New to the group

[Guest guest]

Thanks ! I have looked all around his cast and haven't found anything. But maybe when he bends or in a particular position, it pinches? He goes to his pediatrician Monday and I'm going to have him take a look. I don't know if maybe because of his age, he's starting to enter that terrible 2 stage?? And maybe it's a coincidence? I don't know??????? *sigh*

Nikki Mother of Brett (20 mths) 1st cast

To: infantile_scoliosis Sent: Sat, February 20, 2010 9:57:35 PMSubject: Re: Re: New to the group

Nikki,

Something jumped out at me as I was reading your post just now. It reminded me of something when Todd was in a cast... Brett sounds like such a special little soul! I wonder about the sudden fussiness you mentioned. We did experience some of that with Todd's first cast.

He was a different child. We were wondering how we would make it through the casting process. It was so very hard to see him that way, but everyone said he'd adapt faster than we would, and that he'd be back to normal soon, and we just weren't seeing how that would be possible!

It turns out, there was an enormous pressure sore on his hip and the cast needed some major trimming. Once that was addressed, he truly did adapt quickly and we had our little boy back. Do you think there is a chance that something could be painful for Brett? maybe something from the dampness, if nothing from the cast itself?

Poor little guy, and poor mama, too! It's so hard when they are unhappy or hurting, especially when they can't tell you what's going on! I wish you and little Brett the best of luck.

, Mommy to Todd

On Sat, Feb 20, 2010 at 12:21 AM, nikki062508 <nikkinearyyahoo (DOT) com> wrote:

Hi Lynn,I am happy to share with you Brett's experience with hypotonia. Be warned – this is long! I rarely can answer anything in a few short sentences. =)Yes, I definitely think it is a good idea for your son to get a muscle biopsy. There isn't a cure for Brett's disease – Central Core Myopathy, but having a diagnosis has been helpful in deciding how to proceed with therapies, what to expect, and just having a "name" associated with his disease. CCD is a hereditary disease and we were able to determine it came from his father even though he's deceased - based on some "quirks" he had along with his father (the grandfather) . This allowed his family to know the disease was in their genes and what to look for, etc…. And we know the chances of Brett passing it on should he choose to have kids. Of course, there are variations in the disease. Brett's is considered severe whereas his father's was considered mild (obviously because no

one even knew he had anything wrong and he led a completely normal active life). I don't know if the muscle biopsy is painful. Brett had his first one at 9 days old. He had a quadriceps biopsy and nerve biopsy. I can't say if it was painful because he was hardly moving and on a ventilator? The results of that biopsy came back inconclusive. On 8/8/08 he had a G-tube (feeding tube) put in and they did another muscle biopsy this time from his stomach muscle. Again, I don't know if it was painful because he had the biopsy during the G-tube surgery. He was still in the NICU at this time, so they were on top of any pain he had. His biopsies were sent to Mayo labs in Rochester. These results came back with the positive gene for CCD. Brett is 19 months old (adjusted age 17). Prior to the cast he sat, crawled and cruised around the furniture (about 6 mths behind developmentally) . He was weeks away from walking and that another reason casting

broke my heart. He worked so hard to get to that point and then bam! It's like starting over… He was a year old before he could sit up unassisted but I had to prop him up, soon after that he kind of took off. Now with the cast he crawls a little bit and cruises pretty well. I found a bike for him to "ride" (he actually pushes it with his feet) and he really likes that, I'm sure because he has some mobility.I'm so lucky and blessed regarding Brett's disposition (along with many many other things)! He's got the best attitude and disposition and I'm not saying that b/c I'm his mom (*smile*), I get compliments all the time even from strangers when we are in a restaurant or public place. He's not fussy and is pretty content most of the time. Keep in mind, he's not around other kids (my pediatrician will not allow him at a daycare or around 2 or more kids at once because of the respiratory risks if he gets sick) so he doesn't know or realize he is

behind which probably helps. With that said, this is all before the cast! Now there are some moments I don't know who he is? He is extremely whiney and fussy – for him. It's terribly frustrating because I don't know what is wrong or how I can help. I know it has to do with the cast (obviously) but beyond that I'm not sure of sometimes. He completely freaks out for no apparent reason (when he was fine a minute ago) and I can't calm him down. I wonder if anyone else has experienced this? Sorry, I digress… to answer your question, no the hypotonia didn't make him fussy.No, he doesn't have language yet. He babbles of course and will say "mom", "hi" and "up". But that's about it. The developmental specialist I work with weekly wants to wait until he is 2 and if he still isn't talking, he will start seeing a speech therapist.The other big thing Brett has encountered is swallowing issues. Does your son have any problems with swallowing? At

birth, Brett didn't have the ability to swallow which is why he was so early b/c I had all that excess fluid in there. For the last 2 weeks of my pregnancy I couldn't feel him move. I was in between appts (determining what was going on with him) when I went into labor. Thank God! He probably wouldn't have survived much longer. I digress again…. We worked on his swallowing while he was in the NICU and were able to get him to take a couple mL by the time we left. Slowly, with the help of a speech therapist, he learned to swallow. He still has issues and he's probably going to have a swallowing study done in the next month or so. I hope some of this helps you! Does your doctor have any guess as to what it could be? Just so you know, Brett also had blood tests and an MRI and they showed nothing. I think you're right in doing the biopsy when he gets his next cast!If there is anything else I can answer or help you with, please let me know! I

don't mind sharing any of Brett's story. It's hard and I can't imagine how hard it is not knowing the cause of the low tone!!Good luck!Nikki> > > From: nikki062508 <nikkineary@. ..>> Subject: [infantile_scoliosi s] New to the group > To: infantile_scoliosis @yahoogroups. com> Received: Wednesday, February 17, 2010, 10:51 PM> > > Â > > > > Hi! My name is Nikki and I have a 19 mth old son who is in his first cast - he was casted last Wed. (Feb. 10) at the Shriners Hospital in Spokane. The day of casting Brett's right thoracic curve measured 63 degrees and his lumbar curve measured 74. According to the doctor's notes and discussions I had with him, Brett has Congenital Scoliosis however, I just looked at the surgery notes and it states PIS? I have a call into the doctor. I don't know if they just made a mistake on the surgery papers or what? That doesn't give a mom much comfort. =)> > Brett has had a rough start from the get go. He was born 9

wks early, "floppy". After extensive tests and several muscle biopsies, it was found he has a rare muscle disease call Central Core Myopathy - very basically put, he has low muscle tone. He's a tough and determined little guy! He has both OT and PT every week - along with daily home exercises. He's behind developmentally by about 6 mths and now with the cast even more. =(> > I have to say, Brett is adapting to the cast remarkably well! Much, much better than I am! I was anxious to find a group of parents whose kids had been casted and am thrilled I finally did. At first I was extremely apprehensive about casting b/c this is 2010, isn't there something less "archaic" than casting a tiny child? Did anyone else have that thought/feeling? But I have researched extensively for any alternative options and I haven't come up with any!!> > Sorry to go on so long, I just wanted to get my story out there. If anyone has any advice on how

to get through this, I would really appreciate it! Brett has just had one issue after another and I'm exhausted! I'm an only parent, my partner - Brett's father passed away when I was 9 weeks pregnant. > > Thanks for reading! And I appreciate any advice you have to offer.> > PS - has anyone had a problem with their child's undershirt getting wet? If so, what did you do? Grandma watched Brett today and she didn't know how to "properly" diaper him so I had a mess tonight to deal with!> > > > > > > > > > ____________ _________ _________ _________ _________ _________ _> Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail. Click on Options in Mail and switch to New Mail today or register for free at http://mail. yahoo.ca>

[Guest guest]

Thanks ! I have looked all around his cast and haven't found anything. But maybe when he bends or in a particular position, it pinches? He goes to his pediatrician Monday and I'm going to have him take a look. I don't know if maybe because of his age, he's starting to enter that terrible 2 stage?? And maybe it's a coincidence? I don't know??????? *sigh*

Nikki Mother of Brett (20 mths) 1st cast

To: infantile_scoliosis Sent: Sat, February 20, 2010 9:57:35 PMSubject: Re: Re: New to the group

Nikki,

Something jumped out at me as I was reading your post just now. It reminded me of something when Todd was in a cast... Brett sounds like such a special little soul! I wonder about the sudden fussiness you mentioned. We did experience some of that with Todd's first cast.

He was a different child. We were wondering how we would make it through the casting process. It was so very hard to see him that way, but everyone said he'd adapt faster than we would, and that he'd be back to normal soon, and we just weren't seeing how that would be possible!

It turns out, there was an enormous pressure sore on his hip and the cast needed some major trimming. Once that was addressed, he truly did adapt quickly and we had our little boy back. Do you think there is a chance that something could be painful for Brett? maybe something from the dampness, if nothing from the cast itself?

Poor little guy, and poor mama, too! It's so hard when they are unhappy or hurting, especially when they can't tell you what's going on! I wish you and little Brett the best of luck.

