Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 Hi . I'm a little (more) surprised at your eagerness to start treatment. What does your biopsy show? you do realise your trading relatively good health for the possibility of feeling like shit for one year? And lasting after effects.....Don't get me wrong, you will get lots of support here and I will support your decision but with a few questions. Here's a couple Canadian sites for you. HcvAdvocate.org. and check Peppermint patti's FAQ. http://www.hepcbc.ca./FAQv6.htm Good Luck to ya.....ric Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 Welcome,, and now that you have started, KICK dragon butt..Im glad the sides werent too bad,, --- jumpinjive56 wrote: > Hi...I'm new here. > > I'm 48 years old and have had HepC for probably 30 > years. I'm healthy > and in good shape. My ALT, AST etc is very > stable...just a minor > elevation, and I suffer from no symptoms. In > mid-2001 my viral load > was 580,000. My genotype is 1B. I've been followed > by a hepatologist > for about 10 years. My liver ultrasounds have been > stable for that > time period. I have a few minor esophageal varices. > > After a lot of thought and discussion, and after > waiting for the > treatment and outcomes to improve, we finally > decided to start. I > started yesterday on Pegetron (Canadian name), so > today is Day 1 of my > side effects. As I always say, being a pessimist > has it's advantages, > because I actually feel better than I thought I > would. I was afraid I > may not have been able to get out of bed this > morning. I did wake up > in the middle of the night with a headache, then a > stomach ache, and > today I am achy, nauseous and tired. I have a > low-grade fever. My > employer is allowing me to take Fridays off as often > as I need to. > > Any comments, feedback, suggestions or resources > would be appreciated. > I'm sure I'll think of many questions for you all. > > Thanks very much, > > > > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Wow, this isn't what I expected for my first response. Yes, I know what I'm in for...but I think it's worth the tradeoff to be HepC free...if it happens. I know it's about 40%. When you mention lasting after effects, do you mean for 6 months post treatment, or permanently? I haven't had a biopsy...they know I have some degree of cirrhosis because of the varices, but I don't want a biopsy because of my bleeding disorder. Thanks for your reply and your support. ---Ric <richobbs1@y...> wrote: > Hi . I'm a little (more) surprised at your > eagerness to start treatment. What does your biopsy > show? you do realise your trading relatively good > health for the possibility of feeling like shit for > one year? And lasting after effects.....Don't get me > wrong, you will get lots of support here and I will > support your decision but with a few questions. Here's > a couple Canadian sites for you. HcvAdvocate.org. and > check Peppermint patti's FAQ. > http://www.hepcbc.ca./FAQv6.htm > Good Luck to ya.....ric Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Thanks a lot, Jackie. Can I expect the side effects to get worse with time? I know stuff like mood swings, depression, hair loss wouldn't happen right away, but will the nausea, fatigue, fevers that I've experienced in the last two days get worse? Thanks again, ---Jackie on <redjaxjm@y...> wrote: > Welcome,, and now that you have started, KICK dragon > butt..Im glad the sides werent too bad,, > > --- jumpinjive56 <jumpinjive@g...> wrote: > > Hi...I'm new here. > > > > I'm 48 years old and have had HepC for probably 30 > > years. I'm healthy > > and in good shape. My ALT, AST etc is very > > stable...just a minor > > elevation, and I suffer from no symptoms. In > > mid-2001 my viral load > > was 580,000. My genotype is 1B. I've been followed > > by a hepatologist > > for about 10 years. My liver ultrasounds have been > > stable for that > > time period. I have a few minor esophageal varices. > > > > After a lot of thought and discussion, and after > > waiting for the > > treatment and outcomes to improve, we finally > > decided to start. I > > started yesterday on Pegetron (Canadian name), so > > today is Day 1 of my > > side effects. As I always say, being a pessimist > > has it's advantages, > > because I actually feel better than I thought I > > would. I was afraid I > > may not have been able to get out of bed this > > morning. I did wake up > > in the middle of the night with a headache, then a > > stomach ache, and > > today I am achy, nauseous and tired. I have a > > low-grade fever. My > > employer is allowing me to take Fridays off as often > > as I need to. > > > > Any comments, feedback, suggestions or resources > > would be appreciated. > > I'm sure I'll think of many questions for you all. > > > > Thanks very much, > > > > > > > > > > > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 , I like you was a non responder to the treatment the first time I did the treatment. But I like you think that the side effects are outweighed by the fact that I might have a chance of being Hep C free or at least have a long lasting SVR. Besides once you learn to handle the sides. They ain't so tough. Or maybe I am just a tough ole gal. Love Janet > > Hi . I'm a little (more) surprised at your > > eagerness to start treatment. What does your biopsy > > show? you do realise your trading relatively good > > health for the possibility of feeling like shit for > > one year? And lasting after effects.....Don't get me > > wrong, you will get lots of support here and I will > > support your decision but with a few questions. Here's > > a couple Canadian sites for you. HcvAdvocate.org. and > > check Peppermint patti's FAQ. > > http://www.hepcbc.ca./FAQv6.htm > > Good Luck to