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Thanks for the information. I'll check into it.

--- HEIDI FAUSTINI wrote:

> Hey ,

> I just got an E-mail from Sandy at Ability Camp

> about an extra class for conductive education They

> have decided to form another one from 2/11 - 3/15

> for two age groups ( 0-6 and 7-14 ). These classes

> require a parent to be present in class and you can

> also add HBO therapy if you wish.

> Heidi

>

> Re: Answers for

>

> Thanks, Heidi. I'll definately check it out.

>

>

> --- HEIDI FAUSTINI wrote:

> > ,

> > Thanks for the info about seizure meds, I will see

> > what her neuro has to say about what kind she is

> > having and what to put her on. As for her brain

> > size, before she was diagnosed with PMG her 2

> > neurologists both said that she'd had a stroke

> > between 3-5 months in-utero, affecting her brain

> > development. After that her geneticist said that

> she

> > did not think that was the case, because a stroke

> > should have been more focused on one spot, rather

> > than a complete side. Since then, she has been

> > diagnosed with PMG. Because of all of this

> > confusion, I am not sure where the brain

> > underdevelopment comes into play. I have not heard

> > of any other PMG cases having a smaller sized

> brain,

> > so I think the stroke theory is probably pretty

> > accurate. This also makes me wonder if this is

> where

> > the PMG stepped in, rather than being genetic, in

> > Hailey's case. From what I understand, it can be

> > genetic or otherwise, although I am not sure what

> > the otherwise consists of. I wonder if the stroke

> > caused the " noodles " to quit expanding, but the

> > cells were still coming, causing the PMG. In

> > Hailey's case, only the right side has PMG ( for

> the

> > most part ) and only in one area, Perisylvian

> > region. I am probably just grasping, but I can't

> > help but wonder.

> > As for conductive education.... (my info will not

> be

> > as accurate as Ability Camp can fill you in on,

> but

> > I will try to explain it as best as I can ).

> > Basically, conductive education is a way of

> learning

> > for people with disabilities, namely CP, to teach

> > them how to do tasks that we would take for

> granted.

> > ( sitting, standing, grasping, walking, etc. ) It

> > originated in Hungary, I believe, for people with

> > disabilities, because their architecture is not

> very

> > handicapped friendly over there. It was brought to

> > Ability Camp by a man who brought his daughter,

> who

> > has CP, to Hungary (?) to try it. He was amazed

> with

> > it, so he hired some of them, brought them to

> > Canada, and started Ability Camp. It is an intense

> > form of therapy, yet made to be fun. The classes

> are

> > about 5 weeks long and between I think 5-6 hours

> per

> > day M-F. They are divided into age groups as young

> > as 1 year (?). If I remember correctly, you have a

> > son around 6 months old. The group he would fall

> in

> > is Moms and Tots for 3 and under. ( It may include

> > kids younger than 1, I am not sure ). This is the

> > only class that a parent is allowed into therapy,

> > all of the other classes are for kids only -

> except

> > the first day - to keep the kids focused.

> > Unfortunately, Moms and Tots is only held once a

> > year, in January. 2002 will be from 1/7 - 2/8.

> Some

> > of the before and after videos I have seen are

> > amazing, not saying that every child will have as

> > good results. If you are interested, you really

> > should get some info from them. Check it out and

> > come up with your own opinion. Let me know what

> you

> > think!

> > Heidi Faustini

> > HFAUSTINI@...

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

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Thanks for the information. I'll check into it.

--- HEIDI FAUSTINI wrote:

> Hey ,

> I just got an E-mail from Sandy at Ability Camp

> about an extra class for conductive education They

> have decided to form another one from 2/11 - 3/15

> for two age groups ( 0-6 and 7-14 ). These classes

> require a parent to be present in class and you can

> also add HBO therapy if you wish.

> Heidi

>

> Re: Answers for

>

> Thanks, Heidi. I'll definately check it out.