, Mommy to Todd

On Sat, Feb 20, 2010 at 12:21 AM, nikki062508 <nikkinearyyahoo (DOT) com> wrote:

Hi Lynn,I am happy to share with you Brett's experience with hypotonia. Be warned – this is long! I rarely can answer anything in a few short sentences. =)Yes, I definitely think it is a good idea for your son to get a muscle biopsy. There isn't a cure for Brett's disease – Central Core Myopathy, but having a diagnosis has been helpful in deciding how to proceed with therapies, what to expect, and just having a "name" associated with his disease. CCD is a hereditary disease and we were able to determine it came from his father even though he's deceased - based on some "quirks" he had along with his father (the grandfather) . This allowed his family to know the disease was in their genes and what to look for, etc…. And we know the chances of Brett passing it on should he choose to have kids. Of course, there are variations in the disease. Brett's is considered severe whereas his father's was considered mild (obviously because no

one even knew he had anything wrong and he led a completely normal active life). I don't know if the muscle biopsy is painful. Brett had his first one at 9 days old. He had a quadriceps biopsy and nerve biopsy. I can't say if it was painful because he was hardly moving and on a ventilator? The results of that biopsy came back inconclusive. On 8/8/08 he had a G-tube (feeding tube) put in and they did another muscle biopsy this time from his stomach muscle. Again, I don't know if it was painful because he had the biopsy during the G-tube surgery. He was still in the NICU at this time, so they were on top of any pain he had. His biopsies were sent to Mayo labs in Rochester. These results came back with the positive gene for CCD. Brett is 19 months old (adjusted age 17). Prior to the cast he sat, crawled and cruised around the furniture (about 6 mths behind developmentally) . He was weeks away from walking and that another reason casting

broke my heart. He worked so hard to get to that point and then bam! It's like starting over… He was a year old before he could sit up unassisted but I had to prop him up, soon after that he kind of took off. Now with the cast he crawls a little bit and cruises pretty well. I found a bike for him to "ride" (he actually pushes it with his feet) and he really likes that, I'm sure because he has some mobility.I'm so lucky and blessed regarding Brett's disposition (along with many many other things)! He's got the best attitude and disposition and I'm not saying that b/c I'm his mom (*smile*), I get compliments all the time even from strangers when we are in a restaurant or public place. He's not fussy and is pretty content most of the time. Keep in mind, he's not around other kids (my pediatrician will not allow him at a daycare or around 2 or more kids at once because of the respiratory risks if he gets sick) so he doesn't know or realize he is

behind which probably helps. With that said, this is all before the cast! Now there are some moments I don't know who he is? He is extremely whiney and fussy – for him. It's terribly frustrating because I don't know what is wrong or how I can help. I know it has to do with the cast (obviously) but beyond that I'm not sure of sometimes. He completely freaks out for no apparent reason (when he was fine a minute ago) and I can't calm him down. I wonder if anyone else has experienced this? Sorry, I digress… to answer your question, no the hypotonia didn't make him fussy.No, he doesn't have language yet. He babbles of course and will say "mom", "hi" and "up". But that's about it. The developmental specialist I work with weekly wants to wait until he is 2 and if he still isn't talking, he will start seeing a speech therapist.The other big thing Brett has encountered is swallowing issues. Does your son have any problems with swallowing? At

birth, Brett didn't have the ability to swallow which is why he was so early b/c I had all that excess fluid in there. For the last 2 weeks of my pregnancy I couldn't feel him move. I was in between appts (determining what was going on with him) when I went into labor. Thank God! He probably wouldn't have survived much longer. I digress again…. We worked on his swallowing while he was in the NICU and were able to get him to take a couple mL by the time we left. Slowly, with the help of a speech therapist, he learned to swallow. He still has issues and he's probably going to have a swallowing study done in the next month or so. I hope some of this helps you! Does your doctor have any guess as to what it could be? Just so you know, Brett also had blood tests and an MRI and they showed nothing. I think you're right in doing the biopsy when he gets his next cast!If there is anything else I can answer or help you with, please let me know! I

don't mind sharing any of Brett's story. It's hard and I can't imagine how hard it is not knowing the cause of the low tone!!Good luck!Nikki> > > From: nikki062508 <nikkineary@. ..>> Subject: [infantile_scoliosi s] New to the group > To: infantile_scoliosis @yahoogroups. com> Received: Wednesday, February 17, 2010, 10:51 PM> > > Â > > > > Hi! My name is Nikki and I have a 19 mth old son who is in his first cast - he was casted last Wed. (Feb. 10) at the Shriners Hospital in Spokane. The day of casting Brett's right thoracic curve measured 63 degrees and his lumbar curve measured 74. According to the doctor's notes and discussions I had with him, Brett has Congenital Scoliosis however, I just looked at the surgery notes and it states PIS? I have a call into the doctor. I don't know if they just made a mistake on the surgery papers or what? That doesn't give a mom much comfort. =)> > Brett has had a rough start from the get go. He was born 9

wks early, "floppy". After extensive tests and several muscle biopsies, it was found he has a rare muscle disease call Central Core Myopathy - very basically put, he has low muscle tone. He's a tough and determined little guy! He has both OT and PT every week - along with daily home exercises. He's behind developmentally by about 6 mths and now with the cast even more. =(> > I have to say, Brett is adapting to the cast remarkably well! Much, much better than I am! I was anxious to find a group of parents whose kids had been casted and am thrilled I finally did. At first I was extremely apprehensive about casting b/c this is 2010, isn't there something less "archaic" than casting a tiny child? Did anyone else have that thought/feeling? But I have researched extensively for any alternative options and I haven't come up with any!!> > Sorry to go on so long, I just wanted to get my story out there. If anyone has any advice on how

to get through this, I would really appreciate it! Brett has just had one issue after another and I'm exhausted! I'm an only parent, my partner - Brett's father passed away when I was 9 weeks pregnant. > > Thanks for reading! And I appreciate any advice you have to offer.> > PS - has anyone had a problem with their child's undershirt getting wet? If so, what did you do? Grandma watched Brett today and she didn't know how to "properly" diaper him so I had a mess tonight to deal with!> > > > > > > > > > ____________ _________ _________ _________ _________ _________ _> Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail. Click on Options in Mail and switch to New Mail today or register for free at http://mail. yahoo.ca>

[Guest guest]

Thank you Patty! The one realization I have come to is that the cast is definitely better (as a starting treatment) than the brace. I say that because I see Brett struggle and so uncomfortable at times that I'm afraid if he had a brace on, I would be tempted to take it off "just for a few minutes". We all know how that would end up over time! I would hope I would have the strength to not cave because I know the benefits, but one never knows. Therefore, I'm glad I don't have that option available to me! =)

Nikki Mother of Brett (20 mths) 1st cast

To: infantile_scoliosis Sent: Sat, February 20, 2010 12:37:52 PMSubject: Re: New to the group

Nikki,

I just wanted to say welcome to the group! There are so many people on here that are willing to help you in any way that we can. My daughter has been is a cast since July 2009 and is her normal self except for not being able to take baths and swim. I never thought about the cast being archaic... maybe I would have if she hadn't adapted so easily? Just know that everyday will get easier and this is the only thing out there that can save your child. Bracing doesn't help with curves that high as I learned the hard way! If I can help you in any way, let me know, I'd be happy to help or talk on the phone with you! Best of luck! Patty, mom of Isabella, 2 years old, in 4th cast (Rochester) & mom to & Evan

From: nikki062508 <nikkinearyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Thu, February 18, 2010 1:51:35 AMSubject: [infantile_scoliosi s] New to the group

Hi! My name is Nikki and I have a 19 mth old son who is in his first cast - he was casted last Wed. (Feb. 10) at the Shriners Hospital in Spokane. The day of casting Brett's right thoracic curve measured 63 degrees and his lumbar curve measured 74. According to the doctor's notes and discussions I had with him, Brett has Congenital Scoliosis however, I just looked at the surgery notes and it states PIS? I have a call into the doctor. I don't know if they just made a mistake on the surgery papers or what? That doesn't give a mom much comfort. =)Brett has had a rough start from the get go. He was born 9 wks early, "floppy". After extensive tests and several muscle biopsies, it was found he has a rare muscle disease call Central Core Myopathy - very basically put, he has low muscle tone. He's a tough and determined little guy! He has both OT and PT every week - along with daily home exercises. He's behind developmentally by about 6 mths and now

with the cast even more. =(I have to say, Brett is adapting to the cast remarkably well! Much, much better than I am! I was anxious to find a group of parents whose kids had been casted and am thrilled I finally did. At first I was extremely apprehensive about casting b/c this is 2010, isn't there something less "archaic" than casting a tiny child? Did anyone else have that thought/feeling? But I have researched extensively for any alternative options and I haven't come up with any!!Sorry to go on so long, I just wanted to get my story out there. If anyone has any advice on how to get through this, I would really appreciate it! Brett has just had one issue after another and I'm exhausted! I'm an only parent, my partner - Brett's father passed away when I was 9 weeks pregnant. Thanks for reading! And I appreciate any advice you have to offer.PS - has anyone had a problem with their child's undershirt getting wet? If so,

what did you do? Grandma watched Brett today and she didn't know how to "properly" diaper him so I had a mess tonight to deal with!

