Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 > What is the GFCF diet I see mentioned here alot? > > Kim gluten free casien free /files/Glossary GFCFKids/ for example Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 Gluten Free, Casein Free This may help explain better than I could http://www.gfcfdiet.com/ [ ] GFCF diet What is the GFCF diet I see mentioned here alot? Kim ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2002 Report Share Posted August 31, 2002 > A lot of people have posted that after chelating, their child was > able to discontine the diet and actually becomes healthier. I saw this with my son also. > > We are at a point where we are considering dropping the diet. Our one > problem is, my son can not take digestive enzymes. I would ask different enzyme suppliers about using their specific enzymes along with your child's ulcer and/or other issues. There might be one or more you can consider. > > Has anyone successfully quit the diet without using enzymes? Could > you please share with me your results? I use enzymes, but if you want to try a diet challenge without enzymes, you should start with milk, because results from a milk challenge should be apparent after a week or less, whereas gluten problems sometimes don't show up for a month or more. Do tests indicate your child is no longer metal toxic? Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2002 Report Share Posted August 31, 2002 We have been chelating for two years and gfcf for over two years. My son now only has high lead. We continue to chelate for the lead but it finally feels like there is light at the end of the tunnel. We know this will be something to watch for the rest of his life but he has come a LONG way. We didn't start things until he was 4 1/2 which is really late but we just didn't know what was going on. Kathy > > > A lot of people have posted that after chelating, their child was > > able to discontine the diet and actually becomes healthier. > > > I saw this with my son also. > > > > > > We are at a point where we are considering dropping the diet. Our > one > > problem is, my son can not take digestive enzymes. > > > I would ask different enzyme suppliers about using their specific > enzymes along with your child's ulcer and/or other issues. There > might be one or more you can consider. > > > > > Has anyone successfully quit the diet without using enzymes? Could > > you please share with me your results? > > > I use enzymes, but if you want to try a diet challenge without > enzymes, you should start with milk, because results from a milk > challenge should be apparent after a week or less, whereas gluten > problems sometimes don't show up for a month or more. Do tests > indicate your child is no longer metal toxic? > > Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2002 Report Share Posted August 31, 2002 Can your child eat pineapple and papaya? They contain the natural enzymes bromelain and papain. SOur & gt; one & gt; problem is, my son can not take digestive enzymes. & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 Ask your dietician if it would be a problem if you mixed enzymes (Peptizyde and Zyme Prime) into the Pediasure b/4 feeding it to your child. Go to www.enzymestuff.com to learn more or visit www.houstonni.com to read about these enzymes. Many people use these in place of the GFCF diet. In fact, you can read testimonials of parents who were totally GFCF until they started using the enzymes and now their children can eat pretty much anything any other children can eat so long as they use the enzymes. [ ] GFCF Diet There has been alot of talk lately about the GFCF (gluten-free, casein-free) Diet. Much of the litature I have found states if your child is experiencing bowel problems (either diarrhea or constipation), language or social skill difficulties, problems with sensory integration (including difficulty processing touch, sounds, etc.), or difficulty monitoring his or her activity level, or if there is some other indication of allergies or intolerances, your child may possibly benefit from this diet, with or without a diagnosis of an autistic spectrum disorder (ASD). I want to implement this diet for Chase 2.11yo , Dx'd with GERD, Dysphasia, Hypotonia, SI issues, and global/oral/verbal Dyspraxia. However, at this time, Chase is completely G-tube dependent for total nutrition. The formula that we use is PediaSure w/fiber Enteral Formula and the other formulas available are very similar and contain both gluten and casein products. I have recently discussed other options, with a dietician, such as home-made formulas for a lss expensive alternative (not for a GFCF Diet)and she recommends using the pre-made commercial formulas to insure complete balanced nutrition. I have not been able to find any formulas that are gluten-free and casein-free thus far. I was wondering if anyone, more experience with the GFCF Diet, knows of any enteral formulas that would work with diet? Thanks, Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2003 Report Share Posted July 6, 2003 Hi oops ! Dietary enzymes are used with great success by many parents but the issue of replacing gfcf with enzymes is HIGHLY, HIGHLY contravertial and , if you read the files section of the enzymes board, they themselves stress that enzymes should support and not replace gfcf . ( ...and oh that life were that easy !!! ) Can I suggest that you contact the gfcf board ( group GFCFkids ) and ask that question there . You can also get a great deal of info re enzymes there too . I am anxious to stress this as I am a mother who tried enzymes on two seperate occasions and they did not help at all - if anything made Charlie more hyperactive. If i had been using them to replace instead of just supprt gfcf i may have had more problems ...... If yopu can't get a helpful answer there please ,mail me off site as I know a woman who may be able to but I don't want to invade her privacy by posting her details here . Good luck let me know if i can help at all Deborah > Ask your dietician if it would be a problem if you mixed enzymes (Peptizyde and Zyme Prime) into the Pediasure b/4 feeding it to your child. Go to www.enzymestuff.com to learn more or visit www.houstonni.com to read about these enzymes. Many people use these in place of the GFCF diet. In fact, you can read testimonials of parents who were totally GFCF until they started using the enzymes and now their children can eat pretty much anything any other children can eat so long as they use the enzymes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2003 Report Share Posted July 7, 2003 Kris, Your son sounds identical to mine...age 31/2 hypotonia, feeding tube, dyphagia, apraxia...no diagnosis. I have been giving him a homemade blenderized diet since the age of 1 1/2 (got g-tube at age 8 months). I am seriously considering changing his diet to gfcf...however, even with a blenderized diet that you make from scratch...keeping it gfcf can be difficult because I have to maintain the calories, and keep the formula thin enough to go through his tube...let me know if anyone gives you any answers...I would be interested also.... Sincerely, Heidi...mommy to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Please Respond to ykyong@... [ascc2] GFCF Diet Hello everyone, I wonder if anyone has experienced the following situation: My son is under gluten, casein, chocolate, artificial colors and flavors free diet for about 2 months so far. One week after the diet, he started to have loose stool and poops 3-4 times a day until now, and hives began to appear on his body, arms, and legs almost every day. I gave him Benadryl for the hives as the pediatrician said, and stop giving Super Nuthera and Enzyme to control the loose stool. What else I should do? Any advice is appreciated! Lan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 Some think you need to be casein-free + gluten-free + corn-free + soy- free before giving up on " gfcf " . Some do the Specific Carbohydrate Diet. Some message boards for those diets are: GFCFKids/ pecanbread/ My son had minor gut issues. When he was a baby, I was concerned about his " mushy stools " . But he did not have diarrhea and never complained of a stomachache. He later benefited from the gfcf diet, but I ended up having to remove many more foods as he developed intolerances. We eventually found enzymes. www.enzymestory.com > > We've been casein free for 3 weeks and have limited gluten (on our > way to eliminating it). There have been no noticeable benefits from > this so far. We've heard that casein-free benefits would show up by > now. Our son has been doing well with other therapies and continues > to make progress. Should we continue going casein-free and now pull > out gluten and see if that has an impact? Or can we assume casein- > free won't make a difference at this point and just go gluten-free. > > We have an appointment with a DAN doctor in December so in the > meantime, we're looking for guidance. Also, is there anyone out > there whose child had no apparent gut issues but still benefited > from the GFCF diet. > > Your help is greatly appreciated. > > Thanks > > Vic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 Hi Vic, If I had my time again my son would never have gone on the gfcf diet but would have gone straight onto the enzymes. Don't get me wrong, my son started speaking three days after taking out dairy. However, I do believe that he would have done the same thing if I had just given him the enzymes to break the dairy down before it became a problem. I certainly would have tried it the other way first anyway. My reason is this. Because we have been on the diet and seen improvements we are constantly looking for food intolerances even on the enzymes. Had we not have seen the improvements on the diet first, we would be seeing the improvements from the enzymes instead and would not be so over concerned. It takes a lot more courage to take the plunge with new foods after being on the diet. Am I making sense? So my opinion is that you would have a much more relaxed life by using the enzymes. After all, you could always then implement the diet if you felt it was still necessary. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 Thanks , You've answered a question I've been dying to ask. We are going to start enzymes and though Mikey is dairy-free, I'm not going to start the GFCF diet. Any advice on which enzymes you'd start with (and dosage) if you had done it this way with your son? Thanks, Jenni Thorpeheather@... wrote: Hi Vic, If I had my time again my son would never have gone on the gfcf diet but would have gone straight onto the enzymes. Don't get me wrong, my son started speaking three days after taking out dairy. However, I do believe that he would have done the same thing if I had just given him the enzymes to break the dairy down before it became a problem. I certainly would have tried it the other way first anyway. My reason is this. Because we have been on the diet and seen improvements we are constantly looking for food intolerances even on the enzymes. Had we not have seen the improvements on the diet first, we would be seeing the improvements from the enzymes instead and would not be so over concerned. It takes a lot more courage to take the plunge with new foods after being on the diet. Am I making sense? So my opinion is that you would have a much more relaxed life by using the enzymes. After all, you could always then implement the diet if you felt it was still necessary. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 Just ANOTHER 2 pence (I am in UK LOL) we were CFGF 100% 13 months (longer but trace got through) and my son just improved and improved when we switched from the diet to HNI enzymes. LIke , I wish I'd never gone there first but you do learn an awful lot about lables additives etc which is info I would rather not have missed! Mandi in UK We too did enzymes before going GFCF and saw huge improvements. But like so many people on the GFCF list told me (and I resisted), we didn’t see “all†of the improvements until we got to 100%. I feel like the improvements we saw on enzymes w/o being all the way GFCF are a good indicator that we WILL be able to re-introduce foods once my daughter’s gut is sufficiently healed…but I have to say that as soon as the 90% GFCF went to 100% (and even though her food choices have not yet expanded unfortunately), we got another HUGE speech surge (she is 2 ½ btw), a decrease in sensory issues, an improvement in post-nap disposition and a whole bunch of other things including her first “two-footed†jump (she could skip and hop easily but couldn’t yet jump) w/i a week of 100%. It’s a tough call and lots of good reasons on either side of the fence…just wanted to add my two cents! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 We too did enzymes before going GFCF and saw huge improvements. But like so many people on the GFCF list told me (and I resisted), we didn’t see “all” of the improvements until we got to 100%. I feel like the improvements we saw on enzymes w/o being all the way GFCF are a good indicator that we WILL be able to re-introduce foods once my daughter’s gut is sufficiently healed…but I have to say that as soon as the 90% GFCF went to 100% (and even though her food choices have not yet expanded unfortunately), we got another HUGE speech surge (she is 2 ½ btw), a decrease in sensory issues, an improvement in post-nap disposition and a whole bunch of other things including her first “two-footed” jump (she could skip and hop easily but couldn’t yet jump) w/i a week of 100%. It’s a tough call and lots of good reasons on either side of the fence…just wanted to add my two cents! Re: GFCF Diet Thanks , You've answered a question I've been dying to ask. We are going to start enzymes and though Mikey is dairy-free, I'm not going to start the GFCF diet. Any advice on which enzymes you'd start with (and dosage) if you had done it this way with your son? Thanks, Jenni Thorpeheather@... wrote: Hi Vic, If I had my time again my son would never have gone on the gfcf diet but would have gone straight onto the enzymes. Don't get me wrong, my son started speaking three days after taking out dairy. However, I do believe that he would have done the same thing if I had just given him the enzymes to break the dairy down before it became a problem. I certainly would have tried it the other way first anyway. My reason is this. Because we have been on the diet and seen improvements we are constantly looking for food intolerances even on the enzymes. Had we not have seen the improvements on the diet first, we would be seeing the improvements from the enzymes instead and would not be so over concerned. It takes a lot more courage to take the plunge with new foods after being on the diet. Am I making sense? So my opinion is that you would have a much more relaxed life by using the enzymes. After all, you could always then implement the diet if you felt it was still necessary. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 Yes, sounds like a possible yeast die off plus more maybe. We often see die offs when introducing new things to . He basically goes off the rails for a while. Stimming, anger, tantrums, obsessional behaviour, stool issues, the full works. It always sorts itself out in the end though so patience is essential. My motto (and many others is) regression is good. For us it usually means that things are going to improve greatly afterwards. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 I was wondering if you experienced any of the Dieoff symptoms........Im just wanting to make sure these are the normal symptoms....ie.......rash..yellow stool..fussyness...lethargy...sometimes increased hand flapping etc...any feed back would be greatly appreciated.......Thank you freenow Thorpeheather@... wrote:Hi Vic, If I had my time again my son would never have gone on the gfcf diet but would have gone straight onto the enzymes. Don't get me wrong, my son started speaking three days after taking out dairy. However, I do believe that he would have done the same thing if I had just given him the enzymes to break the dairy down before it became a problem. I certainly would have tried it the other way first anyway. My reason is this. Because we have been on the diet and seen improvements we are constantly looking for food intolerances even on the enzymes. Had we not have seen the improvements on the diet first, we would be seeing the improvements from the enzymes instead and would not be so over concerned. It takes a lot more courage to take the plunge with new foods after being on the diet. Am I making sense? So my opinion is that you would have a much more relaxed life by using the enzymes. After all, you could always then implement the diet if you felt it was still necessary. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 Hi Kris, I put both of my daughters (Meg-3.75-apraxia and Kate-2-typical) on the GFCF diet last winter. I didn't notice a specific change in Meg's speech, but she had been making wonderful progress with several supplements anyway. What I did notice was significant progress in potty training for her. Within a day or two of removing casein, Meg had her first successes urinating on the toilet. Within a few days of removing gluten she had her first BM on the toilet. A few weeks later she was fully potty trained. Kate's eczema (she'd had since birth) went started diminishing a few days after we removed casein and eventually disappeared completely. I only kept the girls on the diet for about 3 months, though we continue to limit milk products (they don't drink milk and eat only soy yogurt, though they occasionally have a grilled cheese and we don't worry about products with a little milk in them). As far as gluten is concerned, I think the girls eat a lot less than normal kids because we picked up some new meals and snacks from the diet that have stayed with us, but we don't purposely limit gluten anymore. I didn't see any regressions at first, but now I wonder if Meg's toiletting accidents may be a sign she needs to go back on the diet. Kate's eczema has not returned (DH and I were just commenting the other day about it and how beautifully soft and smooth her skin is now!). I'd say it's worth a whole-hearted try! Have you done any food intolerance testing? Kerri > > Hi there. I have a question that I hope some folks can help with. I > have my daughter on the EFA's and she is doing quite well. I am > considering initiating a gfcf diet for her. I know that there are > families who have an autistic child and have seen great improvements > utilizing the gfcf diet. What I'm wondering is if there is a family > that has initiated a gfcf diet with a child that is not on the > spectrum? If so, did you see a lot of improvement and what was your > experience like utilizing the diet? > > Just wondering! > > Kris > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 Hi Kris, I put both of my daughters (Meg-3.75-apraxia and Kate-2-typical) on the GFCF diet last winter. I didn't notice a specific change in Meg's speech, but she had been making wonderful progress with several supplements anyway. What I did notice was significant progress in potty training for her. Within a day or two of removing casein, Meg had her first successes urinating on the toilet. Within a few days of removing gluten she had her first BM on the toilet. A few weeks later she was fully potty trained. Kate's eczema (she'd had since birth) went started diminishing a few days after we removed casein and eventually disappeared completely. I only kept the girls on the diet for about 3 months, though we continue to limit milk products (they don't drink milk and eat only soy yogurt, though they occasionally have a grilled cheese and we don't worry about products with a little milk in them). As far as gluten is concerned, I think the girls eat a lot less than normal kids because we picked up some new meals and snacks from the diet that have stayed with us, but we don't purposely limit gluten anymore. I didn't see any regressions at first, but now I wonder if Meg's toiletting accidents may be a sign she needs to go back on the diet. Kate's eczema has not returned (DH and I were just commenting the other day about it and how beautifully soft and smooth her skin is now!). I'd say it's worth a whole-hearted try! Have you done any food intolerance testing? Kerri > > Hi there. I have a question that I hope some folks can help with. I > have my daughter on the EFA's and she is doing quite well. I am > considering initiating a gfcf diet for her. I know that there are > families who have an autistic child and have seen great improvements > utilizing the gfcf diet. What I'm wondering is if there is a family > that has initiated a gfcf diet with a child that is not on the > spectrum? If