>

>

> --- HEIDI FAUSTINI wrote:

> > ,

> > Thanks for the info about seizure meds, I will see

> > what her neuro has to say about what kind she is

> > having and what to put her on. As for her brain

> > size, before she was diagnosed with PMG her 2

> > neurologists both said that she'd had a stroke

> > between 3-5 months in-utero, affecting her brain

> > development. After that her geneticist said that

> she

> > did not think that was the case, because a stroke

> > should have been more focused on one spot, rather

> > than a complete side. Since then, she has been

> > diagnosed with PMG. Because of all of this

> > confusion, I am not sure where the brain

> > underdevelopment comes into play. I have not heard

> > of any other PMG cases having a smaller sized

> brain,

> > so I think the stroke theory is probably pretty

> > accurate. This also makes me wonder if this is

> where

> > the PMG stepped in, rather than being genetic, in

> > Hailey's case. From what I understand, it can be

> > genetic or otherwise, although I am not sure what

> > the otherwise consists of. I wonder if the stroke

> > caused the " noodles " to quit expanding, but the

> > cells were still coming, causing the PMG. In

> > Hailey's case, only the right side has PMG ( for

> the

> > most part ) and only in one area, Perisylvian

> > region. I am probably just grasping, but I can't

> > help but wonder.

> > As for conductive education.... (my info will not

> be

> > as accurate as Ability Camp can fill you in on,

> but

> > I will try to explain it as best as I can ).

> > Basically, conductive education is a way of

> learning

> > for people with disabilities, namely CP, to teach

> > them how to do tasks that we would take for

> granted.

> > ( sitting, standing, grasping, walking, etc. ) It

> > originated in Hungary, I believe, for people with

> > disabilities, because their architecture is not

> very

> > handicapped friendly over there. It was brought to

> > Ability Camp by a man who brought his daughter,

> who

> > has CP, to Hungary (?) to try it. He was amazed

> with

> > it, so he hired some of them, brought them to

> > Canada, and started Ability Camp. It is an intense

> > form of therapy, yet made to be fun. The classes

> are

> > about 5 weeks long and between I think 5-6 hours

> per

> > day M-F. They are divided into age groups as young

> > as 1 year (?). If I remember correctly, you have a

> > son around 6 months old. The group he would fall

> in

> > is Moms and Tots for 3 and under. ( It may include

> > kids younger than 1, I am not sure ). This is the

> > only class that a parent is allowed into therapy,

> > all of the other classes are for kids only -

> except

> > the first day - to keep the kids focused.

> > Unfortunately, Moms and Tots is only held once a

> > year, in January. 2002 will be from 1/7 - 2/8.

> Some

> > of the before and after videos I have seen are

> > amazing, not saying that every child will have as

> > good results. If you are interested, you really

> > should get some info from them. Check it out and

> > come up with your own opinion. Let me know what

> you

> > think!

> > Heidi Faustini

> > HFAUSTINI@...

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

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Share on other sites

Thanks for the information. I'll check into it.

--- HEIDI FAUSTINI wrote:

> Hey ,

> I just got an E-mail from Sandy at Ability Camp

> about an extra class for conductive education They

> have decided to form another one from 2/11 - 3/15

> for two age groups ( 0-6 and 7-14 ). These classes

> require a parent to be present in class and you can

> also add HBO therapy if you wish.

> Heidi

>

> Re: Answers for

>

> Thanks, Heidi. I'll definately check it out.

>

>

> --- HEIDI FAUSTINI wrote:

> > ,

> > Thanks for the info about seizure meds, I will see

> > what her neuro has to say about what kind she is

> > having and what to put her on. As for her brain

> > size, before she was diagnosed with PMG her 2

> > neurologists both said that she'd had a stroke

> > between 3-5 months in-utero, affecting her brain

> > development. After that her geneticist said that

> she

> > did not think that was the case, because a stroke

> > should have been more focused on one spot, rather

> > than a complete side. Since then, she has been

> > diagnosed with PMG. Because of all of this

> > confusion, I am not sure where the brain

> > underdevelopment comes into play. I have not heard

> > of any other PMG cases having a smaller sized

> brain,

> > so I think the stroke theory is probably pretty

> > accurate. This also makes me wonder if this is

> where

> > the PMG stepped in, rather than being genetic, in

> > Hailey's case. From what I understand, it can be

> > genetic or otherwise, although I am not sure what

> > the otherwise consists of. I wonder if the stroke

> > caused the " noodles " to quit expanding, but the

> > cells were still coming, causing the PMG. In

> > Hailey's case, only the right side has PMG ( for

> the

> > most part ) and only in one area, Perisylvian

> > region. I am probably just grasping, but I can't

> > help but wonder.