[Guest guest]

Thanks Heidi! It's definitely getting better! Nikki Mother of Brett (20 mths) 1st cast

To: infantile_scoliosis Sent: Sat, February 20, 2010 12:15:44 PMSubject: Re: Re: New to the group

Maybe start with your regular diaper rash cream on the lower parts- up near the cast Aquaphor might be better, or the calendua baby cream by Weleda Baby...the Cetaphil- forgot to mention this- is very good as a last wipe following a poopy diaper...very gentle on the skin.

Heidi, Bexon's Mama

From: nikki062508 <nikkinearyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Fri, February 19, 2010 2:18:46 PMSubject: [infantile_scoliosi s] Re: New to the group

I know! I've had so many talks with her regarding other issues and she will do good for a little while and then start to do as she pleases again! I haven't talked to her since I picked him up and saw how wet he was, I'm so frustrated (with her) I'm afraid I will say something I shouldn't so I've been deliberately avoiding her. BTW she is the paternal grandma, my mom does what I ask, thankfully - I couldn't handle 2 of them. =) I'm going to try the Cetaphil a little later today however, this morning he broke out with a pretty substantial rash. It is under the cast on his lower belly down to his privates and a little on his legs/hips. Any suggestions? I don't know what to do??? I'm going to try to read through here and see if I can find something but I don't have a lot of free time left....Thanks!!!!> >> > Hello Nikki, welcome to Cast. I am so sorry you have had to deal with so much with your baby and on top of it, lost your husband. I can't imagine the strength you must have. We are here to help you and support you. We all know what you are going through and have been in your shoes when it comes to casting your child. I TOO thought that

casting sounded a little barbaric, but quite the opposite, it is gentle and slow. Your child will really adjust very quickly. Kids are so resilient. You will get into a routine of diapering and bathing and it will be everyday life for you and him. When my son wets on the undershirt, we pull it down as far as we can and clean it with Cetafil soap and warm water then blow dry the shirt on cool (don't want to burn the baby). I learned this from the ladies on this group. They are all so helpful and wonderful. Ask any questions and please turn to us for support> > > > > >  Joan> > mom to Hayden 3> > 43 degrees down from 62> > Cast number 3> > Treated at ish Rite Hospital > > Dallas, TX > > > > > > > > > > ____________ _________ _________

__> > From: nikki062508 <nikkineary@ ...>> > To: infantile_scoliosis @yahoogroups. com> > Sent: Thu, February 18, 2010 12:51:35 AM> > Subject: [infantile_scoliosi s] New to the group> > > >  > > Hi! My name is Nikki and I have a 19 mth old son who is in his first cast - he was casted last Wed. (Feb. 10) at the Shriners Hospital in Spokane. The day of casting Brett's right thoracic curve measured 63 degrees and his lumbar curve measured 74. According to the doctor's notes and discussions I had with him, Brett has Congenital Scoliosis however, I just looked at the surgery notes and it states PIS? I have a call into the doctor. I don't know if they just made a mistake on the surgery papers or what? That doesn't give a mom much comfort. =)> > > > Brett has had a rough start from the get go. He was born 9 wks early, "floppy". After extensive tests and

several muscle biopsies, it was found he has a rare muscle disease call Central Core Myopathy - very basically put, he has low muscle tone. He's a tough and determined little guy! He has both OT and PT every week - along with daily home exercises. He's behind developmentally by about 6 mths and now with the cast even more. =(> > > > I have to say, Brett is adapting to the cast remarkably well! Much, much better than I am! I was anxious to find a group of parents whose kids had been casted and am thrilled I finally did. At first I was extremely apprehensive about casting b/c this is 2010, isn't there something less "archaic" than casting a tiny child? Did anyone else have that thought/feeling? But I have researched extensively for any alternative options and I haven't come up with any!!> > > > Sorry to go on so long, I just wanted to get my story out there. If anyone has any advice on how to get through this, I

would really appreciate it! Brett has just had one issue after another and I'm exhausted! I'm an only parent, my partner - Brett's father passed away when I was 9 weeks pregnant. > > > > Thanks for reading! And I appreciate any advice you have to offer.> > > > PS - has anyone had a problem with their child's undershirt getting wet? If so, what did you do? Grandma watched Brett today and she didn't know how to "properly" diaper him so I had a mess tonight to deal with!> >>

[Guest guest]

Thanks! I was actually replying from the message board rather than my emails! My mind isn't all there sometimes! =) Nikki Mother of Brett (20 mths) 1st cast

To: infantile_scoliosis Sent: Sat, February 20, 2010 9:26:20 AMSubject: Re: Re: New to the group

Nikki

In Yahoo mail go to options, mail options and then click on signature and you can put anything there that you would like on all your emails.

Keep us updated on the rash. I hope today it is better. Airing out helped us in the past. Joanmom to Hayden 343 degrees down from 62Cast number 3Treated at ish Rite Hospital Dallas, TX

From: nikki062508 <nikkinearyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Fri, February 19, 2010 11:25:15 PMSubject: [infantile_scoliosi s] Re: New to the group

Hi Joan,Unfortunately I only have help one day of the week. I'm working on trying to get more. Thanks, I will try the desitin! I called Shriners and they said to watch it for a couple days and if it doesn't get better to call them again. So we'll see, I'm sure it will be fine! =)NikkiPS - how did you get your signature on the posts? > > >> > > Hello Nikki, welcome to Cast. I am so sorry you have had to deal with so much with your baby and on top of it, lost your husband. I can't imagine the strength you must have. We are here to help you and support you. We all know what you are going through and have been in your shoes when it comes to casting your child. I TOO thought that casting sounded a little barbaric, but quite the opposite, it is gentle and slow.

Your child will really adjust very quickly. Kids are so resilient. You will get into a routine of diapering and bathing and it will be everyday life for you and him. When my son wets on the undershirt, we pull it down as far as we can and clean it with Cetafil soap and warm water then blow dry the shirt on cool (don't want to burn the baby). I learned this from the ladies on this group. They are all so helpful and wonderful. Ask any questions and please turn> to us for support> > > > > > > > >  Joan> > > mom to Hayden 3> > > 43 degrees down from 62> > > Cast number 3> > > Treated at ish Rite Hospital > > > Dallas, TX > > > > > > > > > >

> > > > > ____________ _________ _________ __> > > From: nikki062508 <nikkineary@ ...>> > > To: infantile_scoliosis @yahoogroups. com> > > Sent: Thu, February 18, 2010 12:51:35 AM> > > Subject: [infantile_scoliosi s] New to the group> > > > > >  > > > Hi! My name is Nikki and I have a 19 mth old son who is in his first cast - he was casted last Wed. (Feb. 10) at the Shriners Hospital in Spokane. The day of casting Brett's right thoracic curve measured 63 degrees and his lumbar curve measured 74. According to the doctor's notes and discussions I had with him, Brett has Congenital Scoliosis however, I just looked at the surgery notes and it states PIS? I have a call into the doctor. I don't know if they just made a mistake on the surgery papers or what? That doesn't give a mom much comfort. =)> > >

> > > Brett has had a rough start from the get go. He was born 9 wks early, "floppy". After extensive tests and several muscle biopsies, it was found he has a rare muscle disease call Central Core Myopathy - very basically put, he has low muscle tone. He's a tough and determined little guy! He has both OT and PT every week - along with daily home exercises. He's behind developmentally by about 6 mths and now with the cast even more. =(> > > > > > I have to say, Brett is adapting to the cast remarkably well! Much, much better than I am! I was anxious to find a group of parents whose kids had been casted and am thrilled I finally did. At first I was extremely apprehensive about casting b/c this is 2010, isn't there something less "archaic" than casting a tiny child? Did anyone else have that thought/feeling? But I have researched extensively for any alternative options and I haven't come up with any!!> >

> > > > Sorry to go on so long, I just wanted to get my story out there. If anyone has any advice on how to get through this, I would really appreciate it! Brett has just had one issue after another and I'm exhausted! I'm an only parent, my partner - Brett's father passed away when I was 9 weeks pregnant. > > > > > > Thanks for reading! And I appreciate any advice you have to offer.> > > > > > PS - has anyone had a problem with their child's undershirt getting wet? If so, what did you do? Grandma watched Brett today and she didn't know how to "properly" diaper him so I had a mess tonight to deal with!> > >> >>

[Guest guest]

Nikki,I understand that because when Isabella was in her brace, I would feel bad when she was all sweaty and take it off to give her a few minutes to cool down. From my own experience, Isabella sweat much worse in the brace. Patty, mom of Isabella, 2 years old, in 4th cast (Rochester) & mom to & EvanTo: infantile_scoliosis Sent: Sat, February 27, 2010 2:21:49 PMSubject: Re: New to the group

Thank you Patty! The one realization I have come to is that the cast is definitely better (as a starting treatment) than the brace. I say that because I see Brett struggle and so uncomfortable at times that I'm afraid if he had a brace on, I would be tempted to take it off "just for a few minutes". We all know how that would end up over time! I would hope I would have the strength to not cave because I know the benefits, but one never knows. Therefore, I'm glad I don't have that option available to me! =)

