Very important lessons can be learned from this for ourselves for others

[Guest guest]

Emotions are running high on overload I think for just about everyone in group which is natural.

Pat is blunt honest gets to the point to open peoples eyes speaking from first hand personal experiences loss of husband of 20 years to ESLD supporting him and his last request to stay at home with family not be admitted and loss of other close family members the same too.

This is not to cause any guilt but to open peoples eyes to ESLD from HCV and for acceptance of it of the person of our members before the end of ESLD or before it is too late.

Yes we all share the same in common HCV but for some of us and here in this group it is a terminal diagnoses prognoses.

ESLD end stage liver disease means exactly what it states end stage of liver and life with a slow shut down failure of liver organs and body.

For some people there is no more medical science has to offer us for our long term survivals.

I use We because from being at this for many years other peoples personal discussions and my own personal experiences it is generally the same.

We only ask for the same acceptance acknowledgment respect support of us as a person our dx's our prognoses and in group. We don't ask for or are in need of

sympathy hate it wish to enjoy everyday with people friends loved ones to it's fullest

with no burdens guilt placed upon them because of our dx's prognoses.

We keep personal discussions details symptoms struggles feelings for the most part to ourselves share with others privately also in late stages because we live in fear of hurting scaring the hell out of others with HCV and our loved ones.

It is human nature to fear and not completely understand the unknowns but so much can be learned for the good much positives much personal growth support in working past our fears while we have the opportunities while the person is still with us by acceptance of the person and what they have shared with us. Not fearing the person fearing saying the wrong things not projecting their HCV dx's upon ourselves and full acceptance of others in ESLD and in group. Not saying anything to the person is much worse on us.

Just like our home page states this is a support group for members in all stages of HCV/Liver Disease. Yes to and through ESLD the final stages when acceptance love support respect and of our struggles triumphs daily simple accomplishments means the most to us from others and before it is too late for us to fully comprehend it from our friends loved ones. We know of what lies ahead for us and that each day in late stages toxins may rob us of clarity of mind understanding communicating more and more.

We have lost many family members close friends and our own members to ESLD and will again in the future. Why is it human nature and too many times the case - I wish I had taken the time and known them better before they left us - I wish I had said these things to them while I still had the chance.

If people did read fully accept Del's messages and like many other members here that said I am in ESLD especially if no transplant is medically possible than yesterday

should not have been a great shock to them and would have been better prepared for what he was telling us.

It is hard being handed a dx of HCV much harder being told sorry nothing more we can do for you you have a short life expectancy and harder not having people friends acknowledge that.

I had the choices of creating separate support groups with different formats for HCV and for HCV ESLD Transplant but said No we need the personal knowledge support acceptance of all of us in 1 group to learn share inform and support one another the best ways possible instead of segregation of groups stages support and people.

I wanted a true online support family for all of us because for many of us in late stages we also have feel the need to inform support and try to reach as many of us in earlier stages as possible before it is also too late for them while we still have the time.

We are an online support family with births birthdays weddings celebrations anniversaries graduations deaths memories.......

Now smile enjoy be happy for our online support family and for having the privileges of knowing great people to their end that have taught and given us so much enrichments in our own lives and great memories for many lifetimes.

Life is memories and what we leave behind for all others.

Create great memories of your own.

All The Best To Everyone

Deb

[Guest guest]

((((Deb)))) I wish I had a way with words like you do. Well said. Hugs, VickieG

Very important lessons can be learned from this for ourselves for others

Emotions are running high on overload I think for just about everyone in group which is natural.

Pat is blunt honest gets to the point to open peoples eyes speaking from first hand personal experiences loss of husband of 20 years to ESLD supporting him and his last request to stay at home with family not be admitted and loss of other close family members the same too.

This is not to cause any guilt but to open peoples eyes to ESLD from HCV and for acceptance of it of the person of our members before the end of ESLD or before it is too late.

Yes we all share the same in common HCV but for some of us and here in this group it is a terminal diagnoses prognoses.

ESLD end stage liver disease means exactly what it states end stage of liver and life with a slow shut down failure of liver organs and body.

For some people there is no more medical science has to offer us for our long term survivals.

I use We because from being at this for many years other peoples personal discussions and my own personal experiences it is generally the same.

We only ask for the same acceptance acknowledgment respect support of us as a person our dx's our prognoses and in group. We don't ask for or are in need of

sympathy hate it wish to enjoy everyday with people friends loved ones to it's fullest

with no burdens guilt placed upon them because of our dx's prognoses.

We keep personal discussions details symptoms struggles feelings for the most part to ourselves share with others privately also in late stages because we live in fear of hurting scaring the hell out of others with HCV and our loved ones.

It is human nature to fear and not completely understand the unknowns but so much can be learned for the good much positives much personal growth support in working past our fears while we have the opportunities while the person is still with us by acceptance of the person and what they have shared with us. Not fearing the person fearing saying the wrong things not projecting their HCV dx's upon ourselves and full acceptance of others in ESLD and in group. Not saying anything to the person is much worse on us.

Just like our home page states this is a support group for members in all stages of HCV/Liver Disease. Yes to and through ESLD the final stages when acceptance love support respect and of our struggles triumphs daily simple accomplishments means the most to us from others and before it is too late for us to fully comprehend it from our friends loved ones. We know of what lies ahead for us and that each day in late stages toxins may rob us of clarity of mind understanding communicating more and more.