> > As for conductive education.... (my info will not

> be

> > as accurate as Ability Camp can fill you in on,

> but

> > I will try to explain it as best as I can ).

> > Basically, conductive education is a way of

> learning

> > for people with disabilities, namely CP, to teach

> > them how to do tasks that we would take for

> granted.

> > ( sitting, standing, grasping, walking, etc. ) It

> > originated in Hungary, I believe, for people with

> > disabilities, because their architecture is not

> very

> > handicapped friendly over there. It was brought to

> > Ability Camp by a man who brought his daughter,

> who

> > has CP, to Hungary (?) to try it. He was amazed

> with

> > it, so he hired some of them, brought them to

> > Canada, and started Ability Camp. It is an intense

> > form of therapy, yet made to be fun. The classes

> are

> > about 5 weeks long and between I think 5-6 hours

> per

> > day M-F. They are divided into age groups as young

> > as 1 year (?). If I remember correctly, you have a

> > son around 6 months old. The group he would fall

> in

> > is Moms and Tots for 3 and under. ( It may include

> > kids younger than 1, I am not sure ). This is the

> > only class that a parent is allowed into therapy,

> > all of the other classes are for kids only -

> except

> > the first day - to keep the kids focused.

> > Unfortunately, Moms and Tots is only held once a

> > year, in January. 2002 will be from 1/7 - 2/8.

> Some

> > of the before and after videos I have seen are

> > amazing, not saying that every child will have as

> > good results. If you are interested, you really

> > should get some info from them. Check it out and

> > come up with your own opinion. Let me know what

> you

> > think!

> > Heidi Faustini

> > HFAUSTINI@...

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

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Share on other sites

Re: Answers for

> >

> > Thanks, Heidi. I'll definately check it out.

> >

> >

> > --- HEIDI FAUSTINI wrote:

> > > ,

> > > Thanks for the info about seizure meds, I will see

> > > what her neuro has to say about what kind she is

> > > having and what to put her on. As for her brain

> > > size, before she was diagnosed with PMG her 2

> > > neurologists both said that she'd had a stroke

> > > between 3-5 months in-utero, affecting her brain

> > > development. After that her geneticist said that

> > she

> > > did not think that was the case, because a stroke

> > > should have been more focused on one spot, rather

> > > than a complete side. Since then, she has been

> > > diagnosed with PMG. Because of all of this

> > > confusion, I am not sure where the brain

> > > underdevelopment comes into play. I have not heard

> > > of any other PMG cases having a smaller sized

> > brain,

> > > so I think the stroke theory is probably pretty

> > > accurate. This also makes me wonder if this is

> > where

> > > the PMG stepped in, rather than being genetic, in

> > > Hailey's case. From what I understand, it can be

> > > genetic or otherwise, although I am not sure what

> > > the otherwise consists of. I wonder if the stroke

> > > caused the " noodles " to quit expanding, but the

> > > cells were still coming, causing the PMG. In

> > > Hailey's case, only the right side has PMG ( for

> > the

> > > most part ) and only in one area, Perisylvian

> > > region. I am probably just grasping, but I can't

> > > help but wonder.

> > > As for conductive education.... (my info will not

> > be

> > > as accurate as Ability Camp can fill you in on,

> > but

> > > I will try to explain it as best as I can ).

> > > Basically, conductive education is a way of

> > learning

> > > for people with disabilities, namely CP, to teach

> > > them how to do tasks that we would take for

> > granted.