Nikki Mother of Brett (20 mths) 1st cast

From: Patty Bowen <bowenpattyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Sat, February 20, 2010 12:37:52 PMSubject: Re: [infantile_scoliosi s] New to the group

Nikki,

I just wanted to say welcome to the group! There are so many people on here that are willing to help you in any way that we can. My daughter has been is a cast since July 2009 and is her normal self except for not being able to take baths and swim. I never thought about the cast being archaic... maybe I would have if she hadn't adapted so easily? Just know that everyday will get easier and this is the only thing out there that can save your child. Bracing doesn't help with curves that high as I learned the hard way! If I can help you in any way, let me know, I'd be happy to help or talk on the phone with you! Best of luck! Patty, mom of Isabella, 2 years old, in 4th cast (Rochester) & mom to & Evan

From: nikki062508 <nikkinearyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Thu, February 18, 2010 1:51:35 AMSubject: [infantile_scoliosi s] New to the group

Hi! My name is Nikki and I have a 19 mth old son who is in his first cast - he was casted last Wed. (Feb. 10) at the Shriners Hospital in Spokane. The day of casting Brett's right thoracic curve measured 63 degrees and his lumbar curve measured 74. According to the doctor's notes and discussions I had with him, Brett has Congenital Scoliosis however, I just looked at the surgery notes and it states PIS? I have a call into the doctor. I don't know if they just made a mistake on the surgery papers or what? That doesn't give a mom much comfort. =)Brett has had a rough start from the get go. He was born 9 wks early, "floppy". After extensive tests and several muscle biopsies, it was found he has a rare muscle disease call Central Core Myopathy - very basically put, he has low muscle tone. He's a tough and determined little guy! He has both OT and PT every week - along with daily home exercises. He's behind developmentally by about 6 mths and now

with the cast even more. =(I have to say, Brett is adapting to the cast remarkably well! Much, much better than I am! I was anxious to find a group of parents whose kids had been casted and am thrilled I finally did. At first I was extremely apprehensive about casting b/c this is 2010, isn't there something less "archaic" than casting a tiny child? Did anyone else have that thought/feeling? But I have researched extensively for any alternative options and I haven't come up with any!!Sorry to go on so long, I just wanted to get my story out there. If anyone has any advice on how to get through this, I would really appreciate it! Brett has just had one issue after another and I'm exhausted! I'm an only parent, my partner - Brett's father passed away when I was 9 weeks pregnant. Thanks for reading! And I appreciate any advice you have to offer.PS - has anyone had a problem with their child's undershirt getting wet? If so,

what did you do? Grandma watched Brett today and she didn't know how to "properly" diaper him so I had a mess tonight to deal with!

[Guest guest]

Nikki,I understand that because when Isabella was in her brace, I would feel bad when she was all sweaty and take it off to give her a few minutes to cool down. From my own experience, Isabella sweat much worse in the brace. Patty, mom of Isabella, 2 years old, in 4th cast (Rochester) & mom to & EvanTo: infantile_scoliosis Sent: Sat, February 27, 2010 2:21:49 PMSubject: Re: New to the group

Thank you Patty! The one realization I have come to is that the cast is definitely better (as a starting treatment) than the brace. I say that because I see Brett struggle and so uncomfortable at times that I'm afraid if he had a brace on, I would be tempted to take it off "just for a few minutes". We all know how that would end up over time! I would hope I would have the strength to not cave because I know the benefits, but one never knows. Therefore, I'm glad I don't have that option available to me! =)

Nikki Mother of Brett (20 mths) 1st cast

From: Patty Bowen <bowenpattyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Sat, February 20, 2010 12:37:52 PMSubject: Re: [infantile_scoliosi s] New to the group

Nikki,

I just wanted to say welcome to the group! There are so many people on here that are willing to help you in any way that we can. My daughter has been is a cast since July 2009 and is her normal self except for not being able to take baths and swim. I never thought about the cast being archaic... maybe I would have if she hadn't adapted so easily? Just know that everyday will get easier and this is the only thing out there that can save your child. Bracing doesn't help with curves that high as I learned the hard way! If I can help you in any way, let me know, I'd be happy to help or talk on the phone with you! Best of luck! Patty, mom of Isabella, 2 years old, in 4th cast (Rochester) & mom to & Evan

From: nikki062508 <nikkinearyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Thu, February 18, 2010 1:51:35 AMSubject: [infantile_scoliosi s] New to the group

Hi! My name is Nikki and I have a 19 mth old son who is in his first cast - he was casted last Wed. (Feb. 10) at the Shriners Hospital in Spokane. The day of casting Brett's right thoracic curve measured 63 degrees and his lumbar curve measured 74. According to the doctor's notes and discussions I had with him, Brett has Congenital Scoliosis however, I just looked at the surgery notes and it states PIS? I have a call into the doctor. I don't know if they just made a mistake on the surgery papers or what? That doesn't give a mom much comfort. =)Brett has had a rough start from the get go. He was born 9 wks early, "floppy". After extensive tests and several muscle biopsies, it was found he has a rare muscle disease call Central Core Myopathy - very basically put, he has low muscle tone. He's a tough and determined little guy! He has both OT and PT every week - along with daily home exercises. He's behind developmentally by about 6 mths and now

with the cast even more. =(I have to say, Brett is adapting to the cast remarkably well! Much, much better than I am! I was anxious to find a group of parents whose kids had been casted and am thrilled I finally did. At first I was extremely apprehensive about casting b/c this is 2010, isn't there something less "archaic" than casting a tiny child? Did anyone else have that thought/feeling? But I have researched extensively for any alternative options and I haven't come up with any!!Sorry to go on so long, I just wanted to get my story out there. If anyone has any advice on how to get through this, I would really appreciate it! Brett has just had one issue after another and I'm exhausted! I'm an only parent, my partner - Brett's father passed away when I was 9 weeks pregnant. Thanks for reading! And I appreciate any advice you have to offer.PS - has anyone had a problem with their child's undershirt getting wet? If so,

what did you do? Grandma watched Brett today and she didn't know how to "properly" diaper him so I had a mess tonight to deal with!

[Guest guest]

Nikki,I understand that because when Isabella was in her brace, I would feel bad when she was all sweaty and take it off to give her a few minutes to cool down. From my own experience, Isabella sweat much worse in the brace. Patty, mom of Isabella, 2 years old, in 4th cast (Rochester) & mom to & EvanTo: infantile_scoliosis Sent: Sat, February 27, 2010 2:21:49 PMSubject: Re: New to the group

Thank you Patty! The one realization I have come to is that the cast is definitely better (as a starting treatment) than the brace. I say that because I see Brett struggle and so uncomfortable at times that I'm afraid if he had a brace on, I would be tempted to take it off "just for a few minutes". We all know how that would end up over time! I would hope I would have the strength to not cave because I know the benefits, but one never knows. Therefore, I'm glad I don't have that option available to me! =)

Nikki Mother of Brett (20 mths) 1st cast

From: Patty Bowen <bowenpattyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Sat, February 20, 2010 12:37:52 PMSubject: Re: [infantile_scoliosi s] New to the group

Nikki,

I just wanted to say welcome to the group! There are so many people on here that are willing to help you in any way that we can. My daughter has been is a cast since July 2009 and is her normal self except for not being able to take baths and swim. I never thought about the cast being archaic... maybe I would have if she hadn't adapted so easily? Just know that everyday will get easier and this is the only thing out there that can save your child. Bracing doesn't help with curves that high as I learned the hard way! If I can help you in any way, let me know, I'd be happy to help or talk on the phone with you! Best of luck! Patty, mom of Isabella, 2 years old, in 4th cast (Rochester) & mom to & Evan

From: nikki062508 <nikkinearyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Thu, February 18, 2010 1:51:35 AMSubject: [infantile_scoliosi s] New to the group

Hi! My name is Nikki and I have a 19 mth old son who is in his first cast - he was casted last Wed. (Feb. 10) at the Shriners Hospital in Spokane. The day of casting Brett's right thoracic curve measured 63 degrees and his lumbar curve measured 74. According to the doctor's notes and discussions I had with him, Brett has Congenital Scoliosis however, I just looked at the surgery notes and it states PIS? I have a call into the doctor. I don't know if they just made a mistake on the surgery papers or what? That doesn't give a mom much comfort. =)Brett has had a rough start from the get go. He was born 9 wks early, "floppy". After extensive tests and several muscle biopsies, it was found he has a rare muscle disease call Central Core Myopathy - very basically put, he has low muscle tone. He's a tough and determined little guy! He has both OT and PT every week - along with daily home exercises. He's behind developmentally by about 6 mths and now

with the cast even more. =(I have to say, Brett is adapting to the cast remarkably well! Much, much better than I am! I was anxious to find a group of parents whose kids had been casted and am thrilled I finally did. At first I was extremely apprehensive about casting b/c this is 2010, isn't there something less "archaic" than casting a tiny child? Did anyone else have that thought/feeling? But I have researched extensively for any alternative options and I haven't come up with any!!Sorry to go on so long, I just wanted to get my story out there. If anyone has any advice on how to get through this, I would really appreciate it! Brett has just had one issue after another and I'm exhausted! I'm an only parent, my partner - Brett's father passed away when I was 9 weeks pregnant. Thanks for reading! And I appreciate any advice you have to offer.PS - has anyone had a problem with their child's undershirt getting wet? If so,

what did you do? Grandma watched Brett today and she didn't know how to "properly" diaper him so I had a mess tonight to deal with!