We have lost many family members close friends and our own members to ESLD and will again in the future. Why is it human nature and too many times the case - I wish I had taken the time and known them better before they left us - I wish I had said these things to them while I still had the chance.

If people did read fully accept Del's messages and like many other members here that said I am in ESLD especially if no transplant is medically possible than yesterday

should not have been a great shock to them and would have been better prepared for what he was telling us.

It is hard being handed a dx of HCV much harder being told sorry nothing more we can do for you you have a short life expectancy and harder not having people friends acknowledge that.

I had the choices of creating separate support groups with different formats for HCV and for HCV ESLD Transplant but said No we need the personal knowledge support acceptance of all of us in 1 group to learn share inform and support one another the best ways possible instead of segregation of groups stages support and people.

I wanted a true online support family for all of us because for many of us in late stages we also have feel the need to inform support and try to reach as many of us in earlier stages as possible before it is also too late for them while we still have the time.

We are an online support family with births birthdays weddings celebrations anniversaries graduations deaths memories.... ...

Now smile enjoy be happy for our online support family and for having the privileges of knowing great people to their end that have taught and given us so much enrichments in our own lives and great memories for many lifetimes.

Life is memories and what we leave behind for all others.

Create great memories of your own.

All The Best To Everyone

Deb

[Guest guest]

I aI agree that this is a family for everyone and should stay that way.Yes end stage scares the hell out of us,but it is the truth and we all need a place to vent and talk.I worry more about scaring the new ones,but they also have to hear the truth,so that perhaps it won't go that far for them with the treatments that are already out and new ones coming along.If treatment doesn't work the first time,it gives your body time that you need to find another treatment until the right one comes along.Treatment helps to heal the liver,thus giving you more time.Each member in this group is a member of my family and I will do all I can to get you well again if it is possible.The ones that have done everything possible to get better,I pray a transplant comes along for them in time.

Talk to your family and get organs donated for the people that need them desperately or there can also be a living doner.Lets educate our family,friends,aquaintences,everybody about organ donation.

Gail

-----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of DebSent: June 25, 2008 8:39 AMTo: hepatitiscsupportgroupfordummies Subject: Very important lessons can be learned from this for ourselves for others

Emotions are running high on overload I think for just about everyone in group which is natural.

Pat is blunt honest gets to the point to open peoples eyes speaking from first hand personal experiences loss of husband of 20 years to ESLD supporting him and his last request to stay at home with family not be admitted and loss of other close family members the same too.

This is not to cause any guilt but to open peoples eyes to ESLD from HCV and for acceptance of it of the person of our members before the end of ESLD or before it is too late.

Yes we all share the same in common HCV but for some of us and here in this group it is a terminal diagnoses prognoses.

ESLD end stage liver disease means exactly what it states end stage of liver and life with a slow shut down failure of liver organs and body.

For some people there is no more medical science has to offer us for our long term survivals.

I use We because from being at this for many years other peoples personal discussions and my own personal experiences it is generally the same.

We only ask for the same acceptance acknowledgment respect support of us as a person our dx's our prognoses and in group. We don't ask for or are in need of

sympathy hate it wish to enjoy everyday with people friends loved ones to it's fullest

with no burdens guilt placed upon them because of our dx's prognoses.

We keep personal discussions details symptoms struggles feelings for the most part to ourselves share with others privately also in late stages because we live in fear of hurting scaring the hell out of others with HCV and our loved ones.

It is human nature to fear and not completely understand the unknowns but so much can be learned for the good much positives much personal growth support in working past our fears while we have the opportunities while the person is still with us by acceptance of the person and what they have shared with us. Not fearing the person fearing saying the wrong things not projecting their HCV dx's upon ourselves and full acceptance of others in ESLD and in group. Not saying anything to the person is much worse on us.

Just like our home page states this is a support group for members in all stages of HCV/Liver Disease. Yes to and through ESLD the final stages when acceptance love support respect and of our struggles triumphs daily simple accomplishments means the most to us from others and before it is too late for us to fully comprehend it from our friends loved ones. We know of what lies ahead for us and that each day in late stages toxins may rob us of clarity of mind understanding communicating more and more.

We have lost many family members close friends and our own members to ESLD and will again in the future. Why is it human nature and too many times the case - I wish I had taken the time and known them better before they left us - I wish I had said these things to them while I still had the chance.

If people did read fully accept Del's messages and like many other members here that said I am in ESLD especially if no transplant is medically possible than yesterday

should not have been a great shock to them and would have been better prepared for what he was telling us.

It is hard being handed a dx of HCV much harder being told sorry nothing more we can do for you you have a short life expectancy and harder not having people friends acknowledge that.

I had the choices of creating separate support groups with different formats for HCV and for HCV ESLD Transplant but said No we need the personal knowledge support acceptance of all of us in 1 group to learn share inform and support one another the best ways possible instead of segregation of groups stages support and people.

I wanted a true online support family for all of us because for many of us in late stages we also have feel the need to inform support and try to reach as many of us in earlier stages as possible before it is also too late for them while we still have the time.

We are an online support family with births birthdays weddings celebrations anniversaries graduations deaths memories.......

Now smile enjoy be happy for our online support family and for having the privileges of knowing great people to their end that have taught and given us so much enrichments in our own lives and great memories for many lifetimes.

Life is memories and what we leave behind for all others.

Create great memories of your own.

All The Best To Everyone

Deb