Hello,

I am the parent of a 14 year-old low-functioning autistic boy. He has severe behavioral outbursts. We have done just about every medical test on him that you can imagine. Everything comes back normal or within range. Brain MRI-okay, gluten intolerance- okay, blood tests - okay, genetic test - okay. He is currently on four meds for aggression, Trileptal, Abilify, Ativan, Propanolol. Nothing seems to work. My husband is wanting to look into residential care for him. My heart is broken. I have given up on just about everything. I don't want to lose my son and we won't be a family without him in our lives and home. We live in southeastern Ohio. Thank you for letting me vent and release some frustrations. God Bless you all.

Angie Peacocki

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March 20, 2009

Pat,

Our son's name is Ethan. A beautiful red head...very big, 5'10 " and 330 lbs.

Just about everyone at his school is afraid of him. He has two aides, both

women. Not a good choice...but nobody else will work with him. He had a very bad

outburst today because the bus was late. I'm sitting here crying my eyes out and

praying to God for help. Thanks for you kind words.

Angie

>

> Angie, I am so sorry; I understand.? We have been through that with Karac when

he was that age.? Sometimes it is the meds that are causing the problem. The

only med that helped karac without making it worse was Clonidine.? have you

tried that?? Karac is now 16 and not on anything and he is so much better.? My

heart goes out to you.? I had to sleep in a heavy coat with gloves and a hat on

for about three weeks before Karac got detoxed from the meds that were making

him worse.? I will be praying for you daily.What is your son's name? ?Pat K