ya.....ric Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Actually they will get better with time. The side effects of the treatment. Here are some suggestions that might help: Drink lots of water get some mild exercise, believe it or not it will help with the fatique, yoga,walking,biking. Or hiking, I went hiking recently and it felt so good, I was able to stop and rest when I needed to, admire the scenery. I have had some thinning of my hair, but lord knows I have a abundance of hair so no one notices it but me.LOL Before you take your shot be sure to take the fever reducer that your doctor recommends. Take your shot at night,before you retire for the night. You will actually sleep away the majority of the shot effects that shot night. The next day make sure it is a stress free day, a day that you can get rest should you need it. I call it a taken care of me day. Ginger ale,ginger tea, or ginger snaps for the nausea. Wal mart carries some ginger snaps that aren't strong in favor but do the job nicely. You may have problems with dry skin, so some good lotions that are thick and creamy, help alot. My hands,arms,legs and feet are the extremities that seem to be the most dry. Oatmeal soaps tend not to dry the skin as much, and Avon sells a skin so soft soap that is really nice. That is about all I can think of right now, but remember power naps can really do you alot of good. Power naps=laying down for 20 to 30 mins. Ask questions we are here to help. Love Janet > > > Hi...I'm new here. > > > > > > I'm 48 years old and have had HepC for probably 30 > > > years. I'm healthy > > > and in good shape. My ALT, AST etc is very > > > stable...just a minor > > > elevation, and I suffer from no symptoms. In > > > mid-2001 my viral load > > > was 580,000. My genotype is 1B. I've been followed > > > by a hepatologist > > > for about 10 years. My liver ultrasounds have been > > > stable for that > > > time period. I have a few minor esophageal varices. > > > > > > After a lot of thought and discussion, and after > > > waiting for the > > > treatment and outcomes to improve, we finally > > > decided to start. I > > > started yesterday on Pegetron (Canadian name), so > > > today is Day 1 of my > > > side effects. As I always say, being a pessimist > > > has it's advantages, > > > because I actually feel better than I thought I > > > would. I was afraid I > > > may not have been able to get out of bed this > > > morning. I did wake up > > > in the middle of the night with a headache, then a > > > stomach ache, and > > > today I am achy, nauseous and tired. I have a > > > low-grade fever. My > > > employer is allowing me to take Fridays off as often > > > as I need to. > > > > > > Any comments, feedback, suggestions or resources > > > would be appreciated. > > > I'm sure I'll think of many questions for you all. > > > > > > Thanks very much, > > > > > > > > > > > > > > > > > > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Hi . I have tried treatment 3 times and the only lasting after effect i have is a destroyed Thyroid Gland. That means I have to take a pill every day. No big deal. But there are others who can tell you about the permanent effects of this treatment. Some have cleared, some haven't..Most will say it was worth it. especially those with cirrhosis who cleared. But I'm not so sure. There are people who have crippling and very painful conditions caused by this poison. I'm not trying to scare you, I'm just saying that you were healthy, or so you said. And you may be fine, and you may be virus free after this is over. But the opposite may be true too. You say 40%. thats true, but factor in the possibility of your turning out worse and the odds go way down. New treatments are on the horizon and you you have time to wait. Are you sure you weren't pushed into this decision? And what is the blood disorder you mention?.......your friend....ric Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 and here's something else I want to say . I don't think your fever and nausea and fatigue after your first shot is a good sign at all. Please be very careful. monitor your blood work every 2 weeks . some folks can't handle interferon at all.........ric Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 If I can add to this... I had to stop the shots half way thru my 12th month tx. The depression got so great and my Dr. said the interferon was getting into my brain so I had to stop after 26 injections. I stopped three weeks ago and feeling a little better. Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Sounds like you have the normal side effects. I go in monday for my 3 month checkup Hoping it will be undetected Annita_C_Central , Jackie on <redjaxjm@y...> wrote: > Welcome,, and now that you have started, KICK dragon > butt..Im glad the sides werent too bad,, > > --- jumpinjive56 <jumpinjive@g...> wrote: > > Hi...I'm new here. > > > > I'm 48 years old and have had HepC for probably 30 > > years. I'm healthy > > and in good shape. My ALT, AST etc is very > > stable...just a minor > > elevation, and I suffer from no symptoms. In > > mid-2001 my viral load > > was 580,000. My genotype is 1B. I've been followed > > by a hepatologist > > for about 10 years. My liver ultrasounds have been > > stable for that > > time period. I have a few minor esophageal varices. > > > > After a lot of thought and discussion, and after > > waiting for the > > treatment and outcomes to improve, we finally > > decided to start. I > > started yesterday on Pegetron (Canadian name), so > > today is Day 1 of my > > side effects. As I always say, being a pessimist > > has it's advantages, > > because I actually feel better than I thought I > > would. I was afraid I > > may not have been able to get out of bed this > > morning. I did wake up > > in the middle of the night with a