> > > ( sitting, standing, grasping, walking, etc. ) It

> > > originated in Hungary, I believe, for people with

> > > disabilities, because their architecture is not

> > very

> > > handicapped friendly over there. It was brought to

> > > Ability Camp by a man who brought his daughter,

> > who

> > > has CP, to Hungary (?) to try it. He was amazed

> > with

> > > it, so he hired some of them, brought them to

> > > Canada, and started Ability Camp. It is an intense

> > > form of therapy, yet made to be fun. The classes

> > are

> > > about 5 weeks long and between I think 5-6 hours

> > per

> > > day M-F. They are divided into age groups as young

> > > as 1 year (?). If I remember correctly, you have a

> > > son around 6 months old. The group he would fall

> > in

> > > is Moms and Tots for 3 and under. ( It may include

> > > kids younger than 1, I am not sure ). This is the

> > > only class that a parent is allowed into therapy,

> > > all of the other classes are for kids only -

> > except

> > > the first day - to keep the kids focused.

> > > Unfortunately, Moms and Tots is only held once a

> > > year, in January. 2002 will be from 1/7 - 2/8.

> > Some

> > > of the before and after videos I have seen are

> > > amazing, not saying that every child will have as

> > > good results. If you are interested, you really

> > > should get some info from them. Check it out and

> > > come up with your own opinion. Let me know what

> > you

> > > think!

> > > Heidi Faustini

> > > HFAUSTINI@...

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

> > __________________________________________________

> >

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Re: Answers for

> >

> > Thanks, Heidi. I'll definately check it out.

> >

> >

> > --- HEIDI FAUSTINI wrote:

> > > ,

> > > Thanks for the info about seizure meds, I will see

> > > what her neuro has to say about what kind she is

> > > having and what to put her on. As for her brain

> > > size, before she was diagnosed with PMG her 2

> > > neurologists both said that she'd had a stroke

> > > between 3-5 months in-utero, affecting her brain

> > > development. After that her geneticist said that

> > she

> > > did not think that was the case, because a stroke

> > > should have been more focused on one spot, rather

> > > than a complete side. Since then, she has been

> > > diagnosed with PMG. Because of all of this

> > > confusion, I am not sure where the brain

> > > underdevelopment comes into play. I have not heard

> > > of any other PMG cases having a smaller sized

> > brain,

> > > so I think the stroke theory is probably pretty

> > > accurate. This also makes me wonder if this is

> > where

> > > the PMG stepped in, rather than being genetic, in

> > > Hailey's case. From what I understand, it can be

> > > genetic or otherwise, although I am not sure what

> > > the otherwise consists of. I wonder if the stroke

> > > caused the " noodles " to quit expanding, but the

> > > cells were still coming, causing the PMG. In

> > > Hailey's case, only the right side has PMG ( for

> > the

> > > most part ) and only in one area, Perisylvian

> > > region. I am probably just grasping, but I can't

> > > help but wonder.

> > > As for conductive education.... (my info will not

> > be

> > > as accurate as Ability Camp can fill you in on,

> > but

> > > I will try to explain it as best as I can ).

> > > Basically, conductive education is a way of

> > learning

> > > for people with disabilities, namely CP, to teach

> > > them how to do tasks that we would take for

> > granted.

> > > ( sitting, standing, grasping, walking, etc. ) It

> > > originated in Hungary, I believe, for people with

> > > disabilities, because their architecture is not

> > very

> > > handicapped friendly over there. It was brought to

> > > Ability Camp by a man who brought his daughter,

> > who

> > > has CP, to Hungary (?) to try it. He was amazed

> > with

> > > it, so he hired some of them, brought them to

> > > Canada, and started Ability Camp. It is an intense

> > > form of therapy, yet made to be fun. The classes

> > are

> > > about 5 weeks long and between I think 5-6 hours

> > per

> > > day M-F. They are divided into age groups as young

> > > as 1 year (?). If I remember correctly, you have a

> > > son around 6 months old. The group he would fall

> > in

> > > is Moms and Tots for 3 and under. ( It may include

> > > kids younger than 1, I am not sure ). This is the

> > > only class that a parent is allowed into therapy,

> > > all of the other classes are for kids only -

> > except

> > > the first day - to keep the kids focused.

