Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Don't they run the Marcus Institute in Atlanta? > > From: virri345@... > Date: 2006/01/18 Wed AM 09:49:21 EST > BJBlackler@..., EOHarm > Subject: Kennedy Krieger Institute > > I've actually never been impressed with KKI. I've had numerous > experiences with their staff and ALWAYS found them -- without exception > -- to be sort of high-minded, " we know it all; " " we are the experts " > kind of people. ly, if you think about it, with all the constant > " research " and " studies " they've done, all the $ they've gotten, I > don't see why it staff -- of all people -- haven't found a cure or > cause for autism by now. It's not like the disability hasn't gone away > or anything. msherrett. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 Note: forwarded message attached. Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. I wonder if you have any idea what "finding a cure" entails? KKI's focus for decades was lead poisoning research, prevention and treatment. It has served this country well. I don't know enough to support or defend them but I do know that this on-line community is not overly populated with scientists who understand the concept of evidence-based medicine. virri345@... wrote: I've actually never been impressed with KKI. I've had numerous experiences with their staff and ALWAYS found them -- without exception -- to be sort of high-minded, "we know it all;" "we are the experts" kind of people. ly, if you think about it, with all the constant "research" and "studies" they've done, all the $ they've gotten, I don't see why it staff -- of all people -- haven't found a cure or cause for autism by now. It's not like the disability hasn't gone away or anything. msherrett. Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 You say, "I do know that this on-line community is not overly populated with scientists who understand the concept of evidence-based medicine." OH REALLY???? Sweetie Pie, why don't you just quit while you are already behind... Truly yours, A stupid redneck reject who don't know nothin' but no sigh-ance P.S. You obviously have no clue. --and by the way the rules of research ACTUALLY say you cannot PROVE anything, only DISPROVE it, and there is not one study disproving ANY of the current models of causation of autism. Re: Kennedy Krieger Institute I wonder if you have any idea what "finding a cure" entails? KKI's focus for decades was lead poisoning research, prevention and treatment. It has served this country well. I don't know enough to support or defend them but I do know that this on-line community is not overly populated with scientists who understand the concept of evidence-based medicine. virri345@... wrote: I've actually never been impressed with KKI. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 I am a real fan of giving people the benefit of the doubt before I jump down their throats about anything. It is only fair to ask delaCruz to clarify her remarks, to make sure we are understanding her intended communications. I often wish people would extend to me the same courtesy. She says: " I do know that this on-line community is not overly populated with scientists who understand the concept of evidence-based medicine. " This is a pretty nebulous statement. After all, just about the whole world is an on-line community. Is she refering more to the autism community? Or maybe to this list in particular? Perhaps she is operating on some erroneous third hand characterizations of who we are, rather than her own direct experiences. This list is made up of 1200 members. Only a dozen or two ever post. I am open to finding our where I may be wrong or may be ignorant. For example, I am fascinated by the CDC's response to Kirby on the VSD, posted here elsewhere and am keen on investigating the matter further. I would like to give delaCruz the opportunity to discuss this in a friendly manner and regret any rude treatment. I would only assume first that people are here for constructive purposes and encourage her further participation. Lenny EOHarm List Host > I've actually never been impressed with KKI. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 I agree, Lenny, I welcome alternative points of view, after all, the truth is what's important, not who's right or wrong. Just don't tell me how great the doctors are I've had to work with the last few years, lol. I have way to much evidence to even need to consider that one! Debi > I am open to finding our where I may be wrong or may be ignorant. For > example, I am fascinated by the CDC's response to Kirby on the VSD, > posted here elsewhere and am keen on investigating the matter further. > I would like to give delaCruz the opportunity to discuss this in a > friendly manner and regret any rude treatment. I would only assume > first that people are here for constructive purposes and encourage her > further participation. > > Lenny > EOHarm List Host Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Can somebody give me the link to this as my computer removed the attatchment. Thanks ange Re: Kennedy Krieger Institute I wonder if you have any idea what "finding a cure" entails? KKI's focus for decades was lead poisoning research, prevention and treatment. It has served this country well. I don't know enough to support or defend them but I do know that this on-line community is not overly populated with scientists who understand the concept of evidence-based medicine. virri345@... wrote: I've actually never been impressed with KKI. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 I don’t know but I can give you the email address of one of the doctors if you would like to ask Kennedy Krieger Institute Does anyone know if KKI coordinates with The M.I.N.D. Institute or other research entities (to avoid duplication of studies/efforts to conserve $) or just publishes results of all these autism-based research studies it does? msherrett. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 We are attempting to find an easily demonstable Immune Response gene closdely linked to the gene for defective heavy metal- e.g.mercury-exretion. Need 1 tspn. blood from each patient, sibs and parents. Any of your families interested? If so. call number below. Sincerely, H.H. Fudenberg, M.D., D.D.G., I.O.M. 226 Edgewater Road Inman, SC 29349 864-592-8076 nitrf@hotmailcom nitrf.org From: "angela watters" <aangelbaby66@...>Reply-EOHarm To: <EOHarm >Subject: Re: Kennedy Krieger InstituteDate: Tue, 21 Mar 2006 13:35:41 -0500 I don’t know but I can give you the email address of one of the doctors if you would like to ask Kennedy Krieger Institute Does anyone know if KKI coordinates with The M.I.N.D. Institute or other research entities (to avoid duplication of studies/efforts to conserve $) or just publishes results of all these autism-based research studies it does? msherrett. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2007 Report Share Posted April 7, 2007 I can't get that darn thing to work for me lol After I signed up, it sent a confirmation link to my e-mail, but that takes me to a dead page. I'm going to try again with a different username and see if that helps. Thanks for sending the link through, I had lost it! =) -Jenn, AEP (ADD, Bi-Polar, Anxiety/Depression) Proud Momma of Cory Albert (14yrs ADHD), h Dawn (12yrs Anxiety/Depression) and Jerry Lee " Trey " (9yrs ADHD, Bi-Polar, Asperger's) -- ( ) Kennedy Krieger Institute Hi All, I received this information from " Autism Link " and wanted to pass it on to all of you. Please understand that I am only passing on the information, I am not siding with any one or any ones views...I do not want to start a debate. - C. Mom to Cassie 16 PCOS, Austin 14 ADHD and a 3.5 HFA/AS & SPD/SID Morning Edition, April 5, 2007 · Parents of children with autism are often part of online communities. Researchers at the Kennedy Krieger Institute in Baltimore have set up an online registry to involve families in research efforts. They've set up an online registry that allows people to provide data on autistic children. Here is the link... http://www.iancommunity.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 Hi Mina, I live in Reston, VA. I have only heard great things about KK. I've know counselors who work there and they thought it was an outstanding program. Jody "Be the change you want to see in the world" Gandhi ( ) Kennedy Krieger Institute Hi everyone, I'm in the Baltimore area (about 1 hour away, actually), and we've decided to have our two suspected HFA sons (4 and almost 3) evaluated at Kennedy Krieger. We're also considering putting our 4 year old into the preschool at KK, and possibly my other son as well. Has anyone dealt with KK on this list, and what do you have to say about it? Thanks, Mina Mina Smolinski Mommy to: 9/25/02 5/13/04 Owen 7/1/05 Lila 3/3/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Does anyone have any information about the Kennedy Krieger Institute? A co-worker of mine may send his grandson there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2009 Report Share Posted January 3, 2009 My 17 year old daughter goes to the Rockville campus.? This school has been the best I have found.? They have a very nice building, behavioral specialist, nurse, speech pathologist and OT on campus, and one of the best things is that they are prepared to deal with problems BEFORE they happen. Have your friend email me if he/she wants to ask questions. Darla Quote Link to comment Share on other sites More sharing options...
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