headache, then a > > stomach ache, and > > today I am achy, nauseous and tired. I have a > > low-grade fever. My > > employer is allowing me to take Fridays off as often > > as I need to. > > > > Any comments, feedback, suggestions or resources > > would be appreciated. > > I'm sure I'll think of many questions for you all. > > > > Thanks very much, > > > > > > > > > > > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Thanks for all that great advice, Janet. About the side effects...I know that I'll adjust and they will get better, but since I've only had my first shot, I thought they might get worse before they get better. Am I wrong? Keep well, > > > > Hi...I'm new here. > > > > > > > > I'm 48 years old and have had HepC for probably 30 > > > > years. I'm healthy > > > > and in good shape. My ALT, AST etc is very > > > > stable...just a minor > > > > elevation, and I suffer from no symptoms. In > > > > mid-2001 my viral load > > > > was 580,000. My genotype is 1B. I've been followed > > > > by a hepatologist > > > > for about 10 years. My liver ultrasounds have been > > > > stable for that > > > > time period. I have a few minor esophageal varices. > > > > > > > > After a lot of thought and discussion, and after > > > > waiting for the > > > > treatment and outcomes to improve, we finally > > > > decided to start. I > > > > started yesterday on Pegetron (Canadian name), so > > > > today is Day 1 of my > > > > side effects. As I always say, being a pessimist > > > > has it's advantages, > > > > because I actually feel better than I thought I > > > > would. I was afraid I > > > > may not have been able to get out of bed this > > > > morning. I did wake up > > > > in the middle of the night with a headache, then a > > > > stomach ache, and > > > > today I am achy, nauseous and tired. I have a > > > > low-grade fever. My > > > > employer is allowing me to take Fridays off as often > > > > as I need to. > > > > > > > > Any comments, feedback, suggestions or resources > > > > would be appreciated. > > > > I'm sure I'll think of many questions for you all. > > > > > > > > Thanks very much, > > > > > > > > > > > > > > > > > > > > > > > > > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Thanks Ric. No, I wasn't pushed...I've been thinking about it for a long time. I'll talk to my doc about the possible permanent effects in a couple of weeks. My blood disorder? Von Willebrand's, type 2b. Keep well, > Hi . I have tried treatment 3 times and the only > lasting after effect i have is a destroyed Thyroid > Gland. That means I have to take a pill every day. No > big deal. But there are others who can tell you about > the permanent effects of this treatment. Some have > cleared, some haven't..Most will say it was worth it. > especially those with cirrhosis who cleared. But I'm > not so sure. There are people who have crippling and > very painful conditions caused by this poison. I'm not > trying to scare you, I'm just saying that you were > healthy, or so you said. And you may be fine, and you > may be virus free after this is over. But the opposite > may be true too. You say 40%. thats true, but factor > in the possibility of your turning out worse and the > odds go way down. New treatments are on the horizon > and you you have time to wait. Are you sure you > weren't pushed into this decision? And what is the > blood disorder you mention?.......your friend....ric Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Hi Everyone! I am new to ISOWL and just love it. I too am trying to listen to a couple of podcasts a day to " catch up " and find them really inspiring. I have had a few health issues lately that I am trying to get a grip on (cholesterol, bursitis in my knee) and feel like I'm at a turning point in my life. I have recently discovered how wonderful podcasts are and blogging ( http://amysblog36.blogspot.com ) Weight Watchers helped me lose 20 lbs a few years ago but guess what! They are all back! I find I catch myself saying " I know what I need to do the hard part is doing it " so I guess I've finally realized I need to change the way I think about myself and weightloss. So here I am. Nice to meet all of you, Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Hi Amy I've just joined too and am in a similar position to yourself, I lost just over 56 lbs a few years back with Slimming World and have put on about half of that again. I went back to all the local SW groups but found keeping motivated really hard this time, I've been losing and gaining 5/7 lbs at each one. I knew I needed something to help me work out why I binge eat, rather than just giving me foods that are OK to binge on. I find the podcasts great , I'm back doing the SW diet without the group but with in the car, on a walkman at bedtime and as I'm cooking for my children I find playing them ion the kitchen while I cook a great help. Good luck with your own journey and thanks for the post Jenna London UK ******************** Hi Everyone! I am new to ISOWL and just love it. I too am trying to listen to a couple of podcasts a day to " catch up " and find them really inspiring. I have had a few health issues lately that I am trying to get a grip on (cholesterol, bursitis in my knee) and feel like I'm at a turning point in my life. I have recently discovered how wonderful podcasts are and blogging ( http://amysblog36.blogspot.com ) Weight Watchers helped me lose 20 lbs a few years ago but guess what! They are all back! I find I catch myself saying " I know what I need to do the hard part is doing it " so I guess I've finally realized I need to change the way I think about myself and weightloss. So here I am. Nice to meet all of you, Amy Quote Link to comment Share on other sites More sharing options...
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