[Guest guest]

Welcome!

Your best bet would be to get a membership at the traditional foods warehouse, I

think you can shop your first time free to try it out. They've got many

different varieties of meat, eggs and dairy products as well as lots of other

traditional goodies. Here's the website...

http://web.me.com/willwinter/traditionalfoodsmn.mac.com/Welcome.html

Or you can check the st. paul farmer's market, I know some people up there carry

free range eggs. Don't bother with anything in the stores, I've tried everything

from the cheapest to the most expensive supposedly " free range " eggs and nothing

comes close to the real deal.

We also deliver truly free range eggs to the cities once or twice a week as well

as milk.

If you're interested my number is , .

Also check the database for people who might deliver free range eggs to a place

near you.

Good luck, you've come to the right place for real food!

[Guest guest]

Welcome!

Your best bet would be to get a membership at the traditional foods warehouse, I

think you can shop your first time free to try it out. They've got many

different varieties of meat, eggs and dairy products as well as lots of other

traditional goodies. Here's the website...

http://web.me.com/willwinter/traditionalfoodsmn.mac.com/Welcome.html

Or you can check the st. paul farmer's market, I know some people up there carry

free range eggs. Don't bother with anything in the stores, I've tried everything

from the cheapest to the most expensive supposedly " free range " eggs and nothing

comes close to the real deal.

We also deliver truly free range eggs to the cities once or twice a week as well

as milk.

If you're interested my number is , .

Also check the database for people who might deliver free range eggs to a place

near you.

Good luck, you've come to the right place for real food!

[Guest guest]

Oh I forgot to ask, what part of south america are you from?

[Guest guest]

Hello everyone,

I just joined your group and am happy to be part of it. I am currently

working towards becoming a fertility awareness instructor here in

Northern New Mexico and look forward to learning from you.

Thank you for the opportunity,

Brown

[Guest guest]

Anyone have Dr. Kim Hardy's contact info?Sent from my Verizon Wireless BlackBerrySender: nfpprofessionals Date: Fri, 29 Oct 2010 16:51:48 -0600To: <nfpprofessionals >ReplyTo: nfpprofessionals Subject: New to the group Hello everyone,I just joined your group and am happy to be part of it. I am currentlyworking towards becoming a fertility awareness instructor here inNorthern New Mexico and look forward to learning from you.Thank you for the opportunity, Brown

[Guest guest]

Hello ,I can't offer you the practical advice some in the group can, but like the others I will pray for you.

Your colleagues are depriving you of your rights of conscience. Try to make them see that this unjust. I think the hospital/clinic has to respect your rights.

As you think of going solo consider telling Pro-life groups in the area about your practice as well as other Catholic groups. Also try to find out about a faithful Catholic internist or general practitioner with whom you might share office space and patients.

Fr.

 

Hello,

 

My name is Varasteh I am an ob/gyn in Concord NH, and have finished the EP1 course in Nebraska at Pope the VI institute and going back for the second half in April to become an NFP medical consultant .

 

I have been in practice since 1998 and am board certified and an ACOG member. I was not aware of how effective NFP really is in achieving or avoiding pregnancy until I became Catholic in 2007. Since then my life has changed in amazing ways.

 

At this point I am changing my practice to NFP only. But this has been a struggle, as I work at a large clinic and the partners will not allow me to not prescribe or not do tubal ligations when on call. So many days I feel that I am going to war, like a soldier in a battle field. However through prayer and fasting and the grace of God I keep pushing for the truth, one patient at a time.

 

I know many of you have gone through similar times/changes, and am wondering about the transition. I cannot find an NFP only ob/gyn position in NH. Even if I was to go out on my own and start a practice, the cost being enormous, I can't get hospital privileges. This is because the hospital requires that  I have back up coverage in case of emergencies. No other group is willing to cover an NFP only physician. I am wondering if anyone has suggestions. Anyone interested in moving to NH and becoming my partner?

 

Thanks

-- Fr. R. Vélez765 14th Ave, Apt 1San Francisco, CA 94118Website: www.newmanbiography.com

[Guest guest]

you will be targeted by those whose conscience you haver tickled.

The reason they target you is that they are at war with themselves.

Part of them knows you are right, the other part does not want to admit it.

This internal conflict is resolved by inflicting it upon the scapegoat.

If you are good and honest you will have friends. They may think you are crazy, but you will have some good honest, good friends.

When others are unfairly scapegoated, stick up for them. Then you will gain true friends.

Don't worry about people not covering you. As long as you pay others fairly, you will stand out.

The more difficult problem is can you cover them. Always agree in advance that if a TL is 'necessary', you have a back-up.

TLs done on delivery admissions pay very little. You will be doing them a favor to defer it until postpartum.

Patients appreciate it if you have principles, even if they don't agree with you.

The patients who will appreciate you the most will be those whom you did not sterilize, and who later got pregnant.

This is the most profound vindication.

Just go solo. It is better in many ways.

To: nfpprofessionals From: jrvg98@...Date: Tue, 6 Mar 2012 22:16:50 -0800Subject: Re: New to the group

Hello ,

I can't offer you the practical advice some in the group can, but like the others I will pray for you.

Your colleagues are depriving you of your rights of conscience. Try to make them see that this unjust. I think the hospital/clinic has to respect your rights.

As you think of going solo consider telling Pro-life groups in the area about your practice as well as other Catholic groups. Also try to find out about a faithful Catholic internist or general practitioner with whom you might share office space and patients.

Fr.

Hello,

My name is Varasteh I am an ob/gyn in Concord NH, and have finished the EP1 course in Nebraska at Pope the VI institute and going back for the second half in April to become an NFP medical consultant .

I have been in practice since 1998 and am board certified and an ACOG member. I was not aware of how effective NFP really is in achieving or avoiding pregnancy until I became Catholic in 2007. Since then my life has changed in amazing ways.

At this point I am changing my practice to NFP only. But this has been a struggle, as I work at a large clinic and the partners will not allow me to not prescribe or not do tubal ligations when on call. So many days I feel that I am going to war, like a soldier in a battle field. However through prayer and fasting and the grace of God I keep pushing for the truth, one patient at a time.

I know many of you have gone through similar times/changes, and am wondering about the transition. I cannot find an NFP only ob/gyn position in NH. Even if I was to go out on my own and start a practice, the cost being enormous, I can't get hospital privileges. This is because the hospital requires that I have back up coverage in case of emergencies. No other group is willing to cover an NFP only physician. I am wondering if anyone has suggestions. Anyone interested in moving to NH and becoming my partner?

Thanks

-- Fr. R. Vélez765 14th Ave, Apt 1San Francisco, CA 94118Website: www.newmanbiography.com

[Guest guest]

I am going to run this by some practice management experts I work with, and I will pass on what they say. There is a kindred soul in Chicago going through precisely the same thing you are going through, and his name is Dr. Lawler. For a time there was kind of a honeymoon period where contraceptive-dispensing physicians tolerated Catholic OB/GYNs and could even in some instances partner with them, but I think the circle if closing more and more on that arrangement, and the contraception providers are saying "no more". But this isn't necessarily bad, since it gives the Catholic docs a chance to get out of things they don't want to be involved with.

In your situation the fully Catholic doctor ought to be able to insist on the right not to tie tubes or dispense contraceptives, because that means directly performing the evil and not merely cooperating with it, so they are violating our conscience. You are fully within your rights -- as Fr. and others have rightly pointed out -- to insist on the right never to do even one more tubal ligation or birth control prescription. Don't accept anything less, and God, who experience shows really does hear the cries of the poor, will look out for you no matter what.

Sincerely yours,

Dominic M. Pedulla MD, FACC, CNFPMC, ABVM, ACPh

Interventional Cardiologist, Endovascular Diplomate, Varicose Vein Specialist, Noncontraceptive Family Planning Consultant, Family Planning Researcher

Medical Director, The Oklahoma Vein and Endovascular Center (www.noveinok.com, veininfo@...)

Executive Director, The Edith Stein Foundation (www.theedithsteinfoundation.com)

(office)

(cell)

(FAX)

pedullad@...

New to the group

Hello,

My name is Varasteh I am an ob/gyn in Concord NH, and have finished the EP1 course in Nebraska at Pope the VI institute and going back for the second half in April to become an NFP medical consultant .

I have been in practice since 1998 and am board certified and an ACOG member. I was not aware of how effective NFP really is in achieving or avoiding pregnancy until I became Catholic in 2007. Since then my life has changed in amazing ways.

At this point I am changing my practice to NFP only. But this has been a struggle, as I work at a large clinic and the partners will not allow me to not prescribe or not do tubal ligations when on call. So many days I feel that I am going to war, like a soldier in a battle field. However through prayer and fasting and the grace of God I keep pushing for the truth, one patient at a time.