so, did you see a lot of improvement and what was your > experience like utilizing the diet? > > Just wondering! > > Kris > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2006 Report Share Posted August 17, 2006 My daughter's ENT tested her for allergies (RAST testing) and everything came out normal. We have had life long eczema issues with her but it didn't get really bad until she got to be about 18 months. It has gotten progressively worse since then with dry skin, Keratosis pilaris (sp?), etc. Environmental allergies have greatly increased along with the increase in skin problems. Since she has turned 2 we've had 7 ear infections (she turned 2 in march) and now she's on the list for PE tubes. I have suspected that she may be intolerant to milk products. I figured that I would give the diet a try. In all honesty, she'll be eating healthier than she ever has. Additionally I had read of families noting great changes in their children and I wondered if the same thing would happen with Grace. Kris On Aug 17, 2006, at 6:32 AM, Jeff wrote: > Hi Kris, > > I put both of my daughters (Meg-3.75-apraxia and Kate-2-typical) on > the GFCF diet last winter. I didn't notice a specific change in Meg's > speech, but she had been making wonderful progress with several > supplements anyway. What I did notice was significant progress in > potty training for her. Within a day or two of removing casein, Meg > had her first successes urinating on the toilet. Within a few days of > removing gluten she had her first BM on the toilet. A few weeks later > she was fully potty trained. Kate's eczema (she'd had since birth) > went started diminishing a few days after we removed casein and > eventually disappeared completely. > > I only kept the girls on the diet for about 3 months, though we > continue to limit milk products (they don't drink milk and eat only > soy yogurt, though they occasionally have a grilled cheese and we > don't worry about products with a little milk in them). As far as > gluten is concerned, I think the girls eat a lot less than normal kids > because we picked up some new meals and snacks from the diet that have > stayed with us, but we don't purposely limit gluten anymore. I didn't > see any regressions at first, but now I wonder if Meg's toiletting > accidents may be a sign she needs to go back on the diet. Kate's > eczema has not returned (DH and I were just commenting the other day > about it and how beautifully soft and smooth her skin is now!). > > I'd say it's worth a whole-hearted try! Have you done any food > intolerance testing? > > Kerri > > > > > > Hi there. I have a question that I hope some folks can help with. > I > > have my daughter on the EFA's and she is doing quite well. I am > > considering initiating a gfcf diet for her. I know that there are > > families who have an autistic child and have seen great improvements > > utilizing the gfcf diet. What I'm wondering is if there is a family > > that has initiated a gfcf diet with a child that is not on the > > spectrum? If so, did you see a lot of improvement and what was your > > experience like utilizing the diet? > > > > Just wondering! > > > > Kris > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 My daughter's ENT tested her for allergies (RAST testing) and everything came out normal. We have had life long eczema issues with her but it didn't get really bad until she got to be about 18 months. It has gotten progressively worse since then with dry skin, Keratosis pilaris (sp?), etc. Environmental allergies have greatly increased along with the increase in skin problems. Since she has turned 2 we've had 7 ear infections (she turned 2 in march) and now she's on the list for PE tubes. I have suspected that she may be intolerant to milk products. I figured that I would give the diet a try. In all honesty, she'll be eating healthier than she ever has. Additionally I had read of families noting great changes in their children and I wondered if the same thing would happen with Grace. Kris On Aug 17, 2006, at 6:32 AM, Jeff wrote: > Hi Kris, > > I put both of my daughters (Meg-3.75-apraxia and Kate-2-typical) on > the GFCF diet last winter. I didn't notice a specific change in Meg's > speech, but she had been making wonderful progress with several > supplements anyway. What I did notice was significant progress in > potty training for her. Within a day or two of removing casein, Meg > had her first successes urinating on the toilet. Within a few days of > removing gluten she had her first BM on the toilet. A few weeks later > she was fully potty trained. Kate's eczema (she'd had since birth) > went started diminishing a few days after we removed casein and > eventually disappeared completely. > > I only kept the girls on the diet for about 3 months, though we > continue to limit milk products (they don't drink milk and eat only > soy yogurt, though they occasionally have a grilled cheese and we > don't worry about products with a little milk in them). As far as > gluten is concerned, I think the girls eat a lot less than normal kids > because we picked up some new meals and snacks from the diet that have > stayed with us, but we don't purposely limit gluten anymore. I didn't > see any regressions at first, but now I wonder if Meg's toiletting > accidents may be a sign she needs to go back on the diet. Kate's > eczema has not returned (DH and I were just commenting the other day > about it and how beautifully soft and smooth her skin is now!). > > I'd say it's worth a whole-hearted try! Have you done any food > intolerance testing? > > Kerri > > > > > > Hi there. I have a question that I hope some folks can help with. > I > > have my daughter on the EFA's and she is doing quite well. I am > > considering initiating a gfcf diet for her. I know that there are > > families who have an autistic child and have seen great improvements > > utilizing the gfcf diet. What I'm wondering is if there is a family > > that has initiated a gfcf diet with a child that is not on the > > spectrum? If so, did you see a lot of improvement and what was your > > experience like utilizing the diet? > > > > Just wondering! > > > > Kris > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 Kris, GFCF would be a great place to start. I did a 96-food IgG panel for Meg. IgG is typically thought of as " intolerance " and is not the same as what the RAST test detects, though many say it's unreliable. Casein and gluten are very common problems, but there are others like soy, corn, eggs, etc. In hindsight, I don't think I should've ordered this test ($$), but I guess if she had been intolerant to corn or something then GFCF wouldn't have worked as well. You could try an elimination diet if you're worried about other allergies but don't want to order an IgG test. A lot of parents say that's really the only way to truly determine what's affecting your child. Best of luck whatever you decide! You sound like you already know where to look for support, but if you need any resources feel free to email me privately. Kerri > > My daughter's ENT tested her for allergies (RAST testing) and > everything came out normal. We have had life long eczema issues with > her but it didn't get really bad until she got to be about 18 months. > It has gotten progressively worse since then with dry skin, Keratosis > pilaris (sp?), etc. Environmental allergies have greatly increased > along with the increase in skin problems. Since she has turned 2 > we've had 7 ear infections (she turned 2 in march) and now she's on the > list for PE tubes. I have suspected that she may be intolerant to milk > products. I figured that I would give the diet a try. In all honesty, > she'll be eating healthier than she ever has. Additionally I had read > of families noting great changes in their children and I wondered if > the same thing would happen with Grace. > > Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 Good Morning Jeff, I have read that alot of families have had success on the GFCF diet so I would love to try it on my daughter who is 5 years old with verbal and oral apraxia. Where did you get a copy of the GFCF diet? Thanks so much for all of you help in advance. Bonnye- mother of Faith Jeff <kerripat@...> wrote: Hi Kris, I put both of my daughters (Meg-3.75-apraxia and Kate-2-typical) on the GFCF diet last winter. I didn't notice a specific change in Meg's speech, but she had been making wonderful progress with several supplements anyway. What I did notice was significant progress in potty training for her. Within a day or two of removing casein, Meg had her first successes urinating on the toilet. Within a few days of removing gluten she had her first BM on the toilet. A few weeks later she was fully potty trained. Kate's eczema (she'd had since birth) went started diminishing a few days after we removed casein and eventually disappeared completely. I only kept the girls on the diet for about 3 months, though we continue to limit milk products (they don't drink milk and eat only soy yogurt, though they occasionally have a grilled cheese and we don't worry about products with a little milk in them). As far as gluten is concerned, I think the girls eat a lot less than normal kids because we picked up some new meals and snacks from the diet that have stayed with us, but we don't purposely limit gluten anymore. I didn't see any regressions at first, but now I wonder if Meg's toiletting accidents may be a sign she needs to go back on the diet. Kate's eczema has not returned (DH and I were just commenting the other day about it and how beautifully soft and smooth her skin is now!). I'd say it's worth a whole-hearted try! Have you done any food intolerance testing? Kerri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 Bonnye, There is no " GFCF diet " to purchase, but there are books as well as web sites and support groups that can help. I read both Seroussi's " Unraveling the Mystery of PDD and Autism " and 's " Special Diets for Special Kids " . The first is a book about why GFCF works, and it's a very easy read because it's written more like a mystery novel. The second contains some great recipes and in my eyes is a " must-have " for beginners. There are a few Groups you can join. GFCFKids was a good one, and there are a few for recipes. GFCFdiet.com and www.tacanow.org are websites that were very helpful to me. Hope that helps, and GOOD LUCK! Kerri (Jeff is my husband - I