Re: Treatment Pretransplant & Post

[Guest guest]

I am a busy body and a talker No one at Mayo Clinic escaped me

without the third degree I was there for two weeks and now go up

every 3 months and I always meet post transplant people. Lots of them

and they are thrilled to share their story.

Most are not recovering addicts, most are like me never abused their

bodies in any way. All have had their transplants and gads they look

great even 2 months after transplant. The ones who have years under

their belt say they are only on 1 medication and its a very low dose.

They all look fabulous and you would never know they had HepC and a

liver transplant! I actually enjoy going to Mayo because it is filled

with positive energy about TP.

In my conversations with people the usual time frame for the virus to

come back is 5 to 8 years after transplant unless you clear the virus

before transplant. How quickly it accelerates depends on life style,

attitude, diet, current health issues and age. Most I talked to were

my age or older.

There are miracles!!!! People have spontaneously cleared the virus

after transplant and never have it come back. That's what I look for

miracles. Right now I have to dance to their tunes and rules but

after transplant I WILL be using only alternatives along with the

anti rejection medication. Hopefully with the miracles occurring in

medicine I may even be able to get off the very toxic anti-rejection

medication. I love my gastro doctor. He agrees with me that all this

crappola medication I am on is slowly poisoning my body. Its all I

have right now.

None of the above is cold hard facts just info I gleaned during my

stays at Mayo Clinic. The nurses are a wealth of information too!!

Not everything about this virus has been negative for me. So far it

has pulled people I had no idea cared about me closer. My husband who

for the past 6 years has been on a down hill side of retirement

boredom, and becoming a mean cranky old man of 63, has changed

completely!!! Its actually brought us closer together and I am

treated like a fragile glass princess He loves being needed! My

family was never one to verbally express love. WOW I felt very

uncomfortable when everyone started telling me how much they loved me

each and every time we talk. They have all said if I need them call

and they will be there instantly. I eat better and take better care

of myself because I am retired and disabled. Life has slowed to a

crawl which is new for me. All positives but of course the dang

negatives far out weigh them

> >

> > Rich, you are speaking as if in the same room! Have to

check my

> bugs

> > again! As soon as these 2 apparent opptions arose, my

wife,

> , and

> > I both wanted the transplant only. This other

possibility just came

> up a

> > few days ago, so we're still learning and getting over

the shock of

> it.

> > I like hearing that your transplant went so well, and

if I could

> come

> > close to your quick recovery, I would be ecstatic! I'd

be trippin,

> man!

> > The hell with the pain, we've all had that too many

decades, but to

> feel

> > clear headed is unimaginable. Congrats to you Rich, and

let's hope

> I'll

> > be less that a year after your surgery. Did you have to

do another

> full

> > round of tx for the HCV after your body settled down

from the

> surgery?

> >

> > Thanks again, Rich. from Rick

>