I know many of you have gone through similar times/changes, and am wondering about the transition. I cannot find an NFP only ob/gyn position in NH. Even if I was to go out on my own and start a practice, the cost being enormous, I can't get hospital privileges. This is because the hospital requires that I have back up coverage in case of emergencies. No other group is willing to cover an NFP only physician. I am wondering if anyone has suggestions. Anyone interested in moving to NH and becoming my partner?

Thanks

[Guest guest]

Dominic:I agree.Steve Usala

 

I am going to run this by some practice management experts I work with, and I will pass on what they say. There is a kindred soul in Chicago going through precisely the same thing you are going through, and his name is Dr. Lawler. For a time there was kind of a honeymoon period where contraceptive-dispensing physicians tolerated Catholic OB/GYNs and could even in some instances partner with them, but I think the circle if closing more and more on that arrangement, and the contraception providers are saying " no more " . But this isn't necessarily bad, since it gives the Catholic docs a chance to get out of things they don't want to be involved with.

In your situation the fully Catholic doctor ought to be able to insist on the right not to tie tubes or dispense contraceptives, because that means directly performing the evil and not merely cooperating with it, so they are violating our conscience. You are fully within your rights -- as Fr. and others have rightly pointed out -- to insist on the right never to do even one more tubal ligation or birth control prescription. Don't accept anything less, and God, who experience shows really does hear the cries of the poor, will look out for you no matter what.

Sincerely yours,

Dominic M. Pedulla MD, FACC, CNFPMC, ABVM, ACPh

Interventional Cardiologist, Endovascular Diplomate, Varicose Vein Specialist, Noncontraceptive Family Planning Consultant, Family Planning Researcher

Medical Director, The Oklahoma Vein and Endovascular Center (www.noveinok.com, veininfo@...)

Executive Director, The Edith Stein Foundation (www.theedithsteinfoundation.com)

(office)

(cell)

(FAX)

pedullad@...

New to the group

 

Hello,

 

My name is Varasteh I am an ob/gyn in Concord NH, and have finished the EP1 course in Nebraska at Pope the VI institute and going back for the second half in April to become an NFP medical consultant .

 

I have been in practice since 1998 and am board certified and an ACOG member. I was not aware of how effective NFP really is in achieving or avoiding pregnancy until I became Catholic in 2007. Since then my life has changed in amazing ways.

 

At this point I am changing my practice to NFP only. But this has been a struggle, as I work at a large clinic and the partners will not allow me to not prescribe or not do tubal ligations when on call. So many days I feel that I am going to war, like a soldier in a battle field. However through prayer and fasting and the grace of God I keep pushing for the truth, one patient at a time.

 

I know many of you have gone through similar times/changes, and am wondering about the transition. I cannot find an NFP only ob/gyn position in NH. Even if I was to go out on my own and start a practice, the cost being enormous, I can't get hospital privileges. This is because the hospital requires that  I have back up coverage in case of emergencies. No other group is willing to cover an NFP only physician. I am wondering if anyone has suggestions. Anyone interested in moving to NH and becoming my partner?

 

Thanks

-- J. Usala, M.D., Ph.D., F.A.C.P.Amarillo Medical Specialists, Endocrinology & DiabetesVice President, AMS Rheology & Reproduction, Inc

Clinical Associate Professor, TTU HSC, Amarillo, TXAdjunct Associate Professor, Department of Chemical Engineering, TTU, Lubbock, TXSuite 4051215 S. CoulterAmarillo, TX 79106

cell:ofc:home:fax:677-2014email:stephenusala@...

[Guest guest]

Steve thanks; I just feel so badly that our good and faithful OB/GYNs are having to go through this!!

Sincerely yours,

Dominic M. Pedulla MD, FACC, CNFPMC, ABVM, ACPh

Interventional Cardiologist, Endovascular Diplomate, Varicose Vein Specialist, Noncontraceptive Family Planning Consultant, Family Planning Researcher

Medical Director, The Oklahoma Vein and Endovascular Center (www.noveinok.com, veininfo@...)

Executive Director, The Edith Stein Foundation (www.theedithsteinfoundation.com)

(office)

(cell)

(FAX)

pedullad@...

New to the group

Hello,

My name is Varasteh I am an ob/gyn in Concord NH, and have finished the EP1 course in Nebraska at Pope the VI institute and going back for the second half in April to become an NFP medical consultant .

I have been in practice since 1998 and am board certified and an ACOG member. I was not aware of how effective NFP really is in achieving or avoiding pregnancy until I became Catholic in 2007. Since then my life has changed in amazing ways.

At this point I am changing my practice to NFP only. But this has been a struggle, as I work at a large clinic and the partners will not allow me to not prescribe or not do tubal ligations when on call. So many days I feel that I am going to war, like a soldier in a battle field. However through prayer and fasting and the grace of God I keep pushing for the truth, one patient at a time.

I know many of you have gone through similar times/changes, and am wondering about the transition. I cannot find an NFP only ob/gyn position in NH. Even if I was to go out on my own and start a practice, the cost being enormous, I can't get hospital privileges. This is because the hospital requires that I have back up coverage in case of emergencies. No other group is willing to cover an NFP only physician. I am wondering if anyone has suggestions. Anyone interested in moving to NH and becoming my partner?

Thanks

--

J. Usala, M.D., Ph.D., F.A.C.P.

Amarillo Medical Specialists, Endocrinology & Diabetes

Vice President, AMS Rheology & Reproduction, Inc

Clinical Associate Professor, TTU HSC, Amarillo, TX

Adjunct Associate Professor, Department of Chemical Engineering, TTU, Lubbock, TX

Suite 405

1215 S. Coulter

Amarillo, TX 79106

cell:

ofc:

home:

fax:677-2014

email:stephenusala@...

[Guest guest]

Dear Group,

Thank you so much for all the responses. I agree it is very very difficult to stay in this group I am scared I will get fired if I keep pushing for more. The patients that I have helped cannot thank me enough. Like the 24year old non Catholic, with 4 children, whose husband was going to have a vasectomy. She is now pregnant, and she thanks me every time she sees me. The Holy Spirit guides me every time I go into a room, its incredible.

I would love to just be in a supportive environment, but moving is not easy, we have 5 children, one with delays, epilepsy, and my husband is a physician too. I have contacted the alliance defense fund and have an attorney, but overall NH is weak for conscious protection laws and my personal attorney feels they can fire me for any number of side issues.

To tell you how depressed I feel, I will give you an example, my medical director and chairman of the department met with me without giving me an agenda, and told me that patients are complaining,no names given. This was a complete lie, there were never any formal complaints. One of the patient of concern is using Mirena iud (progesterone) x 10 years, who was turning 40 yo, came to me for an annual exam, and with her very strong maternal history of breast cancer x 2 E/P positive, maternal grandmother and aunt wiht breast cancer, I suggested that she not use this, and explained the benefits of NFP. She called to speak to her regular gyn and was wondering what her opinion was. Anyhow the director was very angry at me for even discussing this with her, stating there is no

literature possibly linking the connection. I even contacted the company and they said there is just no data on patients with a family history. Do you thin this was wrong? So this is just one example of the kind of harassment and hostility that is present. These are doctors I have worked with for over 8 years, and respect. I will keep praying for direction from God. Thanks again for all the support, maybe I just need strenght to leave...

To: nfpprofessionals Sent: Wednesday, March 7, 2012 11:23 AMSubject: Re: New to the group

I am going to run this by some practice management experts I work with, and I will pass on what they say. There is a kindred soul in Chicago going through precisely the same thing you are going through, and his name is Dr. Lawler. For a time there was kind of a honeymoon period where contraceptive-dispensing physicians tolerated Catholic OB/GYNs and could even in some instances partner with them, but I think the circle if closing more and more on that arrangement, and the contraception providers are saying "no more". But this isn't necessarily bad, since it gives the Catholic docs a chance to get out of things they don't want to be involved with.

In your situation the fully Catholic doctor ought to be able to insist on the right not to tie tubes or dispense contraceptives, because that means directly performing the evil and not merely cooperating with it, so they are violating our conscience. You are fully within your rights -- as Fr. and others have rightly pointed out -- to insist on the right never to do even one more tubal ligation or birth control prescription. Don't accept anything less, and God, who experience shows really does hear the cries of the poor, will look out for you no matter what.

Sincerely yours, Dominic M. Pedulla MD, FACC, CNFPMC, ABVM, ACPhInterventional Cardiologist, Endovascular Diplomate, Varicose Vein Specialist, Noncontraceptive Family Planning Consultant, Family Planning ResearcherMedical Director, The Oklahoma Vein and Endovascular Center (www.noveinok.com, veininfo@...)Executive Director, The Edith Stein Foundation (www.theedithsteinfoundation.com) (office) (cell)

(FAX)pedullad@...

New to the group

Hello,

My name is Varasteh I am an ob/gyn in Concord NH, and have finished the EP1 course in Nebraska at Pope the VI institute and going back for the second half in April to become an NFP medical consultant .

I have been in practice since 1998 and am board certified and an ACOG member. I was not aware of how effective NFP really is in achieving or avoiding pregnancy until I became Catholic in 2007. Since then my life has changed in amazing ways.