> > > Unfortunately, Moms and Tots is only held once a

> > > year, in January. 2002 will be from 1/7 - 2/8.

> > Some

> > > of the before and after videos I have seen are

> > > amazing, not saying that every child will have as

> > > good results. If you are interested, you really

> > > should get some info from them. Check it out and

> > > come up with your own opinion. Let me know what

> > you

> > > think!

> > > Heidi Faustini

> > > HFAUSTINI@...

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

> > __________________________________________________

> >

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Share on other sites

Re: Answers for

> >

> > Thanks, Heidi. I'll definately check it out.

> >

> >

> > --- HEIDI FAUSTINI wrote:

> > > ,

> > > Thanks for the info about seizure meds, I will see

> > > what her neuro has to say about what kind she is

> > > having and what to put her on. As for her brain

> > > size, before she was diagnosed with PMG her 2

> > > neurologists both said that she'd had a stroke

> > > between 3-5 months in-utero, affecting her brain

> > > development. After that her geneticist said that

> > she

> > > did not think that was the case, because a stroke

> > > should have been more focused on one spot, rather

> > > than a complete side. Since then, she has been

> > > diagnosed with PMG. Because of all of this

> > > confusion, I am not sure where the brain

> > > underdevelopment comes into play. I have not heard

> > > of any other PMG cases having a smaller sized

> > brain,

> > > so I think the stroke theory is probably pretty

> > > accurate. This also makes me wonder if this is

> > where

> > > the PMG stepped in, rather than being genetic, in

> > > Hailey's case. From what I understand, it can be

> > > genetic or otherwise, although I am not sure what

> > > the otherwise consists of. I wonder if the stroke

> > > caused the " noodles " to quit expanding, but the

> > > cells were still coming, causing the PMG. In

> > > Hailey's case, only the right side has PMG ( for

> > the

> > > most part ) and only in one area, Perisylvian

> > > region. I am probably just grasping, but I can't

> > > help but wonder.

> > > As for conductive education.... (my info will not

> > be

> > > as accurate as Ability Camp can fill you in on,

> > but

> > > I will try to explain it as best as I can ).

> > > Basically, conductive education is a way of

> > learning

> > > for people with disabilities, namely CP, to teach

> > > them how to do tasks that we would take for

> > granted.

> > > ( sitting, standing, grasping, walking, etc. ) It

> > > originated in Hungary, I believe, for people with

> > > disabilities, because their architecture is not

> > very

> > > handicapped friendly over there. It was brought to

> > > Ability Camp by a man who brought his daughter,

> > who

> > > has CP, to Hungary (?) to try it. He was amazed

> > with

> > > it, so he hired some of them, brought them to

> > > Canada, and started Ability Camp. It is an intense

> > > form of therapy, yet made to be fun. The classes

> > are

> > > about 5 weeks long and between I think 5-6 hours

> > per

> > > day M-F. They are divided into age groups as young

> > > as 1 year (?). If I remember correctly, you have a

> > > son around 6 months old. The group he would fall

> > in

> > > is Moms and Tots for 3 and under. ( It may include

> > > kids younger than 1, I am not sure ). This is the

> > > only class that a parent is allowed into therapy,

> > > all of the other classes are for kids only -

> > except

> > > the first day - to keep the kids focused.

> > > Unfortunately, Moms and Tots is only held once a

> > > year, in January. 2002 will be from 1/7 - 2/8.

> > Some

> > > of the before and after videos I have seen are

> > > amazing, not saying that every child will have as

> > > good results. If you are interested, you really

> > > should get some info from them. Check it out and

> > > come up with your own opinion. Let me know what

> > you

> > > think!

> > > Heidi Faustini

> > > HFAUSTINI@...

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

> > __________________________________________________

> >

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