use his account) > > Hi Kris, > > I put both of my daughters (Meg-3.75-apraxia and Kate-2-typical) on > the GFCF diet last winter. I didn't notice a specific change in Meg's > speech, but she had been making wonderful progress with several > supplements anyway. What I did notice was significant progress in > potty training for her. Within a day or two of removing casein, Meg > had her first successes urinating on the toilet. Within a few days of > removing gluten she had her first BM on the toilet. A few weeks later > she was fully potty trained. Kate's eczema (she'd had since birth) > went started diminishing a few days after we removed casein and > eventually disappeared completely. > > I only kept the girls on the diet for about 3 months, though we > continue to limit milk products (they don't drink milk and eat only > soy yogurt, though they occasionally have a grilled cheese and we > don't worry about products with a little milk in them). As far as > gluten is concerned, I think the girls eat a lot less than normal kids > because we picked up some new meals and snacks from the diet that have > stayed with us, but we don't purposely limit gluten anymore. I didn't > see any regressions at first, but now I wonder if Meg's toiletting > accidents may be a sign she needs to go back on the diet. Kate's > eczema has not returned (DH and I were just commenting the other day > about it and how beautifully soft and smooth her skin is now!). > > I'd say it's worth a whole-hearted try! Have you done any food > intolerance testing? > > Kerri > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 Kris, GFCF would be a great place to start. I did a 96-food IgG panel for Meg. IgG is typically thought of as " intolerance " and is not the same as what the RAST test detects, though many say it's unreliable. Casein and gluten are very common problems, but there are others like soy, corn, eggs, etc. In hindsight, I don't think I should've ordered this test ($$), but I guess if she had been intolerant to corn or something then GFCF wouldn't have worked as well. You could try an elimination diet if you're worried about other allergies but don't want to order an IgG test. A lot of parents say that's really the only way to truly determine what's affecting your child. Best of luck whatever you decide! You sound like you already know where to look for support, but if you need any resources feel free to email me privately. Kerri > > My daughter's ENT tested her for allergies (RAST testing) and > everything came out normal. We have had life long eczema issues with > her but it didn't get really bad until she got to be about 18 months. > It has gotten progressively worse since then with dry skin, Keratosis > pilaris (sp?), etc. Environmental allergies have greatly increased > along with the increase in skin problems. Since she has turned 2 > we've had 7 ear infections (she turned 2 in march) and now she's on the > list for PE tubes. I have suspected that she may be intolerant to milk > products. I figured that I would give the diet a try. In all honesty, > she'll be eating healthier than she ever has. Additionally I had read > of families noting great changes in their children and I wondered if > the same thing would happen with Grace. > > Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 Good Morning Jeff, I have read that alot of families have had success on the GFCF diet so I would love to try it on my daughter who is 5 years old with verbal and oral apraxia. Where did you get a copy of the GFCF diet? Thanks so much for all of you help in advance. Bonnye- mother of Faith Jeff <kerripat@...> wrote: Hi Kris, I put both of my daughters (Meg-3.75-apraxia and Kate-2-typical) on the GFCF diet last winter. I didn't notice a specific change in Meg's speech, but she had been making wonderful progress with several supplements anyway. What I did notice was significant progress in potty training for her. Within a day or two of removing casein, Meg had her first successes urinating on the toilet. Within a few days of removing gluten she had her first BM on the toilet. A few weeks later she was fully potty trained. Kate's eczema (she'd had since birth) went started diminishing a few days after we removed casein and eventually disappeared completely. I only kept the girls on the diet for about 3 months, though we continue to limit milk products (they don't drink milk and eat only soy yogurt, though they occasionally have a grilled cheese and we don't worry about products with a little milk in them). As far as gluten is concerned, I think the girls eat a lot less than normal kids because we picked up some new meals and snacks from the diet that have stayed with us, but we don't purposely limit gluten anymore. I didn't see any regressions at first, but now I wonder if Meg's toiletting accidents may be a sign she needs to go back on the diet. Kate's eczema has not returned (DH and I were just commenting the other day about it and how beautifully soft and smooth her skin is now!). I'd say it's worth a whole-hearted try! Have you done any food intolerance testing? Kerri Quote Link to comment Share on other sites More sharing options...
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