At this point I am changing my practice to NFP only. But this has been a struggle, as I work at a large clinic and the partners will not allow me to not prescribe or not do tubal ligations when on call. So many days I feel that I am going to war, like a soldier in a battle field. However through prayer and fasting and the grace of God I keep pushing for the truth, one patient at a time.

I know many of you have gone through similar times/changes, and am wondering about the transition. I cannot find an NFP only ob/gyn position in NH. Even if I was to go out on my own and start a practice, the cost being enormous, I can't get hospital privileges. This is because the hospital requires that I have back up coverage in case of emergencies. No other group is willing to cover an NFP only physician. I am wondering if anyone has suggestions. Anyone interested in moving to NH and becoming my partner?

Thanks

[Guest guest]

No NIcole you were right. What in heck do they think when they see data showing progestins raise the risk? Do they not think Mirena has progestins?

Sincerely yours,

Dominic M. Pedulla MD, FACC, CNFPMC, ABVM, ACPh

Interventional Cardiologist, Endovascular Diplomate, Varicose Vein Specialist, Noncontraceptive Family Planning Consultant, Family Planning Researcher

Medical Director, The Oklahoma Vein and Endovascular Center (www.noveinok.com, veininfo@...)

Executive Director, The Edith Stein Foundation (www.theedithsteinfoundation.com)

(office)

(cell)

(FAX)

pedullad@...

New to the group

Hello,

My name is Varasteh I am an ob/gyn in Concord NH, and have finished the EP1 course in Nebraska at Pope the VI institute and going back for the second half in April to become an NFP medical consultant .

I have been in practice since 1998 and am board certified and an ACOG member. I was not aware of how effective NFP really is in achieving or avoiding pregnancy until I became Catholic in 2007. Since then my life has changed in amazing ways.

At this point I am changing my practice to NFP only. But this has been a struggle, as I work at a large clinic and the partners will not allow me to not prescribe or not do tubal ligations when on call. So many days I feel that I am going to war, like a soldier in a battle field. However through prayer and fasting and the grace of God I keep pushing for the truth, one patient at a time.

I know many of you have gone through similar times/changes, and am wondering about the transition. I cannot find an NFP only ob/gyn position in NH. Even if I was to go out on my own and start a practice, the cost being enormous, I can't get hospital privileges. This is because the hospital requires that I have back up coverage in case of emergencies. No other group is willing to cover an NFP only physician. I am wondering if anyone has suggestions. Anyone interested in moving to NH and becoming my partner?

Thanks

[Guest guest]

If you get fired that would be God'sWill. Do you have a Catholic hospitalNear you? LesSent from my iPhone

Dear Group,

Thank you so much for all the responses. I agree it is very very difficult to stay in this group I am scared I will get fired if I keep pushing for more. The patients that I have helped cannot thank me enough. Like the 24year old non Catholic, with 4 children, whose husband was going to have a vasectomy. She is now pregnant, and she thanks me every time she sees me. The Holy Spirit guides me every time I go into a room, its incredible.

I would love to just be in a supportive environment, but moving is not easy, we have 5 children, one with delays, epilepsy, and my husband is a physician too. I have contacted the alliance defense fund and have an attorney, but overall NH is weak for conscious protection laws and my personal attorney feels they can fire me for any number of side issues.

To tell you how depressed I feel, I will give you an example, my medical director and chairman of the department met with me without giving me an agenda, and told me that patients are complaining,no names given. This was a complete lie, there were never any formal complaints. One of the patient of concern is using Mirena iud (progesterone) x 10 years, who was turning 40 yo, came to me for an annual exam, and with her very strong maternal history of breast cancer x 2 E/P positive, maternal grandmother and aunt wiht breast cancer, I suggested that she not use this, and explained the benefits of NFP. She called to speak to her regular gyn and was wondering what her opinion was. Anyhow the director was very angry at me for even discussing this with her, stating there is no

literature possibly linking the connection. I even contacted the company and they said there is just no data on patients with a family history. Do you thin this was wrong? So this is just one example of the kind of harassment and hostility that is present. These are doctors I have worked with for over 8 years, and respect. I will keep praying for direction from God. Thanks again for all the support, maybe I just need strenght to leave...

To: nfpprofessionals Sent: Wednesday, March 7, 2012 11:23 AMSubject: Re: New to the group

I am going to run this by some practice management experts I work with, and I will pass on what they say. There is a kindred soul in Chicago going through precisely the same thing you are going through, and his name is Dr. Lawler. For a time there was kind of a honeymoon period where contraceptive-dispensing physicians tolerated Catholic OB/GYNs and could even in some instances partner with them, but I think the circle if closing more and more on that arrangement, and the contraception providers are saying "no more". But this isn't necessarily bad, since it gives the Catholic docs a chance to get out of things they don't want to be involved with.

In your situation the fully Catholic doctor ought to be able to insist on the right not to tie tubes or dispense contraceptives, because that means directly performing the evil and not merely cooperating with it, so they are violating our conscience. You are fully within your rights -- as Fr. and others have rightly pointed out -- to insist on the right never to do even one more tubal ligation or birth control prescription. Don't accept anything less, and God, who experience shows really does hear the cries of the poor, will look out for you no matter what.

Sincerely yours, Dominic M. Pedulla MD, FACC, CNFPMC, ABVM, ACPhInterventional Cardiologist, Endovascular Diplomate, Varicose Vein Specialist, Noncontraceptive Family Planning Consultant, Family Planning ResearcherMedical Director, The Oklahoma Vein and Endovascular Center (www.noveinok.com, veininfo@...)Executive Director, The Edith Stein Foundation (www.theedithsteinfoundation.com) (office) (cell)

(FAX)pedullad@...

New to the group

Hello,

My name is Varasteh I am an ob/gyn in Concord NH, and have finished the EP1 course in Nebraska at Pope the VI institute and going back for the second half in April to become an NFP medical consultant .

I have been in practice since 1998 and am board certified and an ACOG member. I was not aware of how effective NFP really is in achieving or avoiding pregnancy until I became Catholic in 2007. Since then my life has changed in amazing ways.

At this point I am changing my practice to NFP only. But this has been a struggle, as I work at a large clinic and the partners will not allow me to not prescribe or not do tubal ligations when on call. So many days I feel that I am going to war, like a soldier in a battle field. However through prayer and fasting and the grace of God I keep pushing for the truth, one patient at a time.

I know many of you have gone through similar times/changes, and am wondering about the transition. I cannot find an NFP only ob/gyn position in NH. Even if I was to go out on my own and start a practice, the cost being enormous, I can't get hospital privileges. This is because the hospital requires that I have back up coverage in case of emergencies. No other group is willing to cover an NFP only physician. I am wondering if anyone has suggestions. Anyone interested in moving to NH and becoming my partner?

Thanks

[Guest guest]

, I have been in a group practice since 1997, NFP only Ob-Gyn since 1999, my partners tolerated my differences. I work as a solo doc within the group, we do not share pts we do cross cover call (we do not refill meds on weekends, so if a partnetr pt request refill OCP, they are instucted to call on mon). This works for us, if you would be interested in talking, my cell is 309 781-0623, God Bless, Karla Polaschek,

To: "nfpprofessionals " <nfpprofessionals > Sent: Wednesday, March 7, 2012 1:17 PMSubject: Re: New to the group

If you get fired that would be God's

Will. Do you have a Catholic hospital

Near you?

LesSent from my iPhone

Dear Group,

Thank you so much for all the responses. I agree it is very very difficult to stay in this group I am scared I will get fired if I keep pushing for more. The patients that I have helped cannot thank me enough. Like the 24year old non Catholic, with 4 children, whose husband was going to have a vasectomy. She is now pregnant, and she thanks me every time she sees me. The Holy Spirit guides me every time I go into a room, its incredible.

I would love to just be in a supportive environment, but moving is not easy, we have 5 children, one with delays, epilepsy, and my husband is a physician too. I have contacted the alliance defense fund and have an attorney, but overall NH is weak for conscious protection laws and my personal attorney feels they can fire me for any number of side issues.

To tell you how depressed I feel, I will give you an example, my medical director and chairman of the department met with me without giving me an agenda, and told me that patients are complaining,no names given. This was a complete lie, there were never any formal complaints. One of the patient of concern is using Mirena iud (progesterone) x 10 years, who was turning 40 yo, came to me for an annual exam, and with her very strong maternal history of breast cancer x 2 E/P positive, maternal grandmother and aunt wiht breast cancer, I suggested that she not use this, and explained the benefits of NFP. She called to speak to her regular gyn and was wondering what her opinion was. Anyhow the director was very angry at me for even discussing this with her, stating there is no literature possibly linking the connection. I even contacted the company and they

said there is just no data on patients with a family history. Do you thin this was wrong? So this is just one example of the kind of harassment and hostility that is present. These are doctors I have worked with for over 8 years, and respect. I will keep praying for direction from God. Thanks again for all the support, maybe I just need strenght to leave...

To: nfpprofessionals Sent: Wednesday, March 7, 2012 11:23 AMSubject: Re: New to the group

I am going to run this by some practice management experts I work with, and I will pass on what they say. There is a kindred soul in Chicago going through precisely the same thing you are going through, and his name is Dr. Lawler. For a time there was kind of a honeymoon period where contraceptive-dispensing physicians tolerated Catholic OB/GYNs and could even in some instances partner with them, but I think the circle if closing more and more on that arrangement, and the contraception providers are saying "no more". But this isn't necessarily bad, since it gives the Catholic docs a chance to get out of things they don't want to be involved with.

In your situation the fully Catholic doctor ought to be able to insist on the right not to tie tubes or dispense contraceptives, because that means directly performing the evil and not merely cooperating with it, so they are violating our conscience. You are fully within your rights -- as Fr. and others have rightly pointed out -- to insist on the right never to do even one more tubal ligation or birth control prescription. Don't accept anything less, and God, who experience shows really does hear the cries of the poor, will look out for you no matter what.

Sincerely yours, Dominic M. Pedulla MD, FACC, CNFPMC, ABVM, ACPhInterventional Cardiologist, Endovascular Diplomate, Varicose Vein Specialist, Noncontraceptive Family Planning Consultant, Family Planning ResearcherMedical Director, The Oklahoma Vein and Endovascular Center (www.noveinok.com, veininfo@...)Executive Director, The Edith Stein Foundation (www.theedithsteinfoundation.com) (office) (cell)

(FAX)pedullad@...

New to the group

Hello,

My name is Varasteh I am an ob/gyn in Concord NH, and have finished the EP1 course in Nebraska at Pope the VI institute and going back for the second half in April to become an NFP medical consultant .

I have been in practice since 1998 and am board certified and an ACOG member. I was not aware of how effective NFP really is in achieving or avoiding pregnancy until I became Catholic in 2007. Since then my life has changed in amazing ways.

At this point I am changing my practice to NFP only. But this has been a struggle, as I work at a large clinic and the partners will not allow me to not prescribe or not do tubal ligations when on call. So many days I feel that I am going to war, like a soldier in a battle field. However through prayer and fasting and the grace of God I keep pushing for the truth, one patient at a time.

I know many of you have gone through similar times/changes, and am wondering about the transition. I cannot find an NFP only ob/gyn position in NH. Even if I was to go out on my own and start a practice, the cost being enormous, I can't get hospital privileges. This is because the hospital requires that I have back up coverage in case of emergencies. No other group is willing to cover an NFP only physician. I am wondering if anyone has suggestions. Anyone interested in moving to NH and becoming my partner?

Thanks

[Guest guest]

Talk about working in a hostile environment!  So, you are not able to explain to patients " risks and alternative forms of treatment " ??  It sounds like the Gestapo is looking over your shoulder.Maybe all Catholic doctors and nurses of conscience need to group together.  There is a clinic in San Diego that practices " Culture of Life " .  You might want to contact Dr. Delgado  http://www.scripps.org/physicians/3917-george-delgado  and see how they managed to set this up.

Peggy

 

Dear Group,

Thank you so much for all the responses. I agree it is very very difficult to stay in this group I am scared I will get fired if I keep pushing for more. The patients that I have helped cannot thank me enough. Like the 24year old non Catholic, with 4 children, whose husband was going to have a vasectomy. She is now pregnant, and she thanks me every time she sees me. The Holy Spirit guides me every time I go into a room, its incredible.

I would love to just be in a supportive environment, but moving is not easy, we have 5 children, one with delays, epilepsy, and my husband is a physician too. I have contacted the alliance defense fund and have an attorney, but overall NH  is weak for conscious protection laws and my personal attorney feels they can fire me for any number of side issues.

To tell you how depressed I feel, I will give you an example, my medical director and chairman of the department met with me without giving me an agenda, and told me that patients are complaining,no names given. This was a complete lie, there were never any formal complaints. One of the patient of concern is using  Mirena iud (progesterone) x 10 years, who was turning 40 yo, came to me for an annual exam, and with her very strong maternal history of breast cancer x 2 E/P positive, maternal grandmother and aunt wiht breast cancer, I suggested that she not use this, and explained the benefits of NFP. She called to speak to her regular gyn and was wondering what her opinion was. Anyhow the director was very angry at me for even discussing this with her, stating there is no

literature possibly linking the connection. I even contacted the company and they said there is just no data on patients with a family history. Do you thin this was wrong? So this is just one example of the kind of harassment and hostility that is present. These are doctors I have worked with for over 8 years, and respect. I will keep praying for direction from God. Thanks again for all the support, maybe I just need strenght to leave...

To: nfpprofessionals Sent: Wednesday, March 7, 2012 11:23 AM

Subject: Re: New to the group

 

I am going to run this by some practice management experts I work with, and I will pass on what they say. There is a kindred soul in Chicago going through precisely the same thing you are going through, and his name is Dr. Lawler. For a time there was kind of a honeymoon period where contraceptive-dispensing physicians tolerated Catholic OB/GYNs and could even in some instances partner with them, but I think the circle if closing more and more on that arrangement, and the contraception providers are saying " no more " . But this isn't necessarily bad, since it gives the Catholic docs a chance to get out of things they don't want to be involved with.

In your situation the fully Catholic doctor ought to be able to insist on the right not to tie tubes or dispense contraceptives, because that means directly performing the evil and not merely cooperating with it, so they are violating our conscience. You are fully within your rights -- as Fr. and others have rightly pointed out -- to insist on the right never to do even one more tubal ligation or birth control prescription. Don't accept anything less, and God, who experience shows really does hear the cries of the poor, will look out for you no matter what.

Sincerely yours, Dominic M. Pedulla MD, FACC, CNFPMC, ABVM, ACPhInterventional Cardiologist, Endovascular Diplomate, Varicose Vein Specialist, Noncontraceptive Family Planning Consultant, Family Planning Researcher

Medical Director, The Oklahoma Vein and Endovascular Center (www.noveinok.com, veininfo@...)

Executive Director, The Edith Stein Foundation (www.theedithsteinfoundation.com) (office)

(cell)

(FAX)pedullad@...

New to the group

 

Hello,

 

My name is Varasteh I am an ob/gyn in Concord NH, and have finished the EP1 course in Nebraska at Pope the VI institute and going back for the second half in April to become an NFP medical consultant .

 

I have been in practice since 1998 and am board certified and an ACOG member. I was not aware of how effective NFP really is in achieving or avoiding pregnancy until I became Catholic in 2007. Since then my life has changed in amazing ways.

 

At this point I am changing my practice to NFP only. But this has been a struggle, as I work at a large clinic and the partners will not allow me to not prescribe or not do tubal ligations when on call. So many days I feel that I am going to war, like a soldier in a battle field. However through prayer and fasting and the grace of God I keep pushing for the truth, one patient at a time.

 

I know many of you have gone through similar times/changes, and am wondering about the transition. I cannot find an NFP only ob/gyn position in NH. Even if I was to go out on my own and start a practice, the cost being enormous, I can't get hospital privileges. This is because the hospital requires that  I have back up coverage in case of emergencies. No other group is willing to cover an NFP only physician. I am wondering if anyone has suggestions. Anyone interested in moving to NH and becoming my partner?

 

Thanks

[Guest guest]

The real reason for the negative reaction is that your practice and your stance is a living rebuke to them, and that is ultimately, whether they recognize or acknowledge it or not, unacceptable to them -- you are like to them, unacceptable even to see you, for even the sight of you is a reminder of what they are trying to forget -- how they are daily harming their patients, compromising their patients' health and happiness.

Sincerely yours,

Dominic M. Pedulla MD, FACC, CNFPMC, ABVM, ACPh

Interventional Cardiologist, Endovascular Diplomate, Varicose Vein Specialist, Noncontraceptive Family Planning Consultant, Family Planning Researcher

Medical Director, The Oklahoma Vein and Endovascular Center (www.noveinok.com, veininfo@...)

Executive Director, The Edith Stein Foundation (www.theedithsteinfoundation.com)

(office)

(cell)

(FAX)

pedullad@...

New to the group

Hello,

My name is Varasteh I am an ob/gyn in Concord NH, and have finished the EP1 course in Nebraska at Pope the VI institute and going back for the second half in April to become an NFP medical consultant .

I have been in practice since 1998 and am board certified and an ACOG member. I was not aware of how effective NFP really is in achieving or avoiding pregnancy until I became Catholic in 2007. Since then my life has changed in amazing ways.

At this point I am changing my practice to NFP only. But this has been a struggle, as I work at a large clinic and the partners will not allow me to not prescribe or not do tubal ligations when on call. So many days I feel that I am going to war, like a soldier in a battle field. However through prayer and fasting and the grace of God I keep pushing for the truth, one patient at a time.

I know many of you have gone through similar times/changes, and am wondering about the transition. I cannot find an NFP only ob/gyn position in NH. Even if I was to go out on my own and start a practice, the cost being enormous, I can't get hospital privileges. This is because the hospital requires that I have back up coverage in case of emergencies. No other group is willing to cover an NFP only physician. I am wondering if anyone has suggestions. Anyone interested in moving to NH and becoming my partner?

Thanks